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Symptoms And Celiacs?
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3 posts in this topic

For 6 months now I have had the same symptoms occuring once-twice per month:

2 days of stomach pain at the bottom of my left ribcage (feels like bloating and not debilatating pain, but enough where you don't feel like doing much.

Then 2 days of no bowel movements, but i have gas (belching following by flatuence)

Then 2 days of feeling like I need a bowel movement 3 times a day, but only a small squirt of liquid and little or no feces comes out.

Then 2 days of relatively normal bowel movements 3 times a day.

Then back to normal BMs and no pain.

This is my third visit to a GI doctor. They have done pancreas blood tests, and upper GI and an endoscopy on my stomach (but not my intestine). All tests were negative except my intestine showed a bit of irritation on the upper GI.

Now, the GI doctor says he suspects Celiacs Disease and wants to do an Endocopy on my intestine.

Do these symptoms sound like other peoples sysmptoms for Celiacs?

Regards,

Yankee

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Everybody has different symptoms so it's hard to say. The most common symptom is fatgue. But your doctor really should start with the celiac blood panel, not an endoscopy.

richard

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First I'll list my symptoms so you can compare: stomach pains, vomiting, nausea, gas, bloating, low weight, etc.

Okay, now.......stomach pains are one of the classic and relatively common symptoms associated with celiac disease. Bloating, gas, etc. are probably even more common. I have never had this, but I've heard a few on this board that mention a pain under the right ribcage, I believe.........yours is left, but that's the same sort of thing. Celiacs often have trouble with bowel movements: most often diarrhea, but in some cases constipation. Now, there are no set symptoms for celiac disease......some have no symptoms, but I'd say that your symptoms definitely could be celiac disease.......and if your GI thinks so, too, I'd definitely recommend that you get the endoscopy done......regardless of negative or positive bloodwork....good luck........ :)

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    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
    • Is coffee glutem free or not ?  Always wondered about this ............. got to have my coffee... I am new to this  , very new .........
    • Now that my initial rage has calmed a tad.... your daughter has to fulfill 4 out of 5 of the diagnostic criteria. Second opinion can do a gene test. If positive, then she will have4 out of 5 of the dx criteria to dx without a positive biopsy. See: http://www.gastro.org/news_items/a-biopsy-should-not-be-required-to-make-the-diagnosis which says in part: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.   Also see: http://www.tenderfoodie.com/blog/2014/5/1/dr-fasano-on-new-gut-autoimmune-research-autism-clearing-up.html She can get a dx after her symptoms resolve on a gluten-free diet!
    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
    • Celiac disease may lead to a host of other inflammatory, gluten-related ... Fortunately, Diet Doc offers gluten-free diet plans which are customized to ... View the full article
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