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Sleep Issues Related To Celiac?
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My 2 1/2 year old daughter hasn't formally been diagnosed with celiac, though her anti-gliadin IgA's and IgG's were both elevated. (The other two were negative.) She's going to be retested via blood work again in the next few weeks. I was just wondering if any of you have found a connection between sleep and gluten. She's a horrible sleeper! She goes to sleep on her own, which she's been doing since she was 6 months old. However, she is a very fitful sleeper and wakes numerous times in the night. She also seems to have frequent nightmares with an occasional night terror. She's been like this since she was 1 1/2 years old. She seems to be frightened most of the time she wakes. I haven't done the elimination diet yet because of her second test coming up. I was just wondering if any of you have had similar experiences. Thanks for any input!

Sue

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Sue

You gave me some input previously - I am happy to say there is hope for a good night's rest! In my house, it is the gluten-free diet. After 3 days, my dd was waking only once a night and falling back to sleep easier. Then she slept through the night 3 nights straight - I don't think she had ever done that in her life (she is 3 next week). Her digestive problems started about a year ago and prior to that she was only off the breast for 6 months.

She had the same scared wake-ups you describe, crying out for me and ocassionally taking an hour or more to fall back to sleep. She would lay down but could not fall asleep it seemed. Other times, she would wake and come get me quietly. She is still doing that some but not as much the past week as in a night previously. She falls back to sleep easily.

Good luck and good rest. :D

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My son is undiagnosed, and he has never come even vaguely close to sleeping through the night. He wakes up crying for me more often than not. I have a feeling that his sleeping is abnormal due to celiac or some other problem.

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hello,

I was just diagnosed with celiac with my 2yr old son. my 5 yr old son has gluten sensitivity. my side of the family are big dreamers. but i had noticed last yr my 5yr old started having night terrors and then they stopped. well since we have gone gluten-free in home, i dont know if its the change or what but they have started back up again. i read a little on night terrors when he first started and it said that if your child falls asleep pretty fast on their own then they are more likely to have night terrors, so they said to disturb the child after about 20 minutes of sleep. like make them role over, just make them move some how and that should stop them. so maybe give that a try and see if it helps out a little. its something about the first 30 min after they go to sleep that could possibly cause that. but who knows what all happens with celiac. there are just so many things that are affected by it. goodluck

christi

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My dd, just turned two, rarely sleeps through the night. She just saw a ped. GI today and he is testing her for Celiac. A normal night for her consists of falling asleep on her own, but then she wakes up at least 2 times usually more. She does a lot of whining and moaning in her sleep also. There have been many times that she wakes up and seems very uncomfortable. She will act like she wants to be held but then scream to get down, so you put her down and she screams to be held, it usually takes 30min to an hour to get her to settle down enough to go back to sleep. So, in my opinion, yes there is some kind of connection between sleep issues and Celiac.

Megan

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WOW! That sounds so much like both my kids. And myself for that matter... We are all horrible sleepers. I always blamed it on my mom's theory that the house had to be pitch black and silent for a baby to sleep so I tried to let my kids sleep with noise and lights as much as possible and nothing helps... I am hoping it is one of the problems that is fixed for us... We still haven't all been completely diagnosed as celiac disease but my son has his scope tomorrow and if it is positive then my daughter and myself will be tested...

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My two yr old, justin, has been sleeping through the night since shortly after going gluten free 6 months ago - prior to that, he hadn't slept through the night, not ONCE!

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So there's hope for me yet! We still have to get the bloodwork done, I'm just dragging my feet. I'll start the gluten free diet within the next few weeks. Here's hoping it works in all areas! Thanks!

Sue

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There's hope sweetie - the dark, heavy suitcases that once lived under my eyes are long gone - well, except for when I'm on the computer all night long - now that's no excuse! Good luck and keep us informed.

God Bless,

Kirst

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My daughter would sleepwalk every night, sometimes 2 or 3 times. There are a lot of symptoms besides stomach pain and loose stools. Many of which are neurological. Absolutely, it can affect a child's sleeping habits.

Kim Crocker

gluten-free since 2002

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It is interesting to see how different gluten symptoms can be. My daughter was always tired and could sleep all day and night before cutting the gluten. Now, she has energy in the day and still sleeps at night. She was always so tired and didnt want to do anything.

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    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
    • Is coffee glutem free or not ?  Always wondered about this ............. got to have my coffee... I am new to this  , very new .........
    • Now that my initial rage has calmed a tad.... your daughter has to fulfill 4 out of 5 of the diagnostic criteria. Second opinion can do a gene test. If positive, then she will have4 out of 5 of the dx criteria to dx without a positive biopsy. See: http://www.gastro.org/news_items/a-biopsy-should-not-be-required-to-make-the-diagnosis which says in part: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.   Also see: http://www.tenderfoodie.com/blog/2014/5/1/dr-fasano-on-new-gut-autoimmune-research-autism-clearing-up.html She can get a dx after her symptoms resolve on a gluten-free diet!
    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
    • Celiac disease may lead to a host of other inflammatory, gluten-related ... Fortunately, Diet Doc offers gluten-free diet plans which are customized to ... View the full article
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