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Aciphex? Is This Common Medication For Celiacs?
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I was diagnosed with Celiac Disease about 8 months ago based on various blood tests with minor indicators, liver tests which showed very slight hepatitus, and finally an EGD. My GI Doctor was convinced that I had it, although I have never had any physical symptom.

I started my Gluten-Free diet (I have not cheated), and went in for a follow up EGD today. My doctor was convinced we would see improvements, but visually nothing seemed to have improved. Of course he implied to my wife that I was cheating on my diet. Had I been coherant, I would have told him off.

Now he wants me to take Aciphex once a day claiming that I must have Acid Reflux problems due to all the inflamation that I still have. And just like the Celiac Disease, I have never had any outward symptoms/problems with anything even resembling heartburn.

I've seen the EGD pictures, and I can't deny that something is not right. Is Acid Reflux a common problem related to Celiac Disease? Is Aciphex a common medication for Celiacs?

I welcome any insight.

Thx - AZPhil

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My dr. told me the same thing after my endoscopy, and I have taken Aciphex for about a year now. It really helped me eat better and made the bloating in my stomach go down, but I do have some abdominal bloating and pain now and I'm wondering if that's the result of taking a PPI drug or just a coincidence. I would say try it and see how you feel. Like you, I didn't realize how bad my stomach inflammation had become until AFTER I took Aciphex, and saw how much better I felt.

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I was precribed Aciphex prior to my diagnosis. It only helped prevent vomiting a few times, but I don't know how well it works for heartburn. It is gluten-free though :D

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My doctor has me taking Prilosec. I, too, never had heartburn but he said my esophogus was pretty bad :(

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Even after avoiding gluten for several months I still had my old familar 'instant reflux' (food came up easily after every meal unless I stayed perfectly vertical for 3-4 hours and did not overeat a bite) and acid reflux after consuming citrus, tomatoes, coffee and alcohol. HOWEVER when I learned I also was casein (milk protein) intolerant and cut out all dairy, my longterm acid reflux disappeared. Now even when I overeat, what goes down, STAYS down. ;)

BURDEE

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OK, first, a disclaimer: I am not a doctor, I have no scientific studies to back up my claims. I only can speak to what I have read and experienced. The following is not advice, only my opinion. :rolleyes:

It was actually heartburn that got my family doctor to finally refer me to a GI specialist. In the process of doing the endoscopy to try to find the cause and severity of my heartburn, he discovered I had Celiac disease! Even he later told me the two are not related! I disagree!!!

What is heartburn? It is a physical manifestation of acid reflux. When the acid from your stomach back-feeds into your esophagus, it can produce pain. The lining of the stomach can take the acidity, the esophagus can't.

Most doctors seem to think the way to cure this problem is to reduce the amount of acid in your stomach. While this may be the correct approach in some instances, in most cases, this only masks the underlying problem. By reducing the amount of acid (or more correctly, the acidity), you no longer "feel" the reflux because it is not so corrosive to the esophagus. However, the reflux is still occurring!

Here comes the wild part! The reason the reflux is still occurring and the reason it was occurring in the first place is because there is not ENOUGH acid in the stomach!!!

Stomachs need acid to properly break down food so the small intestine can absorb nutrients from it. One of the things that can happen if there is insufficient acid is bloating. It is the bloating and gas build up from improper digestion that is the root cause of acid reflux (there are rare exceptions - I'm speaking generally here!).

After going on the gluten-free diet for several months, I tried weening myself off the Aciphex several times with no success. Finally, after exhaustive reading about this whole topic, I began taking Betaine HCL. This ADDS acid to your stomach. I again went off the Aciphex and this time I stayed off! I have not had heartburn ever since! It's been about 8 or 9 months now.

So why do most doctors continue prescribing Aciphex, Nexium, Prevacid, et. al.? Some suggest the doctors are getting kickbacks from the drug companies! I think that is outlandish! Doctors are part of an upstanding profession and would never stoop to such corrupt practices. So why do they prescribe these medications, rather than first testing for stomach acidity? Gee, I really don't know! ;)

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I have been given Aciphex also, and I didn't think I needed it. I took it for a few weeks and then decided no more. Man was I sorry. I had a very gassy belly and kept burping (I know TMI). I started taking it again, and am feeling so good. I take it daily, and have been told I will probably have to continue to take it the rest of my life.

