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Skinny?
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Do alot of people if they still eat gluten while having the disease stay skinny? If so, how come? or why not? I'm just curious.

I'm still not doing well not eating gluten.... =/

I do have other questions like does it disrupt sleeping and like could it make you depressed?

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"Do alot of people if they still eat gluten while having the disease stay skinny?"

I was very thin while eating gluten, skin and bones most of my body but with a hard, round tummy and looking pregnant in my mid section. I've always been very small but don't think that I've actively had Celiac Disease my whole life. My weight and body frame might just be genetic because I have exactly the same body type as my mom. Her celiac disease was activated later in life as far as I can tell. I was starting to gain weight when my celiac disease was at its worst but overall was still very thin compared to most people. I'm sure there's someone here who can explain why.

"If so, how come? or why not? I'm just curious."

"I'm still not doing well not eating gluten.... =/"

"I do have other questions like does it disrupt sleeping and like could it make you depressed?"

It absolutely can make you depressed. Many here have experienced that as well as myself. I still get a little depressed sometimes but it's NOTHING like it used to be and getting better the longer I'm gluten-free.

How long have you been gluten-free? The healing process takes time. Hang in there.

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A lot of celiacs are underweight due to malabsorption. When your intestines are too damaged to absorb the food, it literally...runs right through you! :lol:

And yes, aside from the obvious gastro symptoms, it can make you feel depressed, fatigued, anxious, disrupt sleep...the list could go on forever.

Courtney

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yeah i am really skinny i am 5'9" and less than 100 pounds.

they did research at stanford that says that even there are some celiacs who are completely healed still do not absorb completely and do not gain weight.

so yes your answer to both your questions is yes.

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many celiacs who are eating gluten (either because they are not yet diagnosed or because they opt not to follow the diet) do not absorb the food they eat, and are malnourished, and hence cannot maintain a healthy weight.

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Do alot of people if they still eat gluten while having the disease stay skinny? If so, how come? or why not? I'm just curious.
Nutrients, fats, and vitamins cannot be absored as well when someone with celiac disease is not on a gluten-free diet; therefore, weight loss may occur.

I'm still not doing well not eating gluten....
Sometimes people need several months on the diet to notice improvements.

I do have other questions like does it disrupt sleeping and like could it make you depressed?

Gluten can cause fatigue, insomnia, and depression.

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i'm still super skinny...it's something we have to deal with. it's depressing enough to not eat like your friends...but when i was in 3rd grade boys made fun of my food. that's NOT nice. and so of course you get depressed every now and then. but you gotta handle yourself...sometimes i think it's either my genetics or somthin but i will be really hyper 1 second. and really depressed the next. and i always have done that my parents think it's genetics but i think it's this stupid food disorder! are you guys all with me that it really sucks to have this disease? i HATE it! i have had it since i was two. i dunno alot of stuff about it yet really i mean i do...but..well i dont wanna like find the cure for it or somthing. they are supposed to be comming out with a pill 4 us(but it's gotta take forever) and i got my handbook thing now so i'm excited!! because it tells me all these foods i can have and stuff. so tell me if you are wondering on anything cuz i can look it up. if you need to know right now! i'm always available on my cell...just say it's a fellow celiac and wanted to know about something i would be glad to elp 2019201

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Once I began the gluten-free diet, gradually my weight loss began to level off. I haven't gained any of it back, I've stayed at the same weight for almost two years now. I was still eating gluten, I would start losing weight again.

It's different for everyone, though. Some folks just don't lose the weight. Some even gain it. If you're losing weight and skinny, it's due to malabsorption. It takes 6 months to a year before your intestines heal and be able to asborb right again. As Molly said, some still can't absorb right.

From what I seen on the board, quite a few people deal with depression and loss of sleep if they're taking in gluten. I know I sure would.

Hope this helps,

-Ash

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Thank yall! That helped a lot. I dunno I mess up and eat gluten alot and I usually dont sleep well and feel depressed and I was wondering if thats why. It's really hard for me to not give in.

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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