Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

I Think A Question About Dairy And Soy
0

14 posts in this topic

first i want to apoligize for flooding the board with so many newbie questions the past couple weeks. everyone has been so kind and helpful.

i have noticed a lot of people have different symptoms than i do. mine are mainly constipation and bloating. ive been on the gluten free diet for almost 3 weeks now and am still so constipated i can barely function. i have been taking psyllium seed, flax seed, citrecel and nothing has helped. when worse comes to worse i use laxetives and enima's but i dont want my body to have to rely on those.

since nothing has changed after giving up gluten i may give up dairy, but i honestly dont think i can live w/o milk, cheese etc. so if i switch to soy, would that be any different? i have heard that soy is also constipating so i'm not sure what to do.

The last time i went to the doctor they just put me on laxatives...so i'm thinking of just trying to solve this issue on my own.

i would love to hear from people that have struggled with the constipation issue and resolved it and if they were able to still consume soy or dairy.

thanks, lillie

0

Share this post


Link to post
Share on other sites


Ads by Google:

Lillie,

I'm new too, and have asked a bunch of questions. Don't feel bad....I think it's "normal." :-) I just wanted to say that I drink soy, but have been off of milk for almost three years (Just flat can NOT digest it). I've got the constipation problem too....and soy doesn't seem to make any difference at all, either way. Too much of anything is a bad thing though, so be careful. Every body is different, so I think the thing to do would be to just try it and see what happens.

Hope that helps (?).

Brenda

P.S. I think you're VERY wise to avoid the laxatives. I did that for years, and it totally messed me up.

0

Share this post


Link to post
Share on other sites

thanks for replying brenda.

my subject title got messed up here and i can edit it :unsure: it should be " a question about dairy and soy"

anyway many people have mentioned cutting dairy for the first month. i will try that for awhile and if that doesnt help i might try cutting out soy.

0

Share this post


Link to post
Share on other sites

Hi Lillie,

I too have constipation. I take Citrucel tabs 2, 3 times a day with a

large glass of water. That usually works in 12-24 hours.

Perhaps you need to drink more water, if you aren't on a restricted

fluid diet. My GI doc says I need more fiber so I try to eat a lot

of veggies, but sometimes that can cause gas, which leads to bloating.

Are you exercising? Even a small amout can help move things along,

if you know what I mean. As far as dairy, I am off it for a few days

because I had a gluten-type reaction to Lo Carb milk. As far as cheese

I can tolerate hard cheddar, haven't tried anything else. I am using soy

milk but I think it is making me itchy. I have used goat's milk as an

alternative in the past.

0

Share this post


Link to post
Share on other sites

OHMYGOSH.............you just hit the nail on the head for me. I have been so constipated and bloaty/crampy and thought I was the only one. I got a negative blood test but am choosing the gluten-free diet because I don't trust the test....granddaughter/postitive, mother with lots of gastro problems. grown son with ADD, I have migraines, depression and a very tender tummy. I think the dairy connection may just be another piece of the puzzle for me. Thank you so much. Since going gluten free, I am so VERY in control of food, it is just so amazing. I am somewhat overweight and am losing weight/now walking too. I feel so much better. THANK YOU, THANK YOU. Please keep talking to me. Barbara

0

Share this post


Link to post
Share on other sites




My celiac symptoms have always been bloating, cramping pain, excessive gas AND constipation. Before I learned I had celiac disease I tried FiberCon (which stopped me up even more :angry: ), laxatives (which caused more excruciating pains due to sorbitol :o ), wheat bran (recommended for IBS with constipation and obviously counterproductive <_< ) and magnesium supplements. Magnesium and Vitamin C worked best to keep me regular. However, with each passing year, I became more constipated and experienced more of those (undiagnosed) celiac symptoms. When I first went gluten free, that helped resolve constipation a little. However, when I went dairy free (after receiving Enterolab test results of casein intolerance), that really helped resolve my constipation problem. I couldn't use soy substitutes for dairy because soy gave me the same cramping pains and bloating as dairy. I don't know that it affected regularity one way or the other. However, now I'm pretty regular with just eating lotsa fruits and vegies, a few higher fiber gluten-free breads and grains, lentils, lotsa liquids and those magnesium supplements. Of course, every time I have a dairy, gluten or soy slip, I'm back to square one with constipation for a few days. :o Staying gluten-free/CF free helped resolve constipation for me. ;)

BURDEE

0

Share this post


Link to post
Share on other sites

As I have fibromyalgia, I take mega-amounts of magnesium with malic acid, a normal person would have such diareah from that. I am staying off the milk stuff and things are "going" pretty well again today. I am trying to drink more water and observe the veggie/fruit thing. Also I have started walking which I hear helps too. The tenderness in my belly is much better, and that is what I have been the most concerned about. Thanks so much, this particular thread has been the most helpful one of all of those that I have talked on EVER......I REALLY do appreciate it....all the others talk of diareah all the time and my problems were just the opposite. Barbara

0

Share this post


Link to post
Share on other sites

how long should i avoid dairy or soy etc. before deciding it's not the cause of my problems? if i notice no improvement after a week is that enough ? or a month ?

