Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Anxieties/depression
0

33 posts in this topic

I too experience so many emotional troubles with gluten. I was a fairly bright talented kid and changed overnight. Of course my family hasnt liked me much since ,they think Im crazy. I developed an eating disorder got pregnant at 17......not to blame it all on gluten and allergies but my experience is that coping skills for already excisting problems are virtually not there when gluten is injested. Gastero intestinal issues came out 10 years ago, first as weight loss and d, then the opposite. I am also short at 5 feet and the rest of my family is tall. So many years of doctor hopping marriage issues and antideprssants later(which never worked) I found a doctor that listened. She took my history height and did blood work and diagnosed me celiac. Mainly on how much the diet improved me. My gastero appointment is not for another 6 months so she advised me to go gluten free anyways and forget about the biopsy, Im going anyways cause my grandma who was the only other short stature in my family died of lymphoma(interestingly enough she got sick on wheat)I can definatly tell the difference!!! It was so bad that I started to get seizure symptoms from vitamin deficiencies. I had already been low gluten and thought It was wheat that triggered the symptoms,now realize that it was gluten and casien. Has any of your family been understanding? Mine arent, I have to stay clear of most. I see that some of you are christians have you made your church your home? I have three sons,one of which is autistic and the other two my doctor is shure they have celiac, I will always try to support my kids, feeling alone is the wost part of this illness. My hubby tries his best!!! This forum is probably an excellent way to get support everyone is going through some of the same things!!EXCELLANT!!!

0

Share this post


Link to post
Share on other sites


Ads by Google:

someone on this thread mentioned "cheating", i am sorry, if you are really a celiac, you should NOT be cheating, it is so dangerous for you, it is like you aren't gluten-free at all, it is a big step back, and you should take care of yourself and really never "cheat" on purpose! Its like intentionally hurting your body. I'm sure someone on here could find a yummy gluten-free wing recipe for you. I didn't mean that to sound mean, I'm just worreid for you and hope your ealize how dangerous that is!!!That being said, i'm the most anxious person about gluten alive, its very hard being in college and dating and not being able to eat anything, like i'm sure you can all relate to.

0

Share this post


Link to post
Share on other sites

Anxiety, brain fog and depression are my first indicators that I have been glutened. I was days away from going on anti-depressants when I figured out my gluten intolerance.

St. John's Wort needs time - usually a couple of weeks - to build up in the bloodstream before it is really effective.

I've used it since before I was diagnosed, and still use it now (a lesser dose).

I also use a custom herb tincture, from a local herbalist, that includes kava kava and motherwort. I am able to use it daily as needed, and in case of an anxiety attack. I haven't had any anxiety (except for the rare glutening) since I went gluten-free.

Always check w/ your doc before adding any herbs or supplements, including SJW. And if you use SJW, check for contraindications for use with any mood/pain drugs.

I agree that a significant number of people with anxiety (and possibly depression) probably have gluten issues. Not to mention those w/ IBS, Crohn's/Colitis, chronic fatigue and fibromyalgia...

Oh yeah...and don't cheat, people. We are living gluten-free for a lot of good reasons. :)

0

Share this post


Link to post
Share on other sites

I ate Turkey at Thanksgiving and even though it said it was gluten free and didn't look like it had any soy I got sick from it. I tried twice to make sure. ;) I meant to call the company, but never got to it.

I am gonna try fresh Turkey next year instead. Thanks for the tip.

I have problems with anxiety when glutened/eating anything I am intolerant to. I am currently trying out egg..seems my stomach is okay with it, but I have felt "off" since I started with it. Not sure yet what I'll do.

I have had problems with anxiety and depression in my past. As I got sicker it got worse. I am sure it is related to the food.

I felt the menatl part of this has sometimes made me into some one else. I almost felt like I lost myself in all the symptoms and the fear. I felt I just feared everything in the end. I still have a long way to go to get back to my old self I feel.

