Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Hiya. Gi Or Cd?
0

13 posts in this topic

Hi All

Newbe here. This place has been an interesting read, because I have been trying to find info on the difference between Gluten Intolerance & coeliac.

Had been having trouble with constantly feeling bloated, lack of energy etc for years, and when I had a full checkup recently my GP ran some extra tests.

Came back with the anti-IgA reading of 190. Went searching on the web & found somewhere saying a reading over 30 was a very high indication of coeliac positive.

Then had a biopsy, which came back negative/inconclusive. The gastroenterologist said keep eating the same, GP said try gluten-free for 6 wks.

Well, I tried gluten-free, and took about a week and a half, and had lost an inch & a half just from lack of bloating, got energy to burn, and generally feel fantastic.

Been all of 6 wks now, and still getting used to what I can and can't eat - especially when out for work. Every now and then get something I shouldn't be having, and know it within 20 mins - crossed of the list for the future.

Now just having a lot of the 'traditional' meals - roasts, steak & vegies etc - along with the simple stir fry's. I have to admit, it hasn't been as hard as I imagined - am I doing something wrong? :unsure:

0

Share this post


Link to post
Share on other sites


Ads by Google:

Doing something wrong, finding it easy? Naw! Sounds like you're doing well adapting to the diet. =)

There have been a few people asking the Celiac versus gluten intolerance question here lately, so believe my answer is more or less correct.

Celiac disease is when the small intestines gets damaged because of an intolerance to gluten. A gluten intolerance is when you have an intolerance to gluten. Difference then, is just the damage to the small intestines. Both are treated the same way, which is no more eating gluten.

And to the sound of it, you are getting better! So ignore your gastro and go with your GP. gluten-free is the way to be!

Err, sorry.. that kinda rhymed in my head, so had to say it that way, LOL.

But no, nothing wrong. Just keep trying to avoid gluten and learn from mistakes! =)

0

Share this post


Link to post
Share on other sites

Ah well, was beginning to think it was too easy, reading some of the problems some people are having... Good to know I've pretty much got it right :D but boy, do I know it when I don't... :(

haha - does kinda rhyme when you say it in yr head :P

0

Share this post


Link to post
Share on other sites

I think the trouble most people have is not being able to eat fast food, lots of junk food, etc. If you are handling that fine, then yeah, should be easier for you. =P

And in a way your lucky then, kinda, your body will tell you right away if you eat a no no. Pretty sure mine won't do that, lol.

0

Share this post


Link to post
Share on other sites

Ah, so that's probly why I'm having little trouble. Seldom eat junk food - tho still have cravings for pizza :( Usually do my own cooking, except when away for work - I wonder how that'll go...

Yeah, I guess I am lucky that I know straight away. Unfortunately it takes about 3 days to pass... motviation not to do it again :D

0

Share this post


Link to post
Share on other sites




LOL.. well least it keeps you safe for 3 days?

And that was another. If you loved breads, pizza, etc.. diet might be a bit hard too. Just gotta be off it long enough to forgot what those things were like, LOL.

0

Share this post


Link to post
Share on other sites

I have run into some pretty decent pizza crust recipes. I even found some gluten-free waffles that I didn't have to choke down! Just keep looking around at stores, and online, there are some good gluten-free bread or bread type foods out there. So, don't mourn the pizza too much! =)

0

Share this post


Link to post
Share on other sites

Figured I'd just work around the lack of pizza... Got a wood oven in the kitchen. I'll try making my own :D and a gluten-free'll bring the drinks

0

Share this post


Link to post
Share on other sites

I think a lot of the problems people have aren't with the gluten-free diet, but with symptoms, other complications, or diets that are restricted even further (no casein, lactose, nuts, soy, dairy, corn, etc). My problems revolve around symptoms--other than that, I'd be fine

0

Share this post


Link to post
Share on other sites

I'm a newbe too and it wasn't that difficult for me either to make the changes. I too wondered if I was doing something wrong but since I felt better and better with each day I figured I was on the right track.

I started looking at all the foods out there that I could eat and not what I couldn't. I really wanted to expand my cooking skills with basic foods by learning new recipes. (like gluten-free fruit compote, veg salads and in general broaden my horizens before I added the gluten-free baking goods)

Those things kept me busy from thinking of pizza, cakes, breads and cookies (which were the main staple of my diet 10 weeks ago!!). I'm just now looking at gluten-free breads, pasta and mixes.

Good luck with your pizza craving!

Melissa

0

Share this post


Link to post
Share on other sites

I tried a gluten-free pizza by Mega Pizza. It was fine. It was great not to feel sick after eating pizza. I don't know if Mega Pizza is common. I live in Canada.

0

Share this post


Link to post
Share on other sites

Add-on to my entry up yonder:

The waffles I found are made by "Wheatstone (haha...I take it that's a family name!). They are pretty yummy and gluten-free. Not those crumbly dry things that you have to choke down. I bought them at Sprouts.

