Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Medical Alert- Shoud We Have This?
0

6 posts in this topic

I've been trying to deside if I shoud have a medical alert.Alot of books and web sites talk about the importans of haveing one,but would a doctor look at it with-out thinking ''its just an alergy''.

How many ware a medical alert?

My biggest fear is having meds with gluten give'n to me and not being abel to talk.I've had doctors tell me to my face that celiac was a food alergy and not in meds.The thing is I was in the ER when this happend getting 5 stiches back in Feburary of this year.Got told of by the doctor because I didn't take a pill that a nurse handed me.

Gluten Free is and always will be the way to stay healthy for us all. BEING sick suck!

0

Share this post


Link to post
Share on other sites


Ads by Google:

I have been thinking about getting the medical bracelet. I have been giving a couple of different meds that the Pharmacist says it's okay to take, but when you call the manufacturer, they say it's not gluten free. I would hate to be in the hospital and they end up giving you something that makes you more sick!

The more I write about it, the better it sounds.

Linda

0

Share this post


Link to post
Share on other sites

I don't use one, but probably should...I just haven't thought about it in awhile. Even if a doctor did look at it and think "it's just an allergy", they would have to take it seriously. What if this wheat "allergy" caused a severe and potentially deadly reaction? They wouldn't know the severity of the reaction it would cause, but if you're wearing a bracelet about it, they'd have to take it serioiusly.

0

Share this post


Link to post
Share on other sites

I've personally never seen the use of a bracelet for celiac. If I'm being treated for an illness or accident that's so severe I can't communicate, I want them to do whatever they need to do to save my life, even if it involves gluten. And in that situation they aren't going to be forcing pills down your throat, they'll be putting in IVs or giving you shots, none of which contain gluten.

richard

0

Share this post


Link to post
Share on other sites

Yeah.........i was thinking about that and i'd rather get sick from gluten than die or have something really bad happen to me just because teh doc. couldn't give me gluten

0

Share this post


Link to post
Share on other sites




I'm not really concerned with one for myself, since I feel pretty much how Richard does.

But I have considered getting one for my son who is gluten intolerant, plus has other things going on, but the bracelets just won't hold all of the info, so I've been looking into the new electronic ones that allow you to record as much medical info as you feel necessary. My son is allergic to penicillin and cephalosporin antibiotics, and quite possibly asprin (he is being checked for something called Asprin Triad Disease, since he has asthma and nasal polyps that grow back after surgery to remove them), as well as he takes three kinds of meds daily for asthma, migraines and most importantly Familial Meditteranean Fever (a periodic fever disease). I'm just concerned that if he is hospitalized and I am not available then they would be clueless as to his medicine allergies and medications he should be taking. Then of course he would end up with some sort of gluten, which I wouldn't care about if it saved his life. But if his injuries weren't life threatening, then the other medication allergies could end up making them that way. If he doesn't get the fever meds then he will end up with a fever in excess of 105 and they wouldn't know why, then they might try to treat a non-existing infection with penicillin and he would end up covered with hives and might have some breathing difficulty. And if they give him asprin without the asthma medicine in his system he could end up having an asthma attack. Right now we have everything in balance and his symptoms are kept under control, but it has taken us 7 years to figure it all out and I'd hate to have it messed with. The only thing not under control is the nasal polyps and he is due for another surgery soon...

Anyhow, sorry for the rambling. I was just wondering if anyone had tried the electronic medic-alert gadget. Is it worth the money? I have only seen it once and don't know how common they are, but am certainly checking into it.