0

Share this post


Link to post
Share on other sites

I understand the losing yourself. I have been low carb for a long time to alleviate the symptoms, didnt realize it was the gluten though low carb is low gluten. My anxiety and depression gets really bad with gluten, but at the time I thought it was candida and atributed it to too many carbs. Now that I realize the problem, wow much better. Of course when you are pregnant you deffinatly cant go low carb! So svere symptoms come back. I thought it was the pregnancy, then breast feeding you cant go low carb and I breastfed for a year, not prgnant anymore hmmm. My new doctor figured it out right away. Attempted to do a gluten challenge, wow big disaster. Never again, the depression and anxiety got so bad !!! Then I took away all gluten wow!! By that time I was so scared of food ! THe other symptoms fatigue, muscle pain tummy probs in my opinion pale in comparison to the emotional. Isnt it amazing that taking away a couple of things in your diet can make such a difference?Life is good( I also reccomend doing an food intolerance test, its cost about 400 dollars fro 100 foods, Im in canada so I sent it out.Ususally your insurance company will reimburse. I known the pain for so long and figured out the reliefe. I will never injest gluten on purpose again!!!!

0

Share this post


Link to post
Share on other sites




I am one who gets anxiety and, to a lesser degree, depression from gluten.

Before I was gluten-free, (I was sick, but undiagnosed for 20 years) I would get panic attacks out of nowhere. These almost always occured at restaruants.(!)

It's gotten somewhat better--I've been gluten-free for a year and a half. I still get anxiety and feel very sad and even paranoid when glutened.

I did try an antidepressant, but the side effects were too much. I'm holding off on trying another--I may try St. John's Wort first.

Try Wellbutrin XL 300mg per day. Works like a charm for the depression and anxiety. Tricylics and other antidepresants will cause you to gain weight and will quite working in about 3 months so you have to keep getting more and more and more. so not use St John's Wort if you have other autoimmune conditions as this supplement may interact. do your research carefully. Hope this helps!

0

Share this post


Link to post
Share on other sites

I know the turkey question is an old one, but wanted to add something... We use a baking bag when we cook turkey or sometimes big chicken. It cuts down on the time. When you do this, or even if you don't, it is customary for us to put a couple of tbls. of flour in the bag. Also, some may add flour wtih salt and pepper to skin. So, when eating out, you'd have to worry about the injected stuff or if flour was used. Just occurred to me I made a delicious soup with Turkey frozen from my pre DX days (DX only one month). Just realized, I can't eat the darn thing. :( . Thanks for all the info. on anxiety, I will keep reading this forum, just started but it is helpful, all these things that you experienced but didn't tell or just thought it was me and I was crazy. Feel better all ready, although need to lose weight. Will follow some advice, more pure food. I find I am eating more lactose free milk, and my pizza is good, but this is probably why weight is up not down. Thanks. Maeve

0

Share this post


Link to post
Share on other sites
I too experience so many emotional troubles with gluten. I was a fairly bright talented kid and changed overnight. Of course my family hasnt liked me much since ,they think Im crazy. I developed an eating disorder got pregnant at 17......not to blame it all on gluten and allergies but my experience is that coping skills for already excisting problems are virtually not there when gluten is injested. Gastero intestinal issues came out 10 years ago, first as weight loss and d, then the opposite. I am also short at 5 feet and the rest of my family is tall. So many years of doctor hopping marriage issues and antideprssants later(which never worked) I found a doctor that listened. She took my history height and did blood work and diagnosed me celiac. Mainly on how much the diet improved me. My gastero appointment is not for another 6 months so she advised me to go gluten free anyways and forget about the biopsy, Im going anyways cause my grandma who was the only other short stature in my family died of lymphoma(interestingly enough she got sick on wheat)I can definatly tell the difference!!! It was so bad that I started to get seizure symptoms from vitamin deficiencies. I had already been low gluten and thought It was wheat that triggered the symptoms,now realize that it was gluten and casien. Has any of your family been understanding? Mine arent, I have to stay clear of most. I see that some of you are christians have you made your church your home? I have three sons,one of which is autistic and the other two my doctor is shure they have celiac, I will always try to support my kids, feeling alone is the wost part of this illness. My hubby tries his best!!! This forum is probably an excellent way to get support everyone is going through some of the same things!!EXCELLANT!!!

