Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

What Helps With Energy Level?
0

18 posts in this topic

I'm in the midst of more testing, which means that I'm not gluten-free yet. Believe, every passing day I detest gluten more and can't wait to ban it from my life. But I'm dealing with an energy level that is so unbearably low and I don't know what could help. Does anyone have any ideas?

Thanks!

Gretchen

0

Share this post


Link to post
Share on other sites


Ads by Google:

Exercise? Sleep? Hormone blood tests? I don't know... if it were me, I'd probably just say "I'll keep sleeping 'til the tests are over", but I blew a summer that way, so maybe not the best of advice. ;-)

0

Share this post


Link to post
Share on other sites
I'd probably just say "I'll keep sleeping 'til the tests are over"

Hahahahahaa! That's what I feel like doing!

0

Share this post


Link to post
Share on other sites

I just went to a new Internist who specializes in Celiac and IBS. What she said to me is that "our" bodies have a hard time digesting B vitamins, which help out the energy level. So she is recommending that I go for the B-12 shots. I am not looking forward to that, but I can't stand feeling so tired, either.

Has anyone else heard of this treatment? I am very curious to know.

Linda

0

Share this post


Link to post
Share on other sites

I too have unbearable fatigue at times, although I am at this point gluten-free, just not healed yet.

At work I break my day up into shorter breaks. I also have taken some of my sick leave an hour or more at a time. Last week was a killer for me and I ended up taking 1 hour to 1 1/2 hours sick leave 3 days and came in on one day for only half my shift.

I go to bed as early as I can and get up later than usual. Those vitamin B shots sound worth looking into.

DK

0

Share this post


Link to post
Share on other sites




Those vitamin B shots sound worth looking into.

I agree! I'm going to ask my doctor about those. Although I'm not much of a shot person, I'd gladly take them if it helped!

Mysteriously, I have energy and no cloud-head today... I'm running through all the things in my mind that could have caused that! :lol: I wonder if this is what people feel like normally?

Dk... I need just as much rest as you do. I live close enough to the office, so sometimes I'll take my lunch and get some sleep in. It's wonderful that your job is so flexible with your hours!

Gretchen

0

Share this post


Link to post
Share on other sites

I did get B-12 shots after I had mono, and I knew back then it did some real good. I wish I lived close enough to go home a take a happy nap. Please if you guys do talk to your doctor, I am very curious as to what they say.

Linda :D

0

Share this post


Link to post
Share on other sites
Please if you guys do talk to your doctor, I am very curious as to what they say.

Absolutely!

I have to wait until 10/8, but I'm going there with a list!! :lol:

0

Share this post


Link to post
Share on other sites

Things that could make you extra tired (like life doesn't do that, anyway!) A b12 deficiency, anemia, or an underactive thyroid! Are you taking a multi? Keep in mind that if you are celiac, you aren't absorbing a lot of what you are eating..... Hang in there....

0

Share this post


Link to post
Share on other sites

I had forgotten, but one woman I work with who was ill, returned to work on a gradual basis. Her doctor actually wrote out a prescription for the amount of hours she could work each week for about 2 to 3 weeks.

DK

0

Share this post


Link to post
Share on other sites

Before I was diagnosed, I was hitting the caffeine quite a bit. Might be short term solution to get you through it. Not the best solution, I know.

0

Share this post


Link to post
Share on other sites

I definitely agree with the b vitamin thing. We suffer from lack of absorption so we have to ingest a lot higher levels of vitamins to hope that we absorb some.

If you don't want to get shots, there are some really good vitamins out there. They are made by Alacer Corp. The vitamins also come in powder form, which is a lot easier to digest. There is a web site on the box www.alacercorp.com. I get them at the local co-op market. I have not contacted the company to verify that they are gluten-free but I've never had a reaction to them.