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,637
    • Total Posts
      918,422
  • Topics

  • Posts

    • Anxiously waiting
      Hi all. Ive just had my blood test results which showed a high level for coeliacs,originally i went to doctor coz my bowel movements had changed and haven't been normal for over a month and i am very tired,the tiredness i assumed was low iron and my tummy/bowel issues well i thought IBS Maybe or a bug as ive not really had issues before,anyway she has put me on a wait list to have a endoscopy done. Im so so confused as i didn't expect i may be coeliac,my symptoms come and go so on a day im good i think sweet my issues are resolved but then they come back so they are not consistent which makes me wonder if it is coeliac or not,but my tiredness,headaches,shortness of breath,tummy gurgling,different bowel movements,feeling nauseous are all symptoms that come at different times. The test i had was for gliadin IgG which was 20 but should be 7 or lower, i guess im just anxious to wait who knows how long for the endoscopy coz i would like to try and cut out gluten but the dr said not to till the procedure is done. P.s im in australia so not sure if things are different here.
    • Celiac Night Vision
      Scotomas returned for the 7th year on the 24th February despite liver pâté and have varied since with 3 brief gaps. I have always had migraine, latterly occurring more than once a month, usually of basilar or retinal type with aura (but no headache) lasting less than 5 minutes. A recent bout looked like a TIA and led to a CT scan which revealed clear major vessels but old cerebellar infarcts, so maybe migraine accounts for poor memory too. The scotomas are very different from migraine eye symptoms - stationary, irregular in shape and lasting hours. I think food is excluded as the cause but seasonality, gaps, variation with wind direction and rain mean that pollen is still a possibility. Scott Adams did a marvellous thing founding this site so celiacs could enlighten each other. Please post if you have anything like these scotomas!
    • healthy bread recipe?
      Eat what you eat at lunch or dinner.  I am happy with a fried hamburger patty, fish, or chicken (I know it needs to be fresh or frozen for the histamine diet).  Yes, I eat veggies for breakfast!   Wanted to add that I was glutened in July (GI ordered follow-up antibodies testing and it was high)  and it took me 3 months to recover.  Picked up a histamine intolerance and became lactose intolerant again.  Luckily, when I healed, the histamine thing went away (or  Diminished ) and the lactose intolerance resolved.    I was getting hives, rashes and itching (not DH), vomiting, etc.  So, her intolerances may be just temorary!  
    • Could this be celiac or is it really just IBS?
      Are you sure you had the complete celiac panel?  Here are the tests:   -Tissue Transglutaminase (tTG) IgA and (tTG) IgG -Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG -EMA IgA  -total serum IgA and IgG (control test)     -endoscopic biopsy - make sure at least 6 samples are taken   VERY IMPORTANT:  Keep eating gluten daily until ALL testing is complete or the tests can be inaccurate.     (Source: NVSMOM -- 😊)   Here is more information from a reputable site (and not just info from a crazy cyclist on the Internet!):   http://www.cureceliacdisease.org/screening/   IBS, in my opinion, means "I Be Stumped!"  It is just a cop out!  So is the "stressed" thing.     I also had my GB out too.   It was a non-functioning (0% per HIDA scan), no stones, and rotting.     You seem to have many celiac disease symptoms.  Verify (obtain copies of your lab tests) to see if you got the complete panel. You might just have had the TTG IGA and TTG IGG tests.  Good for screening but it does not catch all celiacs.  My TTG tests are always negative even on follow-up testing.  The DGP test catches a positive for me.  My biopsies revealed moderate to severe damage.  If my celiac-savvy GI did not order the complete panel, my celiac disease diagnosis would never have been caught.   if celiac disease is really ruled out, research mast cell disorders.  The flushing and GI upset sound familiar!  You can have more than one thing going on!  But I would put my money on celiac disease!            
    • tightness in throat after eating gluten?
      I've noticed that if I accidentally eat gluten, for the next few days I have this tightness in my throat. It feels like my throat is closing. It's not constant, but comes and goes throughout the next 1-3 days. My hands have also been itchy. Is this a normal symptom for celiac or gluten intolerance, or could it possibly be an allergy? I haven't been tested or diagnosed with celiac or anything yet, so I'm still not entirely sure. All I know is that gluten makes me very sick.. But especially with the itchiness and tight throat.. I'm allergic to acetaminophen and my reaction is similar, so it just makes me wonder. What do you think?
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,728
    • Most Online
      1,763

    Newest Member
    Wee_lady
    Joined