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Constipation
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First off I am very embarrassed :unsure: by this question but since I have been gluten free since March after blood antigens said I was 96% positive for Celiac and a biospy later fully diagnosed me I have now started to have severe constipation to the point that it is painful, I don't even have bowel movements on a regular basis either its like maybe once or twice a week and are all extremely painful and then also there is some blood in the stool, I don't know if its from a hemorroid that I have from child birth or what and I am so embarrassed to talk to my doctor face to face about this, I am a new patient of his as we just relocated to this area and even though he is familiar with celiac and very knowledgeable its embarrassing. I have even contemplated over the counter laxatives to lessen the constipation, I drink tons of water, and eat lots of fresh vegetables and fruits and all so I just don't get it I go from having loose stools to now this. Any suggestions on what to do or how to broach this topic with the doctor? <_<

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I can understand your embarrassment on the issue.... gastro-intestinal problems are not the easiest thing thing to talk about... especially face-to-face with someone. You'd be amazed at how compassionate and caring of a response you'd receive from your doctor... probably because he would be able to help rule out some things for you and offer pro-active treatment. Maybe just express to him that it's difficult for you to talk about "those things".... if you get choked up, perhaps you can ask for a list of symptoms that you can circle or check-off on a piece of paper.

Sometimes it helps to know you're not the only who suffers with this.. I had to tell my doctor that I saw blood recently... I think it was because my system was so used to loose stool that when it was solid one day, it hurt and probably did some tearing. Kinda gross... I know. But even for that instance, he wanted to make sure that nothing else was going wrong.

I wish I could offer some advise on the constipation... usually if I have that problem I drink some coffee (I goes right through me). There are many people here who I'm sure could offer some helpful advise on it though.

Good luck with your doctor!

Gretchen

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Given that you're doing the obvious things, PLEASE schedule an appointment with your doctor. Blood in/on the stools is nothing to mess with.

I had a similar problem (turned out the be a hemmhroid), and I'm only 25, so was also embarassed about this. I told my GP that when I got there, and she said "I see this every day." When I stopped to think about it, it made me much less embarassed to have to have that bit examined once in ... my life, I think, at the least, not very often, but she may have to look at one after another every single day! Made me feel a bit better... ;-)

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Hi Lilleroy: My undiagnosed celiac symptoms since early childhood included constipation, steatorrhea, and bloating. I was only diagnosed with celiac disease recently, after 50 years of symptoms <_< . However, longterm constipation influenced my developing hemorrhoids which hurt and bled when I passed hard, painful stools. If you had hemorrhoids before, constipation can always exacerbate those to swell up, bleed and hurt.

There are many OTC salves for hemorrhoids (including Preparation H), but the BEST, simplest solution for shrinking hemorrhoids and reducing pain is a sitz bath. That doesn't mean sitting in the bathtub in hot water, which can dry your skin and not even effect the hemorrhoids, depending on your tub position. You can buy sitzbath bowls which attach to a toilet seat at a hospital supply store. You just fill them with hot water, as hot as you can comfortably stand without burning yourself :o , and sit on the toilet with your buns immersed in that hot water for 5-10 minutes or whenever the water is too cool to help. Do that 5-10 minutes after every bowel movement and before bed, until your hemorrhoids heal enough to stop bleeding. That soothes pain, shrinks hemorrhoids and helps them heal. Unfortunately I didn't learn about the sitz bath device until AFTER I had hemorrhoid surgery which followed a botched, banding procedure. Your doctor might prescribe a salve (I used a xylocaine salve successfully until my hemorrhoids got really bad) or even prescribe a sitzbath.

As far as resolving constipation, I was misdiagnosed with IBS and used wheat bran for years to cope with constipation. Obviously that exacerbated my celiac symptoms and made my constipation WORSE. Meanwhile drinking liquids and eating lotsa produce fiber didn't help, but I started taking Magnesium supplements to draw the fluid into the stool. Nevertheless, avoiding gluten helped to resolve some of my constipation. However, eliminating DAIRY (since I have casein intolerance) helped the most to resolve my constipation. Unfortunately that was 5 years AFTER that painful hemorrhoid surgery.

I suspect many celiacs who had diarrhea for years preceliac diagnoses, now experience more constipation, because they never had to focus on eating enough fiber for regularity. Without celiac induced diarrhea, some may now have to cope with constipationHowever fiber is good for both constipation and diarrhea, but not the OTC pill or drug forms. The safest fiber comes from gluten-free grains, fruit, vegies and nuts, without any added chemicals. However I've found taking Vitamin C and Magnesium also helps for regularity.

BURDEE

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    • I think the idea of grinding your own at home stems from the thought that flavored coffees might be ground on the same machines.  The grinders in the grocery are not cleaned between uses.  However, I have not found a flavored coffee bean that had gluten, so it's probably not a real concern.  For coffee that comes from a factory ground, I wouldn't worry at all.   Machines would be cleaned between flavors and nothing but coffee could be made on the machines or even in the same building ( everything made would taste/ smell like coffee). if you still have doubts - I went to the International Celiac Disease Symposium a few years back.  This is held every few years in different countries for medical professionals that study and treat Celiac.  They present research, etc.  All food served was gluten-free.  We drank a lot of plain, already ground, coffee!  A lot!   Coffee is not on any lists as a gluten containing food.  Talking legitimate organizations - not some blogger or pseudo- science website.   After all this, if you still doubt that coffee is gluten free...... Then don't drink it!  It leaves more for me!    
    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
    • Now that my initial rage has calmed a tad.... your daughter has to fulfill 4 out of 5 of the diagnostic criteria. Second opinion can do a gene test. If positive, then she will have4 out of 5 of the dx criteria to dx without a positive biopsy. See: http://www.gastro.org/news_items/a-biopsy-should-not-be-required-to-make-the-diagnosis which says in part: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.   Also see: http://www.tenderfoodie.com/blog/2014/5/1/dr-fasano-on-new-gut-autoimmune-research-autism-clearing-up.html She can get a dx after her symptoms resolve on a gluten-free diet!
    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
    • Celiac disease may lead to a host of other inflammatory, gluten-related ... Fortunately, Diet Doc offers gluten-free diet plans which are customized to ... View the full article
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