Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Celiac3270's Endo
0

43 posts in this topic

Good luck, celiac3270! I hope so much that you get some answers to your continued symptoms.

I'll be thinking about you!

Gretchen

0

Share this post


Link to post
Share on other sites


Ads by Google:

Good luck, celiac3270 and Stacie. I will be praying for both of you.

0

Share this post


Link to post
Share on other sites

I obviously missed the beginning of this. Sorry to hear that celiac3270 will be undergoing this. I will add you to my prayer list and echo the other sentiments. :)

0

Share this post


Link to post
Share on other sites

hey good luck, i hope everything works out ok

0

Share this post


Link to post
Share on other sites

Yes! I've been trying for half an hour to get in....my internet connection was really screwing up for me. It's 7:30 in NYC now.....I had told you before that they wanted me at the hospital by 9:30 for an 11:30 endoscopy. Now, they want me early--8:30 at hospital for 10:30 endoscopy......

Anyway....it's the big day :).....I'll post when I get home, whatever -- unless the internet messes up on me, again.....

Thanks again

-celiac3270

0

Share this post


Link to post
Share on other sites




Hi,

The endo. ended a few hours ago, but I couldn't get on here until now to tell you. As I said, I had been having trouble with my internet connection. In my first endo, the doctor only took "one biopsy" of the intestines. This time I had a lot more samples taken....the doctor said that he took a few extra samples to check for any problems with lactose.

Obviously, it'll take awhile to get the official results of everything and get the testing of the samples done, but based on what he could see, the doctor said that the intestines were smooth without any "scallop marks". My stomach, however, looked red and irritated (red spots all over the inside of my stomach. We'll try to find out what's causing that irritation. There are no ulcers and nothing wrong in terms of appearance (besides redness and irritation in stomach).

I didn't feel that well coming out of it. Because it was a longer endoscopy, the nurse said that I probably got a lot of air into my stomach and therefore, abdominal pains, gas, and bloating would be perfectly normal. Additionally, I could experience nausea from the anysthesia. I have been nauseaous since I woke up and have had abdominal pains. The doctor actually thinks that the abdominal pains may be due to gas based on how I described them feeling, where they're located, and how I cope. Rocking back and forth dislodges the gas, curling over or putting a pillow over my gut are both methods of kind of squeezing it and therefore, pushing out the gas, and when it gets really bad, I often extend my bottom up into the air (sorry to get so detailed :D ), which the doctor said is the easiest way to get gas out. Anyway, it was a very imformative day, though I'm feeling the effects of the endo.. Last time I had no nausea, pains, vomiting, or anything and could have even gone for a run or something after. This time I didn't feel that good and it turned out that I had to wait three hours after getting to the hospital, so I ended up starting at 11:30, anyway, even though I arrived an hour earlier as they had directed due to someone else cancelling.

Oh, the doctor said that when the villi don't heal completely due to length of time with celiac disease and without treatment, sometimes the enzymes are damaged, as well....I can't explain it very well, but it could be that my intestines can't handle.....say, sugar...so he's going to find out about that when he reviews all the stuff......(you can't see the villi while doing the endo.)..........

Anyway, thank you for your support. I'll let you know when I get the official results back and until then, I think I'll just try to rest up and feel better.

-celiac3270

0

Share this post


Link to post
Share on other sites

Hi celiac3270.

Thanks so much for the update. I sure hope you start feeling better soon, you should feel back to "normal" by tomorrow, but your "normal" has not been that great. We all want to see you feeling great. Certainly something is causing the irritation in your stomach. Hopefully the doctor can help you figure out what it is.

Get some rest and feel better.

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

Hi celiac3270,

Thought about you today at work, hoping all was well.....

I know results won't be for awhile, but I am glad you have it over with.....

Karen

0

Share this post


Link to post
Share on other sites

celiac3270, I thought of you today too. I am sure you are glad that's all over with, now you just gotta wait on the results which sometimes can be the hardest part.

Take care of yourself and feel better!

0

Share this post


Link to post
Share on other sites

Awww, celiac3270!

I am glad it is over with and maybe you will start feeling betterfrom the procedure.

