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Heart Palpitations And Fatigue
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:unsure: I was first told i had IBS and just cut out pasta and bread, but the last 2 weeks I developed a itchy,blistery rash and severe fatigue and heart flutters,

I have not had any test done yet , but I found an article in readers digest and it fit me to a tee. so i started experminting with not eating anything with modified food starch or wheat flour or gluten. is this normal when first starting to not eat wheat?

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Laurie anne,

If you are seriously going to be tested for Celiac you can't go off wheat yet, because it can cause a false positive. I had been off but they made me go back on for the biopsy and to be honest after being off gluten for 3 months, I was even more sensitive :(. If you don't care about the diagnosis then by all means, stay off the gluten, dairy may be sensitive for you too. If you have flattened villi, you are lactose intolerant until those little buggers grow back.

I too have the heart fluttering and am exhausted all the time. Not having the nutrients your body needs really throws everything out of whack.

Hope you feel better soon :)

Lily

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Hi,

I am in the same boat as you are. I went off gluten, felt better and now am back on gluten for the biopsy (Tuesday.) My gastro Dr said my allergist shouldn't have taken me off gluten until the biopsy, but it's too late now. My fatigue was much better after 6 weeks gluten free. Even if the biopsy comes back negative, I have the gliadin antibodies so I guess it gluten free for me.

Good luck in your diagnosis. It's hard going back to foods that you think are making you sick. I wish there was a better way for us. :blink:

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B)

Hi thanks for the advice I don't see my doctor until wednesday and i don't have insurance so I don't know what test he will do. My biggest concern now is i'm not eating much and I'am taking vitamins but I itch on my neck sometimes it wakes me up at night and i almost scratch till i bleed, and suggestions on what to put on it??????????? I've tried beneadryl cream, cortizone, gold bond and neosporin. any other suggestions on what to do or what is causing this. I feel almost worse since i stopped eating things with gluten or modified food starch , i did'nt have the heart palpitaions or the heavy bone melting fatigue, i'm also irritilble.

how do other people deal with this. my husband tries to understand but my kids just know mommy is sick. I've tried almost all of the antidepressants out there.

I'm on clozampane now. Laurie anne

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re: Skin problems

I have been having terrible skin problems for years and I wonder if they are related to celiac disease -

1 - I have developed an extreme sensitivity to anything alkalai, such as soaps, this carries over to the water supply here, ph was at 8.2 at end of summer, 7.5 in the fall, I only use Poland spring water on my face, neck, and scalp, ph 5.5, and it helps -

2 - My skin will not tolerate the vehicle or base in most ointments and creams - causes horrible problems - I read one in three people are sensitive to Neosporin - I can use Johnson and Johnson First Aid Cream - I can use Vaseline Intensive Care Lotion if skin not broken

3 - The neck (if you can use soap) gets soap, runoff from shampoo, Shaving cream (guys), and shower spray - 4 alkaline substances I was exposing myself to - not good

4 - I was prescribed anti-depressants a couple years ago and the potential side effects sounded really scary so I didn't take them - could they be a problem?

5 - Look into relaxation techniques - I did a BioFeedback program a couple years ago and it really helps. Sometimes I just unplug phone, put on my noise suppresion muffs, or headphones and classical music, blanket to keep warm, get comfortable, and either try to blank my mind or think of something calming - it really helps, pulse and pressure go down, respiration down, calm down - you can be wide awake, but when you end the session I always feel like I just woke up, was warned to take it easy for a few minutes after rather than jumping right up -if you have children, a husband, and celiac disease you need a little quiet time - when I described a floating feeling to the therapist she said it was a common description, sometimes it's like I am not aware of my body being in contact with the recliner I'm sitting in

6 - I've noticed since going gluten-free (7 or 8 weeks) I'm a lotless antsy/irritable - are you better feeling taking meds than you were before?

Good luck on your test - I'm in the same boat - gluten-free prior to test, no insurance

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    • Hi Anns and welcome   Do you think that I am on the right course to see if I possibly have Celiac?   Yes, it was smart of you to consider the possibility and its good that you've had the tests. Both the aneamia and bloating are symptoms, although of course they may be unrelated. Best way to find out is to check as you are doing.   Can this develope later in life ( I'm 46)?   Yes, I think its most common discovered later rather than sooner.   I ate a meal last night that was gluten free and did not feel like nearly as bloated after eating, would I notice a change that quickly?  Thanksort for your input.   Yes, I noticed far less of a heavy feeling after eating very soon after diet changes. However you would be better off not trying gluten free just yet. I collected some links and other stuff here, it may be of use: Your best bet is to eat as normal and wait for the test results. If your doctors eliminate celiac there's nothing to stop you excluding gluten at that point to see if it helps. But before then you need to keep eating it to ensure an accurate diagnosis.  All the best  
    • Well HIV undermines the entire immune system as I understand it, so that would be akin to using dynamite to put out a kitchen fire! There is some work going on to try and retrain the immune system to not see gluten as a threat though: http://www.immusant.com/docs/ImmusanT DDW Data Release FINAL 5.24.16.pdf  I'm laughing as I write this imagining the conversations you could have with people as you tell them you'd like to contract HIV so that you can eat a decent sandwich        
    • So, I have just yesterday had blood work done to test for Celiac so I am waiting on my results.  This was prompted when my Dr discovered that I was severely anemic and after other testing sent me to  Hematology.  I actually inquired if I could possibly have a gluten sensitive because of the anemia (which has improved with an iron supplement) and feeling bloated after eating and well most of the time actually and after some research I found that this could be a sign that of a gluten sensitivity.   The Hematology Dr also recommend an upper GI.  Do you think that I am on the right course to see if I possibly have Celiac?  Can this develope later in life ( I'm 46)?  I ate a meal last night that was gluten free and did not feel like nearly as bloated after eating, would I notice a change that quickly?  Thanksort for your input.   ANN
    • Yes, the first time you use gluten free flours, it feels like a challenge. ... of a gluten-free living after her elder kid was diagnosed with Celiac Disease. View the full article
    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
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