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Celiac3270's Endo


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#31 celiac3270

 
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Posted 13 September 2004 - 01:04 PM

Hi,
The endo. ended a few hours ago, but I couldn't get on here until now to tell you. As I said, I had been having trouble with my internet connection. In my first endo, the doctor only took "one biopsy" of the intestines. This time I had a lot more samples taken....the doctor said that he took a few extra samples to check for any problems with lactose.

Obviously, it'll take awhile to get the official results of everything and get the testing of the samples done, but based on what he could see, the doctor said that the intestines were smooth without any "scallop marks". My stomach, however, looked red and irritated (red spots all over the inside of my stomach. We'll try to find out what's causing that irritation. There are no ulcers and nothing wrong in terms of appearance (besides redness and irritation in stomach).

I didn't feel that well coming out of it. Because it was a longer endoscopy, the nurse said that I probably got a lot of air into my stomach and therefore, abdominal pains, gas, and bloating would be perfectly normal. Additionally, I could experience nausea from the anysthesia. I have been nauseaous since I woke up and have had abdominal pains. The doctor actually thinks that the abdominal pains may be due to gas based on how I described them feeling, where they're located, and how I cope. Rocking back and forth dislodges the gas, curling over or putting a pillow over my gut are both methods of kind of squeezing it and therefore, pushing out the gas, and when it gets really bad, I often extend my bottom up into the air (sorry to get so detailed :D ), which the doctor said is the easiest way to get gas out. Anyway, it was a very imformative day, though I'm feeling the effects of the endo.. Last time I had no nausea, pains, vomiting, or anything and could have even gone for a run or something after. This time I didn't feel that good and it turned out that I had to wait three hours after getting to the hospital, so I ended up starting at 11:30, anyway, even though I arrived an hour earlier as they had directed due to someone else cancelling.

Oh, the doctor said that when the villi don't heal completely due to length of time with celiac disease and without treatment, sometimes the enzymes are damaged, as well....I can't explain it very well, but it could be that my intestines can't handle.....say, sugar...so he's going to find out about that when he reviews all the stuff......(you can't see the villi while doing the endo.)..........

Anyway, thank you for your support. I'll let you know when I get the official results back and until then, I think I'll just try to rest up and feel better.

-celiac3270
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#32 gf4life

 
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Posted 13 September 2004 - 01:23 PM

Hi celiac3270.

Thanks so much for the update. I sure hope you start feeling better soon, you should feel back to "normal" by tomorrow, but your "normal" has not been that great. We all want to see you feeling great. Certainly something is causing the irritation in your stomach. Hopefully the doctor can help you figure out what it is.

Get some rest and feel better.

God bless,
Mariann
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~West Coast-Central California~

Mariann, gluten intolerant and mother of 3 gluten intolerant children

#33 Canadian Karen

 
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Posted 13 September 2004 - 01:29 PM

Hi celiac3270,

Thought about you today at work, hoping all was well.....

I know results won't be for awhile, but I am glad you have it over with.....

Karen
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Karen

positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
Orison Swett Marden


Laughter is the shortest distance between two people.
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"An optimist laughs to forget. A pessimist forgets to laugh."
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"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."
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#34 Guest_jhmom_*

 
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Posted 13 September 2004 - 01:41 PM

celiac3270, I thought of you today too. I am sure you are glad that's all over with, now you just gotta wait on the results which sometimes can be the hardest part.

Take care of yourself and feel better!
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#35 MySuicidalTurtle

 
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Posted 13 September 2004 - 03:30 PM

Awww, celiac3270!

