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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity

Having Celiac And Other Intolerances

4 posts in this topic

This may seem like a silly question. I was very recently diagnosed and have been reading alot on the boards about having other intolerances as well as Celiac. I am still trying to figure out how to get gluten completely out of my diet and as a result am still intermittently sick. I am pretty sure I am lactose intolerant since I seem to get sick every time I have milk/cheese etc. Beyond that, for the people who have other intolerances (xanthum gum etc) how did you know? What are the common other intolerances that I should look out for? Any advice?

Thanks!! :)


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Common sensitivities are wheat, corn, dairy, soy and eggs. It is because they are found in abundance in our foods.

It is actually easier in my opinion to eat fresh veggies, fruit and meat. It requires cooking, but at least you know what you are getting. And figuring out your intolerances is a lot easier.



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I would also recommend starting out with naturally gluten-free foods. I would stick to a basic diet of meats, rice, fruits and veggies. Once you start to feel better from removing all the gluten then you can start figuring other things out. If you think dairy is an issue, then cut it out.

Once you are stable and want to add foods back in, I would keep a food diary. I would just make notes when I didn't feel well and I could eventually see a pattern. With mine, I figured out that I can't have nightshades. I can have a handful of potato chips if that is all I have. If I follow that with spaghetti sauce then I will really get sick. I really didn't find a better way than trial and error and keeping track of everything.

As far as chemical and other things are concerned, I found I am very sensitive to them now. I never had a problem before but because I eat so healthy now, I can't tolerate much of that at all. I don't usually eat many processed foods because it is just easier.

Good luck!


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Start with obsessively eliminating EVERY possible source of gluten. If you notice difficulties digesting lactose (milk sugar), you could take 'lactaid' tablets when you want dairy products. If you still have symptoms after using 'lactaid' for dairy, you could have CASEIN (milk protein) allergy. You can then try eliminating ALL sources of dairy (casein, whey, rennet, lactose) to see whether that helps.

Elimination diets are not the best way to determine other food allergies. Even if you eliminate all but what people tell you are 'safe' foods, like turkey, rice and fresh vegies, you COULD have turkey, rice or vegie intolerances. A better route would be testing for food allergies. Enterolab tests for milk, egg, yeast and soy sensitivities, as well as gluten intolerance. ELISA blood tests can detect allergic reactions (IgG antibodies for 100 different commonly eaten foods). However you must be actively eating the foods when you give the blood sample for the tests. Enterolab tests can detect IgA antibodies up to a year after you stop eating foods which bother you. However they only test 5 of the 8 major allergen sources.

I have 5 food allergies/intolerances (including gluten). Enterolab tests detected my gluten, dairy and soy antibodies. ELISA test detected the egg and cane sugar allergy. However I also had bacterial imbalance (too much bad bacteria and no bifidobacteria, a good bacteria). So I also had 'symptoms' until I was treated for Klebsiella and given high dose probiotics to 'reseed' the good bacteria and restore a healthy balance.

So do your best to totally eliminate gluten from your diet. Then determine lactose or casein sensitivity. Next test for any remaining problems. Eating 'naturally' gluten free foods like fresh fruit, vegies, meats, won't work, if you have allergies to any of those 'natural' foods.



