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Today I didn't have much to do so I thought of a few brand names and shot out e-mails for gluten-free products. I'll list the companies I contacted below. I already got one reply, from Tootsie (makers of Tootsie products, charm products, cambridge brands, and cella confections). They sent me their list in word document format....if anyone wants their list or any others I get, ask me and I'll forward the e-mail......or post the list here.....

Minute Maid

Kraft

Yoplait (subdivision of Kraft, so that e-mail didn't matter)

Hershey's

Nestle

Mars (milky ways, M&Ms, etc.)

Tootsie Roll Industries

Hormel

Boar's Head

Heinz

Duncan Hines (part of Pinnacle Foods Corporation, a company that also makes products such as Aunt Jemima syrup (gluten-free).

Campbells

General Mills

Dannon

Pinnacle Foods Corporation

I plan on e-mailing some ice cream companies later. I was really bored so I did this, but if these lists can help anyone, I'd be happy to forward or post them. The word document list from Tootsie is in a weird format, so I'll have to make it work in the post form here, but I'll post it later when I have time. I also got a reply from Hormel.......their list is in their FAQs at:

http://www.hormel.com/faq/faq.asp?id=37072

-celiac3270

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You have been a busy bee!!!!

Any info you obtain would be greatly appreciated by your Canadian friend in the Great White North!!!!

Have a great day, celiac3270!

p.s. I am still trying to get some info on what meats are gluten-free here in Canada..... other than Maple Lodge Farms, I am having a difficult time getting info.....

Karen

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The tootsie gluten-free list....remember all products are subject to ingredient change:

Thank you for contacting us.
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celiac3270,

Speaking of ice cream... my fiance' works for Bruster's (lucky me!) and got an e-mail from a woman inquiring about the gluten-free status last week. That was pretty cool, actually! But, the bad news is that there is too high a risk for cross-contamination for it to be considered gluten-free. At least that's what he told me. I could imagine that any place that you visit that scoops ice cream onto cones will inevitiably get cone fragments, etc into the bucket that they're scooping from. I believe their ice-cream itself is gluten-free, but the environment is too risky.

Gretchen

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Hi - This is my first reply - just joined and am at the start of my huge learning curve! I would just LOVE to receive the lists you're getting! I'm trying to combine the need to be gluten-free with Atkins as much as I can, so am trying to stay away from such goodies as Tootsie Rolls - one of my favorites!!!

I'm really glad I found this forum - and hope I'll someday be able to be as helpful as you all seem to be!

Gail

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Hi Gail! Welcome to the forum..... you will find a great bunch of really supportive fellow celiacs here.....

Along with the gluten-free list of products on this forum (which is a great list), there is also another forum at www.delphiforums.com. On the left, click on "Health and Wellness" and then the second forum down is the Celiac forum.... In there is a great gluten free list also.....

Just post away when you need to, there are a great bunch of people here who are always willing to help out.....

Have a great day!

Karen

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Welcome Gail! Here's a quick-start guide that might be of some help! There are many helpful posts here... I know there might be a lot and seem overwhelming, but you can always do a search for certain products (like bar-b-q sauce or candy) when you have an opportunity.

Also, Feel free to ask whatever questions you might have and we'll be happy to help you out!

http://www.celiac.com/st_main.html?p_catid=19

http://www.gluten.net/downloads/Quick-Start-Mar04.pdf

Gretchen

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I can tell you that you won't get a list from Kraft. They'll just tell you to read the ingredients because they don't hide gluten. In fact, most of the companies you wrote to have the same policy.

Oh, and like Hormel, Heinz's list is on their web site.

richard

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I was afraid of getting that reaction from Kraft...........I explained in my e-mail that I was aware of that policy............too bad. As for Heinz and Hormel, I didn't bother to check the FAQs; I just had one e-mail that I copied into every e-mail form and sent off -- it was faster that way. Thanks for the info., though

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A few FAQs on Ben and Jerrys:

Gluten-free Flavors

  Question

  Do you have a list of your gluten-free flavors?

  Answer

  We do not have a list of gluten-free flavors. Sorry! The ingredients that we use change quite often. We do not want to claim a flavor is gluten-free, then have that list become outdated and the recipients not aware of the latest changes.

