Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Celiac3270's Endo


ryebaby0

Recommended Posts

ryebaby0 Enthusiast

Since celiac3270's "firmly gluten-free" thread is getting longgggggg I wanted to bump it to a new page and give everyone a chance to leave our favorite celiac a good thought for a better diagnosis and "going forwad" days after the 'scope coming up. (I knew he would not presume to do this himself :) Knowledge is power, let's hope you get some on the 13th...

joanna

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



brehm48 Newbie

Good Luck with the Endo celiac3270!!! :ph34r:

Link to comment
Share on other sites
celiac3270 Collaborator

Thank you! :) .....I've been kinda depressed today with the whole symptoms thing, but it brought a smile to my face to see that post :) .....it's nice to know that you have so many people supporting you. Thanks; I appreciate it.

Link to comment
Share on other sites
ponita Newbie

Good luck, I'll be thinking of you!

Melissa

Link to comment
Share on other sites
rgeelan Apprentice

Good luck!!!

Link to comment
Share on other sites
Canadian Karen Community Regular

celiac3270,

I will definitely be thinking of you the day of your endo..... and sending positive health vibes your way...... I will also say a prayer that this will give you the answers you need to get on the road to recovery......

Hugs,

Karen

Link to comment
Share on other sites
Guest jhmom

celiac3270,

Good luck! You are in my thoughts and prayers! Please let us know how things are going. :D

I too am having an Endoscopy, mine is on the 14th and I am also having some gall bladder studies ran this week (hopefully). ;)

Take care

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Sherquilts Newbie

Even though I am new here I wanted to send by best wishes and good luck. I will remember you in my prayers.

Sheryl

Link to comment
Share on other sites
tarnalberry Community Regular

I forgot it was coming up so soon. Good luck! (I admit to being confused at first, because I'm used to 'endo' being used to mean endometriosis, a gyn condition, and ... well, was just very confused. ;-) )

Link to comment
Share on other sites
celiac3270 Collaborator

Thank you so much for all your thoughts and prayers........I'll think of you on the 14th, Stacie......and I'll think of all of you thinking of me on the thirteenth :D

Link to comment
Share on other sites
j9n Contributor

Good luck celiac3270 and Stacie!

Link to comment
Share on other sites
Pegster Apprentice

celiac3270 is my favorite Celiac. I can't believe how much I (a teacher) am learning from this guy! Best wishes and good luck!

Link to comment
Share on other sites
Alexolua Explorer

Yeah Pegster, I agree. celiac3270 is a smart kid! Hard working too when it comes to helping others on here. =)

Good luck with everything celiac3270. =D

Link to comment
Share on other sites
Guest ~wAvE WeT sAnD~

Good luck, celiac3270!!! :D

Link to comment
Share on other sites
Thomas Apprentice

Good luck celiac3270!!

Link to comment
Share on other sites
debmidge Rising Star

Good luck celiac3270! Let us know how you made out, etc.

Deb

Link to comment
Share on other sites
Carriefaith Enthusiast

I hope everything goes well with you on the 13th. Good luck and I hope for good news!

-Carrie

Link to comment
Share on other sites
gf4life Enthusiast

celiac3270,

You are in my prayers. Monday just can't come soon enough! Looking forward to hearing what comes from your endoscopy. I know that you need answers and I hope that you get them. But most of all I hope that you are able to feel better soon. You are a great inspiration to so many of us here and I'm sure we all agree that it will be great for you to be pain free and symptom free. Look at all that you have accomplished while suffering. Imagine what you will be able to do when you are completely healthy! :D

Let us know how it goes. You too Stacie! Good luck to you on the 14th!

God bless,

Mariann

Link to comment
Share on other sites
terri Contributor

Good luck with the Endoscopy celiac3270!

