Confused About Testing & Diagnosis
Posted 22 August 2004 - 09:59 AM
I find that doctors are not good at explaining any of this stuff, and I'm so confused. And I'm still sick much of the time. The doctors now just want to say it's IBS, but I feel like IBS is a symptom, not a diagnosis.
I'm considering the Enterolab tests, but I wondered if it's worth it based on my previous test results.
Any advice would be appreciated!!
Posted 22 August 2004 - 11:37 AM
You might want to check out this thread.
A quote from it:
Which basically, believe means.. that the genes your doctor tested for didn't show up, but there could be other genes that your doctor didn't check for, that Enterolab does, that could cause you to have problems with gluten.
Currently the only two genes that are being called Celiac Markers are the DQ2 & DQ8(or is it DQ3 subtype 8?). Anyhow, there may come a day when these other gluten intolerance genes are also recognised as Celiac markers.
Enterolab test for genes with a cheek sample. Also tests for anti-bodies in stool. Blood tests can't always pick up on the anti-bodies, if enough aren't in the blood.
The only problem you may run into, is how long have you been gluten-free? I believe someone said you could be up to a year gluten-free for the testing for Enterolab to work, but I might be wrong there. You could try emailing them, the address is on their website. So far every time I've sent them an email, got a response back the next day.
Well I guess you could say you're not Celiac. Celiac if I'm right, means you have damage to your small intestines from gluten. But a gluten intolerance can easily develop into Celiac, and both are treated the same way. So some people consider them the same thing. Which in a sense they are.
So does this absolutely mean that I am not Celiac? And since I still know that I am gluten sensitive, does that mean I just have an intolerance? Will it develop into celiac disease?
But if you do feel better when not eating gluten, I'd say just say off gluten. Or if you want some testing done too, then contact Enterolab. They do also check for other food intelorances if you had other questions too.
Good luck! =)
Posted 22 August 2004 - 03:44 PM
Mariann, gluten intolerant and mother of 3 gluten intolerant children
Posted 22 August 2004 - 10:18 PM
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