The vitamins are called Emer'gen-C the base of them is actually Vitamin-C which also helps with lack of energy. They are bonded to trace minerals making them non-acidic. I know I can't handle all the acid in regular vit-C. The majority of them contain very high levels of B Vitamins. After I drink a couple of these I actually feel energy. I use to drink caffeine when I was tired, but these actually give you more energy than caffeine. Just an idea

0

Share this post


Link to post
Share on other sites

Thank you, Rebecca! I visited their website and will see if I can get them today. They have a list of retailers on their site, and a few of them are local. I know this is bad, but I usually eat the Flintstone's chewables... regular multi's are awfully strong and give me nausea.

If it weren't for celiac, I probably wouldn't be drinking coffee.

Oh... also on the Alacer website (on the faq's tab), they say that all of their vitamins are gluten-free! Yeah!

What's a good flavor?? They all look good.

Gretchen

0

Share this post


Link to post
Share on other sites

I've been gluten free for 4 months now and my energy level is low. I keep hoping that it'll improve. I took b-12 shots before my diagnosis, but it didn't help. I might try again, though. My headaches are killer, but could be my body trying to adjust to no glutens. Quite a confusing time. So what's a cloud-head or cloud headache?

0

Share this post


Link to post
Share on other sites

that's true! I sorta assumed you were taking plenty of viatmins. the B's definitely help, though I've been fine with oral and not needed to go with shots (best to take them with food, of course)

0

Share this post


Link to post
Share on other sites

I got a couple of boxes during lunch to try out... the raspberry & tropical fruit flavors. They were majorly on sale at the Vitamin Shoppe... like 40% off! I added a packet of the raspberry vitamin packet to my iced tea.. and it was good!!! I'm feeling pretty good today anyway, but I'm definitely going to try them out on my "down" days too to see if they help.

In regards to cloud-head, I believe it to be like a mental-exhaustion... where you feel in la-la land and have trouble concentrating, fatigued and listless or giddy.. it feels as if your head is in the clouds. I'm sure if a doctor heard me describe those symptoms, they'd say it was depression... I guess you can say it sort of feels like that. I'm not prone to headaches, but could be experiencing some gluten and/or caffeine withdrawals?

Gretchen

0

Share this post


Link to post
Share on other sites

Hey Gretchen,

I'm glad you got some vitamins. I think they will help a lot. I ussually take two to four packets everyday. The extra vitamin-C helps ward off colds, and the vitamins help me have energy. Most of the flavors are good it just depends on what you like. I don't really like that mixed berry one with Calcium but I still use it cause it's the only flavor with a lot of calcium. I don't know if you noticed but they all have a little bit different vitamins in them. There is one that has Glucosamine & Chondroitin, these are really good for your joints. I know that I read on one of these forums that some celiacs have joint problems. Also there is one that has MSM which is suppost to help with energy. Here is a very interesting article on this web site about the benefits of MSM.

http://www.dmso2.com/products/msm/index.html

:blink: About the cloudy head thing, I know what that feels like. I read in an article that the blood veins in your brain actually swell(ie bloating and swelling, leaky gut syndrome) up when you eat gluten and that is what causes ADD and Cloudy head. If I remember were I read the article I will post it.

Isn't it wonderful to have a day full of energy! If I had one majic wish it would be energy. :P

0

Share this post


Link to post
Share on other sites

Honestly, I think the cloudy-headedness is the opiate effect of the gluten when it hits the brain. It's just like high doses of codeine, which is also an opiate.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,124
    • Total Posts
      919,497
  • Topics

