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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Does This Sound Like A Gluten Reaction?
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7 posts in this topic

It happened again -- my 10 yr. old celiac ate something, and 10 minutes later, threw up. Has felt just fine ever since. He's also allergic to eggs and I wonder if he's developed some food allergy we don't know about. The food he ate right beforehand was a gluten-free brownie with pecans -- had one last night with no reaction.

Anyhow -- when you get glutenated, what happens? I expected him to get lower GI symptoms. I KNOW he is eating gluten-free, but of course that never rules out contamination (God help me when he returns to school....). And I really do know he's gluten-free -- he doesn't eat enough that it's hard to keep track. Today he had gluten-free blueberry pie, soy milk, a gluten-free grilled cheese, apples, and the evil brownie....

Thanks for the input. I'm so depressed with this one-step forward, two steps back feeling.....

joanna

(mom to a celiac/autoimmune enteropathy/immunosuppressed son)

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Joanna,

It could have been the brownie, but it also could have been something else he ate in the last 24-48 hours also. Not every person reacts immediately. It may have seemed to be the brownie, since that was the last thing he had, but look at his diet for the last few days also.

If you still think it was the brownie, was it homemade, store bought, or a box mix? If it was homemade from scratch then it probably was not contaminated. If it was a box mix or store bought-already prepared then there is a higher risk of contamination. Since he had a brownie last night without a problem I would first look at everything else. Like the soymilk. I assume it is a gluten-free brand, since you are a very consciencious mother and check those things, but does he normally drink the soy milk? Some people cannot tolerate soy and it can cause an upset stomach.

God bless,

Mariann

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Hi,

What about the pecan in the brownie? Has he ever reacted to nuts

in the past?

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Thanks for the input. He has been on an extremely strict elimination diet and I'm confident it isn't the soy milk (Silk) but it did occur to me that maybe he's developed a nut allergy. I made the brownies myself from the gluten-free pantry mix, with his gluten-free dishes/implements. He had been RAST tested previously but i know some doctors/people don't find the results to be conclusive in all cases, and my son has a fairly seriously malfunctioning immune system so it tends to throw false results on occasion. He also drinks almond breeze and maybe yesterday --if he is intolerant of tree nuts -- he crossed a limit for his body. Unfortunately, the only way to know for sure would be to feed him some nuts or get another round of bloodwork done. I think maybe we'll just watch and wait. (In the hospital, they kept feeding him scrambled eggs, only to discover during testing that he's allergic to them! Which we figured out the day he threw up his ng tube!)

He's perfectly fine today -- although he has those dark circles under his eyes again. I feel better knowing that some celiacs do experience the "vomit and be done" (sorry!) reaction. We logged it in his food diary and we'll get on with life.

joanna

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I feel better knowing that some celiacs do experience the "vomit and be done" (sorry!) reaction

Yep...the one other celiac that goes to my school has the vomit and be done" reaction.

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I think everyone can have different types of reactions. Myself, I get so short tempered and it lasts for days. Irritable just does not come close to describing it. Everything bothers me touch, sight, sound, but the bowls are never that bad.

Please be forwarned about the possible nut allergy. He could be allergic to Peanuts OR Tree nuts. And the allergy can turn anaphylactic (Swells up and can't breath). If you suspect an allergy to nuts, please do not feed him and more nuts until you get him tested and keep Benedryl with you at all times. The Bendryl will slow down or stop a nut allergy.

My daughter has the peanut/tree nut allergy with anaphylactic shock reaction. The allergist even told us, when we first got her diagnoised, that each exposure to the peanut/tree nut will make her reaction faster and more severe. Her first reaction was gagging, coughing, and swelling. No exposure does not mean the allergy will go away.

Best of luck!

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I think it was something else, our daughter was diagnosed in January and it seems to take btwn 20 - 24 hours for her to react. Good luck, I know it is frustrating.

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    • Weird Reaction
      Hi Cristiana, You are quite right, there could be something wrong with the batch. I have often wondered this myself when I've had symptoms. A lot of manufacturers recall products when they find contamination issues, I often wonder though, how many products 'sneak' under the radar and no-one knows for sure; it could be the reason why so many of us wonder what we did to get 'glutened'. 
    • 9 year Old going through testing
      Thank you everyone. I have scheduled a second opinion. He last biopsie came back and he is lactose intolerant.     
    • Gluten ataxia...?
      I was explaining that some people have other trouble that is immune related and caused by eating gluten, but doesn't effect the gut in a noticeable way. According to the paper that I quoted there are some people which have different types of brain problems but don't have inflammation when tested by a biopsy.  The author used the term "non-Celiac gluten sensitivity" to refer to anyone who has any brain trouble that can be traced to gluten but without obvious gut inflammation.  There are a lot of different possible ways gluten can effect the brain some may not be related to the gut.  It could still be an immune system problem.  Normally "non-Celiac gluten sensitivity" refers to just a food intolerance.  Withdrawal symptoms are not normal and could be indicative of an immune system response of some sort, but I don't know for sure.        
    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
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