Link to comment
Share on other sites
celiac3270 Collaborator

Thanks again, everyone :) .....I am even more happy that I'm going to get this done Monday, now. Like Mariann said, "Monday just can't come soon enough". In the past I got abdominal pains and vomiting...once every 3-7 days......now, for the past seven days, I have had abdominal pains -- not much vomiting -- a little last night, but I'm not used to seven days in a row feeling sick....since it's getting worse, I'm really glad that I'll get this checked out. This is a big year for me--there's a mandatory shakespeare play thing, which requires a lot of time and is a really big and stressful process..........even more, I have to apply for highschool (tedious forms to fill out, many essays to write, SSATs, other exams that different schools want, and most importantly, interviews and tours that I can't be sick for :( .......etc.).........so I really want to get this straightened out....at least if I find out what's wrong with me, I can maybe get some sort of medication to ease the symptoms or something..........but thank you all sincerely for your thoughts and well-wishes for not only the endoscopy, but answers and elimination of symptoms :D . School starts tomorrow for me and will drastically slow down my postings, but I will make sure I tell you what happens with the scope and results...

-celiac3270

Link to comment
Share on other sites
CarolynM Newbie

Know we are with you in spirit. I will keep your health and education in my prayers. Try not to stress, easier said than done, about school issues - I wonder if the stress is flaring things up. I hope you get some answers.

Link to comment
Share on other sites
celiac3270 Collaborator

The first day of school was great -- and the second, today...........I'm getting back in my study-nerd-workaholic mode without any trouble..lol :D ...anyway, in my school of about 320, there were three celiacs. One kid who is three years younger than I am (gluten-free over a year), a kid who was in the eighth grade last year and is now at some secondary school, and then, obviously, there's myself. The teacher that that celiac had last year is now my teacher, so he slightly understands the limitations of celiac disease.........

Oh, the reason I posted. I found out that the biopsy is at 11:30. I need to be at the hospital by 9:30 and no food after midnight before the endo....then clear liquids including water and apple juice are allowed until 7:30. So, that's the time slot now. I got assignments from my teachers for Monday cause I don't want to have to make up a lot of work or call people and do work after the endo. I want to get all my stuff done this weekend so that Monday I can just lie around and relax and post..... :D when I finish. I'll post when I get home. Thanks again for your support.

-celiac3270

Link to comment
Share on other sites
MySuicidalTurtle Enthusiast

"study-nerd-workaholic mode"

I noticed.

Hahahaha.

I wish I knew if there were other Celiacs on my campus.

Link to comment
Share on other sites
tarnalberry Community Regular

Wow, celiac3270, that's great that they know what you're dealing with! (Well, I hope - we've heard stories of celiacs who... aren't well enough informed for their own good on this board. ;-) )

Link to comment
Share on other sites
Canadian Karen Community Regular

Hi celiac3270!

It's good to read about you getting back into "the swing of things". I have a feeling that you thrive on learning!!!

Thinking of you and wishing you luck on Monday......

Karen

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,070
    • Most Online (within 30 mins)
      7,748