0

Share this post


Link to post
Share on other sites

Thank you :D ....just vomited, but cramping and nausea are now gone....it's 9:06 and I have to go study for two tests.....thanks

0

Share this post


Link to post
Share on other sites

Hey, celiac3270. Just take it easy and rest now. Let us know what the results are.

0

Share this post


Link to post
Share on other sites

Hi celiac3270. I'm glad it's over as well. will be interesting to see what they find out. Never heard of just red spots all over the stomache. As one who had the stomache flue comming out both ends 24/7 for 3 weeks at a time every year growing up I DO HOPE you'll FEEL BETTER SOON!!!!!!!!!!!!!!!!!! ;)

0

Share this post


Link to post
Share on other sites

Thanks, everyone. I got my results! And I haven't been sick since the biopsy and that was from the anysthesia (yay! knock-on-wood). The doctor just called and said that:

- The villi are looking good! :D Healed and grown back

- No additional intolerances or allergies. :D

- Stay away from complex sugars and tomato sauce just to be safe, since I've been doing better without them.

- No ulcers

- No cyclic vomiting, cause the symptoms had been coming every few days instead of once a week -- very good.

- It's just a matter of a little more time. It's like a car at a high speed. The gluten-free diet puts the brakes on, but it still takes a little while to stop completely. I'm finally coming to that stop.

- The gluten-free DIET IS WORKING!

-celiac3270

0

Share this post


Link to post
Share on other sites

Just couldn't resist a chance to talk with the famous celiac3270. My name is Barbara and I have been lurking around the boards for a few weeks now. I just did the complete Enterolab thing today and sent it off. I have been eating gluten-free for about 6 weeks now and am just now thinking it is working. I had such tummy tenderness and pains in my stomach at times and that is just now going away. I have a granddaughter that is six who has confirmed celiac disease....she was so sick when she was one and just a healthy little specimen now. Her folks are very vigilant about what she eats and she is so brilliant about it too. Her mom is the one who suggested that I might go gluten-free and be tested because of some of the problems that I am having. I did have a blood test at the doctor's office which came back negative, but I certainly don't trust that. I have a son with ADD and I have fibromyalgia and I am convinced that there can be a connection between the two. I also think I may have a lactose intolerance as well as a gluten intolerance. I just don't want to get celiac disease so I think I will eat gluten-free to prevent that. I anxiously await the results of the Enterolab test....I bought the good one with the gene tests too.....hope I am not a sap. I did hear of a lot of people on these boards that used that lab before I went ahead and used them. I am the cook in our own restaurant which presents it's own challenges, but now I don't do any "picking" because all that food is "tainted"!!!!!!!! I do have some fries, occasionally, the day the oil is changed and before anything else is cooked in it....for a little treat. And here is the best thing, I am losing weight. My body really seems to like this way of eating. Before I was such a carboholic and now I just don't crave food that much....I am so much better in control of my eating habits and eating healthier. Best wishes to you, celiac3270, on your testing. I will keep up with you and this board. I am 59 years old and they say that fibro and gluten intolerance can set in during these years....Barbara

0

Share this post


Link to post
Share on other sites

congrats on the fabulous results! :-)

0

Share this post


Link to post
Share on other sites

Wow! That's WONDERFUL!!! I'm so excited for your good news -- and no new allergies, too! A good day, indeed.....

Joanna

0

Share this post


Link to post
Share on other sites

Hey celiac3270!

That is amazing news!!! I had a really rough day today so hearing some good news lifted my spirits a bit!!! I am so happy for you!

One day at a time, and slowly but surely the gluten-free diet will heal your body.....

Karen

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,666
    • Total Posts
      921,663
  • Topics

  • Posts

    • I just now saw the second reply and I see what you mean. Again, the issue is that I may have to go with the gluten until close to the end of the year.

      However, an idea did just come to mind, and that is, can my primary care doctor do such a test? I had normal blood work done, but they didn't really say anything about testing for celiacs. I can get an appointment with my primary care doctor much sooner than a GI.

