Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Anxieties/depression
0

33 posts in this topic

I too experience so many emotional troubles with gluten. I was a fairly bright talented kid and changed overnight. Of course my family hasnt liked me much since ,they think Im crazy. I developed an eating disorder got pregnant at 17......not to blame it all on gluten and allergies but my experience is that coping skills for already excisting problems are virtually not there when gluten is injested. Gastero intestinal issues came out 10 years ago, first as weight loss and d, then the opposite. I am also short at 5 feet and the rest of my family is tall. So many years of doctor hopping marriage issues and antideprssants later(which never worked) I found a doctor that listened. She took my history height and did blood work and diagnosed me celiac. Mainly on how much the diet improved me. My gastero appointment is not for another 6 months so she advised me to go gluten free anyways and forget about the biopsy, Im going anyways cause my grandma who was the only other short stature in my family died of lymphoma(interestingly enough she got sick on wheat)I can definatly tell the difference!!! It was so bad that I started to get seizure symptoms from vitamin deficiencies. I had already been low gluten and thought It was wheat that triggered the symptoms,now realize that it was gluten and casien. Has any of your family been understanding? Mine arent, I have to stay clear of most. I see that some of you are christians have you made your church your home? I have three sons,one of which is autistic and the other two my doctor is shure they have celiac, I will always try to support my kids, feeling alone is the wost part of this illness. My hubby tries his best!!! This forum is probably an excellent way to get support everyone is going through some of the same things!!EXCELLANT!!!

0

Share this post


Link to post
Share on other sites


Ads by Google:

someone on this thread mentioned "cheating", i am sorry, if you are really a celiac, you should NOT be cheating, it is so dangerous for you, it is like you aren't gluten-free at all, it is a big step back, and you should take care of yourself and really never "cheat" on purpose! Its like intentionally hurting your body. I'm sure someone on here could find a yummy gluten-free wing recipe for you. I didn't mean that to sound mean, I'm just worreid for you and hope your ealize how dangerous that is!!!That being said, i'm the most anxious person about gluten alive, its very hard being in college and dating and not being able to eat anything, like i'm sure you can all relate to.

0

Share this post


Link to post
Share on other sites

Anxiety, brain fog and depression are my first indicators that I have been glutened. I was days away from going on anti-depressants when I figured out my gluten intolerance.

St. John's Wort needs time - usually a couple of weeks - to build up in the bloodstream before it is really effective.

I've used it since before I was diagnosed, and still use it now (a lesser dose).

I also use a custom herb tincture, from a local herbalist, that includes kava kava and motherwort. I am able to use it daily as needed, and in case of an anxiety attack. I haven't had any anxiety (except for the rare glutening) since I went gluten-free.

Always check w/ your doc before adding any herbs or supplements, including SJW. And if you use SJW, check for contraindications for use with any mood/pain drugs.

I agree that a significant number of people with anxiety (and possibly depression) probably have gluten issues. Not to mention those w/ IBS, Crohn's/Colitis, chronic fatigue and fibromyalgia...

Oh yeah...and don't cheat, people. We are living gluten-free for a lot of good reasons. :)

0

Share this post


Link to post
Share on other sites

I ate Turkey at Thanksgiving and even though it said it was gluten free and didn't look like it had any soy I got sick from it. I tried twice to make sure. ;) I meant to call the company, but never got to it.

I am gonna try fresh Turkey next year instead. Thanks for the tip.

I have problems with anxiety when glutened/eating anything I am intolerant to. I am currently trying out egg..seems my stomach is okay with it, but I have felt "off" since I started with it. Not sure yet what I'll do.

I have had problems with anxiety and depression in my past. As I got sicker it got worse. I am sure it is related to the food.

I felt the menatl part of this has sometimes made me into some one else. I almost felt like I lost myself in all the symptoms and the fear. I felt I just feared everything in the end. I still have a long way to go to get back to my old self I feel.

0

Share this post


Link to post
Share on other sites

I understand the losing yourself. I have been low carb for a long time to alleviate the symptoms, didnt realize it was the gluten though low carb is low gluten. My anxiety and depression gets really bad with gluten, but at the time I thought it was candida and atributed it to too many carbs. Now that I realize the problem, wow much better. Of course when you are pregnant you deffinatly cant go low carb! So svere symptoms come back. I thought it was the pregnancy, then breast feeding you cant go low carb and I breastfed for a year, not prgnant anymore hmmm. My new doctor figured it out right away. Attempted to do a gluten challenge, wow big disaster. Never again, the depression and anxiety got so bad !!! Then I took away all gluten wow!! By that time I was so scared of food ! THe other symptoms fatigue, muscle pain tummy probs in my opinion pale in comparison to the emotional. Isnt it amazing that taking away a couple of things in your diet can make such a difference?Life is good( I also reccomend doing an food intolerance test, its cost about 400 dollars fro 100 foods, Im in canada so I sent it out.Ususally your insurance company will reimburse. I known the pain for so long and figured out the reliefe. I will never injest gluten on purpose again!!!!

