Breastfeeding A Possible Celiac
Posted 24 January 2004 - 06:03 PM
My 18 mo son was just diagnosed with celiac disease. He is currently failing to thrive, but we are so grateful to have some answers and a direction to help him. Since his diagnosis, many pieces of the puzzle have seemed to come together and we strongly suspect that my husband also has this condition, although we haven't had a chance to get him tested yet.
I am currently 21 weeks pg and it is my understanding that this condition has genetic ties, meaning that our new baby may also have this. I nursed Carter until he was 13 months and I am intending to do the same with our new arrival, but I am wondering if I will need to follow a gluten-free diet while nursing and also how soon we will be able to test the new baby to find out if s/he has it.
Posted 24 January 2004 - 06:13 PM
Gluten Free since 12-31-2002!!
Posted 25 January 2004 - 07:03 AM
We are actually a family of 6 soon to be 7. With Carter still being so young, and gluten-free being somewhat more expensive, he is currently the only one Gluten-free.
Thanks for your help!
Posted 25 January 2004 - 09:01 AM
Posted 25 January 2004 - 09:18 AM
If you are breastfeeding a Celiac Child you MUST also be gluten free. You will do damage to their tiny systems otherwise.
Cow's milk doesn't seem to be a problem for us. With the exception of when you first begin the healing process. Possibly a different process seeing as we are humans and well cows are cows!
Just my two cents!!
Gluten Free since 12-31-2002!!
Posted 29 January 2004 - 04:36 PM
Posted 29 January 2004 - 08:04 PM
Watch this thread because I am going to pin down an answer (woman on a mission) and when I do, I will post and let you know.
Posted 29 January 2004 - 08:15 PM
It certainly seems to be true in some cases. My layperson's view on the issue is this: In order for a "foreign" substance to appear in breastmilk, it must be absorbed into the milk from the bloodstream. Food proteins are NOT normally found in the bloodstream, at least in quantities expected to cause difficulties. However, if a breastfeeding mother has a leaky gut for any reason, even a mildly leaky one, enough gluten could pass into the bloodstream and be transferred to the breastmilk to cause a reaction in her nursing baby. For the baby's health, it is best to assume that the mother's gut integrity is not perfect and that gluten WILL be present in the breastmilk, so a mother nursing a celiac baby should DEFINITELY avoid ALL gluten herself. From personal experience, I know that both of my babies reacted to any hint of dairy products in my diet, and I see no reason why gluten would be any different in principle.
I hope this helps, and good luck to your relative and her baby!
gluten-free since November 1, 2003
Posted 30 January 2004 - 08:43 AM
Posted 25 February 2005 - 07:32 AM
Posted 25 February 2005 - 10:35 AM
1. Do not test the baby immediatly upon birth. The baby will have my blood make up and will therefore test positive for Celiacs when the child may not have it at all.
2. At some point in time the baby will need to be tested, but there is no need to test the young infant unless the baby is having problems such as failing to thrive, etc.
3. I need to maintain a gluten-free lifestyle during and after pregnancy for me (the only diagnosied Celiac in our immediate family.) All products used on the baby will be gluten-free for me. I have contact issues too.
3. When I have had a gluten ingestion reaction while pregnant, the baby is a wreck for about two days. It takes a full week for reactions to run there course in me. (What I mean about the baby is when I have an ingestion accident, the baby acts drmatically different for two days - kicks hard, restless, I have lots of pains, etc.) So I know this baby will be breast feed, but will have to have supplements of formula in the event that I have another gluten ingestion while nursing. The idea is at least I can give formula during my reaction so the baby doesn't suffer.
4. As for the delivery, according to the gastro, all IV medications are safe whether they are gluten free or not. The only way I will have a gluten reaction is to ingest the gluten. Gluten in the blood stream is not going to cause harm. (This still makes me uncomfortable, but I trust this doctor.)
5. So for me (the celiac), I get to pack my clothing bag, pack a cooler, pack my normal medications, and then head to the hospital for the delivery. I am not looking formward to the hospital since I believe they will gluten me! The OB doctors have been less than helpful regarding the celiac concerns and it is too late to switch OBs.
Best of luck with the newest addition to your family!
Posted 25 February 2005 - 04:54 PM
I tried finding the answer to this question through LaLeche. I could not find any article pertaining to gluten being in breast milk. There are studies saying that breastfeeding strengthens a baby's gut and could possibly delay onset of Celiac. MY clonclusion from the lack of information. If there is any chance that the nursing mother might be Celiac. She should avoid gluten. Anti bodies are in breast milk. Whether or not the specific Celiac reaction antibodies are there, I could not find any article to say. If you are going to supplement fromula make sure it is gluten free. I found Enfamil formula on a gluten free list. (That was over a year ago so check with the manufacturer's.
As a breast feeding mother you are going to notice your chid will respond differently at feedings depending on your diet. I would reccomend keeping a food diary for a referencence.
I have not been officially diagnosed with Celiac my daughter has been (17 months). We reacted to the same meals before diagnoses, and have had such an amazing recovery on a gluten free diet.
Posted 25 February 2005 - 05:00 PM
Posted 10 March 2005 - 06:07 PM
If you do a quick google search you'll find lots of good information. The general thought seems to be that nursing would actually protect a baby who has celiac disease even when gluten is introduced (so antibodies wouldn't be produced in reaction to the gluten) and that the mother does not pass gluten through her milk.
Here are a couple of links:
It's so frustrating because so much about celiac disease is still debatable and differs from specialist to specialist. So I think we have to be careful about what source we trust.
Good luck! I have nursed 4 babies, and would go gluten-free myself if I had to.
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