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Nutrition Drinks - I Am Starving Here!


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#1 angst2amity

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Posted 07 December 2006 - 10:01 AM

I am having a real problem. I can't seem to eat gluten, peanuts, all sugars and anything that contains them including fructose (even the small amount in onions!), artificial sweeteners, milk, cheeses...

I had a scoop of refried beans for breakfast - this seems to be the only thing I can eat, that and cashews. When I eat the other things above, I:
  • run a fever
  • get a hot flushed face
  • get a migraine
  • joint aches
  • extreme fatigue
  • and D
I think I have systemic candida very bad but still waiting on sinus surgery and cultures.

For now, I am starving to death. I have been looking into nutrition drinks, like medical food for tube feeding, because ensure and other drinks have flavoring, sweeteners, and other junk.

Any one ever do this? Any good places to buy from?
  • 0
Chronic Ear Infections
Chronic Tooth/Jaw Infections
Chronic Sinus Infections
Recent Sinus Surgeries
New Migraines
New Occipital Neuralgia
New SUPER HIGH ANA
New Vitamin D deficiency
New High Calcium - hyperparathyroidism?
Recent Sugar & Wheat Intolerance - Facial Flushing and Headache
Lyme Negative
12/06 Tested (-) for Celiac after 2 - 3 months Gluten Free

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#2 Sweetfudge

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Posted 07 December 2006 - 11:05 AM

no clue what to tell you! good luck though! have you tried things like lactaid? that could help w/ the dairy. I hope you find something you can eat, and soon! I hate being hungry!
((((((HUG))))))
  • 0
Sweetfudge

Born and raised in Portland, OR; Currently living in Provo, UT
Gluten-free since June 2006
Also living with Hypoglycemia since 1991
Dairy-free for good since summer 2008
Started IBS diet and probiotics at GI's recommendation - Fall 2008
Also avoiding: potatoes, beans, crucifers, popcorn, most red meat, coconut milk :(
Started eating a Paleo diet Spring 2011. Love it!

The grass is always greener where you water it.

#3 frenchiemama

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Posted 07 December 2006 - 11:14 AM

Well, you'll need a prescription. Do you have a doctor that will do that for you? I work for Nestle, and at my facility we make (among other things) tube feeding pouches and complete nutrition drinks. They both come in unflavored varieties, but I'm pretty sure that both contain maltodextrin and milk proteins. HOWEVER. There is a product called FAA (Free Amino Acids) which is completely hydrolyzed. It's the grossest damn thing ever, but it's meant for people who can't tolerate anything else or can't break down any proteins. You can look into something like that.

Another thought, although this might be a little strange, is infant formula. The soy based don't contain any milk.
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Carolyn


"When the going gets weird, the weird turn pro. "
- Hunter S. Thompson

#4 marciab

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Posted 07 December 2006 - 11:43 AM

I didn't know you could get nutritional drinks from your doctor. I asked and was told to try Ultra Meal, Ensure, etc.

BTW, Ultra meal has oat bran in it ... found that out the hard way. :(

Just in case your doctor won't prescribe something for you, I only found 1 nutritional powder that was gluten and allergen free.

Living Harvest hemp protein powder - the only ingredient is hemp (this won't make you high :D ) you should be able to find it at your local health food store or try livingharvest dot com

nutrients are 14g protein, 8g fiber, 1g sugar, 2.5g total fat, thiamin 34%, calcium 6%, B6 14%, Magnesium 52%, c 2 %, iron 25%, niacin 8%, E 2%, potassium 11 %

and 1 protein powder

NutriBiotic vanilla rice protein - contains brown rice and vanilla flavor

I put these in the blender with bananas, molasses, etc.

marcia
  • 0
Jan 1990 - Dx CFS/ME/FM (URI's, Ataxia, myoclonus, orthostatic hypotension, insomnia, brain fog, swollen lymph nodes, sore throat... ) Completely Disabled (housebound and bedridden at times)

2004 - Digestive pain all the time.

May 2004 - Hiatal hernia, erosive gastritis, gastroparesis (endoscopy)
August 2004 - Colon polyps, diverticulitus, internal hemorrhoids (colonoscopy)

No relief from Nexium, Prilosec, Protonix, Zelnorm, Miralax, Imodium, Lomotil ...
July 2005 - GP recommended WFDFSFEFCF + vegan (Also, anything that hurts free)
Immediately stopped needing naps and digestive pain reduced.

