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Has Anyone Had Their Tests Come Back This Way?
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Ok I was just curious if anyone else had only the TTG come back positive and not the other tests? The TTG was what was positive in my son and that is why the doctors are pretty sure he at least is a carrier of celiac disease if he hasn't fully developed it. But I am just curious if anyone else has had this come back like this before?

Also I was wondering when they started to diagnose celiac disease? Cause in talking with my mother she said my father had problems that he was hospitalized for as a teenager and they diagnosed it as something else called Gaisbock's syndrome. "A condition in which the blood thickens because it contains too many red blood cells and too little clear fluid (plasma). It most often develops in middle-age men who smoke, have high blood pressure and take diuretics" This is a definition from the internet. Well his symptomsw were what i have read as common misdiagonses of celiac disease and he had a lot of digestive problems and bleeding ulcers and things like that... The problem is that he died 20 years ago and there isn't anyone alive in his family I could ask about this... I am just wondering if he could have had celiac disease and been misdiagnosed and that is where it came into our family.

I am sure I put this in the wrong area but I didn't know where else to put it since it is our son who has been diagnosed so far...

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It was identified over a hundred years ago, but it seems that the US is WAY behind the curve in accurately diagnosing people. They tested back then, but almost exclusively in failure-to-thrive infants, and even then patients were never told it was a life long thing. Only in the past 5-10 years, since the advent of blood tests, has there been an improvement in this.

One of the doctors I have, who is well known internationally in his specialty (so other doctors don't actually think he's some sort of quack), has noted that he's talked to other doctors about a dietary link to the condition-spectrum he specializes in. Many of them just shrug it off as him being a Californian, and thinking that many of our health problems can be - at least in part - attributed to diet. Uh.... Yeah... The two of us had a good chuckle at that little anecdote. :-)

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lol about the diet bit...

thanks for the info. I am curious if my father could have had it... he seemed to have a lot of the problems it causes... and i do to...

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    • Hi Beachgrl, It won't hurt anything to go gluten-free now, except the possibility of getting a diagnosis of celiac disease.  When i went gluten-free, it seemed like the initial changes were spread over about 6 weeks.  I had gut spasms for that time.  And other changes, all for the better.  Initial recovery from celiac damage can take up to 18 months, so it can be a slow thing.  Some people get better much faster of course, because we are all individuals and not identical. Going gluten-free for celiac disease is a lifetime commitment though, and some people have a hard time doing that without a diagnosis.  Even minor amounts of gluten can cause us to react, so it is best to eat a very simple diet of whole foods at first.  Avoid dairy and processed foods.  I hope it works out for you.  I know some people with Crohns disease eat gluten-free and find it helps them.  Gluten is a tough thing to digest for all people, but most don't have an immune reaction to it like celiacs do.  
    • Honestly, I would not trust the school to provide a gluten-free meal except for fruit, salads, veggies, etc. I sub in a school cafeteria and I swear everything is breaded or on bread. Utensils are shared. They're very clean but unless you have a very knowledgeable person in there, I just wouldn't chance it. I found a slim Jim type snack that says gluten-free on it. If you want to give me your email or FB account, I can send you some very valuable info on 504's though. They carry the student right through college. I kept a copy of what a friend wrote about her daughter being in a sorority and just how the 504 helped immensely. But, I would definitely get one and still be prepared to pack a lunch. All our meals are delivered frozen and we just hear them up. If your school actually fixes food, that's different. 
    • Oh, I would suggest providing gluten-free goodies (e.g. Candy) or even a frozen cupcake (kept in the teacher's freezer) in the event of a party.  My daughter's classmate is severely allergic to peanuts.  Her mom did that and Abby was never left out!  😊
    • Hi Nobody, Welcome to the forum!  I noticed you said you have been avoiding wheat products.  That's good, but are you avoiding rye and barley also?  Wheat, rye, and barley are the 3 grains that cause reactions in celiac patients.  About 10% also react to oats. If you haven't had the full celiac antibodies test panel, it might be worthwhile getting that done now.  The ttg is just a basic test and is generally followed up by an endoscopy or the full celiac panel. I wouldn't worry a lot about getting cancer.  That doesn't happen often. It is possible some of the other grains you might be eating are contaminated.  A group did a test on several off the shelf products a few years ago that would not normally be thought of as having gluten and found some actually did have low levels of gluten.  Things like corn meal for example.    
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