Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

For Women Only (please)
0

21 posts in this topic

Hi All, I need to ask a very personal question, because I am hoping I am not the only one that gets sicker when our 'friend" comes. Every month about 2-3 days prior to my period coming I am sicker than a dog. My periods are now lasting a lot longer since being diagnosed, are very heavy and I am normally sick during it. I have gone to see my gyne about this and she has put me on hormones and cannot understand why all of a sudden things have gotten worse. One thing she did say to me is that celiac disease plays havoc on your immune system as well as your period.

So if anyone would like to share any ideas, suggestions.... etc. I would certainly appreciate any input.

Thank You,

Linda <_<

0

Share this post


Link to post
Share on other sites


Ads by Google:

My periods have always been a monster. Lasting 6-7 days, heavy flow - especially the first 3, cramps that have sent me to bed, and PMS like mad! I have only been gluten-free for 2 months, but since this time my periods have been worse, if that is possible! lol...I just got one saturday and I was sick that day, in fact I stayed home from church which never happens. I noticed I bled like crazy too for the first 2 days - more than usual (I went through more pads/tampons than usual - I had to hit the store again). I hope this isn't too much discription, but I thought I should share.

Deanna

0

Share this post


Link to post
Share on other sites

I've always gotten bad cramps, though less so on hormones (and I really can't tolerate them any more, so I haven't been on them in nearly two years). I haven't notice it change when being gluten-free or not, but it does appear (based on my charting) that gluten accidents delay ovulation for me. Wacky.

0

Share this post


Link to post
Share on other sites

My cramps had increasingly gotten worse, so I had my gynecologist put me on birth control. They're still there, but less severe. I, at first, thought maybe my stomach problems were due to my period. But, I think our stomachs may just be more sensitive during this time, because I'm sure it lowers our immune system. That's my opinion, anyways.

0

Share this post


Link to post
Share on other sites

Mine have totally got me stumped. First one on gluten-free diet was heavier than most and early. Second was almost non-existant. Third hasn't come at all! I'm 54 and haven't had any signs of menopause. Maybe Celiac kept it at bay and finally now it's come? I am at a loss and don't know what to think! If it is menopause. bring it on! Just no symptons like night sweats and hot flashes and weight gain please.

0

Share this post


Link to post
Share on other sites




I can't tell you much about going gluten-free and periods cause I had a hysterectomy at age 33 I'm now 47, due to having a constant beelding problem. after surgery I found out I had Adenomyosis. I always had long heavy periods with lots of cramps, clots, leg and hip pain. I thought it was normal for a period to last 8 to10 days as a teenager. Only after I got older did I realize it wasn't. I took BC pills for several years and It helped with the the heavy flow but not the cramps. After my surgery I didn't have to take hormons since they left an overy. now I get the hot flashes ( probably into menopause now) I refuse to take hormones since there is a big history of cancer in my family. I take soy pills and I can tolarate them. I think this is just another clue to Celiacs. Just seems the varied internal problems go on & on. <_<

Deb

0

Share this post


Link to post
Share on other sites

Yes! I get sick EVERY month.. I feel like i'm coming down w/ a cold or flu and am soooo tired on top of having bad cramps and heavy/long periods. I have gone to many gynos and they put me on Birth COntrol (which makes me absolutely sick,) and hormones.. nothing works.. i thought it was just me.

0

Share this post


Link to post
Share on other sites

I was just diagnosed with celiac. Back in May I had an endometrial ablation to stop my bleeding. I had been bleeding for over a year straight and it wasnt light. It was niagra falls daily. After my surgery I noticed that a couple days before my period I would get so sick. I would be out of work at least 2 days. I would shake real bad, just felt aweful. When I went in after 3 months my dr couldnt believe I was still have a monthly period that lasted 7-10 days. Then I told him I had celiac and he just looked at me and said he was sorry. We talked about hormones but both decided to wait until I got going on the diet. He said that celiac affects your organs so weird. he also said that might have been my problem from the get go. So, I have been gluten-free for about 2 wks now and my next cycle is coming around so we will see what effect it has on my body. I know how it feels. It stinks

christ

0

Share this post


Link to post
Share on other sites

maybe you'll feel better the longer you are gluten-free

0

Share this post


Link to post
Share on other sites

<_< Hi everyone, I would like to thank all that have answered my question. I am so glad that I am not the only one that is having problems. My doctor gave me these hormones to stop the bleeding, but what about all of the other symptoms? Those are the ones that I can not handle. I was so sick this morning I didn't think I was going to make it into work. I can't take the pill because of my age (I'm 41).