Ben and Jerry

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I got Nestle's list...it's annoying that all the candy lists that I don't really care about come before the others.......... :) ......anyway, notice the way Nestle puts it: attached is the allergen information you requested......ALLERGEN! It's not an allergy! :rolleyes: Anyway:

August 24, 2004

Dear Nestl

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I got another reply, this one from Dannon. I think it's funny that they mention celiac.com. Anyway, it's pretty much just the plain ones, though for any dieting celiacs, the lowfat and nonfat are gluten-free.......often, lowfat and nonfat products contain gluten, so that's good news.......although I'm trying to gain weight.

August 24, 2004

Thank you for contacting The Dannon Company, Inc. We sincerely appreciate

your

interest in Dannon yogurt products and gluten.

Dannon yogurt products are characterized as either gluten safe or not gluten

safe. Our

Dannon Plain Lowfat, Plain Nonfat and Plain Natural are all gluten safe.

All other

Dannon yogurts cannot be designated as gluten safe because the natural

flavor systems

used might have ingredients added to stabilize the flavor. The stabilizing

ingredients may

be derived from gluten sources.

For our valued consumers that may have allergenic risks associated with

gluten, our

products are not specifically formulated to contain gluten but we cannot

guarantee that

the alcohol portion of the natural flavor system is always derived from corn

and not from

wheat, oats, rye and barley.

We hope this information is helpful to you. As an additional resource, you

may wish to

visit the website: www.celiac.com. Once again, thank you for contacting

Dannon.

Sincerely,

Lisa Moore

Consumer Service Representative

Ref#:624459

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Two comments:

Product formulations are different in other countries, so be careful if you are not in the US. (Karen, I know you are aware of this from delphi but thought I'd mention it for others.)

Publix brand sherbets and yogurts are gluten-free - confirmed recently.

:)

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Good point, crc0622.

I have another list :) ......this one from Haagen-Dazs

Thank you for your email requesting nutritional information on H�agen-Dazs�

products. In an

increasingly health-conscious society, we are always happy to answer your

questions about our

products.

As a general rule, the gluten in any of our ice cream, frozen yogurt or

novelty products is present

only in added bakery products such as cookies or shortcake. In most cases

the ice cream itself

contains no gluten. Gluten is never hidden under the term "natural

flavors".

We have sent a current flavor list, upon which any flavor that contains

gluten is so designated

with the letter "G". We hope that this information will be helpful to you.

Please feel free to call

our toll-free number should you need any further information. Our

representatives will be happy

to help you.

We value our consumers and hope you will continue to enjoy our products.

Please watch for our

follow-up response to arrive shortly, along with a flavor list and recipes.

Sincerely,

Angela Brem

Consumer Response Representative

Ref # N1591665

=====================================================

For money saving coupons join our H�agen-Dazs� Rewards at

http://www.haagen-dazs.com

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celiac3270, It sounds like you have learned that you are not lactose intolerant. If you don't know for sure, it would seem better to avoid ice cream altogether, especially since you are still having problems. I really shouldn't be giving advice about milk products since I had company last week and made them a traditional family treat, strawberry shortcake (biscuit from regular flour) and topped with whipping cream, 1 pt. between 6 people. I ate my share and after being gluten free for just 3 weeks had several other glaring departures from my diet. The first days of this week my burning abdomen was much worse and also my arthritis. Today I am feeling a bit better. At least I learned that I do feel some better in general when I am on the diet. Of course, I still have not been on very long. Will see my doctor on Monday. He wants to monitor my progress. Too bad I slipped. He also wants to be sure I don't lose too much weight. I gained a little with the company, but have already lost that. Have trouble getting enough calories to replace the bread and pasta stuff I was eating. I really am not into baking alot so haven't bought any gluten-free baking ingredients. I am on the strict SCD diet set forth in "Breaking the Vicious Cycle". This is not as hard for me as it would be for you since I really don't need to gain weight, just try to hold steady. Also I have been in the habit of eating mostly meat and vegetables, a few fruits for some time except for bread and desserts at Ladies' Guild. I did manage not to eat cake at Guild this time. Back to baking ingredients, the gluten-free nutflours, etc. seem very expensive. I think you mentioned this, too, awhile back. If you run into any good lists for this sort of thing I'd be interested. Ruth

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Ruth,

I simply e-mailed all these companies cause I had a lot of time on my hands with a computer and nothing else to do :D . I tried to think of a lot of companies that I could e-mail. I do not eat Ben and Jerry's ice cream, although I have had Haagen Dazs. The doctor is focusing on a few things that he thinks could be causing my problems. Actually, I should probably be a little more strict or observant with dairy consumption and symptoms.

