Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Problems In Pregnancy With Cd
0

12 posts in this topic

My husband and I are planning on starting a family soon and I was curious if anyone knows about additional complications related to my celiac disease diagnosis. Is there anthing I should plan for?

:huh:

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hi, laelfin!

I have two kids, ages 3.5 and 1.5, but I just found out I have celiac disease a few months ago (and so do they!). Well, my body is just now starting to get interested in maybe having another one, so I have to consider my options....

First of all, it is not uncommon for a woman with (undiagnosed) celiac disease to experience repeated miscarriages. It might be a good idea to hold off on conceiving until you have a good grasp of the gluten-free diet and a repertoire of meals that you know you can eat safely, so your body doesn't end up deciding that it can't support a pregnancy after all!

Another consideration is, can you maintain the gluten-free diet EVEN IF YOU HAVE TERRIBLE MORNING SICKNESS? I had serious trouble with food aversions with both of my pregnancies--I couldn't even LOOK at fresh vegetables without starting to gag, and I just about lived on Pop Tarts and Pizza Hut! Even so, I LOST weight (10 and 6 pounds, respectively) during the first trimester of each pregnancy. I also COULD NOT force myself to cook for the duration of the pregnancies; it made me feel too ill, and I would rather have gone hungry. If I were to conceive again, I would HAVE to cook and eat gluten-free meals regardless of my cravings and aversions, and I'm not sure I could do it! I just read that morning sickness may be attributable to vitamin deficiencies (which are, of course, almost guaranteed to be a problem if you have celiac disease), so here again is another reason to consider postponing conception until your body is well on its way toward healing.

I did just read here at celiac.com that birth outcomes are no worse for mothers with celiac disease than for "healthy" mothers, which is certainly reassuring. The baby, of course, may turn out to have celiac disease as well, but that is a different can of worms! Breastfeeding is an excellent way to get your baby off to a good start and support his or her developing immune system, which would be especially important if he or she were to turn out to have celiac disease. These are just the things I have thought of, being in a position similar to yours right now. I don't mean to scare you off of having a family, but pregnancy is a roller coaster under the best of circumstances, and celiac disease may make day-to-day coping a real challenge! I wish you and your husband the best of luck as you start your family!

0

Share this post


Link to post
Share on other sites

laelfin,

Yes, there is a higher incidence of miscarriages with celiac disease....

I experienced more than I wanted! --even being gluten-free for 5 years, and taking vitamins!

My doctor noticed that my progesterone was to low to "hold" a pregnancy, so my advice would be to have your progesterone levels checked very early on--like as soon as you get pregnant! I ususally miscarried at 3-4 weeks, so well before that window!

Don't let being celiac deter you from trying to have a family, just work a little more closely with your doctor. :)

Good luck!

Connie

--32 weeks pregnant with boy #2 ! :wub:

0

Share this post


Link to post
Share on other sites
My husband and I are planning on starting a family soon and I was curious if anyone knows about additional complications related to my celiac disease diagnosis. Is there anthing I should plan for?

:huh:

This is the boat I am in. I found out I have celiac disease last Thursday. I have had 2 children when I was younger, and as far as I know, have never miscarried.

My husband and I were married this past Halloween, and we want to have a baby. I am worried now that I know I have celiac disease.

I read that doctors usually prescribe 1 baby aspirin a day to pregnant Celiacs, to help prevent miscarriages.

I hope that will work! I never had a problem getting pregnant before.

0

Share this post


Link to post
Share on other sites

I am not sure if this has anything to do with celiac disease - But it probably has something to do with malabsorption -

I had a miscarriage and a pregnancy where there was a problem. I do however have two great kids. With each of them I gained a tremendous amount of weight and they were big babies - very healthy. So I guess it all depends upon your nutritional status at the time of the pregnancy. I would take vitamins and make sure that the foods I ate where gluten-free.

0

Share this post


Link to post
Share on other sites




I'm in a similar position to all of you. I started dropping weight and then got pregnant before I knew I was in trouble with undiagnosed Celiacs. I had a text book pregnancy except for the fact that I was skin and bones. The baby gained enough weight and was fine. So far she has tested negative to Celiacs, but she does have some serious poop issues that are beginning to make me wonder about her (She is three now). I am now ready to have another child and I am terribfied that the Celics will cause problems during the pregnancy or to the baby. I'm at the point of thinking about eating absolutely nothing that is processed and nothing that I did not make myself. I think it is overreaction, but I am scared for the baby.

The second issue is what do you do once the baby is born? I breast fed my daugther for the first year, she got everything according to the schedules and recommendations and she ended up with a peanut allergy, slight hearing loss due to the numerous ear infections, two ear tubes, and a poop problem that has me concerned. And that was following the text book rules about when to introduce all of the foods etc.

Do Celiac Mom's have trouble breast feeding? If formula is used, should it be gluten free?

Should Gluten be introduced later than most "normal" babies?

Just think these are my question before I am pregnant! :P

0

Share this post


Link to post
Share on other sites

Hapi, Overreacting? Not on your life! No processed foods and only what you prepare is pretty much the only guarantee a celiac has of uncontaminated food. I think (IMHO) that you should at least have the gene test done on your child, since celiac disease is genetic. I don't think there would be any problem with breastfeeding, as long as the mom is getting enough to eat.