So I am waiting for the results to my ultrasound, hopefully I'll hear today. Hope all is well with that.

All... Have a great day and a wonderful week!

Linda

0

Share this post


Link to post
Share on other sites

Hi - I, too, have had cycle problems and gastro problems that seem to go together. I had my uterus removed (kept ovaries) in Sept 03. I was diagnosed with Celiac in April 04 and have been gluten-free since then. Since my ovaries still cycle, I still get worse gastro symptoms around the PMS/cycle time, although I do feel a lot better physically with no bleeding. It is very frustrating that going gluten-free doesn't solve everything and it sounds like this is a common occurence for those of us with Celiac. Best of luck to everyone!!

Lisa in NC

0

Share this post


Link to post
Share on other sites

I guess I'm the weirdo here. I have barely any period. I'm on the pill - have been for 18 years - and have had low hemoglobin and taken iron also for the same length of time, sometimes I've been taking iron as much as three times a day. I've had two periods since going gluten-free and haven't noticed any difference except they may be even lighter than before. I only use a pantyliner. (I know - don't all hate me!) Maybe it's not having enough blood to spare! :blink:

BTW - I am in three forums for Celiac and this one is the funniest about the gross descriptions of things. The other two are SO careful about every little "BM" or whatever - this one cracks me up how descriptive and open everything is. Kind of refreshing, actually. We have all been through so much. I remember when I first went to the doc with this problem, I was so embarrassed - now I'm telling people about it in the grocery store! :lol:

Celeste

0

Share this post


Link to post
Share on other sites
BTW - I am in three forums for Celiac and this one is the funniest about the gross descriptions of things. The other two are SO careful about every little "BM" or whatever - this one cracks me up how descriptive and open everything is. Kind of refreshing, actually. We have all been through so much. I remember when I first went to the doc with this problem, I was so embarrassed - now I'm telling people about it in the grocery store! :lol:

I love that about this place too... that we can talk. The more afraid we are to talk about things, the more of a risk that we won't talk when we need to and possibly put ourselves in a harmful health situation. There's no harm in being real (with tact) :D

Gretchen

0

Share this post


Link to post
Share on other sites

I just came back from my gyno as I was having hot flashes, etc thinking I was getting close to "THE change". She put me on "continuous hormone therapy". I use a Nuvaring (a hormone ring you insert and leave for 3 weeks). After three weeks I use another and again the next 3 weeks. Then I remove for a week and use an estrogen patch until I use another ring. She said I need to keep my hormone levels constant and with Celiac it might be better for me not to have so many periods anyway. With this method I will only have 4 a year. Has anyone else tried this? She said they actually tried it in the 60's and 70's but women would not do it because they did not feel right about skipping periods. Also since the rings hormones go directly to the uterus and not in the blood stream it doesn't have the same side effects as the pill.

Anyway I thought I would share this info!

0

Share this post


Link to post
Share on other sites

<_< Hi Janine, Thanks you for your input. Mt doctor put me on a hormone pill that was great, no more bleeding, however I was feeling very sick with it. So I will ask her about the ring, and see if that is something I can use.

Celeste,

I agree with you. This forum is great. If it wasn't for this forum and people speaking more candidly, I don't think any of us would feel as free to talk how we want (again with tact).

0

Share this post


Link to post
Share on other sites

I had terrible problems with heavy flow, lots of pain, dizzyness, mood swings, you name it - and for a few months I was getting my period every two weeks and was put on hormone therapy.

Someone suggested a hormone IUD (Mirena) and although it is fairly painful to insert and you can have continuous spotting for weeks after insertion, the end result is usually period-free 5 years! I certainly haven't had periods since it was put in and although I still get some of the hormonal cycle symptoms, they are a mere fraction of what I used to go through and there is no pain.