0

Share this post


Link to post
Share on other sites

I would advise doing a dietary challenge. Avoid ALL FORMS OF SOY for at least a week, then have a fair amount of it in one sitting. If you react to it, you'll know it's a problem. The reason for doing this is because it can be hard to isolate the effect of ONE food out of all of the foods that we eat.

0

Share this post


Link to post
Share on other sites

What is the correct web address for enterolabs? I tried everything on a search and came up with nothing. I want to try having testing with them, possibly. Thanks, Barbara

0

Share this post


Link to post
Share on other sites

http://www.enterolab.com/

i have been taking the advice in this thread this week, and allready its helped a lot. i have been consuming a little dairy, but increased my fruit/water intake and its working!! :D

0

Share this post


Link to post
Share on other sites

Lillie,

Don't feel bad about the board! I've done the same thing the last couple of weeks and everyone has been wonderful!

Anyway, my main symptoms are constipation, and gas and bloating and pain. I also have MS, so have really poor motility. Up until a couple of weeks ago, I didn't know I was gluten intolerant, so was just working on the constipation thing constantly. Mine would get so bad, I had a heartbeat that I could feel in my tummy....sort of a throb.

Anyway, here is what worked for me. I had to work up to it to avoid gas, but it really did work.

First, I always have a glass of water in my hand. I mean, I drink about 10 -12 16 oz glasses a day. I eat an orange every morning at 9 am and one after lunch. And then a large bunch of red seedless grapes every late afternoon. I also eat 3 servings of vegetables at lunch and 3 to 4 more at dinner, no matter what else I leave on my plate. And brown rice twice a week and sweet potatos twice a week. I stay off dairy and soy....very little cheese.

Hope this helps...........

Jen

0

Share this post


Link to post
Share on other sites

Thanks so very much for the address for enterolabs......just ordered the complete kit and am going to see if I am gluten sensitive and also milk sensitive by their standards. Should be interesting. I am also going to take heed to the good information from Jen about water veggies and fruit. The fruit wont be that hard, but the veggies are my problem. I am trying, though. I sure do know that I am eating healthier, though. I got to wondering if several of the supplements that I have been taking on a daily basis had gluten in, so took them out of my life for awhile to see what happens. You all are so much help. Barbara

0

Share this post


Link to post
Share on other sites

thanks for your advice jaycee!! that was really helpful! :)

i'm beginning to think milk may be the main culprit in my constipation issue. for two days i switched to soy lattes in the morning, but today i went back to milk....and am now back to square 1.

the next week i will be increasing my fruit veggie intake even more so and cutting dairy all together.

all of the advice here has been great and i'm glad this thread has helped you too barbara.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,640
    • Total Posts
      921,547
  • Topics