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    • turkey
      Turkey is gluten-free as long as it is not stuffed. You can make a good gluten-free stuffing using gluten-free bread. Dry the bread first and add what ever spices or veggies you wish, but cook it in a separate baking dish because stuffing the bird with it can cause bacteria to breed. And gravy must be thickened with corn starch or potato starch instead of wheat flour.
    • turkey
      so you can't even cook without stuffing inside turkey and not get gluten? Sorry I'm not familiar with turkey and wondering if I can have it while rest of family gets stuffing? In other words is turkey gluten free?
    • Numbness, Tingling in limbs & Joint Aches
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    • Positive & Increasing TTG -- questions re: testing & history
      I'm a 31-year-old high school teacher (currently on disability) who has been dealing with 4 years of major gastrointestinal problems, which resulted in major surgery for a rectal prolapse & redundant colon last August, prior to which I had lost about 20 pounds. The source of all my gas, bloating, distention & diarrhea has remained basically unexplained though ("lets trust the surgery resolves your obstructed defecation and in turn your gas... d'oh it made both  worse"  ) , and my symptoms have only gotten significantly more severe since surgery. I'm facing a permanent ostomy. I've also, for the first time in a lonnng time, been eating a lot of gluten every day... primarily out of depression and (misguided?) attempts to gain weight and keep stool soft. I've been typically slightly underweight for 10+ years. Suffered anorexia for a period 10 years ago, and since recovering have "naturally" maintained a low weight and low-wheat lifestyle (I've always been put off by heavy wheat items like bread, sandwiches & pasta, *shrug*). As a child I had crazy severe & unexplained constipation issues. I've also had strong teeth discoloration & marked enamel defects (& two missing adult teeth(?)) since childhood. Depression & anxiety have been longterm issues. I have osteoperosis, which was perviously explained by me being anorexic from 19-22. Everything changed 4 years ago upon the onset of all my (severe) classic-IBS symptoms (gas/bloat/d+c). On a low-gluten diet, TTG bloodwork came back "low-positive" repeatedly. A biopsy showed no damage, but my gluten intake at the time was limited to 2 cookies a day, or occasionally 2 cookies and a piece of pizza. Would this have been enough to show damage? I trialled going gluten-free for a few months, and didn't find a ton of relief... so assumed I was just FODMAP intolerant... however I was eating lots of oats and lactose that whole time, which I have subsequently identified as major triggers... not to mention just lots of gluten-free junk food. Wheat was obviously a significant gas trigger since this hit, but that seems typical for gut illness in general. Since my major surgery and the continuation and worsening of symptoms, I've connected with an internist who has again and again pushed me towards eating wheat as a method towards weight gain and healthy non-anxious eating. I also found that a high-wheat diet would provide the proper consistency (i.e. very loose diarrhea every day) to allow colorectal function (the surgery I had went very poorly and caused major obstructed defecation). I have not had success gaining weight, and have found my digestive system feeling assaulted like never before 24/7 by bloating, gas and discomfort, despite a relatively low-residue diet and constant elimination. My appetite has never ever been worse. I just had a fourth TTG test, and after this high-gluten diet I am now testing POSITIVE as opposed to BORDERLINE. Questions: 1) I suspect my first biopsy's gluten challenge wasn't quite heavy enough in terms of gluten content (couple cookies a day). Thoughts? 2) Could being underweight alone cause an elevated TTG? How about simply having colorectal surgery? 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I've heard about enamel defects, but missing teeth or crazy constipation? Obviously osteoperosis could connect, and doesn't *really* line up with my anorexia considering I was already fully grown. 5) Is there any way to get EMA/HLA blood tests done in Canada (BC)??? It's really frustrating that my only chance for any confirmation is waiting months and months here for another biopsy, especially considering how dire the need to improve my digestion is ASAP. I imagine if I could get an EMA test & it came back positive I would just take that as my confirmation and be able to move on with confidence here. 6) Is it common for celiac sufferers to find themselves reacting to FODMAPS and/or histamines in foods while they're  still maintaining a gluten-filled diet? Gluten definitely isn't my *only* trigger right now, and that's probably a primary reason I haven't been led to eliminate it at. Sorry for all the talk & questions, but I'm in an incredibly challenging place right now, my head is just swimming and swimming, and any thoughts would be greatly appreciated!   Bloodwork Current, after six months of a heavy-gluten diet = Tissue Transglutaminase Ab IgA ---18.0 ---- <12.0 U/mL = normal
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      (BioPlex) method.] 

      6 months ago = Tissue Transglutaminase Ab IgA ---13.0 ---- <12.0 U/mL = normal
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      (BioPlex) method.]

      2012, prior to negative biopsy = Tissue Transglutaminase Ab IgA ---24.0 ---- <20.0 RU/mL = normal
      Weak positive anti-TTG. Consider the possibility of celiac disease - a small bowel biopsy may be required.  
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