0

Share this post


Link to post
Share on other sites




I am one who gets anxiety and, to a lesser degree, depression from gluten.

Before I was gluten-free, (I was sick, but undiagnosed for 20 years) I would get panic attacks out of nowhere. These almost always occured at restaruants.(!)

It's gotten somewhat better--I've been gluten-free for a year and a half. I still get anxiety and feel very sad and even paranoid when glutened.

I did try an antidepressant, but the side effects were too much. I'm holding off on trying another--I may try St. John's Wort first.

Try Wellbutrin XL 300mg per day. Works like a charm for the depression and anxiety. Tricylics and other antidepresants will cause you to gain weight and will quite working in about 3 months so you have to keep getting more and more and more. so not use St John's Wort if you have other autoimmune conditions as this supplement may interact. do your research carefully. Hope this helps!

0

Share this post


Link to post
Share on other sites

I know the turkey question is an old one, but wanted to add something... We use a baking bag when we cook turkey or sometimes big chicken. It cuts down on the time. When you do this, or even if you don't, it is customary for us to put a couple of tbls. of flour in the bag. Also, some may add flour wtih salt and pepper to skin. So, when eating out, you'd have to worry about the injected stuff or if flour was used. Just occurred to me I made a delicious soup with Turkey frozen from my pre DX days (DX only one month). Just realized, I can't eat the darn thing. :( . Thanks for all the info. on anxiety, I will keep reading this forum, just started but it is helpful, all these things that you experienced but didn't tell or just thought it was me and I was crazy. Feel better all ready, although need to lose weight. Will follow some advice, more pure food. I find I am eating more lactose free milk, and my pizza is good, but this is probably why weight is up not down. Thanks. Maeve

0

Share this post


Link to post
Share on other sites
I too experience so many emotional troubles with gluten. I was a fairly bright talented kid and changed overnight. Of course my family hasnt liked me much since ,they think Im crazy. I developed an eating disorder got pregnant at 17......not to blame it all on gluten and allergies but my experience is that coping skills for already excisting problems are virtually not there when gluten is injested. Gastero intestinal issues came out 10 years ago, first as weight loss and d, then the opposite. I am also short at 5 feet and the rest of my family is tall. So many years of doctor hopping marriage issues and antideprssants later(which never worked) I found a doctor that listened. She took my history height and did blood work and diagnosed me celiac. Mainly on how much the diet improved me. My gastero appointment is not for another 6 months so she advised me to go gluten free anyways and forget about the biopsy, Im going anyways cause my grandma who was the only other short stature in my family died of lymphoma(interestingly enough she got sick on wheat)I can definatly tell the difference!!! It was so bad that I started to get seizure symptoms from vitamin deficiencies. I had already been low gluten and thought It was wheat that triggered the symptoms,now realize that it was gluten and casien. Has any of your family been understanding? Mine arent, I have to stay clear of most. I see that some of you are christians have you made your church your home? I have three sons,one of which is autistic and the other two my doctor is shure they have celiac, I will always try to support my kids, feeling alone is the wost part of this illness. My hubby tries his best!!! This forum is probably an excellent way to get support everyone is going through some of the same things!!EXCELLANT!!!

Hi Natural Momma! I've been learning alot about celiac in the past few months and finding that I feel much better off of gluten as well. I know have more energy and don't seem as depressive as before. I've also got nut, milk and egg allergy... so learning to cook properly has been a lot of fun... actually. Very creative! :D Naturalmomma, do you know of a support group, or Celiac Association in Chilliwack? Please let me know Miki S

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,348
    • Total Posts
      917,421
  • Topics