I am glad it is over with and maybe you will start feeling betterfrom the procedure.
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#36 celiac3270

 
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Posted 13 September 2004 - 05:07 PM

Thank you :D ....just vomited, but cramping and nausea are now gone....it's 9:06 and I have to go study for two tests.....thanks
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#37 plantime

 
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Posted 13 September 2004 - 08:25 PM

Hey, celiac3270. Just take it easy and rest now. Let us know what the results are.
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Dessa

The Lord bless you and keep you; the Lord make His face shine upon you and be gracious to you." Numbers 6:24-25

#38 kalo

 
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Posted 13 September 2004 - 09:56 PM

Hi celiac3270. I'm glad it's over as well. will be interesting to see what they find out. Never heard of just red spots all over the stomache. As one who had the stomache flue comming out both ends 24/7 for 3 weeks at a time every year growing up I DO HOPE you'll FEEL BETTER SOON!!!!!!!!!!!!!!!!!! ;)
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Hugs, Carol B Enterolab diagnosed gluten sensitive and casein allergic June 04

#39 celiac3270

 
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Posted 20 September 2004 - 04:31 PM

Thanks, everyone. I got my results! And I haven't been sick since the biopsy and that was from the anysthesia (yay! knock-on-wood). The doctor just called and said that:

- The villi are looking good! :D Healed and grown back

- No additional intolerances or allergies. :D

- Stay away from complex sugars and tomato sauce just to be safe, since I've been doing better without them.

- No ulcers

- No cyclic vomiting, cause the symptoms had been coming every few days instead of once a week -- very good.

- It's just a matter of a little more time. It's like a car at a high speed. The gluten-free diet puts the brakes on, but it still takes a little while to stop completely. I'm finally coming to that stop.

- The gluten-free DIET IS WORKING!


-celiac3270
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#40 Guest_barbara3675_*

 
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Posted 20 September 2004 - 05:22 PM

Just couldn't resist a chance to talk with the famous celiac3270. My name is Barbara and I have been lurking around the boards for a few weeks now. I just did the complete Enterolab thing today and sent it off. I have been eating gluten-free for about 6 weeks now and am just now thinking it is working. I had such tummy tenderness and pains in my stomach at times and that is just now going away. I have a granddaughter that is six who has confirmed celiac disease....she was so sick when she was one and just a healthy little specimen now. Her folks are very vigilant about what she eats and she is so brilliant about it too. Her mom is the one who suggested that I might go gluten-free and be tested because of some of the problems that I am having. I did have a blood test at the doctor's office which came back negative, but I certainly don't trust that. I have a son with ADD and I have fibromyalgia and I am convinced that there can be a connection between the two. I also think I may have a lactose intolerance as well as a gluten intolerance. I just don't want to get celiac disease so I think I will eat gluten-free to prevent that. I anxiously await the results of the Enterolab test....I bought the good one with the gene tests too.....hope I am not a sap. I did hear of a lot of people on these boards that used that lab before I went ahead and used them. I am the cook in our own restaurant which presents it's own challenges, but now I don't do any "picking" because all that food is "tainted"!!!!!!!! I do have some fries, occasionally, the day the oil is changed and before anything else is cooked in it....for a little treat. And here is the best thing, I am losing weight. My body really seems to like this way of eating. Before I was such a carboholic and now I just don't crave food that much....I am so much better in control of my eating habits and eating healthier. Best wishes to you, celiac3270, on your testing. I will keep up with you and this board. I am 59 years old and they say that fibro and gluten intolerance can set in during these years....Barbara
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#41 tarnalberry

 
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Posted 20 September 2004 - 06:15 PM

congrats on the fabulous results! :-)
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Tiffany aka "Have I Mentioned Chocolate Lately?"
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Bellevue, WA

#42 ryebaby0

 
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Posted 20 September 2004 - 06:47 PM

Wow! That's WONDERFUL!!! I'm so excited for your good news -- and no new allergies, too! A good day, indeed.....

Joanna
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Mom/wife to celiacs dx 12/03 and 12/04


Success is never final and failure never fatal. It's courage that counts -George Tilton

#43 Canadian Karen

 
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Posted 20 September 2004 - 07:19 PM

Hey celiac3270!

That is amazing news!!! I had a really rough day today so hearing some good news lifted my spirits a bit!!! I am so happy for you!

One day at a time, and slowly but surely the gluten-free diet will heal your body.....

Karen
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Karen

positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
Orison Swett Marden


Laughter is the shortest distance between two people.
-- Victor Borge



"An optimist laughs to forget. A pessimist forgets to laugh."
Tom Nansbury


"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."
Unknown




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