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How about anyone in North FL- the panhandle? Destin, Fort Walton Beach, Niceville, Crestview, Navarre, Walton County? I know there are quite a few celiacs here from the health food stores and also hearing from the medical community. I know there is a formal group in Pensacola but I can't seem to make it the hour+ or so over there. Let me know...
North Florida Anyone? Destin?
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#2 Guest_delana6303_*
Posted 16 December 2006 - 08:44 AM
KG in FL, on Nov 29 2006, 08:20 AM, said:
How about anyone in North FL- the panhandle? Destin, Fort Walton Beach, Niceville, Crestview, Navarre, Walton County? I know there are quite a few celiacs here from the health food stores and also hearing from the medical community. I know there is a formal group in Pensacola but I can't seem to make it the hour+ or so over there. Let me know...
Hi My name is delana, I am in panama city my son has celiac disease. I cant find anyone in panama city that has this disease. Please get in touch me and maybe we can talk.
#3 Guest_KG in FL_*
Posted 20 December 2006 - 10:48 AM
Hey there- I am sorry your son has been diagnosed but it is way better to know than to suffer. I also hope you have good doctors- I had to diagnose myself June 2004. I have learned a lot via the web and Dr. Green's book "Celiac Disease-the Hidden Epidemic" which I had to order. How far into all this are you? How is your son doing? Is he a little one or older? I KNOW there are many celiacs in our area but am just beginning to start to try and find them. Let me know any questions and I'll try and figure how or if I can e-mail you directly. I am new the this forum.
#5 Guest_KG in FL_*
Posted 21 December 2006 - 11:50 AM
I'll bet it has grown since then - have you been here lately? My doctor's seem to, in the last few months, just seem to be learning about celiac, at all. I am not sure if the medical care here is on the cutting edge despite the growth- haha! We have been here since 2000 and hope to retire here.
Best regards!
Best regards!
#6
2boysmama 
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Posted 21 December 2006 - 01:20 PM
KG in FL, on Dec 21 2006, 12:50 PM, said:
I'll bet it has grown since then - have you been here lately? My doctor's seem to, in the last few months, just seem to be learning about celiac, at all. I am not sure if the medical care here is on the cutting edge despite the growth- haha! We have been here since 2000 and hope to retire here.
Best regards!
Best regards!
No, I haven't been back since. While I lived there I didn't get the impression they were "cutting edge" either, lol. Though Pensacola is supposed to be pretty good, from what I remember hearing.
#8 Guest_KG in FL_*
Posted 24 February 2007 - 03:12 PM
ReneCox, on Feb 18 2007, 10:28 PM, said:
I live in Tallahassee, Florida
I like Tallahassee a lot. My son will start FSU in the fall. He is not celiac, or at least as far as I know. How's the gluten-free dining there? The usual or is there any special spots?
#9
nothing but nicole
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Posted 25 February 2007 - 12:29 AM
I'm in Jacksonville, FL... too far.... wish I could find people enthusiastic here...
#10 Guest_KG in FL_*
Posted 25 February 2007 - 07:00 AM
nothing but nicole, on Feb 25 2007, 02:29 AM, said:
I'm in Jacksonville, FL... too far.... wish I could find people enthusiastic here...
Same here, but I know they are all around me. Our Publix added to it's Greenwise section A LOT of gluten-free products at the request of quite a few people locally. But I can't seem to find them! I like Jacksonville as well. I grew up in Winter Park and some students ended up at JU. Now I go there every Janurary for state cheer competition (my daughter cheers). We end up at the Landing. How are the resurants in Jax? Any special gluten-free?