Sept 2005 - GFDFCFSFEF + chemical free - Immediately stopped feeling jittery / buzzing and digestive issues were much better.

June 2006 - Dx B12 and iron deficient. Started B12 injections and using cast iron pan.

August 2006 - MYOCLONUS GONE. (off Klonopin)
September 2006 - ATAXIA, INSOMNIA and Feeling like the floor was moving under my feet gone.

June 19, 2007 - Positive DQ2, Dx Celiac

October 2007 - Sleeping like a baby, waking up with energy, but still having fatigue/stamina issues

Nov 2007 - Started Paleo diet for chronic hypoglycemia

April 2008 - GTT normal. I'm no longer hypoglycemic. Started Low oxalate diet for kidney stones.

May 1, 2008 - Began salt loading for OI/NMH - noticed immediately muscle weakness was gone. I was sodium deficient but my labs don't reflect it. Still working on OI and PEM.

#5 Guest_cassidy_*

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Posted 07 December 2006 - 12:24 PM

many protein powders are gluten-free. I don't know if they have many chemicals in them, but if they don't then you could try those in some sort of drink. If you can't tolerate anything sweet then I wonder if you mixed it with a herbal tea if that would make it tolerable.

I drink boost and there is definitely sugar in that, I don't think anything like that would work.

Hope you get better!
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#6 angst2amity

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Posted 07 December 2006 - 07:47 PM

Well, you'll need a prescription. Do you have a doctor that will do that for you? I work for Nestle, and at my facility we make (among other things) tube feeding pouches and complete nutrition drinks. They both come in unflavored varieties, but I'm pretty sure that both contain maltodextrin and milk proteins. HOWEVER. There is a product called FAA (Free Amino Acids) which is completely hydrolyzed. It's the grossest damn thing ever, but it's meant for people who can't tolerate anything else or can't break down any proteins. You can look into something like that.

Another thought, although this might be a little strange, is infant formula. The soy based don't contain any milk.


Thanks for the input everyone and for the support!! I found some gluten free tube-feeding formula in amazon .com's health area that you don't seem to need a prescription for. I also see a site called imed.com that sells Nutren 2.0 by Nestle that is gluten free & sugar free and I don't think you need a prescription. I was thinking of getting these because milk seems to be the least problematic of all the others. Some of them have fructose/fiber complex, so I don't know.

I actually had organic Similac in my grocery cart today, came so close to buying it. I bought organic gerber infant rice cereal instead - so it is funny that you mentioned that.

I guess I never thought about going to the doctor for help right now until a friend suggested it today, too. The Dr. just said don't eat gluten while we clear up other health issues - I didn't tell her or realize at the time that it is so much more than gluten.

How long can a human live on refried beans? :blink:

Thanks!
  • 0
Chronic Ear Infections
Chronic Tooth/Jaw Infections
Chronic Sinus Infections
Recent Sinus Surgeries
New Migraines
New Occipital Neuralgia
New SUPER HIGH ANA
New Vitamin D deficiency
New High Calcium - hyperparathyroidism?
Recent Sugar & Wheat Intolerance - Facial Flushing and Headache
Lyme Negative
12/06 Tested (-) for Celiac after 2 - 3 months Gluten Free

#7 Looking for answers

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Posted 07 December 2006 - 07:53 PM

This might work: http://www.jayrobb.c...EggWhiteAll.asp

Someone once recommended it on this site so I ordered some. It's yummy and very easy to digest. They sell it online and I've also seen it Whole Foods and Henry's.

My best to you!
  • 0
2010- Gluten, Soy, Corn, Dairy, Eggs, Nut free. Sugar, non-gluten grains lite(Yes, still plenty to eat!)
2010-Doctor diagnosed me as Celiac then took diagnoses back, then said avoid gluten for life
2009 Low T3 thyroid hormone, muscle twitching and adrenal fatigue
2006- Elevated Speckled ANA. GI suggested Celiac. Started gluten-free diet, but sloppily
2005 - Thought I had wheat "allergy." Stopped eating bread, oats problem too
College years - Still vegan -sickest point in life. Every classic celiac symptom
Teenage years - Stomach pain prompted veganism -> BIG mistake!
Child - Awful gas, D, C. Chronic infections, appendix and tonsils removed

#8 frenchiemama

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Posted 07 December 2006 - 10:45 PM

That's interesting. If you can buy the Nutren, go ahead and try it. I was under the impression that everything was by prescription only, because if we want to get some for family members we need to furnish a prescription.