Hi Natural Momma! I've been learning alot about celiac in the past few months and finding that I feel much better off of gluten as well. I know have more energy and don't seem as depressive as before. I've also got nut, milk and egg allergy... so learning to cook properly has been a lot of fun... actually. Very creative! :D Naturalmomma, do you know of a support group, or Celiac Association in Chilliwack? Please let me know Miki S

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,636
    • Total Posts
      918,422
  • Topics

  • Posts

    • Celiac Night Vision
      Scotomas returned for the 7th year on the 24th February despite liver pâté and have varied since with 3 brief gaps. I have always had migraine, latterly occurring more than once a month, usually of basilar or retinal type with aura (but no headache) lasting less than 5 minutes. A recent bout looked like a TIA and led to a CT scan which revealed clear major vessels but old cerebellar infarcts, so maybe migraine accounts for poor memory too. The scotomas are very different from migraine eye symptoms - stationary, irregular in shape and lasting hours. I think food is excluded as the cause but seasonality, gaps, variation with wind direction and rain mean that pollen is still a possibility. Scott Adams did a marvellous thing founding this site so celiacs could enlighten each other. Please post if you have anything like these scotomas!
    • healthy bread recipe?
      Eat what you eat at lunch or dinner.  I am happy with a fried hamburger patty, fish, or chicken (I know it needs to be fresh or frozen for the histamine diet).  Yes, I eat veggies for breakfast!   Wanted to add that I was glutened in July (GI ordered follow-up antibodies testing and it was high)  and it took me 3 months to recover.  Picked up a histamine intolerance and became lactose intolerant again.  Luckily, when I healed, the histamine thing went away (or  Diminished ) and the lactose intolerance resolved.    I was getting hives, rashes and itching (not DH), vomiting, etc.  So, her intolerances may be just temorary!  
    • Could this be celiac or is it really just IBS?
      Are you sure you had the complete celiac panel?  Here are the tests:   -Tissue Transglutaminase (tTG) IgA and (tTG) IgG -Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG -EMA IgA  -total serum IgA and IgG (control test)     -endoscopic biopsy - make sure at least 6 samples are taken   VERY IMPORTANT:  Keep eating gluten daily until ALL testing is complete or the tests can be inaccurate.     (Source: NVSMOM -- 😊)   Here is more information from a reputable site (and not just info from a crazy cyclist on the Internet!):   http://www.cureceliacdisease.org/screening/   IBS, in my opinion, means "I Be Stumped!"  It is just a cop out!  So is the "stressed" thing.     I also had my GB out too.   It was a non-functioning (0% per HIDA scan), no stones, and rotting.     You seem to have many celiac disease symptoms.  Verify (obtain copies of your lab tests) to see if you got the complete panel. You might just have had the TTG IGA and TTG IGG tests.  Good for screening but it does not catch all celiacs.  My TTG tests are always negative even on follow-up testing.  The DGP test catches a positive for me.  My biopsies revealed moderate to severe damage.  If my celiac-savvy GI did not order the complete panel, my celiac disease diagnosis would never have been caught.   if celiac disease is really ruled out, research mast cell disorders.  The flushing and GI upset sound familiar!  You can have more than one thing going on!  But I would put my money on celiac disease!            
    • tightness in throat after eating gluten?
      I've noticed that if I accidentally eat gluten, for the next few days I have this tightness in my throat. It feels like my throat is closing. It's not constant, but comes and goes throughout the next 1-3 days. My hands have also been itchy. Is this a normal symptom for celiac or gluten intolerance, or could it possibly be an allergy? I haven't been tested or diagnosed with celiac or anything yet, so I'm still not entirely sure. All I know is that gluten makes me very sick.. But especially with the itchiness and tight throat.. I'm allergic to acetaminophen and my reaction is similar, so it just makes me wonder. What do you think?
    • Diagnosis and Test Results
      I am sorry that you are sick!  😔.  I think you need to find out which celiac antibody tests were given.  Often just the TTG Is ordered for initial screening.  This test catches most, but not all celiacs (like me!)   You also need to see if they gave you the igA deficency test too.   Here are the tests:   -Tissue Transglutaminase (tTG) IgA and (tTG) IgG -Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG -EMA IgA  -total serum IgA and IgG (control test)   -endoscopic biopsy - make sure at least 6 samples are taken   VERY IMPORTANT:  Keep eating gluten daily until ALL testing is complete or the tests can be inaccurate.     (Source: NVSMOM -- 😊)     http://www.cureceliacdisease.org/screening/ You can go gluten free, but knowing if you have an autoimmune disease is helpful.  celiac disease is genetic (you have the genes, but so does 30% of the population and that's why the gene test is used only to exclude celiac disease and not diagnose it).   All family members should be tested even if they are symptom free.   I hope you figure it out and I am sorry that you had such a horrible experience.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,727
    • Most Online
      1,763

    Newest Member
    Kal
    Joined