#11
ReneCox
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Posted 25 February 2007 - 11:33 AM
The only gluten-free restaurant I have been to in tallahassee is Outback...Its the only one I know of but Im fairly new at this and don't want to risk going out too much:)
#12 Guest_KG in FL_*
Posted 25 February 2007 - 12:59 PM
[quote name='ReneCox' date='Feb 25 2007, 01:33 PM' post='273646']
The only gluten-free restaurant I have been to in tallahassee is Outback...Its the only one I know of but Im fairly new at this and don't want to risk going out too much:)
Yeah, Outback is good to have. I too have not eaten out barely at all. It's too risky. I feel bad for my family though as my hubby lost his dining out partner! I have to keep telling him that "soon" I will be able to go to a restaurant with people, watch them eat all the GREAT stuff, and me order some naked fish! The bread and rolls at some of these places lead me into such temptation!! I would never even step foot into an Italian place! Course Subway even tempts me, so I stay away from that too. I wonder when I will get strong enough to go watch others and not want to cry... or cheat.
The only gluten-free restaurant I have been to in tallahassee is Outback...Its the only one I know of but Im fairly new at this and don't want to risk going out too much:)
Yeah, Outback is good to have. I too have not eaten out barely at all. It's too risky. I feel bad for my family though as my hubby lost his dining out partner! I have to keep telling him that "soon" I will be able to go to a restaurant with people, watch them eat all the GREAT stuff, and me order some naked fish! The bread and rolls at some of these places lead me into such temptation!! I would never even step foot into an Italian place! Course Subway even tempts me, so I stay away from that too. I wonder when I will get strong enough to go watch others and not want to cry... or cheat.
#13
SomaDee
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Posted 29 March 2007 - 10:08 AM
Hi from Crestview. I have a son at FSU whom we're pretty sure has celiac disease and will be tested when he comes home this summer. Though I don't know how that will work out since we went ahead and started him on the gluten-free diet. His fatigue and brain fog was interferring too much with his studies not to mention the constant stomach pains after eating. He's been on the diet now for two weeks and feels great. We're hoping to see some weight gain as well. At 5'11 and only weighing 115, he could use the extra weight. His aunt is in the process of getting tested as well. We have 5 people in our family (aunts, uncles, grand parents) who all have been told they have either Crohn's Disease, IBS, and one who was told his bouts of D was from the result of nerve damage caused from his back surgery.
As for eating out, we usually head to Ft Walton Beach. The Panda Resturant on the beach is okay, we usually do the Mongolian grill there. I'm worried about the possibility of cross contamination but so far we haven't had any problems. We also ventured out to Chili's which was a wonderful experience. We walked in and asked the waitress for their gluten-free menu. With a clueless look on her face, she informed us she had no idea what that is. lol She got the Asst. Manager and he came out totally unaware that Chili's had a gluten-free menu as well. So I mentioned it was on their web site, and he went in the back and printed out the menu for us. He then sat down with us to learn more about celiac disease and asked if there was any other measures he needed to take in the meal preparation besides the usual steps to avoid cross contamination. He brought out the meal to us himself to make sure everything was as needed. The presentation was wonderful and the food was great. The Asst. Manager, Jarrod (hopefully spelled right), said he would keep the menu handy for when we returned.
My son says the Pollo Tropical on the campus at FSU is good. He just tells them to leave off the bread.
As for Jacksonville, they do have a PF Changs there. I've been hearing good things about their gluten-free menu. I have a sis that lives out that way so we've been checking restaurants that way for when my son visits her.
Sorry for my killer long post here.
As for eating out, we usually head to Ft Walton Beach. The Panda Resturant on the beach is okay, we usually do the Mongolian grill there. I'm worried about the possibility of cross contamination but so far we haven't had any problems. We also ventured out to Chili's which was a wonderful experience. We walked in and asked the waitress for their gluten-free menu. With a clueless look on her face, she informed us she had no idea what that is. lol She got the Asst. Manager and he came out totally unaware that Chili's had a gluten-free menu as well. So I mentioned it was on their web site, and he went in the back and printed out the menu for us. He then sat down with us to learn more about celiac disease and asked if there was any other measures he needed to take in the meal preparation besides the usual steps to avoid cross contamination. He brought out the meal to us himself to make sure everything was as needed. The presentation was wonderful and the food was great. The Asst. Manager, Jarrod (hopefully spelled right), said he would keep the menu handy for when we returned.
