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Heart Palpitations And Fatigue
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:unsure: I was first told i had IBS and just cut out pasta and bread, but the last 2 weeks I developed a itchy,blistery rash and severe fatigue and heart flutters,

I have not had any test done yet , but I found an article in readers digest and it fit me to a tee. so i started experminting with not eating anything with modified food starch or wheat flour or gluten. is this normal when first starting to not eat wheat?

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Laurie anne,

If you are seriously going to be tested for Celiac you can't go off wheat yet, because it can cause a false positive. I had been off but they made me go back on for the biopsy and to be honest after being off gluten for 3 months, I was even more sensitive :(. If you don't care about the diagnosis then by all means, stay off the gluten, dairy may be sensitive for you too. If you have flattened villi, you are lactose intolerant until those little buggers grow back.

I too have the heart fluttering and am exhausted all the time. Not having the nutrients your body needs really throws everything out of whack.

Hope you feel better soon :)

Lily

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Hi,

I am in the same boat as you are. I went off gluten, felt better and now am back on gluten for the biopsy (Tuesday.) My gastro Dr said my allergist shouldn't have taken me off gluten until the biopsy, but it's too late now. My fatigue was much better after 6 weeks gluten free. Even if the biopsy comes back negative, I have the gliadin antibodies so I guess it gluten free for me.

Good luck in your diagnosis. It's hard going back to foods that you think are making you sick. I wish there was a better way for us. :blink:

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B)

Hi thanks for the advice I don't see my doctor until wednesday and i don't have insurance so I don't know what test he will do. My biggest concern now is i'm not eating much and I'am taking vitamins but I itch on my neck sometimes it wakes me up at night and i almost scratch till i bleed, and suggestions on what to put on it??????????? I've tried beneadryl cream, cortizone, gold bond and neosporin. any other suggestions on what to do or what is causing this. I feel almost worse since i stopped eating things with gluten or modified food starch , i did'nt have the heart palpitaions or the heavy bone melting fatigue, i'm also irritilble.

how do other people deal with this. my husband tries to understand but my kids just know mommy is sick. I've tried almost all of the antidepressants out there.

I'm on clozampane now. Laurie anne

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re: Skin problems

I have been having terrible skin problems for years and I wonder if they are related to celiac disease -

1 - I have developed an extreme sensitivity to anything alkalai, such as soaps, this carries over to the water supply here, ph was at 8.2 at end of summer, 7.5 in the fall, I only use Poland spring water on my face, neck, and scalp, ph 5.5, and it helps -

2 - My skin will not tolerate the vehicle or base in most ointments and creams - causes horrible problems - I read one in three people are sensitive to Neosporin - I can use Johnson and Johnson First Aid Cream - I can use Vaseline Intensive Care Lotion if skin not broken

3 - The neck (if you can use soap) gets soap, runoff from shampoo, Shaving cream (guys), and shower spray - 4 alkaline substances I was exposing myself to - not good

4 - I was prescribed anti-depressants a couple years ago and the potential side effects sounded really scary so I didn't take them - could they be a problem?

5 - Look into relaxation techniques - I did a BioFeedback program a couple years ago and it really helps. Sometimes I just unplug phone, put on my noise suppresion muffs, or headphones and classical music, blanket to keep warm, get comfortable, and either try to blank my mind or think of something calming - it really helps, pulse and pressure go down, respiration down, calm down - you can be wide awake, but when you end the session I always feel like I just woke up, was warned to take it easy for a few minutes after rather than jumping right up -if you have children, a husband, and celiac disease you need a little quiet time - when I described a floating feeling to the therapist she said it was a common description, sometimes it's like I am not aware of my body being in contact with the recliner I'm sitting in

6 - I've noticed since going gluten-free (7 or 8 weeks) I'm a lotless antsy/irritable - are you better feeling taking meds than you were before?

Good luck on your test - I'm in the same boat - gluten-free prior to test, no insurance

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    • How effective is HD skin biopsy after being gluten free for a year
      No one can say exactly how long you might be able to get a positive dh biopsy after having been gluten free as long as you have been. The Chicago Celiac Disease Center says this: http://www.cureceliacdisease.org/faq/im-scheduled-to-have-a-skin-biopsy-to-screen-for-celiac-disease-should-i-maintain-a-gluten-containing-diet-similar-to-those-who-are-being-screened-via-blood-or-intestinal-biopsy/ http://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/ You said you had a flare of the plaque psoriasis -- that is NOT dh so why do you think the dh biopsy will show positive? Testing positive for the celiac genes does not mean you have celiac disease. 30+% of the population have the celiac genes but only very, very small fraction of those people do or will present with celiac disease. The gene tests are only used to rule OUT celiac NOT to diagnose it. Frankly, I can understand why your GI does not put any stock in your Primary doc's thinking you have celiac disease. A positive celiac gene and the boils in your armpits which the GI never saw and were never biopsied for dh but they resolved on a gluten free diet and so did your plaque psoriasis. That's all the GI has to go on. I don't know why you are pushing an endoscopy. If you've been eating strictly gluten free then an endoscopic biopsy for celiac will be negative.  Your PCP should have done a celiac blood panel on you back when you were still eating gluten rather than dx you based on the celiac gene you tested positive for.
    • How effective is HD skin biopsy after being gluten free for a year
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