Posted 13 October 2004 - 08:43 PM
Hope this helps.
Posted 28 October 2005 - 05:24 AM
I know these last posts are a bit old but I was so happy to come across them!
I am new to the forum all together so I am still working my way around the entire website.
I have not officially been dx'd with Celiac. I had been told I have IBS (mainly with constipation, although the other occurs during runninig) and also had my gallbladder out about five weeks ago. My symptoms seemed to have started about 5 years ago, a year after having a baby and going through an awful divorce, and had really gotten unbearable the last 2 years or so. So finally after seeing 3 docs, getting the work-up, the gallbladder out, still felt like an inflated balloon 9 days after surgery. So to make long story short I changed my diet to wheat free, felt WAY better, then gluten free and what a difference!!! So in my mind, don't care what docs think anymore, I'm either just gluten intolerant or possible CE. Haven't felt this good in three or more years!
I normally run about 45 miles a week. I had low hemaglobin (iron) levels in the past which I related to running and pretty much being vegetarian. I lived on oatmeal and whole wheat pita bread, Hello! Anyway I had started to really struggle with a 2 mile run, which I could normally do 8 no problem. I figured out it was my iron and started taking iron supplement once a day (took three times a day when pregnant) along with a multi w/iron. Within a few weeks I felt back to normal and even stronger so I kept taking the iron. Well a few months back when I went to GI doc #3 he told me to stop it (causes constipation) and wanted a true read of my iron levels after a week being off. I was reluctant but did it because I couldn't deal with the tummy troubles anymore. Well my iron was fine (but I was only off a week!) and then I just returned to taking the multi. Now the past few weeks that feeling of I'm working ten times harder at a slower pace has started to happen. So I started the iron pills again a few days ago. It's so funny it seems to happen overnight. I think it may be due to being off the iron as well as my diet change. In the past when I was on gluten it may have been that I was not absorbing iron. Not that I'm eating all these gluten-free grains that aren't fortified I think this is exacerbating the problem. So after all this background info my question is this: Does anyone with CE and especially those who are runners/athletes take iron supplements? Are they necessarily gluten-free? I take the CVS brand. Also are there any iron fortified gluten-free cereals or breads? I really beleive the poor performance is related to this problem. Runners in particular are at risk for "runner's anemia". Any help much appreciated!
Posted 11 November 2005 - 11:26 AM
I run ~80 miles per week and have had problems with anemia in the past. I have been taking "SlowFE" for the past year or so & haven't had any iron deficiency problems since then.
Posted 13 November 2005 - 05:22 AM
Thanks for replying. You really run alot! I thought I was a nut! Do you run twice a day?
Posted 09 December 2005 - 11:09 AM
I have been better since taking the iron again too. I take the same strength you do but I use the CVS brand. The Novartis brand has sorbitol in it which doesn't agree with me. I'm not sure if the iron is upsetting my stomach a little or maybe some hidden gluten somewhere. When I went off the iron for a few days (after starting them again from when the doc told me to stop) my stomach wasn't any better.
Thanks for replying. You really run alot! I thought I was a nut! Do you run twice a day?
Usually I just run once a day - typically 10 miles on weekdays and 15+ miles on weekend days.
I run a lot of miles, but at low-moderate intensity...
It's so hard to figure out what upsets the stomach. Before the celiac diagnosis, I just thought that I had the "Runner's Runs" all the time. The SlowFe doesn't seem to upset my stomach at all, though. Just curious, do you drink coffee? I'm totally addicted, but I think that it might upset my stomach a bit.
Posted 09 December 2005 - 06:33 PM
I also thought I had runners trots, which I still have. I run on treadmill near the bathroom mostly.
I have a few training related questions for you. Are you a male or female? What kind of pace is low-moderate intensity? Why so many miles? Do you run marathons. May I also ask your age?
The reason I ask is because ever since I had my gallbladder out 3 months ago I have been going back and forth with how I feel when running. I am a woman who will be 39 on Monday! Is my age a factor yet? I typically run about 9 miles 5 days a week and it takes me roughly 65 minutes on treadmill, a bit longer outside. I started running when I was 23 so it's been nearly 16 years. Do you think my body is trying to tell me something? Maybe I should slow down a bit and just run a little longer? Maybe I just need to finally give in to the fact I'm getting a little older. NOT old, just a little older. Do you think if I slow my pace a bit but maintain the mileage I will be able to maintain my weight? Actually right now I feel like I want to lose a couple of pounds but I know that I'm just bloated! ugh I hate that!
I do know that I definately need my iron.
Also if you're a woman are you having periods? Somehow I think with your mileage you're probably a guy right?
Edited by LLRD, 09 December 2005 - 06:34 PM.
