Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Enthusiasm, What Do You Do To Keep It Going?
0

9 posts in this topic

I am not a person to sit around and have pitty parties. I look at problems head on and deal with the new challenges. I've been gluten-free for 10 weeks and although this has been a lifestyle change, I'm adjusting well. I am given a dose of enthusiasm every day with I move and my joints don't hurt, when my mental fog feels lifted and when I see my energy level rise.

I am 47 years old and have been sick for 15 years. I have waxed and wained for about 10 years with periods as long as 6 months at a time that I feel better. Usually something would attack my immune system and it would take me 6 months to get back on my feet.

When I was dx with celiac in June it was a light bulb moment. So many symptoms all came together and once starting the diet I could not believe my improvement. Am I ready to run a marathon? Maybe not right now ...

Although each day may not be as bright and sunny as the one before, or days with a hormone change might bring a little more pain, . BUT I know I am a lot healthier than I was 2 months ago and that gives me strenght.

What brings you enthusiasm?

What keeps you motivated?

I'm really like to know.

Melissa

0

Share this post


Link to post
Share on other sites


Ads by Google:
What brings you enthusiasm?

What keeps you motivated?

I'm really like to know.

Motivation

- Generally, doing what's best for my health

- My desire to feel normal again (and know what normal feels like)

- Wanting to put on a 10-20 pounds (way down on the list below not getting sick, but still a goal)

Enthusiasm

- Trying a new and delicious gluten-free food

- Posting -- makes me feel like I have support from others, control over this diet, and increases my knowledge of the disease. Also gives me ideas.

0

Share this post


Link to post
Share on other sites

I was just sort of thinking about this and I guess doing what's right for your health isn't all that much about motivation -- a lot of it is just....doing it cause it's that or purposely messing up your body....I mean, my motivation for being as much of a paranoid nutcase about gluten is to feel better, but I think whether or not you have motivation, it's something you have to do anyway.........I am starting to doubt if this makes sense, but I'll post it anyway, in case it does :D

0

Share this post


Link to post
Share on other sites

For me, it's all about feeling well so I can go out and live the way I want to, not being limited by my body. Want to try something new? If you're not feeling well, you're not likely to get up the motivation, and then, at the end of it all, you've got a lot of sitting around on the couch and not trying things you like.

I'm enthusiastic about finding new - and fast - things to cook that taste so good you don't care they're gluten-free, and nor do your friends.

0

Share this post


Link to post
Share on other sites

I have been gluten-free for 13 years. I have times of struggles, but it is not worth it to ever not be gluten-free!! I just always remember how it feels to be sick and then the pizza, doughnuts, cookies that everyone else is eating are not tempting at all!

0

Share this post


Link to post
Share on other sites




It seems like coin-op thinks he has it all figured out. If that is the case than why is he subscribing to this forum? This forum is here to help support each other, not try to prove that one person's diet is better than some one else

0

Share this post


Link to post
Share on other sites

Melissa--

What keeps me motivated are caring people such as the members of this message board, family, and friends. Surround yourself with people who care about you because they respect you for who you are. Have patience with others, because there are numerous people who do not understand the impact this disease has. Persevere--don't give up on the positive aspects of your life.

Best Wishes,

0

Share this post


Link to post
Share on other sites

What keeps me motivated the most above anything else is knowing that one day I will be symptom free for the rest of my life! Now that would be wonderful! I've been sick for so long I forget what it feels like to be healthy.

coin-op,

I'm glad that you feel healthy and found a diet that works for you! Many people, like myself, would love to feel healthy like you do!

But people like me (and I'm sure there are many others on this board) have been gluten free for a long time now and are still struggling. Food is a daily struggle for me. Even plain blah foods like plain rice and bananas will make me sick. Unfortunately, I now have to rely on medication to lessen my symptoms.

Anyway, I don't want to bore you....... I just want you to understand.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,091
    • Total Posts
      920,310
  • Topics

  • Posts

    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
    • Thanks for sharing with me.  I really appreciate it.  Honestly, after a glutening last summer (still do not know what glutened me), I did not eat out for a year!  The risk was too great as my healing time took 3 months (for symptoms to subside) and six months to regain lost weight.  Our recent vacation to Europe was worth the risk  as we traveled with our entire extended family, but we were extra cautious and ate only at celiac-approved places.  Otherwise, we "dined" at markets or ate the food we brought from home.  Thankfully, we did not get glutened (at least we don't think so!)  
    • I do not struggle with this and I was brought up the same way as you. I don't struggle because for many years off & on we didn't have a bathtub, only showers as well as this being therapy or medicinal for the skin - heck even for the muscles as I age. I figure I've earned my right to luxuriate or medicate with baths any time I've a mind to. My husband saw just how bad my dh got & NEVER begrudges me a nice long soak in the big soaking tub we now have.
    • Hi, No, I do not have celiac  disease. I have an ankylosing spondylitis which is an auto-immune disease provoking an inflammation of the joints. Under the advice and supervision of my doctor and the professor at the hospital I follow a gluten free & casein free diet, which is extremely successful in preventing inflammatory events. And I've been doing so, strictly, for more than 6 years. So I'm not Celiac, but I can tell you that I react strongly every time I take gluten even in small amounts. Even soya sauce, which according to this website has an almost zero dose of gluten, is a lot too much for me. Nevertheless I allow myself to eat food which has been processed in a factory which processes gluten. To conclude, I would say that when you are travelling, especially in a country where celiac disease is scarcely known, you should be twice as careful as when you're going out at home. In the end you can never guarantee that the cook has cleaned his pan after using soya sauce and so on... You can only bet
    • Along those lines, many Americans are now pursuing gluten-free eating. Gluten ... Diagnosis of celiac disease typically requires a history and physical ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,121
    • Most Online
      1,763

    Newest Member
    Sambud
    Joined