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Anxieties/depression
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I too experience so many emotional troubles with gluten. I was a fairly bright talented kid and changed overnight. Of course my family hasnt liked me much since ,they think Im crazy. I developed an eating disorder got pregnant at 17......not to blame it all on gluten and allergies but my experience is that coping skills for already excisting problems are virtually not there when gluten is injested. Gastero intestinal issues came out 10 years ago, first as weight loss and d, then the opposite. I am also short at 5 feet and the rest of my family is tall. So many years of doctor hopping marriage issues and antideprssants later(which never worked) I found a doctor that listened. She took my history height and did blood work and diagnosed me celiac. Mainly on how much the diet improved me. My gastero appointment is not for another 6 months so she advised me to go gluten free anyways and forget about the biopsy, Im going anyways cause my grandma who was the only other short stature in my family died of lymphoma(interestingly enough she got sick on wheat)I can definatly tell the difference!!! It was so bad that I started to get seizure symptoms from vitamin deficiencies. I had already been low gluten and thought It was wheat that triggered the symptoms,now realize that it was gluten and casien. Has any of your family been understanding? Mine arent, I have to stay clear of most. I see that some of you are christians have you made your church your home? I have three sons,one of which is autistic and the other two my doctor is shure they have celiac, I will always try to support my kids, feeling alone is the wost part of this illness. My hubby tries his best!!! This forum is probably an excellent way to get support everyone is going through some of the same things!!EXCELLANT!!!

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someone on this thread mentioned "cheating", i am sorry, if you are really a celiac, you should NOT be cheating, it is so dangerous for you, it is like you aren't gluten-free at all, it is a big step back, and you should take care of yourself and really never "cheat" on purpose! Its like intentionally hurting your body. I'm sure someone on here could find a yummy gluten-free wing recipe for you. I didn't mean that to sound mean, I'm just worreid for you and hope your ealize how dangerous that is!!!That being said, i'm the most anxious person about gluten alive, its very hard being in college and dating and not being able to eat anything, like i'm sure you can all relate to.

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Anxiety, brain fog and depression are my first indicators that I have been glutened. I was days away from going on anti-depressants when I figured out my gluten intolerance.

St. John's Wort needs time - usually a couple of weeks - to build up in the bloodstream before it is really effective.

I've used it since before I was diagnosed, and still use it now (a lesser dose).

I also use a custom herb tincture, from a local herbalist, that includes kava kava and motherwort. I am able to use it daily as needed, and in case of an anxiety attack. I haven't had any anxiety (except for the rare glutening) since I went gluten-free.

Always check w/ your doc before adding any herbs or supplements, including SJW. And if you use SJW, check for contraindications for use with any mood/pain drugs.

I agree that a significant number of people with anxiety (and possibly depression) probably have gluten issues. Not to mention those w/ IBS, Crohn's/Colitis, chronic fatigue and fibromyalgia...

Oh yeah...and don't cheat, people. We are living gluten-free for a lot of good reasons. :)

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I ate Turkey at Thanksgiving and even though it said it was gluten free and didn't look like it had any soy I got sick from it. I tried twice to make sure. ;) I meant to call the company, but never got to it.

I am gonna try fresh Turkey next year instead. Thanks for the tip.

I have problems with anxiety when glutened/eating anything I am intolerant to. I am currently trying out egg..seems my stomach is okay with it, but I have felt "off" since I started with it. Not sure yet what I'll do.

I have had problems with anxiety and depression in my past. As I got sicker it got worse. I am sure it is related to the food.

I felt the menatl part of this has sometimes made me into some one else. I almost felt like I lost myself in all the symptoms and the fear. I felt I just feared everything in the end. I still have a long way to go to get back to my old self I feel.

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I understand the losing yourself. I have been low carb for a long time to alleviate the symptoms, didnt realize it was the gluten though low carb is low gluten. My anxiety and depression gets really bad with gluten, but at the time I thought it was candida and atributed it to too many carbs. Now that I realize the problem, wow much better. Of course when you are pregnant you deffinatly cant go low carb! So svere symptoms come back. I thought it was the pregnancy, then breast feeding you cant go low carb and I breastfed for a year, not prgnant anymore hmmm. My new doctor figured it out right away. Attempted to do a gluten challenge, wow big disaster. Never again, the depression and anxiety got so bad !!! Then I took away all gluten wow!! By that time I was so scared of food ! THe other symptoms fatigue, muscle pain tummy probs in my opinion pale in comparison to the emotional. Isnt it amazing that taking away a couple of things in your diet can make such a difference?Life is good( I also reccomend doing an food intolerance test, its cost about 400 dollars fro 100 foods, Im in canada so I sent it out.Ususally your insurance company will reimburse. I known the pain for so long and figured out the reliefe. I will never injest gluten on purpose again!!!!

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I am one who gets anxiety and, to a lesser degree, depression from gluten.

