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Help I'm Feeling Terrible
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4 posts in this topic

Sorry if this is in the wrong forum. I just need to tell someone. I feel terrible and I am holding my stomach and thats not helping. This is the first time since going gluten free that I have felt this bad. I have been keeping a food diary for the last couple of weeks. I haven't been having milk except in my coffee (very little) then last night I made corn bread needed 1 cup of milk and other things. I made a pot of pinto beans with 1 onion salt pork and some season salt and thats it usuaslly it never bothers me, but I felt a little bloated and I ate it on top of my cornbread. The last time I made the beans I did not make cornbread. Then this am I made a omelete with organic cheese and sour cream and a little milk in my eggs. The cheese and sour cream never bother me as I eat these alot in taco's. I think maybe I had to much milk in the last day. I had to run to the bathroom and I hadn't had to do that lately either. Now I'm sad that I made my self sick. Maybe there was gluten I didn't clean up good enough. I think I will go clean out the silverware drawer I saw a bunch of crumbs in there. Heck I going to scrub down my whole kitchen. Thanks for letting me vent. I guess I will start all over.

I forget that I had taquitoes at my moms when I was there yesterday, I read the label maybe I missed something, I know it said carmel coloring and I have avoid that ingredient since Aug because i read that that shouldn't be a problem. Maybe thats the problem who knows?

Question? Can a person be intolerant to milk and not cheeses and sour cream or did I gluten myself somewhere along the line? :(

Ok I really blew it. I now know why I am sick this am It started last night with a little bloating. Than today with cramping and the big D. Well I took my mother shopping yesterday and I remember that she needed FLOUR so without even thinking about it I picked it up and put in the basket, went to her house and ate a little food not even realizing that I had picked up the FLOUR. Well I can tell you that will never happen again. Usually her in house support person does all of this. Mom ny had 2 strokes 2 yrs ago this Feb, but she is ok not great but ok. Anyway thanks for letting me vent.

I am cleaning out my kitchen drawers now.

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At least you know it was flour and not the milk. :)

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At least you know it was flour and not the milk. :)

Wow - I'm amazed that just picking up a bag of flour made you so sick! I am so sorry you got sick, but at least you know what it was caused by.

I will have to remember to be very careful about things like that. My son is gluten free, but I am wondering if he is getting CCed because he is not feeling as good as he was when we first went gluten free. He has been having stomach aches and nausea.... I did throw out my 2 scratched teflon pans, and wooden spoons. I am cooking in a cast iron pan now so maybe that will help...

Anyway, sorry to ramble, I hope you feel better really soon!

ARK

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Question? Can a person be intolerant to milk and not cheeses and sour cream ...?

someone who is lactose intolerant (milk sugar) but not intolerant to the protein in milk would show that symptom. Cheeses and sour cream have had much of the lactose digested away by the bacteria culture that turns ordinary milk into those products.

I suppose if you are brave you could test that by drinking a glass of "lactaid" milk, if you are ok with that then the next day try a glass of ordinary milk :blink:

I've tried that and decided that I am not lactose intolerant

cheers

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    • I found when I went gluten free I started eating more dairy and that gave me worse stomach aches and bloating than the gluten did. So now I have to avoid gluten and dairy.  Maybe you have a similar problem with something you are eating.  I hope you feel better soon.  
    • Hi! I received my "official" celiac diagnosis last week. I had an endoscopy last month that was originally looking for ulcers and h. pylori, but they did some biopsies of my duodenum since they were in the neighborhood and the biopsy came back "consistent with Celiac's disease" and later. They urged me to get my blood checked and follow up with my primary doctor. My blood work came back negative, but my doctor was confident it's Celiac so told me to stay away from gluten. I've been completely gluten free (or to the best of my knowledge) for 2 weeks now, and my results are mixed. At first, I felt great! My stomach was no longer CRAZY bloated once I stopped eating pasta and bread, my acne started healing, and the red rash on the back of my arms started to fade. That was the first few days. Lately, though, my acne is once again flaring up and I've been SO EXHAUSTED. I feel so tired all the time. Even now I have fatigue in my head, limbs, and I could hardly walk or move my body earlier today. I'm overweight and I like to go to the gym, but what used to be an easy workout for me is kicking my ass! I used to go to the gym and tear it up: HIIT on the treadmill followed by 40 minutes of heavy weight lifting. Now I can hardly finish 3 reps in my first set without feeling like a nap. I can't run anymore because my body feels clumsy and heavy. Also, I'm still bloated. I don't suffer from painful, acute bloating, but I struggle to pass gas and I look like I have pregnant belly. I think I'm also retaining water all over my body, and I'm not sure if that's normal? For whatever reason, I have this belief that water is mainly retained in the core and not arms, legs, and face. Anyway, I'd love to hear what you have to say/what you've experienced. Is this typical to first going gluten free?
    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
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