0

Share this post


Link to post
Share on other sites

I'm a celiac -- eight weeks pregnant -- and the only problem i've run into is food aversions. many of the gluten-free foods disgust me right now (especially rice bran and rice flour). And, as of this week, I'm totally grossing out on flax. the biggest bummer is that i'm actually craving many forbidden foods -- mcdonalds cheeseburgers, pizza, etc. -- and i, of course, can't satisfy these cravings. i'm just doing the best i can, but it can be tough. other than that, i've been ok.

0

Share this post


Link to post
Share on other sites

Congratulations, scribble! :D

"...i'm actually craving many forbidden foods -- mcdonalds cheeseburgers, pizza, etc..."

Maybe you just need more fat in your diet!! I used to crave bacon!

It was the only fatty food I ate...

Good luck!

Connie

~ 9 months and 5 days...and still waiting!

0

Share this post


Link to post
Share on other sites

Pizza cravings? I just made a rice pizza last week (got the recipe on this site) I thought it was really good. I don't know if you could tolerate rice but if you can it is worth a try.

good luck

0

Share this post


Link to post
Share on other sites

Cany anyone suggest a prenatel viatamin that does not contain gluten? Is there one over the counter or do I need to ask the doctor. I just found out I am pregnant with my 6th child and want to get viatamins asap.

Thanks for your help.

Judi

0

Share this post


Link to post
Share on other sites

I use Nature Made Vitamins. It does not require a prescription and states gluten-free on the bottle. I bought mine at BJs (warehouse store).

So far I am 5 months along, had several gluten accidents last month, but the baby is just fine.

FYI: You may want to look into the sonogram schedule at least as far as your OB is concerned. I go to a great OB but she could careless about Celiacs. The High resolution sonogram meant I went to a Specialist. She recommends seeing her Celiacs pregnant Mamas at 28 and 34 weeks in addition to the normal 20 week check up. I don't know if she would have preferred that I came in before 20 weeks.

Good luck!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,697
    • Total Posts
      921,781
  • Topics

  • Posts

    • It only takes a minute to make a difference. Celiac disease has been overshadowed by the gluten-free diet fad. Getting diagnosed and staying healthy is no piece of cake – those of us who have celiac disease struggle to stay healthy. We need better. We need to be understood. We need a cure. View the full article
    • If you are one of the approximately 2-3 million Americans with celiac disease, ZyGluten™ may be taken before you eat out at a restaurant or a friend\'s house, as it may help break down any gluten cross-contamination that you might encounter. View the full article
    • Advil (ibuprofen) is gluten-free, but can be a stomach irritant, especially if taken on an empty stomach. That said, I will also place my bet on the garlic and onions. As Raven said, eating more than once a day may also help. An empty stomach is likely to be an irritable stomach.
    • Another link: http://naldc.nal.usda.gov/download/7351/PDF
    • Thanks for posting.  I know it is difficult to talk about these sorts of things even on a webforum.  It is good thing for people to be aware though about celiac disease and that it can cause mental problems.  Gluten can cause brain damage and it can cause anxiety. If the brain does heal it may take a long time. I know that gluten can cause anxiety and obsessive thoughts.  My experience has been similar to your experience. When I first quit eating gluten I had a similar constant loop and strong negative feelings. There are lots of people on this forum who get anxiety when they eat gluten. Some people also experience gluten withdrawl where they experience anxiety after giving up gluten. It can take a long time for the body to heal and for obsessive thoughts to go away.
       It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety.  I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten.  Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful.  I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor.  I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot.  This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies.  Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills)  very well, and do better on an activated form of vitamin b. I take:
      1 activated vitamin b12 daily
      1 activated vitamin b6 every once in a while. 1 regular vitamin b multivitamin
      1 magnesium pill every day.
      St Johns Wort daily.
      1 zinc vitamin daily
      I drink lots of Chamomile tea and decaf coffee. I avoid most caffeine. 
      I think each of these helps lower my anxiety level.  I eat fruit with every meal. Canned fruit from walmart is cheap and good for you. I eat salad and and vegetables and avoid dairy.  I eat frozen fish often as it has healthy proteins. Eating healthy is very important. I eat potatoes and rice. http://www.livestrong.com/article/454179-what-is-methyl-b12/ I avoid eating soy sauce, soy, cheese, aged meats and fermented foods (I do drink certain types of alcohol in moderate amounts.) These foods contain lots of Tyramine. I might (or might not) have "monoaine oxidase deficiency" and if so high Tyramine foods should be avoided.  I thought I might have problems with elevated ammonia in my blood, but I am not convinced of that anymore. I limited my consumption of meat for a while as well as dairy but I am not sure if i helped.  I have heard that Celiac disease can effect other organs besides the brain and those organs can have an effect on the brain.  My current diet is working so I am going to stick with it for now. I try not to worry about things that are outside of my control. Be patient as it took me a long time to recover.  Let me know if you have any questions. There is a lot of information on this site and people who are willing to help.
       
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,702
    • Most Online
      3,093

    Newest Member
    Gigi Fagon
    Joined