Would like some feedback
Posted 19 January 2004 - 09:11 AM
I would be very interested in any feedback from fellow celiacs. [QUOTE]
Posted 24 January 2004 - 01:40 PM
There are times that I know I am cheating but in reality there is no cheating allowed!! There can be very serious consequences to pay and it's time I realized that I am shortening my life by doing so.
bfinnegan, The way my kids doctor put it is that it is either 100% gluten free, or not at all. You really can't cheat on this diet. It is your health that is at stake, not just a few pounds like a weight loss diet.
I just wanted to say, welcome to the board, and feel free to ask questions. We are all here to support each other.
Mariann, gluten intolerant and mother of 3 gluten intolerant children
Posted 28 January 2004 - 08:16 PM
I just wrote you a long note and then lost it somewhere. I was diagnosed with celiac disease four years ago after 40 years of diarrhea. It is a constant challenge to read obscure labels or to call companies who don't really understand what gluten is. My husband is diabetic and I watch his diet as well as mine, eventhough he doesn't always want what I eat. I have just discover that canola oil is sometimes planted in wheat fields and is often cross contaminated which was a revelation to me!!!
I am a good cook and have a master's degree, so I'm not exactly stupid, but it is hard to track down where I might be getting unintended gluten.
Ah well, life is certainly interesting!!!
Posted 29 January 2004 - 04:33 PM
Posted 29 January 2004 - 08:00 PM
gluten-free since November 1, 2003
Posted 30 January 2004 - 06:50 PM
Posted 11 February 2004 - 07:44 PM
Posted 14 February 2004 - 06:53 AM
I would be very interested in any feedback from fellow celiacs. [QUOTE][/QUOTE]
If you are newly diagnosed you might want to stick to plain food cooked from scratch for a while.
Plain cooked meat, fish, eggs cannot hurt you as long as you use pure ingredients such as butter and vegetable oil.
Eggs are useful, omelettes, scrambled, boiled or fried can all be a good quick meal.
You can have any plain vegetables- salad is good but remember to use your own plain wine vinegar &, say, olive oil, dressing.
Also plain nuts (not dry roasted, some contain gluten) and seeds are gluten-free & these make a good gluten-free snack.
As long as you know everything is uncontaminated by gluten, you should be well on the way to recovery.
At first your puddings can be fruit, fresh or dried, or fruit salad you make yourself with fresh fruit and pure fruit juice . Have this with plain cream or plain bio yogurt and/or home made meringues.
I suggest you have your own gluten free area in the kitchen if you share it, own gluten-free toaster, bread board, bread knife, wooden spoon, preparation surface etc.
Check that stock cubes etc are gluten-free or use plain herbs and your own stock.
Ask on this board for a safe gluten-free bread and also a suitable gluten-free mix/flour to use in your cooking/baking.
Plain boiled rice or jacket potatoes are a good standby.
There are different rices, eg Carmargue red, black rice, Indian Basmati which make a nice change. Potatoes can be mashed, boiled, roasted & sweet potatoes are, of course, gluten-free.
Hope you like bananas as these are a great help to coeliacs- you can carry a few & eat them if you are hungry & do not know if anything is safe for you.
You can fry them in butter & olive oil & have instead of potatoes or eat as pud with maple syrup or runny honey or preserved ginger & cream or plain yogurt.
Do you have a local celiac disease group which you can join?
It is helpful to contact other coeliacs (celiacs) who really have a lot of advice and information for you.
If you do not have a local group to talk to post your queries on here & I am sure you can get help.
It is very shocking at first to have a diagnosis of celiac disease or DH but we know that there is a safe and effective treatment (gluten free diet) which will help us to return to good health & as long as we remain gluten free we are doing the best thing we can do.
You may make mistakes (I think we probably all do unless diagnosed in childhood when the GFD is all we know and a routine thing) but as long as you really try your best to remain gluten-free you should recover well.
If you do make a mistake and accidentally eat gluten you will probably be ill (I have pain & diarrhoea & feel very ill for about 24 hours if I have gluten accident) but if you do your best to stick to gluten-free diet you will recover & eventually your gut will heal.
Some medical advisers say you will recover after 6 months on gluten-free diet but for me & others it took a lot longer- nearly 2 years in my case - so do not get downhearted if you do not feel well very quickly.
Having said that, my mouth ulcers healed within a week so you may find some symptoms ease fairly early on!
There are handy hints for newbies here:
I can remember how shocked and unable to cope I felt when I was first diagnosed but I am sure you will be able to cope & eventually you can help others who are starting to have a gluten free life.
If you put 'celiac', 'coeliac' and/or 'gluten-free', gluten free' in a search engine you should find a lot of informatin re celiac disease & GFD.
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