0

Share this post


Link to post
Share on other sites

Hi my name is Kathleen. I don't know if I am in the right area of the forum, but I need to find out some information. I too have mentrual problems. I have heavy bleeding and always have and they last 5 to 7 days. I am 45 now and going through menopause, I think. I get the the hot flashes from hell. I get a severe headache the first day of every period. I mean the put you to bed for the day type of headache. I have never had menstrual cramps or back aches, but have severe PMS. You can not live with me for the first day or so. I also have been diagnosed with SLE (Systemic Lupus Erythmetosis) in 1997. My Lupus doctor told me that Hormones are definitely out of the question. They could send me into a severe Lupus Flare. What I am wondering is do Lupus and celiac disease ever go hand in hand? I am being tested for celiac disease, because my twin sister has celiac disease and I have a lot of the symptoms of it. If anyone has any answers could they please post and talk with me about this?

Thanks

Kathleen W.

0

Share this post


Link to post
Share on other sites

Yes, celiac disease and most other autoimmune diseases are connected. I can't say if going gluten-free will relieve symptoms either from the lupus or the menopause, but there's certainly a chance of it.

0

Share this post


Link to post
Share on other sites

Hi, all!

I am cursed, too, with a very heavy period, that lasts about 5-6 days on average. I have had Celiac's since 1995. I also get the mood swings, but I don't suffer from the bad cramping anymore. I think this occured, because I just gave birth to my 3rd child in May. I thought I was alone with the agony, but I guess I'm not. Do the hormones or birth control really work? Let me know.

Vicki :)

0

Share this post


Link to post
Share on other sites

Hi Vicki,

Thanks for your reply. I have heard that hormone pills do work, but they are not an option for me at all. I asked my Rheumatologist if I could try them, because my Sister-in-law is using them and they help with the hot flashes and he said absolutely not. He shot it down quick, fast, and in a hurry like, because he told me it will put me into a severe Lupus Flare. Oh well. If you don't have Lupus, ask your doctor about it.

Kathleen

0

Share this post


Link to post
Share on other sites

WOW! That is interesting to read because I haven't been diagnosed with celiac disease yet but we are testing our son and will get the biopsy back on Tues, he had + TTG blood tests.

I have always had horrible periods. I get sick as a dog, migrains, diarhea, vomiting sometimes... Heavy bleeding and cramps... I have been diagnosed with endometriosis and uterine fibroids and ovarian cysts... all have been diagnosed by surgery or mri/ultrasound. I just figured it was my luck, but since we have been reading and learning about celiac disease I have wondered if all my problems are related to it and I am a carrieer...

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,640
    • Total Posts
      921,547
  • Topics

