Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Question On How To Read Bloodwork.
0

9 posts in this topic

I know there are two threads currently about blood work, but I wasn't sure how to post this in one of those, without stealing the creator's thunder so to speak.. so starting yet another one, sorry!

I had these taken last Fall, seeing the doctor again, and just want to sound intelligent when I point out to him how this could mean celiac disease (or gluten intolerance, lol) to him.

Gliadin Ab (IgG) = 64

Gliadin Ab (IgA) = 34

Transglutaminase Ab (IgA) = 5

Under 20, Neg. Over 20, weak positive. Over 30, positive.

Reticulin Ab (IgA) = Negative

So, if I understand this right. The IgG is raised in people with celiac disease, but also other diseases. The IgA, my test results say can be with celiac disease or other diseases too, but I read on the boards that IgA is better at showing celiac disease than IgG?

And the other two, obviously appear to be negative according to the lab results. Do those other two have more to do with a damaged small intestines than the first? Just a guess..

But when my doctor rails on about me not having to be gluten-free, I can say pretty positively to him, if I'm not mistaken that no matter what he thinks, having Gliadin Anti-Bodies showing up as strong positives mean I am gluten intolerant and would be dumb to go back to eating it?

Thanks! And yes, I know getting another doctor could be good to do.. but so far, he seems willing to learn, and better for his patients if I can educate him somehow. Don't think my insurance would allow a switch anyway, LOL.

0

Share this post


Link to post
Share on other sites


Ads by Google:
I know there are two threads currently about blood work, but I wasn't sure how to post this in one of those, without stealing the creator's thunder so to speak.. so starting yet another one, sorry!

Alexolua,

I don't know if we could ever have enough of these questions, to be honest with you.

But when my doctor rails on about me not having to be gluten-free, I can say pretty positively to him, if I'm not mistaken that no matter what he thinks, having Gliadin Anti-Bodies showing up as strong positives mean I am gluten intolerant and would be dumb to go back to eating it?

That's how I see it too!

Gretchen

0

Share this post


Link to post
Share on other sites
That's how I see it too!

Okay, so I am right in assuming those mean I'm gluten intolerant, no matter what he thinks? =)

And hey.. looking at your tag, you were negative on the last two, too? Well Borderline for that other one.. with a certain number, looks like my lab didn't do numbers for that one.

0

Share this post


Link to post
Share on other sites

Alexolua,

I have read that encouraging a patient to go gluten-free before diagnois is discouraged because of the difficulty of receiving a diagnosis later in life. I personally consider an auto-immune response to gluten as intolerance... irregardless of what condition might be causing it. A year after my Igg was elevated and I didn't go gluten-free, my levels just increased.... real good that did. <_<

I have read about the destructive nature of gluten in the bloodstream and knowing I have a problem, don't want to risk the results of non-treatment.

Okay, so I am right in assuming those mean I'm gluten intolerant, no matter what he thinks? =)

I'd say "yes" to that. ... you wouldn't be the first one to disagree with a doctor

Gretchen

0

Share this post


Link to post
Share on other sites

Thanks for the reply again. =)

you wouldn't be the first one to disagree with a doctor

I know that! Pretty sure a good amount of us here have disagreed with doctors before, LOL.

0

Share this post


Link to post
Share on other sites




So just for another question on blood work...

Seems your blood tests are a little more detailed than mine was.

It tested for anti-IgA, which when I went searching on the net had similar results to that stated below - would this be the transglutaminase Ab???

I had a reading off the scale at 190, but inconclusive/negative biopsy.

Although keeping to the diet pretty well, and have a new, amazingly supportive partner, I am still trying to get a handle on all this and what everything means.

What are the other tests for? still gluten, or something else?

QUOTE

Gliadin Ab (IgG) = 64

Gliadin Ab (IgA) = 34

Transglutaminase Ab (IgA) = 5

Under 20, Neg. Over 20, weak positive. Over 30, positive.

Reticulin Ab (IgA) = Negative

Cheers, Peta

0

Share this post


Link to post
Share on other sites
have a new, amazingly supportive partner

Peta,

I know how important that is... that's wonderful.

Was it the Iga that you tested in that was 190 or another test?

There are many different blood tests that they use in the celiac profile. Some have less/more specificity & sensitivity than the others, but pretty much if you tested positive on any, it's an indication that your body is having a response to gluten (protein found in wheat, barley, rye, oats). Some of the tests, like the Ttg are specific to intestinal damage... which will most likely be negative in someone who's gluten intolerance hasn't caused intestinal damage yet. Celiac is diagnosed when that damage appears. Many go gluten-free before that happens, though.

Gretchen

0

Share this post


Link to post
Share on other sites

Thanks for that Gretchen

Yes, he's been great!! Putting up with the "I can't eat that", and the mood that followed a caterers erm... mistake!?

Yep. Has got me a little confused though. I'm not quite sure what it was testing. All it had on the result sheet was anti-IgA - 190. When I got home I did a search on the web, and found something that said over 30 was high indication of positive for celiac disease. Seems over there you're testing is more detailed?!

