Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Has Anyone Had Their Tests Come Back This Way?
0

3 posts in this topic

Ok I was just curious if anyone else had only the TTG come back positive and not the other tests? The TTG was what was positive in my son and that is why the doctors are pretty sure he at least is a carrier of celiac disease if he hasn't fully developed it. But I am just curious if anyone else has had this come back like this before?

Also I was wondering when they started to diagnose celiac disease? Cause in talking with my mother she said my father had problems that he was hospitalized for as a teenager and they diagnosed it as something else called Gaisbock's syndrome. "A condition in which the blood thickens because it contains too many red blood cells and too little clear fluid (plasma). It most often develops in middle-age men who smoke, have high blood pressure and take diuretics" This is a definition from the internet. Well his symptomsw were what i have read as common misdiagonses of celiac disease and he had a lot of digestive problems and bleeding ulcers and things like that... The problem is that he died 20 years ago and there isn't anyone alive in his family I could ask about this... I am just wondering if he could have had celiac disease and been misdiagnosed and that is where it came into our family.

I am sure I put this in the wrong area but I didn't know where else to put it since it is our son who has been diagnosed so far...

0

Share this post


Link to post
Share on other sites


Ads by Google:

It was identified over a hundred years ago, but it seems that the US is WAY behind the curve in accurately diagnosing people. They tested back then, but almost exclusively in failure-to-thrive infants, and even then patients were never told it was a life long thing. Only in the past 5-10 years, since the advent of blood tests, has there been an improvement in this.

One of the doctors I have, who is well known internationally in his specialty (so other doctors don't actually think he's some sort of quack), has noted that he's talked to other doctors about a dietary link to the condition-spectrum he specializes in. Many of them just shrug it off as him being a Californian, and thinking that many of our health problems can be - at least in part - attributed to diet. Uh.... Yeah... The two of us had a good chuckle at that little anecdote. :-)

0

Share this post


Link to post
Share on other sites

lol about the diet bit...

thanks for the info. I am curious if my father could have had it... he seemed to have a lot of the problems it causes... and i do to...

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,132
    • Total Posts
      919,524
  • Topics

  • Posts

    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
    • Celiac disease may lead to a host of other inflammatory, gluten-related ... Fortunately, Diet Doc offers gluten-free diet plans which are customized to ... View the full article
    • Cyclinglady is absolutely correct, after hours of internet research the only gluten-free food available at JNB is a fast food chain called 'Nandos'. I was hoping for a bit more variety, but I'll take what I get.   
    • I'm so confused about my daughter's diagnosis.  I hope somebody can help.   My 4 year old daughter has a swollen belly, stomachaches, and lots of gas.  She does not have diarrhea or delayed growth.  Because of her symptoms and because it runs in the family (2nd degree relatives) I had her tested for celiac.   She was weak positive for TTG (IGA)  and strong positive for DGP (IGG)   TTG (IGA)  8   (0-3 neg, 4-10 weak positive, greater than 10 positive) TTG (IGG)  2   EMA: Negative DGP (IGG)  47  (0-19 negative, 20-30 weak positive, greater than 30 positive) Last week, she had her endoscopy.  The doctor found inflammation and little holes or bumps on her duodenum.  He started her on prevacid and said based on his observations, he was suspicious of celiac, but he would not be able to confirm until the biopsy came back. The biopsy showed no signs of celiac disease.  He said that he could not diagnose her with celiac without the biopsy report saying there was celiac damage.  He said he would categorize her as a potential celiac, keep her on a gluten diet and redo the endoscopy in a year or two to check for damage again.  My questions are: 1.)  If it is not celiac, something is causing her duodenum to be inflamed and have little holes or bumps on it, right?  Could it be a wheat allergy or gluten sensitivity?  What else could it be and how do they test for it?  Given her elevated celiac antibodies, how likely is it to be anything besides celiac causing the damage?  2.)  How likely are false positives for TTG and DGP?  I've heard they are pretty sensitive and specific.  Does getting two positives make false positives less likely? 3.) What have you done in this situation?  I want her to have an official diagnosis to make things easier at school and to feel confident that we are eliminating gluten permanently for a worthy reason, etc.  But, I'm having a hard time imagining keeping her on gluten and waiting for her to get more sick and have more intestinal damage just for a diagnosis.     Thanks in advance for your help.  I'm so overwhelmed and confused.  I hope someone has some insight and experience that will help clear things up for me.            
    • Yeah I actually live in Japan which is pretty similar, because Coeliac disease is rare over here so is the understanding and accommodating it. When I mention Gluten to some restaurants they think I am talking in English and they are unfamiliar with the word in Japanese.    So it seems I can write off my chances of getting some authentic Chinese gluten-free food at the airport, but at least there is a Thai restaurant in T3 so I won't starve. Its called  'Phrik Thai' for future reference. http://en-shopping.bcia.com.cn/store/739.html  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,167
    • Most Online
      1,763

    Newest Member
    georgemathews
    Joined