I wish you luck!

Linda :D

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Hi,

I am VERY interested in this issue. I've been gluten-free for about two weeks now, and would LOVE to get off of my Aciphex. But every time I try, my stomach feels like it's on fire. Sometimes I even have to take two a day. The odd thing is that if I sleep long enough to feel rested, the reflux is worse. Soy milk helps ease the discomfort, which is odd, I think. Anyway, the basic fact is that if I go off of the Aciphex, I'm no longer constipated. If I'm on it, my tummy feels better, but can't go to the bathroom to save my life. Sorry if that's TMI! ;) I also have gastroparesis....a condition where your stomach doesn't empty out the food - it just stays there and rots, and you get dehydrated, and malnourished. I would be curious to know if there are any others who have the gastroparesis along with the celiac disease.

None of the above info is probably helpful....I just was interested to know that there are others with the reflux problem. Thank goodness there IS Aciphex, eh? :-)

Take care,

Brenda

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    • Hello, I see you posted this a long while ago, and perhaps--I hope-- it's no longer a matter of concern, but I thought I'd mention that shortly before I was diagnosed for celiac's, I had distinct yellow blotches on the corners of my eyelids toward my nose. Some months after I had stopped eating gluten, the yellow gradually went away, and--as it just reappeared now several years later, I googled the issue again.  I am only speculating here, but I do believe it is related to liver problems, which, in turn, are related to celiac's. I don't think liver function tests cover all aspects of liver health. I say this because when I was pregnant I developed a temporary liver condition called interhepatic colestasis of pregnancy (ICP), but my liver function tests had been fine. (The condition is diagnosed based on bile levels in the blood, not on liver function). I discovered upon some research that (of course!) ICP  can be associated with celiac's disease.  My hunch is this-- that celiac's presents two problems to the liver: 1) the malabsorption of nutrients--esp. Vit. K2-- that are vital liver health; 2) since gluten registers as a toxin to the immune system (I think?), perhaps the liver gets overloaded processing so much toxic material. Or perhaps there's some other reason. At any rate, poor liver health and celiac's do seem to be linked, according to a few articles I've found. Anyway, hope your problems are resolved now.  
    • my daughter did stool test from enterolab but this gluten sensitive blood test is from http://requestatest.com/tests/search    
    • OK, was your daughter tested by a doctor or did you do one of these order online stool tests? And the same question goes for your tests. Can you give a link to the company?
    • NO. Approx. 1/3 of the population carries the genes for celiac but that does NOT mean they will ever present with celiac. Only a small percentage of them will. A gene test is really used more to rule out celiac rather than to diagnose it. What I meant was that since your daughter is diagnosed and IF you carry one or both of the celiac genes then there is a greater chance you are celiac or "early stages" especially in light of your symptoms. All 3 of those factors weighed together was what I was referring to.
    • by the way, I do find the lab who does the gluten sensitive test Gluten Allergy IgE Test This test is used to determine if a person has an allergic reaction to gluten, a protein found in wheat, barley, and rye.  Roughly 1 in 30 adults and 1 in 40 children suffer from a Gluten Allergy.  An IgE test looks for antibodies which develop in a person who has a particular allergy.  Gluten Allergy can display symptoms similar to other conditions such as Celiac Disease.  Unlike an allergy, Celiac Disease can do permanent harm to the body if left untreated.  Allergy testing when a person is experiencing symptoms can help identify or rule out an allergy as the cause.

      Gluten Allergy is typically less severe than other Gluten related conditions like Celiac Disease.  People with Gluten Allergy will often experience abdominal discomfort, bloating, gas, constipation, or diarrhea when they eat products containing gluten.  These symptoms usually stop when a person cuts gluten out of their diet.

      A Gluten Allergy IgE test can be ordered to help determine if someone allergic to gluten.  This test can also be ordered when a person is testing for Celiac Disease and has had negative results on Celiac specific antibody tests.  An allergy test can also be ordered prior to Celiac testing to rule out Gluten Allergy as a likely cause for a person’s symptoms.
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