Fibromyalgia Or Celiac?
Posted 25 September 2004 - 12:35 PM
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Posted 26 September 2004 - 10:56 AM
Posted 26 September 2004 - 11:53 AM
Posted 04 October 2004 - 07:51 PM
Posted 06 October 2004 - 05:08 AM
I am being unoffically tested for fibromayalgia by my chiropractor which involves testing for tender trigger points when in alignment. (my body does not like cars...another story. )There are many foods that contribute to inflammation. (beef,chocolate,caffine...) Are you near any holistic practioners. Acupuncturists, natropaths,? They often listen better than traditional MD.
I have read online that fibromyalgia is often connected with Celiac. Know what chronic pain is like. I am the worst at cheating at the ant-inflammation diet which also includes staying away from gluten and processed sugar and many favorite foods. Thanks for your story it was a wake up call.
Posted 11 October 2004 - 07:16 PM
Please read my earlier post,
after 4 years of a Fibro diagnosis and 2 years of a celiac diagnosis they sent my mum to a cardio specialist as she was getting a whooping cough and pain down her arm, he was alarmed by the fact that my mother was in so much pain however didnt display any of the normal tendencies that were expected after the routine excercises.
I thought about sending my mum to a chiropractor, as i thought it may be muscular.
I would say if any celiac sufferer felt the need to see a cardio specialist then ask them to concentrate on blood pressure! in particular ask about a condition called vasculitis especially nervous sysem vasculitis.
Posted 11 October 2004 - 07:39 PM
Is there a test to see if you have a high or low metabolism and what are the statistics of your rate of metabolism changing throughout your life... and what are the reasons for that change?
Up untill i was about 13 i had a very high metobilsm i could eat whatever i wanted and not put on a pound and was very hyporactive, i turned 16 and my metabolism slowed right down i got very tired easily and my weight went up and down. I am a type "o" negative.
I pretty much stayed on the same foods, and i wonder if it was that i was in the era that we started to use microwaves or companies used different additives in there foodstufs or was my body just changing with age, maybey a pubestent downfall.
And if your metabolism can switch from high to low ( whicj is the obvious one with age, can it switch from low to high?
I still feel that fibro and celiac is a very grey area for misdiagnosis. if the diagnosis was so easy as say "super size me" then we would all be laughing!
Posted 12 October 2004 - 07:36 AM
Posted 12 October 2004 - 08:10 AM
To all those who were dx w/ fibromyalgia before the dx of celiac.....
How long did it take once you were gluten-free for the body pain to go away?
I am going on my 7th week gluten-free and am still in alot of pain!!!
Need some encouragement! Thank You Suzanne
Posted 12 October 2004 - 12:46 PM
Posted 21 April 2009 - 05:58 PM
Now I am gluten free, lactose free and off the pain meds. I am a firm believer that I never had FMS to begin with, I have Celiac. My blood test came back negative in 2005 and I never got a biopsy but as far as I'm concerned if the gluten free diet is working and I react as bad as I do, it's Celiac.
I had pain in every muscle of my body, the worst was arms and legs. I had restless legs syndrome, chronic fatigue, migraines and pretty much couldn't handle any activity for too long. I have now officially been gluten free completely for 2 weeks with no cross contamination or slip ups and am now also completely vegan. I feel wonderful. The last to go was the leg pain and I haven't had to take any pain killers of any sort for 3 days and this is after 8 years of being drugged up on something.
Is there a connection? Yes. I think the connection is that most doctors don't know enough about everything and they create these mysterious syndromes and diseases just to have a diagnosis without all the work. The reason I never stopped searching for an answer was that I was told FMS is not progressive, it shouldn't get worse and I was getting worse day by day. I knew something else was wrong.
I hope more people find the answers I have because so many are suffering needlessly.
and still loving life!
Posted 23 April 2009 - 07:28 AM
Posted 01 December 2009 - 09:26 PM
Posted 01 December 2009 - 11:46 PM
I was meant to find this site , to be sure! I am pretty convinced that my fibromyalgia condition is related to gluten I had a negative blood test also however I had been off gluten for about three months and resumed gluten two weeks prior to the test , I read that you have to resume gluten for about five months in order to get an accurate diagnosis , having said that I resumed a gluten free diet for another four months and found that my flares were not as bad plus my stomach issues were better, however I broke the diet again and resumed gluten , WHAT PUZZLES ME THOUGH is that it took about a month before I reacted and came down with the worst flare ever , the pain has been incredible , so now I am confused , can it still be celiac and take this long to react, I suspect that's my problem but I am not sure , I know I also react to fructose which I had ( onions and dates on top of the bread ) all I know is that I would gladly go without gluten if I knew it would keep me from having a flare like I just went through , I actually cried all week , still it's a huge commitment to make when one is guessing I already have so many food allergies that my diet is severely limited , does anyone know if the reaction can take a while to surface after resuming gluten , I would be thankful for any insights anyone can provide.
This is a VERY old thread....you might want to start a new thread so that you get more attention and more answers...?
I know that I have both fibro and celiac disease, and if I eat anything with gluten I have symptoms about 12 - 36(max) hours later. Definitely not anything like a month. But everyone is different!
So I don't know what to tell you.....except that fibro is somehow linked to autoimmune diseases, that's for sure. It shows up most often in people who have various autoimmune disorders. But the medical profession still doesn't understand that much about fibro.
I've been gluten free for a year now. Most of my classic celiac disease symptoms are gone: the mouth sores, the diarrhea, the migraine headaches, the stomach pains. But I have several other autoimmune diseases plus fibro: I have a lot of symptoms that are NOT gone. In fact, I'm currently in a lupus flare condition, which is not a good thing at all. Vertigo, nausea, double vision, photosensitivity, yuck. I'm still hoping that my other conditions will go into remission; lots of people on this board have had miraculous recoveries, even if it took a while!
In any case, the best thing you can do is listen to your body. What is it telling you? Do you feel better when you are gluten free? Then don't eat gluten! You don't need a doctor's diagnosis to figure out if you feel better gluten free or not....thank goodness!!
Good luck to you!
Tested Fall 2008: bloodwork, biopsy negative; HLA DQ8. Doctor believes results negative due to prednisone and Imuran taken for autoimmune hepatitis.
Dx with celiac disease because of dietary response, genetics, and family history of celiac disease.
Dx with Lyme Disease Jan 2010; Lyme likely triggered some of the AI diseases.
Gluten free since 25 Nov 2008
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