Before I was gluten-free, (I was sick, but undiagnosed for 20 years) I would get panic attacks out of nowhere. These almost always occured at restaruants.(!)

It's gotten somewhat better--I've been gluten-free for a year and a half. I still get anxiety and feel very sad and even paranoid when glutened.

I did try an antidepressant, but the side effects were too much. I'm holding off on trying another--I may try St. John's Wort first.

Try Wellbutrin XL 300mg per day. Works like a charm for the depression and anxiety. Tricylics and other antidepresants will cause you to gain weight and will quite working in about 3 months so you have to keep getting more and more and more. so not use St John's Wort if you have other autoimmune conditions as this supplement may interact. do your research carefully. Hope this helps!

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I know the turkey question is an old one, but wanted to add something... We use a baking bag when we cook turkey or sometimes big chicken. It cuts down on the time. When you do this, or even if you don't, it is customary for us to put a couple of tbls. of flour in the bag. Also, some may add flour wtih salt and pepper to skin. So, when eating out, you'd have to worry about the injected stuff or if flour was used. Just occurred to me I made a delicious soup with Turkey frozen from my pre DX days (DX only one month). Just realized, I can't eat the darn thing. :( . Thanks for all the info. on anxiety, I will keep reading this forum, just started but it is helpful, all these things that you experienced but didn't tell or just thought it was me and I was crazy. Feel better all ready, although need to lose weight. Will follow some advice, more pure food. I find I am eating more lactose free milk, and my pizza is good, but this is probably why weight is up not down. Thanks. Maeve

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I too experience so many emotional troubles with gluten. I was a fairly bright talented kid and changed overnight. Of course my family hasnt liked me much since ,they think Im crazy. I developed an eating disorder got pregnant at 17......not to blame it all on gluten and allergies but my experience is that coping skills for already excisting problems are virtually not there when gluten is injested. Gastero intestinal issues came out 10 years ago, first as weight loss and d, then the opposite. I am also short at 5 feet and the rest of my family is tall. So many years of doctor hopping marriage issues and antideprssants later(which never worked) I found a doctor that listened. She took my history height and did blood work and diagnosed me celiac. Mainly on how much the diet improved me. My gastero appointment is not for another 6 months so she advised me to go gluten free anyways and forget about the biopsy, Im going anyways cause my grandma who was the only other short stature in my family died of lymphoma(interestingly enough she got sick on wheat)I can definatly tell the difference!!! It was so bad that I started to get seizure symptoms from vitamin deficiencies. I had already been low gluten and thought It was wheat that triggered the symptoms,now realize that it was gluten and casien. Has any of your family been understanding? Mine arent, I have to stay clear of most. I see that some of you are christians have you made your church your home? I have three sons,one of which is autistic and the other two my doctor is shure they have celiac, I will always try to support my kids, feeling alone is the wost part of this illness. My hubby tries his best!!! This forum is probably an excellent way to get support everyone is going through some of the same things!!EXCELLANT!!!

Hi Natural Momma! I've been learning alot about celiac in the past few months and finding that I feel much better off of gluten as well. I know have more energy and don't seem as depressive as before. I've also got nut, milk and egg allergy... so learning to cook properly has been a lot of fun... actually. Very creative! :D Naturalmomma, do you know of a support group, or Celiac Association in Chilliwack? Please let me know Miki S

