Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Reaction Time
0

10 posts in this topic

Hello,

It's my first time using the email support group. I was recently diagnosed 4 months ago and have been diligent with my gluten-free diet. Yesterday, I was at a soccer tournament all day. I brought food along to sustain me the whole day, but when a group of people suggested a little Italian restaurant for lunch-I caved in. I thought I was eating gluten-free by ordering a salad with chicken strips (no breading). I am suffering terribly for the first time in months, I guess the chicken may have been fried on the same grill as their bread or buns???? Well I learned a very valuable lesson----------I eat my cooking or a restaurant that I have already deemed gluten-free by my many questions. My question is---------on average how long does it take to get a severe reaction (cramping, gas, diarrhea)? This is my first time being sick, I don't think it is a viral infection. How is one sure? Thanks!

0

Share this post


Link to post
Share on other sites


Ads by Google:

For me, it takes 15-30 minutes to start noticing symptoms (head) and about half a day for the rest of them (digestive).

0

Share this post


Link to post
Share on other sites

I find the time differs. I can have reactions as quick as 20 minutes and as long as 6 hours before I get sick.

0

Share this post


Link to post
Share on other sites

My reaction time seems to depend on what I eat...weird. But for the most part it is within 30 minutes or less that I very much notice it both digestively and bye my stomach and heart hurting. Definitely not smart for me to injest something questionable out in public if you know what i mean.

0

Share this post


Link to post
Share on other sites

I either haven't had wheat since I went gluten-free, or my body doesn't really show any reactions to it. Didn't really before either. My health just slowly fell apart, lol.

Though if I do ingest casein, something else I have to avoid, I feel a reaction in about 24 hours. Like maybe it needs to react the end of my large intestines? I dunno.

0

Share this post


Link to post
Share on other sites




I've heard that, obviously, it varies from person to person between quick reactionsn (the 30 min. kind) up to about 48 hours to get a reaction. So, if you get contaminated, but you are unsure of what it was from (here you're lucky to know why), you should really examine your diet for the past two days.

You can't be sure, really, that it's not something else.......however, I find that I can feel the difference. I'm so used to those abdominal pains that I know them really well (in addition to the nausea, style of vomiting....rather gross, but yes, I notice patterns, gas, bloating, etc.). I know I could tell the difference between this and a fever and the flu. It might be harder to tell with diarrhea, though........

0

Share this post


Link to post
Share on other sites

Mine depends on how full my stomach was before eating the gluten and how much of it and what it was. . .sometimes with in minutes. . .other times a day.

I am sorry to hear about you accident.

0

Share this post


Link to post
Share on other sites

I learned something interesting about eating out. My mom has celiac disease as well and sometimes when we eat out she gets a sore throat from something that we later find out we are allergic to. I learned from somewhere that everyone has some villi in the back of their throat. Since gluten damages our villi this makes sense that we get a sore throat if we eat it. This doesn't always work and I wouldn't use this as a reliable source to determine what is glutenous and what isn't but it's just a thought.

0

Share this post


Link to post
Share on other sites

I notice symptoms almost instantly (within 5 minutes I feel bloated) and it depends on how long it lasts (45 min to a few hours) which I guess depends on how much gluten was ingested...I try to be gluten-free as much as possible but when eating out cross-contamination is tough even if I tell them I am gluten intolerant.

0

Share this post


Link to post
Share on other sites

i ate in a restauraNT the other day and within minutes my stomach was growling a lot and i had a feeling i ate gluten, but then the next morning is when it really hit me. it lasted 2 days :( it was my first time eating gluten in the 2 months that i have been gluten free. ) my stomach is not all the way healed, i still get stomach ahes, bloating and gas and slight constipation, but this was really strong (almost like mild flu) so i am postive it was gluten.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,120
    • Total Posts
      919,468
  • Topics

  • Posts

    • Hi Alok, I suggest not eating any soy.  Soy is one of the top 8 food allergens in the USA.  Soy has other things about it that are not helpful to us.  Plus it is often sprayed with pesticides that are not so great for people.  Maybe you can try some other food for a while?  Also it might help to wash all your vegetables before using them. Just some ideas, I hope they help.
    • What she said!     The antibody panel is an important part of follow-up!
    • I have Celiac, Hashi's thyroid disease, Sjogren's Syndrome and Reynaud's Syndrome.  All have gotten better, inflammation wise, after 11 years gluten free.  I am very strict with my diet, never take chances if I feel the food is not really gluten free and limit the number of times I go out to eat.  I am not saying I never go out but it is normal for my husband and I to not see the inside of a restaurant for 3-4 months at a time and then I only eat at the places that have never glutened me.  I am lucky in that the state I live in has 3 restaurant chains that are run/owned by Celiac's, so they get it right every time. You have not been gluten free for very long, in reality.  It took me three years to completely rid myself of all symptoms related to the disease.  I was 46 at the time of diagnosis.  I know it is hard to accept that healing can take that long but you have to measure it differently.  Looking back, you should feel better than you did a year ago.  As time goes on, healing slowly takes place until you realize that certain problems have disappeared.  It is not as cut and dried as taking an antibiotic for an infection. http://www.drweil.com/drw/u/ART03424/Elevated-Creactive-Protein-CRP.html  Read this article on elevated c reactive protein. It is by Dr. Weil, who is a Harvard trained physician who chose to go the more natural route to healing people.  All his stuff is interesting.  Yes, your elevated level will most likely come down, as you heal better.  Pay attention to it but don't let it freak you out too much! 
    • Hi Calla, I think the safe answer is 12 weeks on gluten for a blood test.  I am pretty sure they say 2 weeks on gluten for the gut endoscopy.  But usually people/doctors don't want to  do an endoscopy before a positive blood test, so catch 22 there. There's a chance you still have active antibodies in your blood after 3 weeks off gluten.  But nobody can tell you for sure.  If you can get you doctor to test you now and in 9 more weeks if you are negative now, that might work.  If the doctor is willing to do 2 tests, that would be great. The best thing would have been to do all celiac disease testing before going gluten-free.  But sometimes it doesn't work out that way. The University of Chicago celiac center has an FAQ that answers some of your questions. http://www.cureceliacdisease.org/faq/i-dont-have-the-money-to-get-tested-for-celiac-disease-but-a-gluten-free-diet-makes-me-feel-better-is-it-okay-to-start-the-diet-without-being-diagnosed/ Welcome to the forum!  
    • Couldn't have said it better!  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,159
    • Most Online
      1,763

    Newest Member
    Anns
    Joined