    TT24
    Newest Member
    TT24
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Fluka66
      Thank you again for your reply and comments which I have read carefully as I appreciate any input at this stage. I'm tending to listen to what my body wants me to do, having been in agony for many years any respite has been welcome and avoiding all wheat and lactose has thankfully brought this.  When in pain before I was seen by a number of gynacologists as I had 22 fibroids and had an operation 13 years ago to shrink them . However the pain remained and intensified to the point over the years where I began passing out. I was in and out of a&e during covid when waiting rooms where empty. My present diet is the only thing that's given me any hope for the future. As I say I had never heard of celiac disease before starting so I guess had this not come up in a conversation I would just have carried on. It was the swollen lymph node that sent me to a boots pharmacist who immediately sent me to a&e where a Dr asked questions prescribed antibiotics and then back to my GP. I'm now waiting for my hospital appointment . Hope this answers your question. I found out more about the disease because I googled something I wouldn't normally do, it did shed light on the disease but I also read some things that this disease can do. On good days I actually hope I haven't got this but on further investigation my mother's side of the family all Celtic have had various problems 're stomach pain my poor grandmother cried in pain as did her sister whilst two of her brother's survived WW2 but died from ulcers put down to stress of fighting.  Wishing you well with your recovery.  Many thanks  
    • knitty kitty
      Welcome to the forum, @Nacina, What supplements is your son taking?
    • knitty kitty
      @BluegrassCeliac, I'm agreeing.  It's a good thing taking magnesium. And B vitamins. Magnesium and Thiamine work together.  If you supplement the B vitamins which include Thiamine, but don't have sufficient magnesium, Thiamine won't work well.  If you take Magnesium, but not Thiamine, magnesium won't work as well by itself. Hydrochlorothiazide HCTZ is a sulfonamide drug, a sulfa drug.  So are proton pump inhibitors PPIs, and SSRIs. High dose Thiamine is used to resolve cytokine storms.  High dose Thiamine was used in patients having cytokine storms in Covid infections.  Magnesium supplementation also improves cytokine storms, and was also used during Covid. How's your Vitamin D? References: Thiamine and magnesium deficiencies: keys to disease https://pubmed.ncbi.nlm.nih.gov/25542071/ Hiding in Plain Sight: Modern Thiamine Deficiency https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/ The Effect of a High-Dose Vitamin B Multivitamin Supplement on the Relationship between Brain Metabolism and Blood Biomarkers of Oxidative Stress: A Randomized Control Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6316433/ High‐dose Vitamin B6 supplementation reduces anxiety and strengthens visual surround suppression https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9787829/ Repurposing Treatment of Wernicke-Korsakoff Syndrome for Th-17 Cell Immune Storm Syndrome and Neurological Symptoms in COVID-19: Thiamine Efficacy and Safety, In-Vitro Evidence and Pharmacokinetic Profile https://pubmed.ncbi.nlm.nih.gov/33737877/ Higher Intake of Dietary Magnesium Is Inversely Associated With COVID-19 Severity and Symptoms in Hospitalized Patients: A Cross-Sectional Study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9132593/ Magnesium and Vitamin D Deficiency as a Potential Cause of Immune Dysfunction, Cytokine Storm and Disseminated Intravascular Coagulation in covid-19 patients https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7861592/ Sulfonamide Hypersensitivity https://pubmed.ncbi.nlm.nih.gov/31495421/
    • BluegrassCeliac
      Hi,   Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom has an allergy to some sulfa drugs (IgG Celiac too), but I don't think I've ever taken them. Mg boosted my energy as well. It solved a lot of problems. I take 1000mg MgO a day with no problems. I boost absorption with Vitamin D. Some people can't take MgO,  like mom, she takes Mg Glycinate. It's one of those things that someone has try and find the right form for themselves. Everyone's different. Mg deficiency can cause anxiety and is a treatment for it. A pharmacist gave me a list of drugs years ago that cause Mg deficiency: PPIs, H2 bockers, HCTZ, some beta blockers (metoprolol which I've taken -- horrible side effects), some anti-anxiety meds too were on it. I posted because I saw he was an IgG celiac. He's the first one I've seen in 20 years, other than my family. We're rare. All the celiacs I've met are IgA. Finding healthcare is a nightmare. Just trying to help. B  
    • Scott Adams
      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity, any triggers or patterns, and how they impact his daily life. This information can be valuable during medical consultations and may help identify correlations or trends. Consider seeking opinions from specialized medical centers or academic hospitals that have multidisciplinary teams specializing in gastrointestinal disorders, especially those related to Celiac disease and Eosinophilic Esophagitis (EOE). These centers often have experts who deal with complex cases and can offer a comprehensive evaluation. Since you've already explored alternative medicine with a nutrition response doctor and a gut detox diet, you may want to consider consulting a functional medicine practitioner. They take a holistic approach to health, looking at underlying causes and imbalances that may contribute to symptoms. Given his low vitamin D levels and other nutritional markers, a thorough nutritional assessment by a registered dietitian or nutritionist specializing in gastrointestinal health could provide insights into any deficiencies or dietary adjustments that might help alleviate symptoms. In addition to routine tests, consider asking about more specialized tests that may not be part of standard screenings. These could include comprehensive stool analyses, food intolerance testing, allergy panels, or advanced imaging studies to assess gut health.
×
×
  • Create New...