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Does This Sound Like A Gluten Reaction?
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7 posts in this topic

It happened again -- my 10 yr. old celiac ate something, and 10 minutes later, threw up. Has felt just fine ever since. He's also allergic to eggs and I wonder if he's developed some food allergy we don't know about. The food he ate right beforehand was a gluten-free brownie with pecans -- had one last night with no reaction.

Anyhow -- when you get glutenated, what happens? I expected him to get lower GI symptoms. I KNOW he is eating gluten-free, but of course that never rules out contamination (God help me when he returns to school....). And I really do know he's gluten-free -- he doesn't eat enough that it's hard to keep track. Today he had gluten-free blueberry pie, soy milk, a gluten-free grilled cheese, apples, and the evil brownie....

Thanks for the input. I'm so depressed with this one-step forward, two steps back feeling.....

joanna

(mom to a celiac/autoimmune enteropathy/immunosuppressed son)

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Joanna,

It could have been the brownie, but it also could have been something else he ate in the last 24-48 hours also. Not every person reacts immediately. It may have seemed to be the brownie, since that was the last thing he had, but look at his diet for the last few days also.

If you still think it was the brownie, was it homemade, store bought, or a box mix? If it was homemade from scratch then it probably was not contaminated. If it was a box mix or store bought-already prepared then there is a higher risk of contamination. Since he had a brownie last night without a problem I would first look at everything else. Like the soymilk. I assume it is a gluten-free brand, since you are a very consciencious mother and check those things, but does he normally drink the soy milk? Some people cannot tolerate soy and it can cause an upset stomach.

God bless,

Mariann

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Hi,

What about the pecan in the brownie? Has he ever reacted to nuts

in the past?

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Thanks for the input. He has been on an extremely strict elimination diet and I'm confident it isn't the soy milk (Silk) but it did occur to me that maybe he's developed a nut allergy. I made the brownies myself from the gluten-free pantry mix, with his gluten-free dishes/implements. He had been RAST tested previously but i know some doctors/people don't find the results to be conclusive in all cases, and my son has a fairly seriously malfunctioning immune system so it tends to throw false results on occasion. He also drinks almond breeze and maybe yesterday --if he is intolerant of tree nuts -- he crossed a limit for his body. Unfortunately, the only way to know for sure would be to feed him some nuts or get another round of bloodwork done. I think maybe we'll just watch and wait. (In the hospital, they kept feeding him scrambled eggs, only to discover during testing that he's allergic to them! Which we figured out the day he threw up his ng tube!)

He's perfectly fine today -- although he has those dark circles under his eyes again. I feel better knowing that some celiacs do experience the "vomit and be done" (sorry!) reaction. We logged it in his food diary and we'll get on with life.

joanna

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I feel better knowing that some celiacs do experience the "vomit and be done" (sorry!) reaction

Yep...the one other celiac that goes to my school has the vomit and be done" reaction.

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I think everyone can have different types of reactions. Myself, I get so short tempered and it lasts for days. Irritable just does not come close to describing it. Everything bothers me touch, sight, sound, but the bowls are never that bad.

Please be forwarned about the possible nut allergy. He could be allergic to Peanuts OR Tree nuts. And the allergy can turn anaphylactic (Swells up and can't breath). If you suspect an allergy to nuts, please do not feed him and more nuts until you get him tested and keep Benedryl with you at all times. The Bendryl will slow down or stop a nut allergy.

My daughter has the peanut/tree nut allergy with anaphylactic shock reaction. The allergist even told us, when we first got her diagnoised, that each exposure to the peanut/tree nut will make her reaction faster and more severe. Her first reaction was gagging, coughing, and swelling. No exposure does not mean the allergy will go away.

Best of luck!

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I think it was something else, our daughter was diagnosed in January and it seems to take btwn 20 - 24 hours for her to react. Good luck, I know it is frustrating.

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    • Oh, Trish at the GlutenFreeWatchDog tested Planter's honey roasted peanuts three years ago.  The can did not state gluten-free, but showed no gluten ingrediants (per Kraft policy).  Test result: less than 5 part per million which is pretty much gluten-free.  
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    • I have intolerances to a few foods now, so I was wondering about that.. I love cashews though, and a month or two ago I was eating them all the time with no problems at all. I mean, could I really have developed an intolerance to them since then? I don't know if they're made on shared lines (it didn't say on the package so I assumed they weren't), but I'll give them a call. I'm really, really sensitive to cross contamination. Even if something is just made in the same facility (but not on shared lines) it will make me sick. If that's not it, then I'm not really sure
    • Research with KP and find a celiac-savvy GI in your area ( read the biographies). and ask your PCP/GP for a referral to that specific GI (not his buddy).  Ask the GI for the rest  of the celiac panel or proceed with an endoscopy/biopsies -- 4 to six.  Keep eating gluten daily until all testing is complete.  Document and request in writing.  Do not worry about symptoms.  There are over 300 of them and some celiacs have none!   Research all that you can about celiac disease.  The University of Chicago has a great celiac website that has testing Information etc.   Poet me know how it works out.  Hope you feel better soon!  
    • I react to both wheat and barley.  I've opted to just go completely gluten free, for the sake of simplicity and my sanity.  I don't have a diagnosis of celiac disease, but I strongly suspect it.  Unfortunately, I'm not willing to endure the misery of staying on gluten long enough to pursue further testing.  I just know I need to avoid the gluten grains, so I do.  
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