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Other Words For Gluten?
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8 posts in this topic

Hi There!

We recently found out that 2 of our children have Celiac. We are trying to be good and have a gluten-free household.

Could you please give me a list of words of things that contain Gluten in them, but may not be obious to the newbie?

For example, malt. I would have never guessed that.... Please add others...

Thank you for your help~

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On this home page there is a list of safe and a list of forgidden. That will give you a good start, but it is overwhelming.

Nini, will post and you can click on her "Newbie Survival Kit", now that's invaluable.

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You don't say which country you are in. The Canadian Celiac Ass. has a 'pocket' size dictionary that you can take into the store. It has hundreds of things listed in alphabetical order, and will tell you if they are gluten free or not.

It's a wonderful tool

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Gluten is a protien contained in wheat, barley, malt, rye and most oats due to a high rate of cross-contamination.

They key to remaining gluten free is to learn to read lables. It's a tough ride for a while, but it gets better.

Gluten often plays hide and seek, as it can hide in envelope glue, soy sauce, some spices, lipsticks, lotion, shampoos

Here are a few starters:

Vann's waffles (have gluten free variety)

La Choy Soy Sauce

Jiff Peanut Butter

All of Mrs. Dash seasonings are gluten free

McCormick Spieces will list wheat on their ingred. list

Stick to fish, meats, chicken, rice, potatoes, and fresh veggies.

Processed food is to difficult to tackel at the moment.

Gluten free bread is awful, except for Angies (a forum member), but few have her gift.

As I mentioned before, do a members search for "Nini" and click below her signature and you will be able to down load several files that, at this time you can't live without.

Good luck, and feel free to PM me at any time.

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i'm not sure if this will help or not but i have a book.. that has alot of info and recipes it's called Livin Gluten-Free for Dummies,i know soy sauce has gluten so i buy the gluten free soy sauce.. i also use gluten free peanut butter,and also i save my grocery bills as u can claim.. it on income tax ( certain percentage) certain meds have gluten i use gluten free vitamins..marinades .. sorry for all the babble, Triticale (a hybrid) of wheat n rye,anyhowz i found the book a very big help have had celiacs,, for almost 5 yrs now,

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i'm not sure if this will help or not but i have a book.. that has alot of info and recipes it's called Livin Gluten-Free for Dummies,i know soy sauce has gluten so i buy the gluten free soy sauce.. i also use gluten free peanut butter,and also i save my grocery bills as u can claim.. it on income tax ( certain percentage) certain meds have gluten i use gluten free vitamins..marinades .. sorry for all the babble, Triticale (a hybrid) of wheat n rye,anyhowz i found the book a very big help have had celiacs,, for almost 5 yrs now,
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I would check on the safe and forbidden lists on this website, as someone else suggested.

Also, there are lists on the net of gluten-free candies and such, if you google something like gluten free candy lists... you can find them... important stuff to know for kids!

School / craft /art supplies are important to know about too... for instance, off the top of my head I know Play-Doh is bad, and so is tempura (or however it's spelled), powdered paint mix.

Crayons are supposed to be okay, and so is real clay and I believe I've read Silly Puddy is okay too. I'm sure there are lists of these children's supplies somewhere that could be googled and found, or possibly someone else here who knows can link you to them from here.

If you have pets... the children need to wash their hands after handling the pets' foods... most of them have gluten in them... I even saw it wheat middlings listed in rabbit chow. Most doggie treats, etc., have gluten in them too. So... these are additional things to keep in mind... that without realizing the potential for something to go into somebody's mouth or even just from being on their hands, could cause some trouble if you weren't aware of it.

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- Malt (like you said)

- MODIFIED FOOD STARCH

- Hydolyzed Vegtable Protein

- Textured Vegetable Protein

- Brown Rice Syrup

sometimes (it's hard to be sure unless it specifically says what its made from) :

- Maltodextrin

- Food Starch

- Natural Flavorings

- Artificial Flavorings

All soy sauces have it, most salad dressings that are not clear, many meat seasonings (like teryaki), and most soups and gravies. Also, most candies have gluten. Some candies that doesnt have gluten are reeses, yorks, M+Ms (not all types though!!), mr goodbar. Most gum and carmel have gluten. Most plain chocolate is safe but NOT ALL plain chocolate is gluten free. Also, one would assume that all corn chips are safe...which is not the case. Strangely, some corn chips do have wheat flour

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
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