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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Elevated Lipase
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9 posts in this topic

Hi there,

I am new to this forum but not to celiac disease. I have been pretty good with my diet for the last 13 years and was very healthy.

Just recently I have been experiencing some of my old gluten symptoms. Nausea, stinging in my intestinal track, weight loss, headaches, a hung over feeling etc.

The only lab that was elevated was a slightly elevated lipase.

Does anyone else have an elevated lipase with gluten intolerance. I think I may have inadvertently gotten gluten from some meds I was taking.

Any take?

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I did a the time of my diagnosis, I have not had it drawn since, but it was elevated. I don't have the labs on me now, but I can get them tomorrow and see because I think there was another lab which was elevated.

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i had elevated lipase and amalayse when i had pancreatitis which the dr said was caused by the undiagnosed celiac.....

Jess

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Someone posted about this a few months ago and several people responded but I don't remember much more about it. You might try searching here to see what you find.

When I had my celiac panel the only thing that came back high was lipase. I never got an explanation and I get gluten-free that very day so I didn't persue it. I'm pregnant and they have practically taken 1/2 my blood out in the last few months and all the tests have been normal, so I would think that my gluten-free diet got it under control because that is the only change I made.

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Thanks everyone for the replies,

At first I thought it was pancreatitis but when I went to my doctor he didn't think it was...just the lipase mildly elevated. But...I have stinging abdominal pain and I assume that I inadvertently got gluten through some medication I was taking that I didn't check out well enough.

Well now I am off the medication and I feel like I am starting at square one again in regard to getting well again from the gluten damage to my intestinal tract. I guess I will stay on clear liquids for a few days and then slowly add back food.

It is interesting to find out so many people with gluten intolerance have elevated lipases. It scares you though when the doctors tell you that.

So thanks again..I will keep everyone informed. I am holding off on CT scans and ultrasounds for now and see how I feel.

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Thanks everyone for the replies,

At first I thought it was pancreatitis but when I went to my doctor he didn't think it was...just the lipase mildly elevated. But...I have stinging abdominal pain and I assume that I inadvertently got gluten through some medication I was taking that I didn't check out well enough.

Well now I am off the medication and I feel like I am starting at square one again in regard to getting well again from the gluten damage to my intestinal tract. I guess I will stay on clear liquids for a few days and then slowly add back food.

It is interesting to find out so many people with gluten intolerance have elevated lipases. It scares you though when the doctors tell you that.

So thanks again..I will keep everyone informed. I am holding off on CT scans and ultrasounds for now and see how I feel.

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Hi

I fairly new to your site. Did you do the CT scan? My doctors insisted on a CT scan last week when my amylase and lipase came back elevated, I should have my results on Monday.

My lab reading were as follows:

Amylase 131 U/L normal 30 - 110

Lipase 435 IU/L normal 23 - 300

I mentioned to the doctor that I have read a Pub Med article of a small study in Italy that identified about 20% of celiacs had elevated lipase/amylase. This study was done with only about 55 people so I don't know if that is considered a big enough study to be conclusive, but I doubt it.

Did anyone else have a CT scan, if so, what were your results.

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Hi

I fairly new to your site. Did you do the CT scan? My doctors insisted on a CT scan last week when my amylase and lipase came back elevated, I should have my results on Monday.

My lab reading were as follows:

Amylase 131 U/L normal 30 - 110

Lipase 435 IU/L normal 23 - 300

I mentioned to the doctor that I have read a Pub Med article of a small study in Italy that identified about 20% of celiacs had elevated lipase/amylase. This study was done with only about 55 people so I don't know if that is considered a big enough study to be conclusive, but I doubt it.

Did anyone else have a CT scan, if so, what were your results.

I think I was the origial person who inquired about this months ago, I was told I was having Pancreatis, However after months of being sick and having the same ranges as you with elevated lipse, once I found out I had Celiac Disease, and starte watching my diet, things went to normal.

From my understanding Lipase is produced in a fw places and us with celiacs can have problems with our pancreas if we dont watch our diet, however ours is coming from Leakage in the GUT, its standard to happen but more in celiac disease so Its not too worry about, I did have a CT scan and ultra sound and all was normal but my lipase was up and down for months,

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