Posted 14 December 2005 - 11:44 AM
I am a female runner age 35. I run a lot of miles because I don't particularly like running fast & I don't get the "endorphin" effect if I run shorter distances (at the same pace, anyway). I typically run 8.5 min miles for my training runs. I do run marathons & have just started trying ultras (longest so far is 34 miles).
I have just started (after being on the gluten free diet for a little over a year) gaining the weight I need to get my hormone levels regular... Still have a few pounds to go. I have to eat almost continuously (it seems) to even maintain my weight while running as much as I do.
What time of day do you usually run? I try to get out before work in the morning (although this is when I have the most problems with "the runs"), but - especially in the winter - sometimes go run on the treadmill at the gym after work instead.
9 miles in 65 min, huh? I sometimes run that fast, but not too often. My best marathon time is 3:16 (7:30 min/mile pace). If you have the time, you might try going longer and slower and seeing how you feel.
Posted 03 January 2006 - 06:20 PM
All the GLUCERNA bars are gluten free. Because they are made for diabetics they don't cause the same sugar spike I have had with other bars. Small, yummy, and relatively inexpensive too!
Posted 04 January 2006 - 06:57 AM
I'm new to this forum. I am a 37 yr old Celiac competitive cyclist (Mountain Bike, Road, Track and Cyclocross) who also runs for cross training. I have recently started using this Vegan meal replacement and Energy bar as a supplement. I find it works well.
It may only be available in Canada though. May want to contact the company if interested.
Posted 04 January 2006 - 10:43 AM
I suffered terribly from fibromyalgia and peripheral neuropothy (numbness and tingling in hands and feet). I have been gluten-free for almost 2 years and in that time all symptoms except those 2 have completely gone away. The fibro and PN are much better but my legs still feel like they are filled with boiling cement sometimes making it extremely painful to run. It is slowly getting better as I get stronger and stronger. I take 2 sublingual B-vitamoms every day along with 2 multi vitamins and 2 omega 3 tabs. I make sure I get enough calcium, magnesium, and potassium. And stick religiously, absolutely to being gluten-free. Even a small mistake and I feel terribly achey, and exhausted for several weeks. I also get the dry mouth and throat thing you were talking about.
Maybe you need more iron (red meat). When I travel I always stick strickly gluten-free. I find that there is always something I can eat. We travel a lot and I have never had a problem. Most restaurants can make you a steak, a hamburger, or a piece of fish easily. just ask for plain, no seasonings, and cooked in a fresh pan.
Stick with protein bars that you KNOW for sure are gluten-free. If not, try a snickers, or some trail mix that you make yourself. COSTCO has an fabulous one that is gluten-free.
Good luck, Wendy
Posted 21 March 2006 - 01:19 PM
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Posted 06 April 2006 - 06:55 AM
Am a fitness instructor, I teach about 3 hours of cardio per day, and run about 25 miles per week also (the running is for my own head-clearing time - the teaching I do for others, plus am a bit addicted to adrenaline and endorphins).
For energy (given I don't eat processed carbs anymore - just carbs from fruits and veggies) I make sure my B-vitamins are high - through injections, but my iron I get through Floradix at the health food store. Iron pills just wreak havoc on my digestive system, whereas Floradix is made from concentrated prune and flower extracts and is highly and easily absorbable. (Plus it tastes good!) And the company that makes it certifies their products are gluten-free.
And I eat about 3,000 calories per day by grazing all day - I don't really have meals, I just constantly eat small portions. I find eating more protein helps keep my energy constant - but I do struggle to keep my weight on.
This may seem banal, but I find that if I skimp even a little on my sleep at night, my training suffers. So sleep and hydration are secret energy and endurance zappers that I pay close attention to, as much nutrition.
Hope this helps....
* Self-diagnosed with celiac disease in 2006
* Waiting list for apointment with a GI specialist for official testing
Posted 02 May 2006 - 07:41 AM
Posted 02 May 2006 - 01:17 PM
Posted 22 May 2006 - 07:19 AM
jill i have the same problem since cutting out my usual carbs ive foung it really hard trane it doesn t help that im also lactose intolerant too so i feel like its dragging me down, i went to the gym today and couldnt get much faster than 10kph on the treadmil which was soul destroying when youve trained for the marathon and managed to get up tp speed 14.4 kph on a hill, it was a real bite in the bum as a lot of the girls were in the gym today all haveing a good look at me struggling along, what got me to leave was when a girl got on the tread next to me ( who i would normally out run) and ran faster than me i got really tearfull, souds stupid i know but being gluten intolerant hasnt taken away my competative streak. I came away from the gym thinking i was a total B as it wasnt her fault i couldnt run it was mine. Im wondering if lucozade tabs would be ok to suck on just b4 i start to trane?
I've had trouble finding my pace lately. Even when I run with a team member who is at a comfortable pace, I feel exhausted. My throat also burns, no matter how hydrated I am. Please help!!!!
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