  • Posts

    • You should never have cut out gluten until you had the biopsy done. It's much worse to have to go back on after you've been off gluten for a while. There's no way I could ever do the gluten challenge after being off gluten for even a month because my reactions got so dramatically worse.  Stress definately can trigger celiac- before I was diagnosed - it got the worst after surgery and after a stressful time planning my daughters wedding. 
    • Hi not diagnosed celiac, Welcome to the forum! Your doctor should be sent to remedial celiac disease training.  Since that probably won't happen, I suggest you find a new doctor.  He doesn't know what he's doing when it comes to diagnosing celiac disease. You should not have gone gluten-free before completing all celiac disease testing.  The testing for celiac disease depends on the immune reaction being active.  Removing gluten before testing removes the antigen that causes the immune system to react, and lowers the chances of getting a correct test result dramatically.  The University of Chicago celiac disease center recommends: ******************************************** http://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/ Prior to blood testing we recommend 12 weeks of eating gluten. Prior to an endoscopic biopsy we recommend 2 weeks of eating gluten. In the case of a severe reaction to gluten, a medical professional may opt to shorten the 12-week challenge and move immediately to an endoscopic biopsy. May, 2013 ******************************************** So you will need to go back to eating gluten before your endoscopy.  That may cause worse symptoms than before when you were eating gluten.  So it would have been better to do all testing before going gluten-free. Can you search for a celiac disease support group in your area?  They exist in many parts of the USA and world.  They can be a good place to get a knowledgeable doctor recommendation.  There is also a doctors subsection of this forum where you can search to see if any doctors in your area were recommended.
    • Hi All, I'm new to this and very confused! I have Lea & Perrins WC sauce, it lists it's first ingredient as Malt Vinegar.  I have the Coeliac Society of Ireland Food List 2015 here, and it says "All Vinegars are Gluten Free including Malt Vinegar." Doesn't that mean that L&P Worcestershire sauce is safe?   Their website states " Lea & Perrins® Worcestershire Sauce is cholesterol free, fat free, preservative free, gluten free and has 80% less sodium than soy sauce. " I'm cooking for my coeliac niece, can't afford to make a mistake!
    • I get these crazy cravings for some things I can not eat anymore. Not only am I diagnosed with celiac but I also have a allergy to corn, olives, sesame, peanuts, and intolerance to yeast, soy, dairy, and a very low tolerance for carbs/sugars, Top it off with I can not digest meats or egg yolks, they just give me the burps and come up later.
        To deal with these I find myself turning to Republic of Teas (They have a great desert tea line up all certified gluten-free) and sweetening them with monk fruit extract, or stevia. And I find myself making Puddings bases that I use for shakes, dips, and ice-cream for meals. The puddings are normally a blend of cashew, or almond milk with a thickening agent like agar agar, pectin, or knoxx gelatin, blended with a sweetener like xylitol, swerve, stevia, monk fruit or a combination. And flavored with Lor Ann Oils (all gluten-free certified and you can find the kosher ones listed as such) super strength flavors or fountain syrups to match something I can not eat normally a combination of two flavors (Strawberry Cheesecake, Banana and Carmel, Cookies & Cream, etc) Then I add a fat that matches best, like almond butter, cashew butter, hemp butter, ground flax seed, coconut flour, chocolate, Pumpkin seed butter or a combination) These bases are normally blended up and consumed with 1-2 scoops of protein powder and eaten with steamed vegges as a side dip or loaded into a ice cream maker for a desert after my meals.      Also found myself making desert soups....like a pumpkin soup that taste like pumpkin pie. I am sure we all have our little quirks but this is one of mine for getting that sweet craving taken care of. Most premade items are off my list due to the allergies and it seems most companies use the oils, starches I am allergic to as non stick or thickening agents, Even the semi safe ones tend to put way to much sugars in them and I find myself only being able to nibble . There is also my little binge issues with almonds, pumpkin seeds, and, cocoa but that was explained to me as normal And on my most craving for peanuts I have found sancha inchi powder to work great, The Powder itself taste like the girl scout peanut butter cookie sandwich from my childhood, And is great mixed with a bit of almond milk into a butter or used in baking and smoothies. Before this I have been making Artisan blends of almond butter for years and even made a market selling them to pay  for my own consumption. Baked goods wise I have a bunch of recipes I make for others and sell at markets and this allows me to nibble on a sample to check it, as most contain a bean or gluten-free Harvest Oats/Flour in them and the carbs from that and the coconut sugars bother me. Still helps with cravings there, I only have 2 recipes that sell good and are safe for me to eat full servings of but are so expensive as they use almond and coconut flours, low sugars/xylitol and are paleo that I only can afford to make them once a month. Posting to hear about some odd and out there ways others deal with substitutions and cravings. Please do not bash mine as odd as they might be as they keep me from going crazy. (Yes I know DROP THE OATS, fact is I only get them when tasting stuff and they are gluten-free Harvest, the only ones I have never gotten glutend with)  