Anyway, I can assure you that they are 100% gluten-free. There are no gluten products made in our facility at all.

The fiber is pea fiber.
  • 0

Carolyn


"When the going gets weird, the weird turn pro. "
- Hunter S. Thompson

#9 angst2amity

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Posted 08 December 2006 - 06:58 PM

Thanks for everyone's help.

Had sinus surgery today - sphenoid sinus was filled with a solid fungus - the entire sinus in the middle of my brain had a gelatinous fungus - isn't that gross?

If I recover, maybe I can eat sugar again!! They took it all out so maybe my brain won't swell and fever when I eat, no more expansion - now I have to make sure it never comes back.

I don't have HIV, or Hepatitis, or RA, or Lupus, or lots of stuff I have been tested for - but you must have a comprimised immune system for this to be possible, I am almost hoping it is Celiac (because I can't eat gluten now too) because for the most part it can be reversible with diet, right?

I could do without a whole bunch of weird health problems. :rolleyes:
  • 0
Chronic Ear Infections
Chronic Tooth/Jaw Infections
Chronic Sinus Infections
Recent Sinus Surgeries
New Migraines
New Occipital Neuralgia
New SUPER HIGH ANA
New Vitamin D deficiency
New High Calcium - hyperparathyroidism?
Recent Sugar & Wheat Intolerance - Facial Flushing and Headache
Lyme Negative
12/06 Tested (-) for Celiac after 2 - 3 months Gluten Free

#10 Guest_cassidy_*

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Posted 09 December 2006 - 02:30 AM

I hope the surgery helps and you are on the road to recovery. Hopefully it was the celiac that was causing your problems. If you stay gluten-free, then you shouldn't have any new autoimmune problems, and most past damage heals, but some people have developed conditions before they were diagnosed that don't go away.

Good luck healing and feel better soon!
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#11 Pilgrim South

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Posted 17 December 2006 - 07:13 AM

I am having a real problem. I can't seem to eat gluten, peanuts, all sugars and anything that contains them including fructose (even the small amount in onions!), artificial sweeteners, milk, cheeses...

I had a scoop of refried beans for breakfast - this seems to be the only thing I can eat, that and cashews. When I eat the other things above, I:

  • run a fever
  • get a hot flushed face
  • get a migraine
  • joint aches
  • extreme fatigue
  • and D
I think I have systemic candida very bad but still waiting on sinus surgery and cultures.

For now, I am starving to death. I have been looking into nutrition drinks, like medical food for tube feeding, because ensure and other drinks have flavoring, sweeteners, and other junk.

Any one ever do this? Any good places to buy from?


Hi,

You sound much like me. I have about 8 foods that I am not allergic to. I happened to be looking for a recipe today with soy (one of the few things I can have) and happened upon your post. I can honestly say I know what you are going through. Your sinus problems really struck me, because I have the same thing. I have been trying to figure out my problem for years, with little help from normal Drs. This year there seems to be great improvement in what I am finding out. I can tell you what has helped me and what I am doing, although I am in the midst of these things so can't speak to how it turns out. I can say there has been much improvment though. Here goes. I really believe in the testing from Enterolab and if you haven't had any of that testing done, its worth every penny. Second, I would highly recommend professional (not over the counter) digestive enzymes. If you want a referrel I would be more than happy to give it to you (no, I don't sell them or make any money on referring anyone). Third, many chiropractors use what is called Kenesiology )not sure of the spelling) and can do food allergy testing and elimination! They can also have lots of testing done for things like hormone (adrenal) imballances, toxic metals, etc. and etc. That has been a GREAT help to me. They CAN actually neutralize food allergies! Many people don't believe they can, but I can tell you that it DOES work from experience. Fourth, there are many people (more than once thought) that have what is called IGA deficiency. That is what they think I have. Not sure yet, as I haven't been tested, but I have all the symptoms...frequent ear infections, sinus problems, congestion etc. and etc. Foods congest my body and that's that. The normal medical field says there is no cure. They only treat the congestion with antibiotics (results in candida etc.) and anthistimines etc. The natural field, goes for the root cause, as it does with celiac. I keep reading posts of people just like me that are only eating one or two foods because everything else makes them sick in one way or another. It sure seems like the IGA anitibodies are messing us all up. There is a way out and there is hope, you just have to find the right practitioner that understands it all and will be patient (no pun intended) with you. I am in Colorado Springs and have found a wonderful lady chiropractor whose own daughter was ill so she jumped right into other areas of natural medicine to help others. She has studies for 10 years and knows her stuff. She has boxes of viles for testing food allergies and I was allergic to most all of them. There were just a few that I wasn't allergic to! Don't give up, go looking for someone that can work with allergy elimination and go for it! I really think all the things that I have mentioned are important, just doing one won't be enough. I hope this helps....I am not usually one the computer on Sundays, so must have been meant to see your posting! :) Have a great day and keep looking up!
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#12 angst2amity