  • Posts

    • Testing After Celiac Disease if IgA deficient
      If you have Celiac Disease, and you are IgA deficient, what do they check on your labs to make sure you are not being "glutened"?
    • Weird Reaction
      Hi again Richie, A lot of coeliacs have a problem with coffee, maybe you do too. It could explain the shakes you describe. I am sensitive to coffee, and haven't touched caffeine since last summer. (The detox lasted for 10 days and it wasn't pleasant, so if you ever give it up, do it gradually).  Sometimes when you're intolerant to something, when you have it, it makes you feel 'better' but it doesn't last and usually end up worse, it's like a drug - and in the case of caffeine it is. I also take a daily probiotic (gluten free and dairy free etc)., which is good for healing the gut.
    • Weird Reaction
      Cristiana and Flowerqueen, I haven't been officially diagnosed as Celiac but I had a DNA test in March 2015 which revealed I had the Celiac gene on both sides so it was advised that I have a test to see if I did have it. I didn't but I went off gluten immediately and haven't "knowingly" eaten it since. Before the DNA test I didn't have the nausea and trembling type feelings that I do now but I occasionally got the shortness of breath which I used to put down to being a smoker. (I quit almost 16 years ago) Anyway, this morning I woke with the nausea feeling, the trembling, loss of appetite, feeling of doom again but it happens so intermittently. I do have some unavoidable stress in my life all of a sudden so maybe it's all connected some how. But on the plus side my bowel movements have returned to normal and I go often especially after waking and having coffee. (Oh, and Cristiana don't worry about tmi with me. You would have to try pretty hard to offend me and nobody has done it yet. haha) I always think the worse to. The internet and Google are great but information overload becomes a real possibility creating some frightening scenarios. It's just interesting that the coffee with the MCT Oil (Brain Octane is the actual name) and butter makes me start feeling better and the nausea, trembling, anxiety seem to be extinguished by it but coffee with low fat milk doesn't although I do get more energy from it. I did read somewhere that MCT Oil was good for gut health though and if I had to describe it it would be like it just smooths over all the bad stuff with a nice soft lining.  It was recommended in my DNA test that I have more fats in my diet and low processed foods but I occasionally have gluten-free biscuits, gluten-free ice-cream (my true weakness) and gluten-free weet-bix. I've checked most of these items ingredients and they are pretty good. There is a lot of gluten free rubbish out there though which I completely avoid. Thanks GFinDC for your reply. I was going to speak to my Naturopath when I see her about Immune Health. My plan usually involves the Liver Tonic I mentioned above and heavy on the L-Glutamine which, apparently, is supposed to be excellent for gastrointestinal health but I'm not going to supplement with anything just yet until I get my blood work done and see if it reveals any deficiencies. I'm suspecting Iron though. Because I've had recent tests all coming back good I'm thinking a possible scenario would be a die-off effect I've heard of where all the bad bacteria have been killed off but your body can't rid itself of them quick enough so you actually feel or get worse before you get better. That's where the detox strategy comes in and I'm assuming replacing them with Good Bacteria via Probiotics. Again, this is what I have read in the past but it does seem to make sense in some cases. I do feel better in having found these forums though.  
    • Daughter with celiac- need test result help
      You are doing well.  We didn't have a "normal" tTG for 6 years and were also very strict.  Kiddo was dx with hypothyroid as well and tTG fell a lot after getting on meds for that but still didn't normalize.  Finally cam down within the last 6 months (this after a trip to THE Celiac Dr. several years ago).  I wish we had done a DGP much earlier and I had pushed for that sooner.  I would start there and see what happens.     Sounds like you're doing everything right though. Sometimes it just takes time. 
    • Will my doctor test me? So many symptoms...
      Remember that you have to be eating a normal gluten diet for the testing so don't cut back & don't stop eating it. Make sure they do the full, current celiac panel: Anti-Gliadin (AGA) IgA
      Anti-Gliadin (AGA) IgG
      Anti-Endomysial (EMA) IgA
      Anti-Tissue Transglutaminase (tTG) IgA
      Deamidated Gliadin Peptide (DGP) IgA and IgG
      Total Serum IgA   
      Also can be termed this way: Endomysial Antibody IgA
      Tissue Transglutaminase IgA 
      GLIADIN IgG
      GLIADIN IgA
      Total Serum IgA 
      Deamidated Gliadin Peptide (DGP) IgA and IgG
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
    • SLLRunner

      Week 4 of the gluten challenge- wheat cereal every morning, regular bread every day, and wheat tortillas for my lunch wraps. Right now, body aches that seem exercise related (weight lifting and running), even though I am doing the same intensity of weight lifting and running I've always done.  Just a few more weeks until my blood test. Counting down the days.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,484
    • Most Online
      1,763

    Newest Member
    KKJ
    Joined