    • After suffering pretty much all year with one illness after another I've finally managed to get a diagnosis and it turns out to be celiac. After my doctors consistently failing to even consider the possibility it might be that (as opposed to "IBS" or "stress") I kept pushing for the Iga TTg test and it was off the charts with a score of >128... may as well fail it in style I guess. So here I am at the start of what feels like the end of my life as I know it. Been doing nothing but reading for the past week and frankly it's terrifying. Here's a few things that are going round in my head and I'd really appreciate your thoughts with. Apologies if it's a bit of an essay  Diagnosis I'm still furious at my doctors for not even entertaining the thought that celiac could be the root cause of all my ills. Given the blood test is so simple it feels almost negligent that they don't run this right at the start to rule it out. Instead I got subjected to poisons like Omeprazole which made me even more ill, whilst being told the physical symptoms were all in my head. Just as well I knew better and kept hitting up Google until my self-diagnosis was proved correct... to think these people get paid highly to be so incompetent makes my blood boil. Does feel good having outwitted the so-called professionals though. Seems 9 months is comparatively quick from symptoms to diagnosis compared to some others that have gone years with the problems so could be worse I guess. Food and diet I'm male vegetarian (non-negotiable) which makes this even harder as so many of my protein sources are now ruled out. Seems many with celiac were having trouble losing weight whereas I'm in the opposite situation. Already lost best part of a stone in the past few weeks and it's becoming noticeable now. The MyFitnessPal app reckons I need 2600 calories a day to maintain \ gain weight - no idea where that's going to come from. On top of that I read sites like Gluten Dude where even the Gluten Free foods are seen as poisons and going on extreme diets like Paleo \ SCD are the only real way forward. Again being veggie makes that practically impossible and if I'm unlucky enough to end up with the dairy issues as well I'm well and truly stuffed. Right now I'm trying the gluten-free Quorn products to see how I go, as well as more eggs etc. Porridge has been my go-to breakfast in the mornings for a while after I cut out bread whilst self-diagnosing but depending on where you read even that's a potential problem (currently using gluten-free porridge oats and seeing how it goes) Seems many gluten-free people have to go right back to basics and cook everything from scratch. That's a problem for me as I'm utterly hopeless on that front and time doesn't permit waiting hours just to prepare one meal. Seems nigh-on impossible to do day-in, day-out. Health Rightly or wrongly right now I see this diagnosis as a death sentence long-term. Looks like it brings other associated illnesses with it and this particular article really scares me: http://scdlifestyle.com/2012/03/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/ I've only really had noticeable symptoms for the past year or so but wonder how long this has been going on for and what damage has already been done. All seems to have started from when I turned 30 (knew I was dreading that age for a reason) and right now I wonder how long I'm going to last before the really bad stuff starts. One of the other illnesses I'd considered as a possibility before getting diagnosed was Hashimoto's Thyroiditis; now it seems that's closely linked with Celiac so may not be out of the woods with that yet either. Just seems to be one big list of illness all triggered from the same point One positive change I've noticed thus far since cutting out gluten is that bloating seems to have gone down and bowel movements are better. Still getting headaches and muscle twitching, which could be as much a withdrawal symptom from gluten as anything else.  Some sites were suggesting stopping exercise whilst withdrawing but I can't face that as it's the only thing keeping me going at present. Again will keep going as-was and see what happens. Then to top it off it sounds like the next step is the biopsy - I'm scared of being put out for the procedure as a member of family went into hospital a few years back for something supposedly routine and never came back out. From what I've been told it's important to have done though as it shows just how broken the villi are so another thing to worry about in the meantime. I've just read on another thread that you have to be on gluten to have the test, that's another kicker after having started to cut it out the diet. With such a high blood test Iga-TTg score isn't it almost certain that celiac is the cause and the endoscopy in this case is just confirming levels of damage? OK means I can have a final blow-out eating all the "bad" foods but no doubt with all the side effects that come with it... Social life Seems like despite there being some gluten free options in certain restaurants (granted better now than years ago) I'm going to be hugely limited in food options. Either sitting on the side looking on or just plain not able to go out much anymore. Already had the first hitting-home moment watching colleagues eating pastries that were brought in while I just have to look on... then it dawns that this is never going to get better... urghhh Family life I'm really struggling to accept this lifelong illness and loss of health and it's taking a toll on the people around me at the moment. They won't be going gluten-free so will have to take my chances with the mixed kitchen environment; already gone with split toasters etc. so can't do much more than that. Dating Basically seems game over on that front, unlike many who are diagnosed with understanding partners \ spouses I'm still in the dating game, which is judgemental enough as it is without all the complications that the gluten issues bring. I'm reading even kissing someone with lipstick \ make-up is apparently a big no-no... once any date hears that they won't be coming back... forever alone status confirmed is how it looks right now. Overall feelings I still can't quite figure out if this illness was in me all along and just hasn't flared up enough to notice until now or whether the extreme stress I've been under for the past year or so has triggered it. If the second scenario is correct I can't stop thinking about the events that all led up to this almost year-long bout of ill health and life-changing diagnosis. Can celiac be brought on by stress alone or realistically was I always a ticking timebomb just waiting to be set off? For every person I see that's had a positive change after cutting out gluten (and getting by with reasonably achievable adjustments) there seems to be 10 others with horrible side-effects and long-term complications. Right now the future feels rather bleak - like all hope just been taken away. Help???
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,643
    • Most Online
      3,093

    Newest Member
    moojoo
    Joined