Glad my doc has a view of avoiding problems, and suggested gluten-free for 6 wks. The GI said don't do it unless definite celiac disease.

As for waiting till you get to the point where you've got intestinal damage if you can avoid it... you gotta be kidding me. not if you know how to avoid it

Peta

0

Share this post


Link to post
Share on other sites

wow, reading others blood results that have been posted on here, makes me think do I really have celiac disease? My results were IgG 20, IgA negative, and Ttg negative. My doctor considered that number of 20 to be enough for me to be gluten intolerant...now I'm questioning. I guess it is better to trial it with the diet and go by how I feel!

Rachel

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,358
    • Total Posts
      920,531
  • Topics

  • Posts

    • Here's another thing.  Feeling deprived?  Order two of the same item.  I was hungry by the time dinner arrived! 
    • The doctors just made me feel like I was crazy because they did not have a clue of what was wrong with me. I did a stool test (positive) and I did a genes test (positive for two gluten sensitive genes, one in each chromosome).  Blood test are not so foolproof, if you read the comments/experiences in such topic you will see the problems. Biopsy can give a false negative if taken from an undamaged area. If you have medical problems that go away once on a gluten free diet then gluten is the problem. The medical establishment profit from managing your medical problems and big pharma makes money by pushing pills so we need to be careful because they won't benefit if a gluten-free diet solve your problems. Since I started a Gluten free diet I have been free of the following: (all related to Celiac)  Irregularity, Intestinal noise, Irregular stool, Tooth enamel defects, Rash in upper arms, Abdominal swelling, depression, fatigue, irritability, lactose intolerance, 
      loss of memory, dandruff, uncontrollable bladder, suicidal thoughts, unable to sleep, Canker sores/ Mouth ulcers, high blood pressure, and probably others that I did not realize. I was at the end of my rope, thanks to Google and the people that are able to talk about this I was able to get my life back. I am passionate about this because I know how bad its can get. 
    • Well, I have never cruised on Carnival, but I am sure they can accommodate you.  I assume that you have already alerted them that you require gluten free meals.  If not, please contact Carnival immediately. Here are my own tips.  Some folks eat off the buffet line, but not me or hubby except for coffee/drinks and baked potatoes (jacketed) and fruit that we wash in the restroom (people touch everything!)  Okay, I am OCD, but my last glutening which occurred the previous summer made me sick for three months (GI tested my antibodies to prove it).   When we board, I go to the buffet restaurant ASAP and ask to speak to the Head Waiter (they are usually there greeting customers and often trying to up sell to specialty restaurants.   Let them know you have celiac disease and must be gluten free.  They may try to tell you that each dish is clearly marked gluten free, but really?  Who's to say that some other passenger is not going to switch spoons (or I have seen passengers wandering around with serving spoons...I kid you not!  The staff usually will  go downstairs and fetch a gluten free meal for me from the main dining room's kitchen as there is usually a dedicated area for allergies.  We have to wait up to 20 minutes or so but it is worth it.  Starving?  Get a baked potato wrapped in foil until your gluten-free meal arrives.  Now, do not do this every single time.  Those folks have to go down several levels to fetch food and you don't want to be a pain.  But if the main dining area is closed, they need to make an effort to keep you safe.  On our last cruise, we were advised not to eat anywhere but the main dining room and that included room service (they are not trained to handled allergies).  My headwaiters have sent goodies (prepackaged gluten free rolls and cookies for us to keep in our room.  We can always grab whole fruit (I wash it first) to snack on.  I bring gluten-free non-perishable items with me to eat while at port in case we can't find anything (which can be often).  Again, when we get back to our ship, we contact our headwaiter and he/she can prepare some snacks until we have dinner.   Be grateful and not picky.   We eat all meals in the dining room (or at least as much as possible).  Our headwaiter had a few other celiacs on our cruise this summer, so they prepared some gluten-free waffles, etc. for our breakfast!  What a treat!  At breakfast, we'd have different waiters, so our headwaiter would always instruct our waiters each and every time!  They even let me tour the kitchen and showed me the allergy section.   The only time I did not feel safe was at the buffet.  We once ordered gluten-free pizza and I realized (I watched) that that restaurant didn't really have the gluten-free thing down), do I called him on it.  Got the manager etc.  So, be careful.  Other cruises made us frozen Udi"s which was just fine with us.  They covered it up in foil so that we would not get any cross contamination from their pizza oven. So, have fun!   Tipping?  We prepaid our gratuities, but we gave our headwaiter an extra $200.00 for his time.  For us, it was well worth the service and safety of our food.  It does not hurt to slip some of the tip ahead of time (like after your first meal!)   Oh, I checked your ship.  You must eat in the diningroom if you have special dietary needs.
    • French Celiac / Coeliac Gluten Free Restaurant Card <strong>What is ... What to know about celiac disease, gluten sensitivity, and gluten-free diets. View the full article
    • <strong>Celiac Disease & Gluten-free Diet Information at Celiac.com. Gluten Free Diabetes ::The 3 Step Trick that Reverses Diabetes Permanently in ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,432
    • Most Online
      1,763

    Newest Member
    rbeckler60
    Joined