Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Intravenous Healing?


minibabe

Recommended Posts

minibabe Contributor

Hi, just wondering if anyone has ever heard of this. I have heard that they do this for people that do not respond to the gluten-free diet. I have bee on the diet for about 2 years now and I still do not feel good.

Thank you for you help

Amanda NY :)

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

I've heard of an IV Push that is like a vitamin cocktail....Is this what you are thinking of?

Link to comment
Share on other sites
minibabe Contributor

I am not sure. Someone had mentioned it to me and I could not find anything on the internet about it. So I figured I would post up and maybe someone else has heard of it.

It is somthing that is supposed to "heal" you, or maybe somthing that is supposed to help you better respond to the diet.

I have been on the diet and it is not working for me. I still feel HORRIBLE :(

I am really at a loss and my family is pushing me to find somthing else that will help me, because they hate seeing me like this.

Link to comment
Share on other sites
sillyyak Enthusiast

I think you are thinking of TPN. I know of cases where they have done it but I think you really need to have a Dx of Refractory Sprue. I thin but I am not sure.

Link to comment
Share on other sites
CarlaB Enthusiast

If it's been two years and you're not feeling better, I'd keep researching what else might be wrong. I know that I'm sensitive to gluten, the elimination diet proved I am, and every time I've been glutened has confirmed it. However, I was not getting better. For me it was Lyme Disease. If you're not getting better gluten-free, there may be more to it for you, too.

Link to comment
Share on other sites
minibabe Contributor
If it's been two years and you're not feeling better, I'd keep researching what else might be wrong. I know that I'm sensitive to gluten, the elimination diet proved I am, and every time I've been glutened has confirmed it. However, I was not getting better. For me it was Lyme Disease. If you're not getting better gluten-free, there may be more to it for you, too.

Yea, but i have had a run in with really bad doctors. No one has ever been able to help me. I really need to find a good doctor.

Thank you.

Amanda

Link to comment
Share on other sites
happygirl Collaborator

If you are not doing better by now, I would recommend having the full Celiac panel run again to see if your numbers are still high. If your numbers are still high, you might need to reassess how your diet is going. Often, members find that there were hidden sources of gluten. Very few (although, they are out there, and we have them on this board!!!) are ever dx'ed with refractory celiac. You would need a repeat biopsy after going over your diet...and then they usually would re-test your blood again.

If your numbers are within normal ranges, chances are, you have something else going on. Its a hard one....sometimes we want to blame it all on Celiac, and sometimes it is all related to Celiac. Sometimes its not Celiac related, and there is something else going on.

You may have other food allergies/intolerances, or something unrelated to food. What are your symptoms?

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mia H Explorer

I agree there may be cross contamination somewhere as a possibility. Medications, shampoos, vitamins

Another is another intolerance, dairy? nightshades? soy? corn?

It is drastic but some recommend the specific carbohydrate diet. I tried it and felt better pretty quickly, but then got pregnant and was losing weight on it so have given it up for now. The theory is there are an overgrowth of "bad" bacteria living in the gut. You starve them by eating no grains or starches. If curious check out www.breakingtheviciouscycle.info Others have recommended the paleo diet, I don't know much about it but believe it is even more strict.

Sorry I haven't heard about anything IV.

Good luck,

Mia

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,091
    • Most Online (within 30 mins)
      7,748

    Nicole K
    Newest Member
    Nicole K
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Oh, okay. The lower case "b" in boots in your first post didn't lead me in the direction of a proper name.
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! There are other things that may cause elevated tTg-IgA levels, but in general a reaction to gluten is the culprit:    
    • cristiana
      Hi @trents Just seen this - Boot's is a chain of pharmacies in the UK, originally founded in the 19th Century by a chap with the surname, Boot.  It's a household name here in the UK and if you say you are going to Boot's everyone knows you are off to the pharmacist! Cristiana
    • Denise I
      I am looking to find a Celiac Dietician who is affiliated with the Celiac Disease Foundation who I can set up an appointment with.  Can you possibly give some guidance on this?  Thank you!
    • Posterboy
      Nacina, Knitty Kitty has given you good advice. But I would say/add find a Fat Soluble B-1 like Benfotiamine for best results.  The kind found in most Multivitamins have a very low absorption rate. This article shows how taking a Fat Soluble B-1 can effectively help absorption by 6x to7x times. https://www.naturalmedicinejournal.com/journal/thiamine-deficiency-and-diabetic-polyneuropathy quoting from the article.... "The group ingesting benfotiamine had maximum plasma thiamine levels that were 6.7 times higher than the group ingesting thiamine mononitrate.32" Also, frequency is much more important than amount when it comes to B-Vitamin. These are best taken with meals because they provide the fat for better absorption. You will know your B-Vitamin is working properly when your urine becomes bright yellow all the time. This may take two or three months to achieve this.......maybe even longer depending on how low he/you are. The Yellow color is from excess Riboflavin bypassing the Kidneys....... Don't stop them until when 2x a day with meals they start producing a bright yellow urine with in 2 or 3 hours after the ingesting the B-Complex...... You will be able to see the color of your urine change as the hours go by and bounce back up after you take them in the evening. When this happens quickly......you are now bypassing all the Riboflavin that is in the supplement. The body won't absorb more than it needs! This can be taken as a "proxy" for your other B-Vitamin levels (if taken a B-Complex) ...... at least at a quick and dirty level......this will only be so for the B-1 Thiamine levels if you are taking the Fat Soluble forms with the Magnesium as Knitty Kitty mentioned. Magnesium is a Co-Factor is a Co-factor for both Thiamine and Vitamin D and your sons levels won't improve unless he also takes Magnesium with his Thiamine and B-Complex. You will notice his energy levels really pick up.  His sleeping will improve and his muscle cramps will get better from the Magnesium! Here is nice blog post that can help you Thiamine and it's many benefits. I hope this is helpful but it is not medical advice God speed on your son's continued journey I used to be him. There is hope! 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,  
×
×
  • Create New...