Actually, I've heard a bit more from my doctor, so I'll fill everybody in. Okay, first off, as you all know by now, I've still been having symptom troubles.....and my GI was terrific in diagnosing, but utterly useless with the post-diagnosis stage of celiac. So I recently switched doctors to a celiac specialist. He has been great. Now, these were a few possibilities:

- Cyclic Vomiting: a migraine-related thing that manifests itself in vomiting--I'm not sure about the abdominal pains. One thing that makes him think that is that my pediatrician thought I had that when I had stomach troubles...he might have been right...additionally, I used to; not so much anymore, see spots, kinda, when I was sick -- as sign of cyclic. Anyway, if this is the case, there's nothing to do about it, but wait. You're supposed to outgrow it and if I had it, I should be outgrowing it already.

- Gallbladder: Karen mentioned the possiblity of something with my gallbladder. I mentioned that to him and he said that that would be quite a possibility. Then he asked if I had had a sonogram, which I had, and therefore, he said, it would've already been found.

- Ulcers: Just something I saw written all over, so I brought that up. He said that that is a possibility.....I don't know how you test that or how you treat it, so if someone could fill me in on that, it would be appreciated.

.........I don't remember everything, but I guess I just haven't been paying attention to the dairy since my focus is on acid and sugar. I think cutting out the ACID has helped tremendously....I just feel better than I did...I don't know if this is just in my head. BTW, I am to continue taking Prilosec OTC twice a day. That about brings us up to date :) . If my symptoms don't get better after....maybe a year, perhaps sooner, I think I'll start an elimination diet.....start off with veggies, meats, potato.....see how it goes.....then slowly incorporate a few items each week and if it gets bad, target individual items..............at this point I don't want to limit myself more than I have to.....if I lose my patience I'll try that.

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Well, celiac3270, I'll help you out a little here. I emailed Carvel today, asking specifically which of their flavors are gluten-free and if you can special order their cakes w/o the chocolate "crunchies" in the center as those contain wheat. Here's what they said:

Thank you for your email. Most of our ice cream is gluten-free, except for those that contain brownie or cookie dough. You can only special order a cake through one of Carvel retail stores. I suggest calling them and ordering it in advance without the crunchies. I have listed below a list of our gluten-free ingredients.

Vanilla Ice Cream

Chocolate Ice Cream

Sherbet

Vanilla No Fat Ice Cream

Chocolate No Fat Ice Cream

No Sugar Vanilla Ice Cream

Strawberries

Carvella Flavor

Coffee Flavor

Butter Flavor

Maple Flavor

Pistachio Flavor

Rum Flavor

Mint Flavor

Citric Acid

Lemon Sherbet Flavor

Orange Sherbet Flavor

Lime Sherbet Flavor

Cheesecake Base (flavor)

Simple Syrup

Whip Topping

Pure Whipped Cream

Choc. Carvel Cocoa Flavor

Strawberry Puree

Black Raspberry Puree

Egg Nog Base

Pumpkin Puree

Strawberry Pre-Pak

Chocolate Pre-Pak

Butterscotch Pre-Pak

Caramel Fudge Topping

Chocolate Syrup

Bittersweet Fudge

Hot Milk Fudge

Butterscotch Topping

Caramel Topping

Pineapple Cubes

Diced Peaches

Pecans, chopped

Almonds, diced

Walnut, pieces

Peanut Butter Topping

Nutty Mix

Peanuts, crushed

Brown Bonnet

Cherry Bonnet

White Bonnet

Maraschino Cherries,

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Hey I wrote Old El paso and this is what they told me

Dear Ms. Allen:

Thank you for contacting Old El Paso regarding gluten in Old El Paso products.

It is our primary goal to help our consumers determine whether or not they can include our products in their diet. To accurately accomplish this, we believe it is best to refer to the specific ingredients listed on each product package.

However, we do understand that ingredients can be confusing, so we want to assure you if the ingredient label does not list wheat, barley, rye, oats or other sources of gluten, then the product would be gluten-free. Sources of gluten are listed on the label even if the source of gluten is part of another ingredient (such as flavoring or spice). Because ingredients may vary from one package to another due to product reformulation, you should use the product

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Oooh........i got e-mails from General Mills, Yoplait, and.........some other places........can't remember who........yesterday. I got the same thing from General Mills, but I wasn't asking about a specific product or type of product. Can't remember the other replies.........just remember that Yoplait has no list..... <_< I'll check when I get home

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hey celiac3270 can u post the Mars (milky ways, M&Ms, etc.) list .Thanks

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General Mills doesn't hide gluten. All Yoplait flavors are gluten-free, but they do have some that comes with a separate package of granola. Don't use the granola.

richard

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oooh.......really Richard? I read in some sample of Clan Thompson's that the custard-style was gluten-free.........i didn't see anything else, but it never said that other flavors weren't gluten-free........thanks.