  • Posts

    • You should never have cut out gluten until you had the biopsy done. It's much worse to have to go back on after you've been off gluten for a while. There's no way I could ever do the gluten challenge after being off gluten for even a month because my reactions got so dramatically worse.  Stress definately can trigger celiac- before I was diagnosed - it got the worst after surgery and after a stressful time planning my daughters wedding. 
    • Hi not diagnosed celiac, Welcome to the forum! Your doctor should be sent to remedial celiac disease training.  Since that probably won't happen, I suggest you find a new doctor.  He doesn't know what he's doing when it comes to diagnosing celiac disease. You should not have gone gluten-free before completing all celiac disease testing.  The testing for celiac disease depends on the immune reaction being active.  Removing gluten before testing removes the antigen that causes the immune system to react, and lowers the chances of getting a correct test result dramatically.  The University of Chicago celiac disease center recommends: ******************************************** http://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/ Prior to blood testing we recommend 12 weeks of eating gluten. Prior to an endoscopic biopsy we recommend 2 weeks of eating gluten. In the case of a severe reaction to gluten, a medical professional may opt to shorten the 12-week challenge and move immediately to an endoscopic biopsy. May, 2013 ******************************************** So you will need to go back to eating gluten before your endoscopy.  That may cause worse symptoms than before when you were eating gluten.  So it would have been better to do all testing before going gluten-free. Can you search for a celiac disease support group in your area?  They exist in many parts of the USA and world.  They can be a good place to get a knowledgeable doctor recommendation.  There is also a doctors subsection of this forum where you can search to see if any doctors in your area were recommended.
    • Hi All, I'm new to this and very confused! I have Lea & Perrins WC sauce, it lists it's first ingredient as Malt Vinegar.  I have the Coeliac Society of Ireland Food List 2015 here, and it says "All Vinegars are Gluten Free including Malt Vinegar." Doesn't that mean that L&P Worcestershire sauce is safe?   Their website states " Lea & Perrins® Worcestershire Sauce is cholesterol free, fat free, preservative free, gluten free and has 80% less sodium than soy sauce. " I'm cooking for my coeliac niece, can't afford to make a mistake!
    • I get these crazy cravings for some things I can not eat anymore. Not only am I diagnosed with celiac but I also have a allergy to corn, olives, sesame, peanuts, and intolerance to yeast, soy, dairy, and a very low tolerance for carbs/sugars, Top it off with I can not digest meats or egg yolks, they just give me the burps and come up later.
        To deal with these I find myself turning to Republic of Teas (They have a great desert tea line up all certified gluten-free) and sweetening them with monk fruit extract, or stevia. And I find myself making Puddings bases that I use for shakes, dips, and ice-cream for meals. The puddings are normally a blend of cashew, or almond milk with a thickening agent like agar agar, pectin, or knoxx gelatin, blended with a sweetener like xylitol, swerve, stevia, monk fruit or a combination. And flavored with Lor Ann Oils (all gluten-free certified and you can find the kosher ones listed as such) super strength flavors or fountain syrups to match something I can not eat normally a combination of two flavors (Strawberry Cheesecake, Banana and Carmel, Cookies & Cream, etc) Then I add a fat that matches best, like almond butter, cashew butter, hemp butter, ground flax seed, coconut flour, chocolate, Pumpkin seed butter or a combination) These bases are normally blended up and consumed with 1-2 scoops of protein powder and eaten with steamed vegges as a side dip or loaded into a ice cream maker for a desert after my meals.      Also found myself making desert soups....like a pumpkin soup that taste like pumpkin pie. I am sure we all have our little quirks but this is one of mine for getting that sweet craving taken care of. Most premade items are off my list due to the allergies and it seems most companies use the oils, starches I am allergic to as non stick or thickening agents, Even the semi safe ones tend to put way to much sugars in them and I find myself only being able to nibble . There is also my little binge issues with almonds, pumpkin seeds, and, cocoa but that was explained to me as normal And on my most craving for peanuts I have found sancha inchi powder to work great, The Powder itself taste like the girl scout peanut butter cookie sandwich from my childhood, And is great mixed with a bit of almond milk into a butter or used in baking and smoothies. Before this I have been making Artisan blends of almond butter for years and even made a market selling them to pay  for my own consumption. Baked goods wise I have a bunch of recipes I make for others and sell at markets and this allows me to nibble on a sample to check it, as most contain a bean or gluten-free Harvest Oats/Flour in them and the carbs from that and the coconut sugars bother me. Still helps with cravings there, I only have 2 recipes that sell good and are safe for me to eat full servings of but are so expensive as they use almond and coconut flours, low sugars/xylitol and are paleo that I only can afford to make them once a month. Posting to hear about some odd and out there ways others deal with substitutions and cravings. Please do not bash mine as odd as they might be as they keep me from going crazy. (Yes I know DROP THE OATS, fact is I only get them when tasting stuff and they are gluten-free Harvest, the only ones I have never gotten glutend with)  
