Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Extreme Leg Swelling
0

6 posts in this topic

Hello, I was just officially diagnosed as having celiac disease a few days ago. I have been trying to be gluten free for the past 5 days, though my lack of knowledge has resulted in some hit or miss results. My calves and ankles were grossly swollen last night after eating something with gluten (not sure what it was but I sure reacted). Today I was very diligent about being gluten free and my lower legs are still swollen but not as much as last night. Also, I've never had leg swelling before celiac setting in. Can I expect that this swelling will suubside or hopefully go away with a completely gluten free diet.

Thanks in advance.

0

Share this post


Link to post
Share on other sites


Ads by Google:

I do not know the answer to your question, but will keep it current.

0

Share this post


Link to post
Share on other sites

I went gluten-free in April after a diagnosis of Hashimotos. Immediately I started feeling much better and lots of symptoms - fibro, itching, brain fog etc - cleared up. However I started having really bad gut-ache and swollen ankles which I'd NEVER experienced before. My ankles were swollen and stiff and had hard, painful lumps on the achilles tendons. Thought it was some weird reaction to thyroid medication at first. There was a heatwave at the time so I drank loads but it didn't help. It got so bad I could barely walk and since I couldn't get my shoes on I was pretty much immobilised. Then intuitively (and thanks to this forum) I gave up all dairy and immediately the gut ache lessened and within a day or two the leg swelling had subsided. Within a week or so it was gone. I test it every few weeks and even a little milk in my tea will bring back the swelling and painful achilles tendons. Hope this helps.

0

Share this post


Link to post
Share on other sites

Hello

My mom has had Celiac disease for about 40 years. One of the symptoms she had had is swelling in the legs. The most important thing is to make sure you get a sono gram or MRI to determine you don't have any blood clots. That was the first thing we did.

I'm not sure where you're located but there is a top doctor in this field at Columbia University/Celiac Center. Dr. Green - leader in this field- Also a Doctor Lee. A little tough getting appointments but you can't get any better.

We are meeting with Dr. Lee next month to see why my mom has leg swelling - even more so in the past year.

What you need to do is try different things - like we did--- stick to gluten free diet for 1 week--- and then you can tell if this is what affected the swelling.

Anything else--- Call Columbia - Dr. Green's Office ---

Michele

0

Share this post


Link to post
Share on other sites

For me it was dairy, and also proteins of various types. I cut out all dairy, and limited the other proteins. But the single best thing was the magnesium I started taking. That helped immensely.

One thing to remember though, is that it can take time, so don't expect total recovery in a week. Some of us still struggle after years, myself included. Still, I'd like to think that the swelling should subside once your body is clear of the things which bother it, and if gluten is the only no-no, consider yourself extremely fortunate.

0

Share this post


Link to post
Share on other sites




I completely agree. I recently went to a ND, and he limited all my proteins, no dairy, and has me on a variety of probiotics, including magnesium. Each day(actually several times a day :unsure: ) I check my calves, usually a while after I eat, and the swelling is down to a low roar. Before that, there were times that I couln't recognize my legs...I couldn't believe how swollen they were.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,876
    • Total Posts
      919,430
  • Topics

  • Posts

    • Anyone experience brain fog like this?
      Thanks for the reply, melprkr! Feeling like you're still in a swimming pool moving is a good way to put it. It feels kind of like motion sickness, come to think of it, or a really bad hangover. I was curious because my experience of 'brain fog' in the context of thyroid problems feels so different than brain fog caused by gluten, and I couldn't quite figure out how to explain it. Swimming pool comes pretty close, though. Hope you feel better soon as well!
    • Anyone experience brain fog like this?
      Brain fog is a common symptom.  I had a hamburger patty from a local restaurant and am suffering the effects.  Sometimes mine is bad and sometimes it is mild.  This one feels mild, provided I am not "glutened" again.  I have the exact same feelings when I am contaminated.  I actually had 2 good days this week to ony have to go back through this again.  The first day is just tired and want to sleep, but as each day goes on it seems like all I can do to concentrate and do anything.  TV is OK but for me just standing up or moving sometimes makes me dizzy.  Luckily I don't have the nausea but even sitting still I feel like I am in a swimming pool moving.  You know kind of like when you were a kid and you got in the pool or went roller skating but then got out and and you still felt like you in the pool or skating?  The anxiety and the depression is the worst.  I am taking things to help with it but it doesn't always help.  Only thing that seems to help sometimes is just going in to my room and laying there and not moving and just going to sleep.   It will pass.  Just be cautious about everything.  I have opted to let my family know that I will bring my OWN food when we have gatherings.  I don't mind being the odd man out because I am already the odd ball.  One thing I have learned and that is people mean well but mistakes happen and we are the ones who have to pay the price.   Hope you feel better soon.
    • gluten intolerance, dairy intolerance and fructose
      Look into The Paleo Approach by Sara Ballentyne, PhD.  Great resource and will probably answer your questions.  I have the same problem. You have to really read labels.  The only coconut milk I can use is an organic canned one.  Others have too many ingredients that are problematic.  For now, stay with meat and vegetables as someone else has recommended.  If rice works for you, great.  If not, winter squash is good.  The diet change is overwhelming at first but then it starts to make sense.  The one good thing about an intolerance versus allergy is the possibility of someday being able to add it back into your diet once your gut has healed.
    • Anyone experience brain fog like this?
      I went gluten free about a month ago, and was finally feeling *great* last week when wham -- my well-meaning Dad cooked me dinner and forgot to check the ingredients on the fish sauce he used. The upside of being glutened for the first time is that, after a couple weeks of feeling good, I feel like I can discern the symptoms a lot better now. I've noticed that the worst part, aside from the nausea, is the "brain fog," but I'm curious if my experience of brain fog is the same as or similar to what other people are feeling. For me, it becomes almost physically painful to concentrate on anything. If I try to read a book, or watch a TV show, it makes me feel dizzy, overwhelmed, and nauseous. For a couple days, I feel like all I can do is try to stay still and do as little as possible while I wait it out. It feels similar to anxiety, but not quite the same, and none of the usual tricks for getting through a panic attack help. Do any of you experience brain fog in a similar way? Where it basically makes you feel sick to try and concentrate on anything, even fun and relaxing things?
    • gluten intolerance, dairy intolerance and fructose
      I've never gone fructose free so can't help much with that.  But any fruit is probably a problem.  If you are serious about avoiding fructose you could do a search and print out a list of foods to avoid. http://www.mayoclinic.org/fructose-intolerance/expert-answers/faq-20058097 Yes, it very possible to have multiple food intolerance issues.  Many people have multiple food intolerances.  It might help to avoid any foods that are sweet for now.  Meat and most veggies are probably the way to go.  You may want to get some jerky to eat for snacks.  Peanuts might be ok but you'll need to verify that.  Boiled eggs are probably ok.  Most soda would be a no-no.      
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,912
    • Most Online
      1,763

    Newest Member
    Mamalarge
    Joined