Severity Of Disease
Posted 29 August 2004 - 10:57 PM
When we mentioned to gastro doc that playdoh has gluten or that some lotions and other products have gluten she seemed to think that avoiding these things are not necessary. She said that she only has a mild case, beginning celiac, no damage done. Is it really necesary to avoid non food products? Does it get absorbed through skin contact? Are most of the message board members severely affected celiacs? We are not trying to be ignorant or offend, it is just that we don't feel our docs really know much beside diagnosing. We are just trying to get more perspectives from actual celiacs. One last question, does anyone ever get "bad growing pains" in their legs? Thank you in advance for your help
Posted 30 August 2004 - 02:39 AM
Yeah, important to avoid all sources of gluten that you can. Gets on the hands, then can be ingested when she eats, or just puts her hands in her mouth.
Is it really necesary to avoid non food products?
Your doctor may not think it she needs to avoid all sources, but she is intolerant to gluten. So best to keep all sources out of her body. Think of it as being posion. Would you let her have some, just because she didn't have much damage done to her from it yet?
Nope, it's too big to be. At the molecular level, or something smart sounding like that, lol.
Does it get absorbed through skin contact?
Not sure about the leg pain. I did have knee pain, but that was doing a major growth spurt.
Hope some of this helps.
Posted 30 August 2004 - 04:12 AM
2 of the moms in my support group said their daughters complained of severe leg pain/cramps. Once they became gluten free, the pains went away.
Hope this helps.
Posted 30 August 2004 - 06:26 AM
But that doesn't mean that you should have any additional gluten. I would avoid even "topical" products because it's just not worth the risk of ingesting ANY. Yes, yes, the chance is low. But the chance of getting hit by a car crossing a freeway at 2 in the morning is lower than at noon - you still don't do it! ;-)
I'm NOT very symptomatic. I get some symptoms, but I was never losing weight, dangerously sick, or unable to work. I was tired and cranky, and had some abdominal pain and some constipation. Didn't really interfere with my life, just "brought it down a notch". I still avoid gluten like the plague, 'cause I don't want to risk whatever damage it COULD cause.
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
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