  • Posts

    • I can't believe your doctors!!! You have a daughter who is dx'd already! Yet the ped doesn't want to test your other kids unless you have a dx????!!! Are you kidding me???!!! That's absurd!!! They have a first degree relative who has been dx'd with celiac already. There is no need to wait to see what you turn out to be!! And then, and then, and then....don't even get me started on your doctor!!! Does he have brain damage? Oh this is insane & ridiculous!  I have never heard of a disease that doctors are so unwilling to consider or test for OR to diagnose as this one! Usually they are hot to trot to make a dx but say the word celiac & they shake in their boots. Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!!!!!!!!!!!!!!!!!!
    • I had a negative biopsy and was still diagnosed with Celiac. My GI ran a bunch of tests looking for the cause of my 15+ years of diarrhea and the only thing that came back positive was the entire Celiac panel. All very high. So he performed an endoscopy with biopsy. The biopsy was negative. So he ordered a genetic test. When that came back as "high risk" he decided a trial gluten free diet was in order. After 8 weeks my symptoms resolved and my antibodies were back to normal. Since then, follow up testing had shown I have osteoporosis. I am a 40 year old male.  So yes, you can definitely still have it and have significant damage with a negative biopsy. 
    • Pork Fried Rice  (Gluten Free, Dairy Free) Prep time: About 15 minutes Cook time: About 10 minutes Makes: 3-4 servings   Ingredients: 4 Pork Chops,  1/2 teaspoon salt 1/4-1/2 teaspoons black pepper 1/4-1/2 teaspoon red pepper flakes (optional) 1 Tablespoon Coconut Oil 1/2 large or 1 small onion 2 large carrots 2 cloves garlic, minced 1/4 green cabbage, very finely sliced 1-2 heads of broccoli, roasted and salted(optional) 2-3 eggs 2-3 cups cooked white rice  2 Tablespoons gluten-free Tamari or Coconut Aminos Sriracha (optional)   Instructions: 1. Cut pork chops into small bite sized pieces.  2. Next add a tablespoon of coconut oil to a large wok and heat on medium-high heat for a about a minute.   3. Add your chopped pork chops to the wok and season with the salt, black pepper.  Cook for about 6-8 minutes or until lightly browned. 4. While your pork chops are cooking, dice your onion, mince your garlic cloves, chop your carrots and finely slice your cabbage. 5. Once your pork is lightly browned, add all your veggies and stir fry over medium-high heat fro about 5 minutes. 6. Make a hole in the middle of your veggies and add your eggs.  Scramble your eggs with a big metal spatula until they are cooked and then mix everything together. 7. Add your cooked rice and about 2 Tablespoons of Tamari. Mix everything together and cook for another 3-4 minutes or just enough to warm up the rice.
    • Annual celiac antibody testing is, in my opinion (and based on what celiac researchers have published), is critical, especially for a 12 year old.  Life is going to get harder for her.  Peer pressure is huge (I have a 15 year old daughter), and remaining diet compliant can be tough.   In Dr. Fasano's, Gluten Freedom, he discusses a young patient who became ill in high school after being gluten free for years.  His parents were perplexed.  Dr. Fasano took the young man aside and he confessed that while on a date, he didn't want to bring up his celiac disease.  So, he ate pizza.  He was too embarrassed to tell his parents.   My daughter does not have celiac disease.  She was first tested two years ago.  Since she is symptom free, is not anemic and her other lab work is fine, we'll wait to test her in another year.  It all depends on the patient, but every few years, testing is recommended for all undiagnosed first-degree relatives.   It certainly sounds like your younger children should be screened.   I wish you both well!      
    • Perhaps you should consider asking for a GI referral.  You might just skip the blood tests and go directly to an endoscopy/biopsies while you are still consuming gluten.  It is the "gold" standard for a celiac diagnosis anyway!   Here's the deal with going gluten free.  You can do it.  It costs nothing, but you must give it six months or longer.  You'd need to think like a celiac, but it can be done!  I'll tell you my tale.  My hubby went gluten-free 15 years ago per the very poor advice of his GP/PCP and my allergist.  After a year of mistakes and learning, he got well.  It worked!  Thirteen years later, I was formally diagnosed.  (It was a shock as I was only anemic at the time.)  Hubby would be the first to say that I have had way more support from family, friends and medical.  I must say, it's nice to see those lab results.  It really helped me adhere to the diet in the beginning too.   So, you know your medical situation.  You must do what's best for you!   I hope you feel better soon!  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,161
    • Most Online
      1,763

    Newest Member
    Jashan8534
    Joined