Lyndsey,

I couldn't contact the entire company Mars via e-mail, but rather, just Milkyway or M&Ms separately on their respective sites. M&Ms are gluten-free (peanut, regular, etc.), except for the crispy kind (blue packaging). Milkyways are not gluten-free except for the Milky Way midnight. I don't have the official lists w/ me......I'm not posting from home and aol.com doesn't always let me into my mailbox due to # of messages..............annoying. Anyway, when I get home, I'll post it.

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Thank you for taking the time to contact our company regarding Yoplait Products.

At this time, we do not have a comprehensive list of our products.� We will be happy to share your comments with the appropriate personnel.

We appreciate your interest.

Sincerely,

Amy R. Newhouse

Consumer Services

Yoplait wasn't too helpful via e-mail.......I believe you, Richard, but I'll just call them to make sure that they haven't changed anything since you checked.

Thank you for contacting the General Mills Consumer Services Department.� The information you requested is available on our web site at www.generalmills.com.� On the home page click on "Brands". We hope you enjoy the site, and please let us know if we can be of further assistance.

� � � � � � � � � � � � � � � � � � � � � � � �

Sincerely,

Jack Stone

Consumer Services

Here are my two e-mail replies..........anyway, sounds like your representative was more helpful, Lyndsey....I had forgotten what Jack had said when I posted this morning :D . Ugg....nobody was particularly helpful via e-mail....whatever.

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Hi again. celiac3270, if you ever do go on an elimination diet, perhaps consider eliminating potatoes and tomato family also. Peppers and eggplant are also in that family. Those are things that definitely give me problems, but they may not bother you since all our systems are different. Like snowflakes, each person is different. Just thought I'd mention that possibility. Know that would be hard to do. I miss them very much, but as I've said in a different post, I am using the Elaine Gott(?) SCD diet. Intend to follow through even if I get company again since this past week has been rough. I think it is starting to come around again. Ruth

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Hmmmmmmm......interesting........I eat TONS of potatoes.

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    • Thanks for posting this Adrien, it's a great list and I and others will appreciate the effort and the thought behind it. I loved my time in Malaysia and I'm glad I sampled all the food I could whilst I was still on an unrestricted diet. The good thing is that, like you say, some of the nice Malay foods are still ok. As a backpacker I survived on a lot of nasi goreng and laksa, nice to think if I return there I could still do the same Terima kasih!
    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
    • Thanks for sharing with me.  I really appreciate it.  Honestly, after a glutening last summer (still do not know what glutened me), I did not eat out for a year!  The risk was too great as my healing time took 3 months (for symptoms to subside) and six months to regain lost weight.  Our recent vacation to Europe was worth the risk  as we traveled with our entire extended family, but we were extra cautious and ate only at celiac-approved places.  Otherwise, we "dined" at markets or ate the food we brought from home.  Thankfully, we did not get glutened (at least we don't think so!)  
    • I do not struggle with this and I was brought up the same way as you. I don't struggle because for many years off & on we didn't have a bathtub, only showers as well as this being therapy or medicinal for the skin - heck even for the muscles as I age. I figure I've earned my right to luxuriate or medicate with baths any time I've a mind to. My husband saw just how bad my dh got & NEVER begrudges me a nice long soak in the big soaking tub we now have.
    • Hi, No, I do not have celiac  disease. I have an ankylosing spondylitis which is an auto-immune disease provoking an inflammation of the joints. Under the advice and supervision of my doctor and the professor at the hospital I follow a gluten free & casein free diet, which is extremely successful in preventing inflammatory events. And I've been doing so, strictly, for more than 6 years. So I'm not Celiac, but I can tell you that I react strongly every time I take gluten even in small amounts. Even soya sauce, which according to this website has an almost zero dose of gluten, is a lot too much for me. Nevertheless I allow myself to eat food which has been processed in a factory which processes gluten. To conclude, I would say that when you are travelling, especially in a country where celiac disease is scarcely known, you should be twice as careful as when you're going out at home. In the end you can never guarantee that the cook has cleaned his pan after using soya sauce and so on... You can only bet
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