Deanna

0

Share this post


Link to post
Share on other sites

yeah. not much I miss really. bread I just haven't had, never been big on biscuits etc anyway

Kind of good timing in that the local shops have suddenly decided to expand their range of gluten-free foods. Just gotta wonder if some of them really are... Bought some gluten-free corn & vege pasta, and my reaction to it was awful. Mind you, wasn't lasting, so probably something else that doesn't like me :(

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,641
    • Total Posts
      918,437
  • Topics

  • Posts

    • Anxiously waiting
      Thanks heaps. I will def be going private if the wait is too long. I have done a little research but i thought a gluten intolerance and coeliac was the same lol. My iron levels are just below average apparently but she said not bad enough for me to be this tired.
    • Celiac.com: Traveling While Gluten-Free? What To Consider From Someone with Celiac Disease
      There are a few definite truths about living gluten-free: You miss bagels every day. Curious friends regularly badger you with questions like “is ... View the full article
    • How effective is HD skin biopsy after being gluten free for a year
      DH is celiac disease that appears on the skin (gluten triggered).  It does not appear when you are consuming dairy, which sounds like a separate issue for you.   A DH biopsy requires active lesions (new/fresh) from consuming gluten.  So, if you want to be tested via a skin biopsy you must go back on gluten.  Finding a dermatologist who knows exactly how to biopsy for DH is often difficult.  Be sure your Derm is knowledable and has biopsied for DH before. Why no endoscopy for now?  I bet your GI  knows that your insurance will deny the endoscopy.  After all, you tested negative to the blood panel.  Your GI should not even ordered the blood panel knowing that you had been gluten free for months.  You have to be consuming gluten daily for 8 to 12 weeks for the blood test to be accurate.   Did you ever test positive?  Why did your primary diagnose you?  Having the gene just means you can develop celiac disease.  Some 30% of the population carries the genes.  The gene test should only be used to help rule out celiac disease.  
    • How effective is HD skin biopsy after being gluten free for a year
      No one can say exactly how long you might be able to get a positive dh biopsy after having been gluten free as long as you have been. The Chicago Celiac Disease Center says this: http://www.cureceliacdisease.org/faq/im-scheduled-to-have-a-skin-biopsy-to-screen-for-celiac-disease-should-i-maintain-a-gluten-containing-diet-similar-to-those-who-are-being-screened-via-blood-or-intestinal-biopsy/ http://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/ You said you had a flare of the plaque psoriasis -- that is NOT dh so why do you think the dh biopsy will show positive? Testing positive for the celiac genes does not mean you have celiac disease. 30+% of the population have the celiac genes but only very, very small fraction of those people do or will present with celiac disease. The gene tests are only used to rule OUT celiac NOT to diagnose it. Frankly, I can understand why your GI does not put any stock in your Primary doc's thinking you have celiac disease. A positive celiac gene and the boils in your armpits which the GI never saw and were never biopsied for dh but they resolved on a gluten free diet and so did your plaque psoriasis. That's all the GI has to go on. I don't know why you are pushing an endoscopy. If you've been eating strictly gluten free then an endoscopic biopsy for celiac will be negative.  Your PCP should have done a celiac blood panel on you back when you were still eating gluten rather than dx you based on the celiac gene you tested positive for.
    • How effective is HD skin biopsy after being gluten free for a year
      I've been gluten free for a year now and my gastro wants to wait for the endocopy until I'm eligible for the colonoscopy when I turn 50 later this year. I don't think she believes I have celiac, even though I tested positive for one of the genes associated with celiac and my primary has diagnosed me as having celiac. The gluten sensitivity blood tests came back negative, of course, since I was gluten free for 9 months at that time. Why is she waiting? At any rate, My digestive system has improved greatly, but when I reintroduced non fat Greek yogurt in my diet, the plaques psoriasis returned on my elbows. My primary believes it is dermatitis herpetiformis (as well as I, since before going gluten free, I used to get boils in my armpits) and I'm scheduled for a skin biopsy in 3 weeks. However, I eliminated dairy from my diet 4 weeks ago and the plaques psoriasis is healing like it did when I eliminated gluten from my diet a year ago. If the scar is reduced to eczema, does that mean there still are IGA deposits in my skin? I don't want to resume dairy since I experienced a cross reaction to the casein in cheese and found lactose was on that same list. So my question is, how long do the granular IGA deposits remain in the skin in order to have a valid skin biopsy test performed for dermatitis herpetiformis? Since it takes 1-2 years for dermatitis herpetiformis to heal on a gluten free diet and I just had a recent flare up, can I continue on my dairy free diet or should I resume eating non fat Greek yogurt for the next 3 weeks just for this skin biopsy?
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,732
    • Most Online
      1,763

    Newest Member
    SueJ
    Joined