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Dermatisis Herpetiformis (dh)

stomper

By stomper
in Dermatitis Herpetiformis

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stomper Newbie
stomper
Posted

I need to hear from anyone who has controlled their DH. I have only been gluten free for a month now as that was when I was diagnoised with DH and Celiac, but feel so much better except for the DH. It is still bad especially on my elbows. Red, sore, spots that open and sting with almost any cream I have tried. Any suggestions for help?

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tarnalberry Community Regular
tarnalberry
Posted

until the dh is healed, try eliminating sources of iodine from your diet (iodized salt, seafood, etc - google can help find the list). iodine is necessary for forming the IgA deposits in the skin that make dh what it is. it may take a number of months for the deposits to clear and healt.

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MGoers37 Rookie
MGoers37
Posted
I need to hear from anyone who has controlled their DH. I have only been gluten free for a month now as that was when I was diagnoised with DH and Celiac, but feel so much better except for the DH. It is still bad especially on my elbows. Red, sore, spots that open and sting with almost any cream I have tried. Any suggestions for help?

My Dermatologist told me to consult a nutritionist about the gluten free diet as there are a lot of products that contain gluten that you would never think of.You may not be completely gluten free. I've been somewhat on a gluten "reduced" diet for about a month now and i don't get any relief from these bumps. As with eliminating iodine from your diet, it is a viable solution since it effectively eliminates a part necessary for forming the bumps on your skin, but i've read you should consult your doctor before trying to eliminate iodine from your diet as your body needs it for something or other.

hope that helped

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Guest Hydra
Guest Hydra
Posted

I am new to this too and have been dx'd with DH and pending Celiac test. Aloe seems to work to control it but not completely yet. Straight aloe right from the plant, not store bought.

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lovegrov Collaborator
lovegrov
Posted

If it's really bad I'd talk to my doctor about using dapsone for a while.

richard

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almostnrn Explorer
almostnrn
Posted

I know this sounds silly but this was my award winning combo to help a bad outbreak. I originally figured out that it helped after my first biopsy. I was told to use straight vaseline on the biopsy spot and when I did I noticed that it was clearing up my elbow. I then started smearing vaseline anywhere I had an outbreak. Depending on how bad it was I would do it several times a day if I could get away with it. If I am really itchy I use benadryl spray first let it dry and then slime up with the vaseline. Maybe this will help those nasty little spots heal up for you!

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