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I Feel Like I Was Hit By Truck!
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5 posts in this topic

:( Aloha,

I was diagnosed last week celiac. I have been gluten free for about 4 days now

I was also diagnosed before with fibromyalgia.

I feel terrible like I have the flu and I hurt all over does this sound like others w/

celiac? and how long till I feel better if it is the celiac? Suzanne

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Well that depends-I guess for some felling better starts as soon as they stop eating Gluten. For others it may take 3 months,6 months,a year, maybe longer.

"I feel terrible like I have the flu and I hurt all over does this sound like others w/

celiac? "

Kinda sounds like me :)

I've been gluten-free for 8-9 months with a few accidents and my stomach feels much better.I use to feel like I HAD the Flu but now I just feel like I'm Getting the Flu.I can function and do my normal thing in life i just feel achy and run down most of the time. I have other problems that may be making this worse for me but, who knows. Comparing where I was a year ago I'm at least 50% better off. I was very sick.

So being gluten-free is worth it but it may take sometime to get the full benefits.

Hope you feel better soon. :D

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Suzanne,

I went gluten free about 3 months ago now. And finally I thinnk my stomach is normal. but at first it still killed even though gluten free.

I was dxed with fibromyalgia, 7 yrs ago. It got horrible, I needed a wheel chair, couldnt work, couldnt do mostly anything but lay there. I was also on 11 different meds a day.

Someone on the web told me to try cutting out all meat..... Finally, when I got so bad, I gave it a try. Within two weeks of, I became vegan, I was off all medicines, now i walk, workout, can hold a job, etc...... I got my life back.

So Im saying if you have fibro give giving up meat a try.....but you have to read everything, which is easy really if your already gluten-free.

Im convinced it is something they inject in animals that really made me sick, and they call it fibromyalgia.

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My mother in law has fibromyalgia and the hurt all over part is probably that. The flu symptoms are probably more celiac disease than Fibromyalgia, but could be both. It'll take a few weeks to get used to the feelings associated with celiac disease, but after a few months of the diet you shouldn't feel flu like anymore, but again with the Fibromyalgia there's gonna be pain and you'll probably still feel lethargic pretty often. Did the same MD diagnose you w/ both conditions? If so he/she can probably give you a gluten free pain med to help w/ the fibro pain. Best of luck, I hope you feel better soon.

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This diet can help with fibro but so can thyroid meds. Go to about.com and type in thyroid and read everything there. thyroid@yahoogroups.com is a good support group. Dr. John Lowe wrote a book about the connection between fibro/chronic fatigue and thyroid. Hope you feel better soon. ;) my muscles are doing better but not 100%. I'm taking several things but MSM in crystal form has helped. I also did guaifenesin at one point for a year and that helped me to start walking again. based on Dr. Paul R. St. Amands "What your doctor may not tell you about fibromyalgai". In fact I saw him in person. Take care

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    • Thanks.  This is very helpful.  Our first post diagnosis grocery store trip took several hours, just trying to read labels to make sure everything is safe.   Our son loves bread and this going to be the hardest part. 
    • i would agree with most of your assessment but overall the popular chefs are very aware. Ed Kenny at Town did have  gluten-free options on the menu.  Mavro's will fix something special given advance notice but its expensive.  excellent but very expensive.  Alan Wong is very aware and will have his staff prepare something as well.  We did find many options at both Oahu  whole foods -- mostly  with tofu. the only thing  there is to be aware of cross contamination with things  next to it.  they make a great gluten-free southwestern tofo dish which is great but not if its sitting next to anything with gluten. Its not whole foods but people use the smae  spoons and tongs i found more at   down to earth in peal city than by  University ave  
    • Hi,  I'm in KOna but my kaiser doctor just retired  who was pretty good about it. I dont know of a specialist here  but most of hte kaiser docs wil test you if thats when you need to talk to them about. good luck  
    • Yes.  And wouldn't it have been nice if your doctor had tested you for Celiac disease before you went gluten free? Then you would know if your issues are Celiac or not.  That would help you know how careful you need to be, what other illnesses and problems to look for, whether you might be passing a genetic disease on to your children, if you should look for another cause of your symptoms, etc  
    • I would be very careful in giving this kind of advice, she is in an advanced stage. I was there and one additional symptom that I was getting was a strong urge to commit suicide so eating gluten for three months might not be the way to go for some people. If a gluten free diet stop the problems them gluten is the problem or a least part of it. I eliminated MSG from my diet because I notice that the common denominator for some products that affected my well being was MSG. I eliminated oats because I notice that I would get canker sores every time I ate it. Wheat is what affect my brain the most, irritability gets uncontrollable, my mental capacity greatly diminish, rash in my arms appear, can't sleep,etc. Barley makes my stomach groan, and constipated. Will try testing how Rye affect me some later time. 
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