Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Gf Store Brand Formula?
0

9 posts in this topic

We know a couple with a two month old son who has been chronically throwing up his breastmilk since birth. The doctor diagnosed him with reflux, but the meds(zantac syrup and metoclopramide-hcl) the dr. prescribed, have not lessened the vomiting. He vomits after every feeding. His mom recently quit breastfeeding, due to lack of sleep and exhaustion of feeding him herself with only crying fits from the baby as a reward and the vomiting, but the formula has not helped to stop the vomiting either. I told her that our four yr. old daughter did the same thing and I wasn't open to the idea of gluten-free at the time. I explained that we later discovered that she was gluten intolerant and that was why she was always sick as a baby. They reached a point of desparation tonight and called and read the ingredients to me from their formula and one of the ingredients was maltodextrin. They asked me to help them find a gluten-free formula so they could give that a try, but I was wondering if any of you gluten-free parents know of any that I can buy at a regular store like Wal Mart? Please help. Thanks, Rian

0

Share this post


Link to post
Share on other sites


Ads by Google:

Being a thirteen-year-old boy, I don't know where to buy gluten-free formulas :) , but I did have one thing about the ingredients: maltodextrin doesn't necessarily mean that it isn't gluten-free. Malt is a bad ingredient, obviously, and dextrin can be if it's not made from corn, but the ingredient maltodextrin doesn't necessarily contain gluten...in fact, unless on vitamins, it DOES NOT contain gluten:

From celiac.com:

8) Maltodextrin is prepared as a white powder or concentrated solution by partial hydrolysis of corn starch or potato starch with safe and suitable acids and enzymes. (1) Maltodextrin, when listed on food sold in the USA, must be (per FDA regulation) made from corn or potato. This rule does NOT apply to vitamin or mineral supplements and medications. (2) Donald Kasarda Ph.D., a research chemist specializing on grain proteins, of the United States Department of Agriculture, found that all maltodextrins in the USA are made from corn starch, using enzymes that are NOT derived from wheat, rye, barley, or oats. On that basis he believes that celiacs need not be too concerned about maltodextrins, though he cautions that there is no guarantee that a manufacturer won't change their process to use wheat starch or a gluten-based enzyme in the future.
0

Share this post


Link to post
Share on other sites

Hmmm...Could her breastfeeding until a couple of weeks ago caused damage if he is gluten intolerant? Maybe that is why he is still throwing up? There were a couple of hydrogenated things on the label too. I know that that is a process that the celiac community has deemed as ok, but our family has majoy sensitivities to hydrogenated oils. Any info. is helpful. Thanks celiac3270, Rian

0

Share this post


Link to post
Share on other sites

Although the maltodextrin shouldn't be the problem, there could be other ingredients in the forumla that contain gluten (flavors?). I had forgotten about that, but you're correct; he was definitely getting gluten from breastfeeding

0

Share this post


Link to post
Share on other sites

Thanks celiac3270, I hadn't really thought about flavors, but the list on the back of her formula container was as long as my arm, and there was a hundred scientific names rather than pronouncable names. I will check again and see if I missed something. I haven't bought formula since my youngest was a baby four yrs. ago. I was twenty then, and a whole lot less informed than I am now about gluten-free products, but still have miles to go on learning. Thanks, Rian

0

Share this post


Link to post
Share on other sites




If she's still producing milk, she can try going gluten-free (and possibly avoiding/reducing the rest of the potential allergens in her diet), and try breastfeeding again.

0

Share this post


Link to post
Share on other sites

I would also suggest that the baby might be allergic to Dairy... I had that problem with my daughter and son. Both reacted strongly to any dairy that I ate... Of course they both reacted to soy also and my son was never diagnosed as a baby, but my daughter had problems like bloody diarhea and apnea and they finally pinpointed it to dairywith a mild allergy to soy. Then when we removed it from her diet and my sons (he is 26 months older) both of them got better at first then my son got sick again and now we are finding out for him it is a wheat allergy also. But I would suggest dairy also might be a problem for the baby. My daughter still reacts to dairy and my son still can't have a lot of dairy even after removing the wheat we dont' give him regular milk, he drinks rice milk and stuff like that.

The ONLY formula my daughter could tollerate was Enfamil Nutramagin... They are gluten free and the dairy is so broken down it doesn't cause a reaction. She however would not take formula except in cereal and I am just finally weening her at almost 14 months. lol! I had to take dairy and soy out of my diet for a long time though because she would have rather starved than taken a bottle! LMAO!!!

0

Share this post


Link to post
Share on other sites

Thanks rgeelan and everyone else who posted. Can you buy Emfamil Nutramagin in WalMart or Target or similar stores?? Let me know please. I am going shopping with my friend tomorrow to help her find a formula. Thanks, Rian

0

Share this post


Link to post
Share on other sites

As a baby I never breastfed, but I had problems with my first formula, too; projectile vomiting. I had to have some special formula like the one above.....just thought I'd share :D

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,116
    • Total Posts
      919,451
  • Topics

  • Posts

    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,154
    • Most Online
      1,763

    Newest Member
    calla84
    Joined