    • After suffering pretty much all year with one illness after another I've finally managed to get a diagnosis and it turns out to be celiac. After my doctors consistently failing to even consider the possibility it might be that (as opposed to "IBS" or "stress") I kept pushing for the Iga TTg test and it was off the charts with a score of >128... may as well fail it in style I guess. So here I am at the start of what feels like the end of my life as I know it. Been doing nothing but reading for the past week and frankly it's terrifying. Here's a few things that are going round in my head and I'd really appreciate your thoughts with. Apologies if it's a bit of an essay  Diagnosis I'm still furious at my doctors for not even entertaining the thought that celiac could be the root cause of all my ills. Given the blood test is so simple it feels almost negligent that they don't run this right at the start to rule it out. Instead I got subjected to poisons like Omeprazole which made me even more ill, whilst being told the physical symptoms were all in my head. Just as well I knew better and kept hitting up Google until my self-diagnosis was proved correct... to think these people get paid highly to be so incompetent makes my blood boil. Does feel good having outwitted the so-called professionals though. Seems 9 months is comparatively quick from symptoms to diagnosis compared to some others that have gone years with the problems so could be worse I guess. Food and diet I'm male vegetarian (non-negotiable) which makes this even harder as so many of my protein sources are now ruled out. Seems many with celiac were having trouble losing weight whereas I'm in the opposite situation. Already lost best part of a stone in the past few weeks and it's becoming noticeable now. The MyFitnessPal app reckons I need 2600 calories a day to maintain \ gain weight - no idea where that's going to come from. On top of that I read sites like Gluten Dude where even the Gluten Free foods are seen as poisons and going on extreme diets like Paleo \ SCD are the only real way forward. Again being veggie makes that practically impossible and if I'm unlucky enough to end up with the dairy issues as well I'm well and truly stuffed. Right now I'm trying the gluten-free Quorn products to see how I go, as well as more eggs etc. Porridge has been my go-to breakfast in the mornings for a while after I cut out bread whilst self-diagnosing but depending on where you read even that's a potential problem (currently using gluten-free porridge oats and seeing how it goes) Seems many gluten-free people have to go right back to basics and cook everything from scratch. That's a problem for me as I'm utterly hopeless on that front and time doesn't permit waiting hours just to prepare one meal. Seems nigh-on impossible to do day-in, day-out. Health Rightly or wrongly right now I see this diagnosis as a death sentence long-term. Looks like it brings other associated illnesses with it and this particular article really scares me: http://scdlifestyle.com/2012/03/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/ I've only really had noticeable symptoms for the past year or so but wonder how long this has been going on for and what damage has already been done. All seems to have started from when I turned 30 (knew I was dreading that age for a reason) and right now I wonder how long I'm going to last before the really bad stuff starts. One of the other illnesses I'd considered as a possibility before getting diagnosed was Hashimoto's Thyroiditis; now it seems that's closely linked with Celiac so may not be out of the woods with that yet either. Just seems to be one big list of illness all triggered from the same point One positive change I've noticed thus far since cutting out gluten is that bloating seems to have gone down and bowel movements are better. Still getting headaches and muscle twitching, which could be as much a withdrawal symptom from gluten as anything else.  Some sites were suggesting stopping exercise whilst withdrawing but I can't face that as it's the only thing keeping me going at present. Again will keep going as-was and see what happens. Then to top it off it sounds like the next step is the biopsy - I'm scared of being put out for the procedure as a member of family went into hospital a few years back for something supposedly routine and never came back out. From what I've been told it's important to have done though as it shows just how broken the villi are so another thing to worry about in the meantime. I've just read on another thread that you have to be on gluten to have the test, that's another kicker after having started to cut it out the diet. With such a high blood test Iga-TTg score isn't it almost certain that celiac is the cause and the endoscopy in this case is just confirming levels of damage? OK means I can have a final blow-out eating all the "bad" foods but no doubt with all the side effects that come with it... Social life Seems like despite there being some gluten free options in certain restaurants (granted better now than years ago) I'm going to be hugely limited in food options. Either sitting on the side looking on or just plain not able to go out much anymore. Already had the first hitting-home moment watching colleagues eating pastries that were brought in while I just have to look on... then it dawns that this is never going to get better... urghhh Family life I'm really struggling to accept this lifelong illness and loss of health and it's taking a toll on the people around me at the moment. They won't be going gluten-free so will have to take my chances with the mixed kitchen environment; already gone with split toasters etc. so can't do much more than that. Dating Basically seems game over on that front, unlike many who are diagnosed with understanding partners \ spouses I'm still in the dating game, which is judgemental enough as it is without all the complications that the gluten issues bring. I'm reading even kissing someone with lipstick \ make-up is apparently a big no-no... once any date hears that they won't be coming back... forever alone status confirmed is how it looks right now. Overall feelings I still can't quite figure out if this illness was in me all along and just hasn't flared up enough to notice until now or whether the extreme stress I've been under for the past year or so has triggered it. If the second scenario is correct I can't stop thinking about the events that all led up to this almost year-long bout of ill health and life-changing diagnosis. Can celiac be brought on by stress alone or realistically was I always a ticking timebomb just waiting to be set off? For every person I see that's had a positive change after cutting out gluten (and getting by with reasonably achievable adjustments) there seems to be 10 others with horrible side-effects and long-term complications. Right now the future feels rather bleak - like all hope just been taken away. Help???
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,643
    • Most Online
      3,093

    Newest Member
    moojoo
    Joined