Sheesh, Why Am I Still Having Problems?
Posted 12 September 2004 - 12:42 AM
your diet is probably too complex, you have no idea what is causing the problems. Simplify it a bit so you can more closely track your cause and effects. Start cutting out things. I suggest keeping to simple foods like fruits and vegetables and whole grains - for you maybe just rice and corn. Start reading ingredients on EVERYTHING. You will be surprised at what you cannot eat.
Posted 17 September 2004 - 12:20 PM
I just read this post about bacterial overgrowth and antibiotics. I had the same experience 3 times in the past year where my symptoms lessened or disappeared while on antibiotics (of course, I was not eating gluten before, during, or after the antibiotics--bad GI symptoms had developed despite my best efforts at avoiding gluten over the past few years). My GI doc has not been able to explain it. My alternative doc believes I have had an ongoing problem with bacterial overgrowth which has contributed to my various symptoms.
I am really concerned about the bacterial overgrowth too. I'm taking probiotics and it helps me somehow. Interestingly, I had to go on antibiotics last year, and my symptoms almost disappeared during that course. I wonder: has anyone of you had the same experience with antibiotics?
Posted 17 September 2004 - 12:43 PM
Posted 17 September 2004 - 04:45 PM
I'm just trying a few different probiotics to see which one works better for me. Up to now, they seem to calm down my irritated intestines.
Thank you for sharing your experience.
gluten-free/CF since September 03
Posted 18 September 2004 - 08:12 AM
Posted 18 September 2004 - 02:24 PM
Posted 19 September 2004 - 06:24 PM
I am also new to this forum and appreciate all your experienced advice. RE: eating out - a dietician I contacted suggested taking aluminum foil to resturants and asking the chef to grill meat/fish on the foil. Has anyone tried this?
Posted 19 September 2004 - 07:06 PM
gluten-free/CF since September 03
Posted 20 September 2004 - 07:29 PM
Thanks for the reassurance that Demoral will do the job, I am not looking forward to the colonoscopy in regards to the "discomfort", but I am anxious to get it over with to get some results...... I have it on September 28th......
Have a great day!
positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)
Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.
Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......
"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
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-- Victor Borge
"An optimist laughs to forget. A pessimist forgets to laugh."
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Posted 21 September 2004 - 07:14 AM
Posted 21 September 2004 - 07:32 AM
i have my own toaster and pans and butter plate
and i make sure none of those come in contact with something that isnt gluten-free-free
its a bit troublesome, but its better than feeling sick all the time
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