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Testing Dd, Back On Gluten, What, My Symptoms?

2 posts in this topic

In order to test my 2 yr old DD, the family is back on gluten (for 5 weeks now) after been gluten-free for 9 months. And since going on gluten I feel bloated, queasy, tired, crampy, really foggy-headed (I feel slow-witted, my attention span is gone, and I can't read anything all the way through), and I swear my tummy looks huge though no weight gain, but that may just be my postpartum figure... I was thinking maybe I was pregnant again but I'm not. And all I want to eat lately is dairy and sugar and gluten.

All of this time I have been thinking there was more possibly relevant family history on DH's side: Crohn's, Parkinson's, MS, Eczema, Psoriasis, Depression... and I am lacking in genetic family history.

But I feel really out of it since starting gluten. And I have been thinking about the weird rash on my foot, for 2 years off and on, blistery oozy pussy looking bumps, the dermotologist says it's not fungus, but she doesn't say what it is, just try this cortizone, but it doesn't itch, just hurts if the bumps pop open.

In the past 2 1/2 years I have had 2 babies, an appendectomy and gallbladder removal and constant breastfeeding, so it's hard to know what to make of how my body is doing with all of the other stuff.

Meanwhile my DD is cranky, clingy, tired, low-appetite, screaming tantrums, and acting more insecure and passive since being on gluten. Everyone tells me most of it seems like typical toddler stuff, and that's true, but it's all more intense since going back on gluten. She was pretty sick before we went off gluten, losing weight, runs, lethargic, which changed a lot after the diet change, and I haven't seen anything that bad since going back on gluten.

So far the bloodwork has been inconclusive for DD, and any day we should get the results of the genetic tests.

And the GI says if she comes back positive for the genetic tests she will want to do an endoscopy. I wonder if it's too soon for an endoscopy, I sure don't want to do this more than once, and this dr seems to err on the side of testing too soon in my book.

I guess there's nothing to do but wait, how frustrating. My days are a mixture of hope and doubt and dread while waiting for results and watching my DD's symptoms. And if one more person says, wouldn't it be great if the test will show that she doesn't have celiac... I know what they mean yet it feels insensitive somehow. It would be great, but I want to not get my hopes up, because I know what a blow a celiac diagnosis will be if that's what happens, but at the same time I would know how to keep her healthy, that's all that matters.

Just venting/sharing I guess...


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I too have a blistery rash on the inside of my left foot. I have had it for 6 montsh since I have had Celiac type symptoms. They blister is not bothersome, it does not itch or hurt. The tiny blisters pop and heal and the rash sometimes goes away entirely, but not for long and is isolated to this small area on my foot.

Is this a symptom of Celiacs?

I have my endoscopy on Sept 13th to find out.

Good luck,



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    • Already had that looking on experience and in the end had to leave the room as it was unbearable just sitting there with people laughing at me not being able to eat, yup people are cruel and really show their colours at times like this. Tbh based on the reactions I've had from people my age so far the kissing thing will be irrelevant as no one will stick around to get that far. Since the diagnosis whenever the gluten stuff has come up I've been belittled and made the butt of jokes. Then even people who previously were OK with it started jumping on the bandwagon too. Seems like the alternative to the "bad ones" is no one, which is even worse @GFinDC it's the time thing that's really getting me down right now. Feel like I've lost out so much already and the thought of losing another year or two to this is driving me crazy, especially when I see others my age making the most of their lives and I know with this I can't do the same.  I'm exactly one of those people you described, never been interested in cooking and vegetarian too which rules out this paleo diet everyone seems to use as gut healing. Just adds to the feeling of being lost in all this and once I close the forum window I'm on my own. Still wondering if to do those Cyrex tests to find out early on which other foods may be problematic. Part of me isn't convinced they're scientifically proven enough to be useful but then others seem to have had useful result. Trouble is it's not cheap and already been drained money-wise by these private hospital visits so have to pick the treatments wisely...
    • Ifyour using local  agricultural products  check into and your state dept  of ag.  You can  also check to see the types of projects that are available.  GOOD LUCK  
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    • Yes, GFinDC you've got the gyst of what I am after. If I am reading your response correctly then, you think that inflammation in the gut caused by gluten ingestion is enough to trigger diarrhea, quite apart from the state of one's mucosa? That would be good news for me. More information on this inflammation reaction in the gut with gluten ingestion is precisely what I am after, but cannot seem to find. Because, as stated, as far as I know, D is mostly if not only, caused by flattened villi. OTOH, how interesting to hear from you, cycling lady, that you had flattened villi and no D! RMI, the link is quite depressing. Many appear not to have healed mucosas after a gluten-free diet. A repeat endoscopy is what is so clearly needed by many of us, but honestly I am a little wary of the risks.
    • No, they didn't test my ttg igg, which I was surprised about considering the low IgA and positive DGP Igg. (The tests they did were IgA serum, Ttg IgA, DGP Igg and IgA and gene testing) If he ever returns my call, I was going to ask him about that.  He initially wanted to set up a endoscopy, but I told him I had one last year (with my prior GI) and he said he'd take a look at it and we'd go from there, except that was two weeks ago and I haven't heard from him.  My prior GI did take biopsies, I believe to rule out H.Pylori and I was told biopsy results were normal, however, I didn't receive a pathology report or anything like that.
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