Posted 07 September 2004 - 01:43 AM
Husband misdiagnosed for 27 yrs -
The misdiagnosis was: IBS or colitis
Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,
most prestigious medical groups in northern NJ which constantly advertises themselves as
being the "best." This GI told him it was "all in his head."
Serious Depressive state ensued
Finally Diagnosed with celiac disease in 2003
Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.
Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle
Developed neuropathy in 2005
Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003
Posted 07 September 2004 - 03:40 PM
Diagnosed with Celiac Disease in March 2004
Postitive tTg Blood Test, December 2003
Positive Biopsy, March 3, 2004
Posted 07 September 2004 - 08:55 PM
You are in my prayers. Monday just can't come soon enough! Looking forward to hearing what comes from your endoscopy. I know that you need answers and I hope that you get them. But most of all I hope that you are able to feel better soon. You are a great inspiration to so many of us here and I'm sure we all agree that it will be great for you to be pain free and symptom free. Look at all that you have accomplished while suffering. Imagine what you will be able to do when you are completely healthy!
Let us know how it goes. You too Stacie! Good luck to you on the 14th!
Mariann, gluten intolerant and mother of 3 gluten intolerant children
Posted 08 September 2004 - 06:17 AM
gluten-free since March 27, 2004
Posted 08 September 2004 - 09:53 AM
Posted 08 September 2004 - 03:51 PM
Posted 10 September 2004 - 04:29 PM
Oh, the reason I posted. I found out that the biopsy is at 11:30. I need to be at the hospital by 9:30 and no food after midnight before the endo....then clear liquids including water and apple juice are allowed until 7:30. So, that's the time slot now. I got assignments from my teachers for Monday cause I don't want to have to make up a lot of work or call people and do work after the endo. I want to get all my stuff done this weekend so that Monday I can just lie around and relax and post..... when I finish. I'll post when I get home. Thanks again for your support.
Posted 10 September 2004 - 06:21 PM
I wish I knew if there were other Celiacs on my campus.
Posted 10 September 2004 - 07:20 PM
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Posted 10 September 2004 - 08:20 PM
It's good to read about you getting back into "the swing of things". I have a feeling that you thrive on learning!!!
Thinking of you and wishing you luck on Monday......
positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)
Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.
Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......
"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
Orison Swett Marden
Laughter is the shortest distance between two people.
-- Victor Borge
"An optimist laughs to forget. A pessimist forgets to laugh."
"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."
Posted 11 September 2004 - 06:55 AM
I'll be thinking about you!
Posted 11 September 2004 - 07:39 AM
The Lord bless you and keep you; the Lord make His face shine upon you and be gracious to you." Numbers 6:24-25
Posted 11 September 2004 - 06:26 PM
Posted 12 September 2004 - 08:22 PM
Posted 13 September 2004 - 03:33 AM
Anyway....it's the big day .....I'll post when I get home, whatever -- unless the internet messes up on me, again.....
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