My son says the Pollo Tropical on the campus at FSU is good. He just tells them to leave off the bread.
As for Jacksonville, they do have a PF Changs there. I've been hearing good things about their gluten-free menu. I have a sis that lives out that way so we've been checking restaurants that way for when my son visits her.
Sorry for my killer long post here.
#14
ReneCox
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Posted 29 March 2007 - 11:04 AM
SomaDee, on Mar 29 2007, 02:08 PM, said:
Hi from Crestview. I have a son at FSU whom we're pretty sure has celiac disease and will be tested when he comes home this summer. Though I don't know how that will work out since we went ahead and started him on the gluten-free diet. His fatigue and brain fog was interferring too much with his studies not to mention the constant stomach pains after eating. He's been on the diet now for two weeks and feels great. We're hoping to see some weight gain as well. At 5'11 and only weighing 115, he could use the extra weight. His aunt is in the process of getting tested as well. We have 5 people in our family (aunts, uncles, grand parents) who all have been told they have either Crohn's Disease, IBS, and one who was told his bouts of D was from the result of nerve damage caused from his back surgery.
As for eating out, we usually head to Ft Walton Beach. The Panda Resturant on the beach is okay, we usually do the Mongolian grill there. I'm worried about the possibility of cross contamination but so far we haven't had any problems. We also ventured out to Chili's which was a wonderful experience. We walked in and asked the waitress for their gluten-free menu. With a clueless look on her face, she informed us she had no idea what that is. lol She got the Asst. Manager and he came out totally unaware that Chili's had a gluten-free menu as well. So I mentioned it was on their web site, and he went in the back and printed out the menu for us. He then sat down with us to learn more about celiac disease and asked if there was any other measures he needed to take in the meal preparation besides the usual steps to avoid cross contamination. He brought out the meal to us himself to make sure everything was as needed. The presentation was wonderful and the food was great. The Asst. Manager, Jarrod (hopefully spelled right), said he would keep the menu handy for when we returned.
My son says the Pollo Tropical on the campus at FSU is good. He just tells them to leave off the bread.
As for Jacksonville, they do have a PF Changs there. I've been hearing good things about their gluten-free menu. I have a sis that lives out that way so we've been checking restaurants that way for when my son visits her.
Sorry for my killer long post here.
As for eating out, we usually head to Ft Walton Beach. The Panda Resturant on the beach is okay, we usually do the Mongolian grill there. I'm worried about the possibility of cross contamination but so far we haven't had any problems. We also ventured out to Chili's which was a wonderful experience. We walked in and asked the waitress for their gluten-free menu. With a clueless look on her face, she informed us she had no idea what that is. lol She got the Asst. Manager and he came out totally unaware that Chili's had a gluten-free menu as well. So I mentioned it was on their web site, and he went in the back and printed out the menu for us. He then sat down with us to learn more about celiac disease and asked if there was any other measures he needed to take in the meal preparation besides the usual steps to avoid cross contamination. He brought out the meal to us himself to make sure everything was as needed. The presentation was wonderful and the food was great. The Asst. Manager, Jarrod (hopefully spelled right), said he would keep the menu handy for when we returned.
My son says the Pollo Tropical on the campus at FSU is good. He just tells them to leave off the bread.
As for Jacksonville, they do have a PF Changs there. I've been hearing good things about their gluten-free menu. I have a sis that lives out that way so we've been checking restaurants that way for when my son visits her.
Sorry for my killer long post here.
SomaDee...your son's name isn't Bret is it? Thats probably a weird question but I to to TCC and I know a celiac at FSU named bret.
#15
SomaDee
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Posted 29 March 2007 - 02:57 PM
ReneCox, on Mar 29 2007, 01:04 PM, said:
SomaDee...your son's name isn't Bret is it? Thats probably a weird question but I to to TCC and I know a celiac at FSU named bret.
My son's name is Michael. I'll have to let him know about Bret though. Right now my son is feeling like he's the only one there having to be careful of what he eats.
