Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

How About San Jose, California?
0

5 posts in this topic

I live in Santa Clara and would like to know of any support groups in my area.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hey, I just found a posting with the info I needed. Has anyone attended the group at Stanford? If so, would you recommend it? I could also check out the one in Morgan Hill. Any comments are appreciated.

0

Share this post


Link to post
Share on other sites

Let me know if you check out the one in Morgan Hill. I have family there and could possible arrange visits to be able to make it to a meeting. I don't know if you want to travel there, but there is also a support group in Santa Cruz, they meet once a month I think, at Dominican Hospital.

I have not had much luck with the support groups here. One is only 4 times a year and their last meeting was at, wait for it, Pizza Hut! They wanted to show us that we could have a safe "crustless" pizza. This is sauce, cheese, and toppings cooked in a hot wings dish. And they also eat the salad bar. This didn't work for us, since we are dairy free and my kids don't like sauce or any other topping than pepperoni. So this was a meal of just pepperoni, and the topic discussed was about dealing with schools in regards to the laws that make them have to provide your children with gluten-free foods and supplies, etc. Which doesn't apply to my kids, because in order to demand the school provide those things you have to have an actual diagnosis. The schools in my area are great with helping my kids, but I send their lunch and a snack box and don't hold the school responsible if my children accidently get gluten. I stay in close contact with the teachers and the school nurse. The leader of the group actually put a restaurant out of business by suing them after they fed her daughter fries that were cooked in with the chicken nuggets. Her daughter is super sensitive and ended up in the hospital over it. I personally wouldn't be taking my child out to eat if she was that sensitive...Sorry for the rant. I am frustrated to not have a good support group available to me. Although I am thinking of putting up notices around town looking for people interested in starting a group, because I keep running into people who tell me they have a friend in town who can't eat wheat/gluten either. So I know there are at least a dozen or more of us in my town of 10,000!

The other support group is an hour and a half drive (one way!) late at night once a month on Thursdays and I can't be taking my kids out of town on school nights. So we have never made it to that one.

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

Check out the calendar on this site. The Bay Area ROCK (raising our celiac kids) is having a picnic in Palo Alto on Sept. 26th. Sounds like fun. You bring your own food to BBQ along with outdoor toys. Someone is taking orders for pizza crusts and breads you can purchase that day.

The Santa Cruz Support Group is meeting at Dominican Hospital on Sept. 18th with a potluck meal and a speaker. He works (I believe) at the New Leaf Market in Felton and someone I work with who lives there raves about him and his wealth of knowledge.

DK :rolleyes:

0

Share this post


Link to post
Share on other sites

I'll definitely follow up with you. To be frank, the group at Stanford would be more convenient, as Morgan Hill is South of us - and if you know Bay Area traffic, well, 'nuff said.

I agree with you that there are more and more celiacs popping up every day. I met one just today when shopping at REI. The clerk was helping me locate an insulated backpack (I have a 21 our flight coming up and want to bring my own food on board) and when she asked me why, I told her I had celiac disease. She was extremely excited as she had just been diagnosed. I'm running into this scenario a lot lately.

Thanks for your reply. I'll let you know what I find out.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,354
    • Total Posts
      920,517
  • Topics

  • Posts

    • Hi Aly and welcome You may want to repost this in a new thread, that way more people will see it and can advise you.  I think you would be much better off getting the celiac test now, if you stay off gluten you will need to go back on it and that can be much harder. That said, loads of your symptoms look like they could be gluten related.  I had a persistent 'trapped nerve' for instance under my eye which would twitch like crazy. Since I went gluten-free doesn't happen any more.  Best of luck! Matt
    • Your scalp sounds like seborrheic dermatitis. I have that and although its better after going gluten-free its very persistent. The dermatologist recommended Nizoral shampoo for it and it does help. I think dairy has a big part to play with skin problems, for me at least. 
    • I was diagnosed this year and I live on Oahu. I have yet to meet another celiac, so that tells you something about our limitations here. I work in Waikiki and do frequent Rouffage. It is nothing fancy, small place, but keeps me fed when I need something. I also like Greens and Vines. It is a vegan restaurant and worth every penny. Greens and vines sets up at the KCC farmers market on Saturdays too. Places in Waikiki that do offer a gluten-free menu include, PF Changs, Dennys, Big City Diner and California Pizza kitchen. I do not trust those places due to the risk, but they "offer" gluten-free options. I did try and order a beer at Yard House in Waikiki. They label clearly states that it contained wheat, so yeah sent that back with the waiter. I have also tied Doraku in Waikiki. I called ahead and spoke with management. That went well and they offer gluten free soy sauce. There is a deli at Down to Earth Grocery store in Honolulu that has gluten-free options, but the whole foods here do not offer hot food that is gluten free. They do have a hot food bar, but you have to stick to the whole plain salad and veggie options. It's good to hear the hotels here are getting better, beyond Waikiki hotels there is no one really interested in being gluten free.
    • Just found this site today. Did you ever find one? I was diagnosed this year and I live on Oahu.
    • I was diagnosed this year and I live on Oahu. I have yet to meet another celiac, so that tells you something about our limitations here. I work in Waikiki and do frequent Rouffage. It is nothing fancy, small place, but keeps me fed when I need something. I also like Greens and Vines. It is a vegan restaurant and worth every penny. Greens and vines sets up at the KCC farmers market on Saturdays too. Places in Waikiki that do offer a gluten-free menu include, PF Changs, Dennys, Big City Diner and California Pizza kitchen. I do not trust those places due to the risk, but they "offer" gluten-free options. I did try and order a beer at Yard House in Waikiki. They label clearly states that it contained wheat, so yeah sent that back with the waiter. I have also tied Doraku in Waikiki. I called ahead and spoke with management. That went well and they offer gluten free soy sauce. There is a deli at Down to Earth Grocery store in Honolulu that has gluten-free options, but the whole foods here do not offer hot food that is gluten free. They do have a hot food bar, but you have to stick to the whole plain salad and veggie options. It's good to hear the hotels here are getting better, beyond Waikiki hotels there is no one really interested in being gluten free.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,424
    • Most Online
      1,763

    Newest Member
    drennanw
    Joined