      When I was talking to my PCP last, I asked her what I should expect as far as testing goes or what she may have been concerned about. Her reply was about a HIDA scan for the gallbladder but also any test needed in case of IBS or Celiacs. Just the way she threw that in there like an after thought and left me hanging kinda had me worried.
    • I am not a doctor that's for sure.  So, I can't even answer your questions.  If you know you have pre-diabetes, you probably are working with a doctor.  Can you email them and ask for a celiac blood panel?   You can work on the weight loss and diabetes -- that you can handle yourself now and take action.  I have diabetes and my glucose readings are fairly normal now without medication and I'm thin.  Being overweight does not cause diabetes.  It's either autoimmune (type 1) or you become insulin resistant (type 2).  You can cut out all sugar and  processed stuff ASAP to help take action and start walking 10,000 steps (helps with the insulin resistance).    But the prediabetes is not going to kill you in the next year.  Whatever's in your gut is more likely going to get you much sooner.  But heck, I'm not a doctor and I don't even know you!    
    • Hi Steph, Yes, celiac disease can cause a myriad of symptoms and damage to the body,  Have you completed all celiac disease testing?  Usually they do the blood antibodies test first and then do an endoscopy.   You shouldn't go gluten-free until all testing is completed. Gluten is in many processed foods.  But if you stick with whole foods it is not hard to avoid gluten.  Getting used to eating gluten-free may take some time, as we need to adjust our preferences in diet.  But there are many foods that are naturally gluten-free.  Gluten is the protein found in wheat, rye and barley.  Some celiac disease organizations recommend avoiding oats also for the first 18 months of the gluten-free diet. Celiac disease impairs the ability of the body to absorb nutrients (including vitamins).  That can make it hard for the body to maintain itself and heal/repair damage.  So celiac can easily impact any part of the body. Sardines, tuna, mackeral and salmon have good amounts of vitamin D in them.  There are supplements available also, but not all are good.  You can check them at the labdoor website.  Nature Made is a good one and not expensive.  Internal damage from celiac can cause liver issues.  Those will probably clear up after being on the gluten-free diet a while. Recovery from celiac can take  months, and can be a rocky road.  The more you stick with whole foods and avoid cross-contamination issues the sooner you will heal IMHO. You may find that dairy causes problems for your digestion at first.  But it make stop being a problem after you have healed up some. welcome to the forum!
    • Will this be dangerous considering how long I have to wait for any testing? I may not even get a blood test in November but here is hoping. I just worry having to wait so long will cause serious issues, not to mention delay of weight loss which I need for the pre-diabetes. Do ulcers have a chance to cause yellow stools though? I suppose a stool test will be needed for that for any signs of blood in stools but visually it does not seem so. The biggest issue is not knowing what else could be causing the yellow stools as this would not be a diabetic or ulcer thing. And without negative signs on the gallbladder or liver, it is narrowing down the list.

      At the very least this is making me assume I can wait on a final scan of gallbladder and attempt blood tests and endoscopy if they recommend it.
    • The first step is getting a celiac blood panel.   Any medical doctor can order one.  Live near Chicago?  They are do free screenings this month (check their website).  The cost is less than $400 for the complete panel.  If you get a positive on any one of them, then you should be referred to a GI for an endoscopy to obtain intestinal biopsies.   Here's more information from a reliable source and not just some lady on the internet: http://www.cureceliacdisease.org/screening/ Having had my gallbladder removed (probably ruined from undiagnosed celiac disease, but I don't know that for sure), I would recommend a HIDA scan.  I have no idea how expensive that one is.  It's a nuclear test that checks for functionality.  Basically, is your gallbladder squeezing bile into your small intestines when those fries or bacon come down the tube.  Mine happened to actually be rotting (infected).  ER suspected appendicitis, but it was a rotten gallbladder.  I never had any stones (that's what the CT or the ultrasound can find).  I am sorry that you are ill.  Keep eating gluten until all testing is complete.  This is important.  Go gluten free now?  Here's why you shouldn't..... http://theceliacmd.com/2013/04/six-reasons-to-test-for-celiac-disease-before-starting-a-gluten-free-diet/  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,663
    • Most Online
      3,093

    Newest Member
    Steph0903
    Joined