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    • You should never have cut out gluten until you had the biopsy done. It's much worse to have to go back on after you've been off gluten for a while. There's no way I could ever do the gluten challenge after being off gluten for even a month because my reactions got so dramatically worse.  Stress definately can trigger celiac- before I was diagnosed - it got the worst after surgery and after a stressful time planning my daughters wedding. 
    • Hi not diagnosed celiac, Welcome to the forum! Your doctor should be sent to remedial celiac disease training.  Since that probably won't happen, I suggest you find a new doctor.  He doesn't know what he's doing when it comes to diagnosing celiac disease. You should not have gone gluten-free before completing all celiac disease testing.  The testing for celiac disease depends on the immune reaction being active.  Removing gluten before testing removes the antigen that causes the immune system to react, and lowers the chances of getting a correct test result dramatically.  The University of Chicago celiac disease center recommends: ******************************************** http://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/ Prior to blood testing we recommend 12 weeks of eating gluten. Prior to an endoscopic biopsy we recommend 2 weeks of eating gluten. In the case of a severe reaction to gluten, a medical professional may opt to shorten the 12-week challenge and move immediately to an endoscopic biopsy. May, 2013 ******************************************** So you will need to go back to eating gluten before your endoscopy.  That may cause worse symptoms than before when you were eating gluten.  So it would have been better to do all testing before going gluten-free. Can you search for a celiac disease support group in your area?  They exist in many parts of the USA and world.  They can be a good place to get a knowledgeable doctor recommendation.  There is also a doctors subsection of this forum where you can search to see if any doctors in your area were recommended.
    • I get these crazy cravings for some things I can not eat anymore. Not only am I diagnosed with celiac but I also have a allergy to corn, olives, sesame, peanuts, and intolerance to yeast, soy, dairy, and a very low tolerance for carbs/sugars, Top it off with I can not digest meats or egg yolks, they just give me the burps and come up later.
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    • After suffering pretty much all year with one illness after another I've finally managed to get a diagnosis and it turns out to be celiac. After my doctors consistently failing to even consider the possibility it might be that (as opposed to "IBS" or "stress") I kept pushing for the Iga TTg test and it was off the charts with a score of >128... may as well fail it in style I guess. So here I am at the start of what feels like the end of my life as I know it. Been doing nothing but reading for the past week and frankly it's terrifying. Here's a few things that are going round in my head and I'd really appreciate your thoughts with. Apologies if it's a bit of an essay  Diagnosis I'm still furious at my doctors for not even entertaining the thought that celiac could be the root cause of all my ills. Given the blood test is so simple it feels almost negligent that they don't run this right at the start to rule it out. Instead I got subjected to poisons like Omeprazole which made me even more ill, whilst being told the physical symptoms were all in my head. Just as well I knew better and kept hitting up Google until my self-diagnosis was proved correct... to think these people get paid highly to be so incompetent makes my blood boil. Does feel good having outwitted the so-called professionals though. Seems 9 months is comparatively quick from symptoms to diagnosis compared to some others that have gone years with the problems so could be worse I guess. Food and diet I'm male vegetarian (non-negotiable) which makes this even harder as so many of my protein sources are now ruled out. Seems many with celiac were having trouble losing weight whereas I'm in the opposite situation. Already lost best part of a stone in the past few weeks and it's becoming noticeable now. The MyFitnessPal app reckons I need 2600 calories a day to maintain \ gain weight - no idea where that's going to come from. 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Health Rightly or wrongly right now I see this diagnosis as a death sentence long-term. Looks like it brings other associated illnesses with it and this particular article really scares me: http://scdlifestyle.com/2012/03/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/ I've only really had noticeable symptoms for the past year or so but wonder how long this has been going on for and what damage has already been done. All seems to have started from when I turned 30 (knew I was dreading that age for a reason) and right now I wonder how long I'm going to last before the really bad stuff starts. One of the other illnesses I'd considered as a possibility before getting diagnosed was Hashimoto's Thyroiditis; now it seems that's closely linked with Celiac so may not be out of the woods with that yet either. Just seems to be one big list of illness all triggered from the same point One positive change I've noticed thus far since cutting out gluten is that bloating seems to have gone down and bowel movements are better. Still getting headaches and muscle twitching, which could be as much a withdrawal symptom from gluten as anything else.  Some sites were suggesting stopping exercise whilst withdrawing but I can't face that as it's the only thing keeping me going at present. Again will keep going as-was and see what happens. Then to top it off it sounds like the next step is the biopsy - I'm scared of being put out for the procedure as a member of family went into hospital a few years back for something supposedly routine and never came back out. From what I've been told it's important to have done though as it shows just how broken the villi are so another thing to worry about in the meantime. I've just read on another thread that you have to be on gluten to have the test, that's another kicker after having started to cut it out the diet. With such a high blood test Iga-TTg score isn't it almost certain that celiac is the cause and the endoscopy in this case is just confirming levels of damage? OK means I can have a final blow-out eating all the "bad" foods but no doubt with all the side effects that come with it... Social life Seems like despite there being some gluten free options in certain restaurants (granted better now than years ago) I'm going to be hugely limited in food options. Either sitting on the side looking on or just plain not able to go out much anymore. Already had the first hitting-home moment watching colleagues eating pastries that were brought in while I just have to look on... then it dawns that this is never going to get better... urghhh Family life I'm really struggling to accept this lifelong illness and loss of health and it's taking a toll on the people around me at the moment. They won't be going gluten-free so will have to take my chances with the mixed kitchen environment; already gone with split toasters etc. so can't do much more than that. Dating Basically seems game over on that front, unlike many who are diagnosed with understanding partners \ spouses I'm still in the dating game, which is judgemental enough as it is without all the complications that the gluten issues bring. I'm reading even kissing someone with lipstick \ make-up is apparently a big no-no... once any date hears that they won't be coming back... forever alone status confirmed is how it looks right now. 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    • It sounds like you're doing great. That's amazing that your anxiety has decreased like that. You're obviously doing something really good for your health. With the other things I'm sure they will get better in time. After I gave up gluten I had a bad year but overall it got better. Things like anxiety and insomnia massively improved over time with being gluten free. However, going Paleo (which you are on your way to with the no dairy too) really helped my anxiety, as did running and self-taught acupressure. In particular I found processed gluten free foods were awful for my mood. I know you have to find your own way but I really want to encourage you to see how you feel without that if you haven't already. I also can't afford therapy but when I did have it, that helped too but just being well, gives you the chance to sort your own thoughts and feelings out even without a therapist. Good luck
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