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Posted 17 December 2006 - 06:13 PM

Hi,

You sound much like me. I have about 8 foods that I am not allergic to. I happened to be looking for a recipe today with soy (one of the few things I can have) and happened upon your post. I can honestly say I know what you are going through. Your sinus problems really struck me, because I have the same thing. I have been trying to figure out my problem for years, with little help from normal Drs. This year there seems to be great improvement in what I am finding out. I can tell you what has helped me and what I am doing, although I am in the midst of these things so can't speak to how it turns out. I can say there has been much improvment though. Here goes. I really believe in the testing from Enterolab and if you haven't had any of that testing done, its worth every penny. Second, I would highly recommend professional (not over the counter) digestive enzymes. If you want a referrel I would be more than happy to give it to you (no, I don't sell them or make any money on referring anyone). Third, many chiropractors use what is called Kenesiology )not sure of the spelling) and can do food allergy testing and elimination! They can also have lots of testing done for things like hormone (adrenal) imballances, toxic metals, etc. and etc. That has been a GREAT help to me. They CAN actually neutralize food allergies! Many people don't believe they can, but I can tell you that it DOES work from experience. Fourth, there are many people (more than once thought) that have what is called IGA deficiency. That is what they think I have. Not sure yet, as I haven't been tested, but I have all the symptoms...frequent ear infections, sinus problems, congestion etc. and etc. Foods congest my body and that's that. The normal medical field says there is no cure. They only treat the congestion with antibiotics (results in candida etc.) and anthistimines etc. The natural field, goes for the root cause, as it does with celiac. I keep reading posts of people just like me that are only eating one or two foods because everything else makes them sick in one way or another. It sure seems like the IGA anitibodies are messing us all up. There is a way out and there is hope, you just have to find the right practitioner that understands it all and will be patient (no pun intended) with you. I am in Colorado Springs and have found a wonderful lady chiropractor whose own daughter was ill so she jumped right into other areas of natural medicine to help others. She has studies for 10 years and knows her stuff. She has boxes of viles for testing food allergies and I was allergic to most all of them. There were just a few that I wasn't allergic to! Don't give up, go looking for someone that can work with allergy elimination and go for it! I really think all the things that I have mentioned are important, just doing one won't be enough. I hope this helps....I am not usually one the computer on Sundays, so must have been meant to see your posting! :) Have a great day and keep looking up!


Thanks for your help. I have become much worse since the last post. One of my doctors is actually looking at Lyme Disease which can sometimes cause all of the above - plus I think I went gluten-free and ended up eating a lot of corn & rice - now I think my whole problem may be with corn!! I have a Celiac test in the works, LD test in the works, and going back to allergist on 12/22 to look at IgA allergies? I had ZERO IgG antibodies to any of the 23 streps after 500 million infections. My doctor wants to send me to Mayo clinic. There are no homeopathic or naturapathic doctors in my area - but I may venture out because no one knows anything! Thanks!
  • 0
Chronic Ear Infections
Chronic Tooth/Jaw Infections
Chronic Sinus Infections
Recent Sinus Surgeries
New Migraines
New Occipital Neuralgia
New SUPER HIGH ANA
New Vitamin D deficiency
New High Calcium - hyperparathyroidism?
Recent Sugar & Wheat Intolerance - Facial Flushing and Headache
Lyme Negative
12/06 Tested (-) for Celiac after 2 - 3 months Gluten Free


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