17 replies to this topic

[GEF]

I'm in the midst of more testing, which means that I'm not gluten-free yet. Believe, every passing day I detest gluten more and can't wait to ban it from my life. But I'm dealing with an energy level that is so unbearably low and I don't know what could help. Does anyone have any ideas?

Thanks!
Gretchen

[tarnalberry]

Exercise? Sleep? Hormone blood tests? I don't know... if it were me, I'd probably just say "I'll keep sleeping 'til the tests are over", but I blew a summer that way, so maybe not the best of advice. ;-)

[GEF]

I'd probably just say "I'll keep sleeping 'til the tests are over"

Hahahahahaa! That's what I feel like doing!

[dkmb]

I too have unbearable fatigue at times, although I am at this point gluten-free, just not healed yet.
At work I break my day up into shorter breaks. I also have taken some of my sick leave an hour or more at a time. Last week was a killer for me and I ended up taking 1 hour to 1 1/2 hours sick leave 3 days and came in on one day for only half my shift.
I go to bed as early as I can and get up later than usual. Those vitamin B shots sound worth looking into.
DK

[GEF]

Those vitamin B shots sound worth looking into.

I agree! I'm going to ask my doctor about those. Although I'm not much of a shot person, I'd gladly take them if it helped!

Mysteriously, I have energy and no cloud-head today... I'm running through all the things in my mind that could have caused that! I wonder if this is what people feel like normally?

Dk... I need just as much rest as you do. I live close enough to the office, so sometimes I'll take my lunch and get some sleep in. It's wonderful that your job is so flexible with your hours!

Gretchen

[GEF]

Please if you guys do talk to your doctor, I am very curious as to what they say.

Absolutely!

I have to wait until 10/8, but I'm going there with a list!!

[ryebaby0]

Things that could make you extra tired (like life doesn't do that, anyway!) A b12 deficiency, anemia, or an underactive thyroid! Are you taking a multi? Keep in mind that if you are celiac, you aren't absorbing a lot of what you are eating..... Hang in there....

[dkmb]

I had forgotten, but one woman I work with who was ill, returned to work on a gradual basis. Her doctor actually wrote out a prescription for the amount of hours she could work each week for about 2 to 3 weeks.
DK

[YankeeDB]

Before I was diagnosed, I was hitting the caffeine quite a bit. Might be short term solution to get you through it. Not the best solution, I know.

[brehm48]

I definitely agree with the b vitamin thing. We suffer from lack of absorption so we have to ingest a lot higher levels of vitamins to hope that we absorb some.

If you don't want to get shots, there are some really good vitamins out there. They are made by Alacer Corp. The vitamins also come in powder form, which is a lot easier to digest. There is a web site on the box www.alacercorp.com. I get them at the local co-op market. I have not contacted the company to verify that they are gluten-free but I've never had a reaction to them.

The vitamins are called Emer'gen-C the base of them is actually Vitamin-C which also helps with lack of energy. They are bonded to trace minerals making them non-acidic. I know I can't handle all the acid in regular vit-C. The majority of them contain very high levels of B Vitamins. After I drink a couple of these I actually feel energy. I use to drink caffeine when I was tired, but these actually give you more energy than caffeine. Just an idea

[GEF]

Thank you, Rebecca! I visited their website and will see if I can get them today. They have a list of retailers on their site, and a few of them are local. I know this is bad, but I usually eat the Flintstone's chewables... regular multi's are awfully strong and give me nausea.

If it weren't for celiac, I probably wouldn't be drinking coffee.

Oh... also on the Alacer website (on the faq's tab), they say that all of their vitamins are gluten-free! Yeah!

What's a good flavor?? They all look good.

Gretchen

[hthorvald]

I've been gluten free for 4 months now and my energy level is low. I keep hoping that it'll improve. I took b-12 shots before my diagnosis, but it didn't help. I might try again, though. My headaches are killer, but could be my body trying to adjust to no glutens. Quite a confusing time. So what's a cloud-head or cloud headache?

[tarnalberry]

that's true! I sorta assumed you were taking plenty of viatmins. the B's definitely help, though I've been fine with oral and not needed to go with shots (best to take them with food, of course)