Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Could Positive Blood Test Be Wrong
0

5 posts in this topic

Hi

My daughters blood test came back positive she goes for her biopsy on the 29th of this month. I took Ronni to the doctors because she was always sick. Well ronni hasnt had diarrhea or vomiting this month she still hasn't gained any weight and shes not gluten-free. I was just wondering could the blood test be wrong? maybe this is just wishful thinking.

Hillary

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hillary,

As I understand it, it is common for symptoms of celiac disease to come and go. I believe the blood tests typically do NOT produce false positive results--though false negatives are another story entirely. I totally understand your wish, however! I hope your daughter's biopsy conclusively proves the diagnosis, so you can move beyond the doubt you are understandably experiencing right now and put her on a gluten-free diet with a clear conscience. Good luck to you both as you prepare for the biopsy!

0

Share this post


Link to post
Share on other sites

Thanks Sarah, I'm sitting here at work in tears. I just hope I can do everthing right so my daughter is healthy. I know I will have more questions after the 29th.

Thanks Again,

Hillary

0

Share this post


Link to post
Share on other sites

Give that girl a big hug and tell her that the biopsy will be fine!! We just got through it with our two year old! He did great!

Don't be suprised if the result of the bipsy is negative.. I would trust the blood tests thought because your body does not just randomly make antibodies!

I am going to have to probably fight to get a blood test because my doc went straight to the biopsy!!!

0

Share this post


Link to post
Share on other sites

Hi,

Ronni had her biopsy yesterday. Before her biopsy Ronni's doctor explained to me that it was thought that celiac disease affected the intestines but they have come to learn it affects the stomach as well so she was going to do a biopsy of her stomach to. After the biopsy her doctor told me her stomach had some inflamation you can imagine how upset that made me then she tells me her intestines are twisted may need surgery to repair. I asked if I should start her on a Gluten free diet and she told me not yet. Im writing this and I know it probably doesnt make any sense, anyway has anyone ever heard of celiac affecting the stomach and why would I be told not to put her on a gluten free diet?

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,631
    • Total Posts
      918,407
  • Topics

  • Posts

    • No gluten allergy because I don't have classic symptoms of celiac
      I've been strictly gluten free for four years. Three years I went off other grains such as rice which tested very high . I have one of the genes. My mother has Celiac and I had an endoscopy for reflux and the took biopsies and Doctor said " You Do Not Have Celiac" . This is the office that said just eat a cracker before the endoscopy and it will show up if you have it. I did not eat that one cracker LOL  I don't have "typical" celiac symptoms and have tested positive for multiple food sensitivities. Having those tests done helped enormously. One   one accidental exposure last fall which gave me my first case of Dermatitis Herpetiformis which left scars )  does indicate Celiac . I'm really rattled because endoscopy for reflux said I have reflux and chronic gastritis ( and I did not know that already?) I've done so much research I have books ! and watched my mother suffer so much and this just flies in my face. So you need to trust your gut most of all( or your symptoms)  I honestly did not expect him to find anything at all but to be told with absolute certainty I do not have celiac and don't need to worry  feels nutty to me .   Next time I get the rash( I hope I don't) I will get a biopsy . 
      "Dermatitis herpetiformis, also known as DH and Duhring’s disease, is a skin manifestation of celiac disease. Extremely itchy bumps or blisters appear on both sides of the body, most often on the forearms near the elbows, as well as on knees and buttocks"
    • A good diet for avoiding type 2 diabetes
      Hey, I am a member of that forum (not very active though).  But that's exactly how I eat.  They base their diet on this site: http://www.phlaunt.com/diabetes/ A year after my celiac disease diagnosis, my GP tells me that I am prediabetic via an email.  Instructs me to improve my diet and exercise more.  What?  I exercise more that most my age.  I run, swim, bike and teach a few exercise classes.  Change my diet?  I am gluten free.  I can not give up my gluten-free goodies!  It was asking for too much.  But I did know about celiac disease and the connection to Type 1 diabetes and Type 2 runs in my family.  So I found Jenny's site.  It made sense and I continued to research more.  Bought a Walmart meter, started testing my foods and found that "snap" I had huge spikes!  Kept meticulous data for a month and went back to my doctor.  He agreed.  I am insulin resistant and the writing's on the wall.  How to stop or slow the progression?  A low carb high fat diet.  Within three days, my blood sugar readings were normal.  Keep tracking and went back to my doctor who was amazed.  He told me to keep doing what I had been doing -- and it's been 2-1/2 years! Here's a recent study from the University of Alabama: https://www.uab.edu/news/innovation/item/4997-low-carb-diet-recommended-for-diabetics Sometimes you just have to take things into your own hands.  If I had just cut down on sugar, I 'd be on drugs and insulin and struggling to keep my feet from being amputated.  That's an exaggeration (not really), but really who cares if my foot gets chopped off?  My doctor?  He's nice, but pretty busy.  No, it's all on me!   Guess what?  I am happy on my diet.  I was addicted to sugar.  What's the biggest thing to change in our diet over the last 100 years?  Sugar.  It's in everything!  California just released a study stating over 50% of all Californians are prediabetic or have diabetes and most don't even know they have it (hummm....sounds like celiac disease).   http://newsroom.ucla.edu/releases/majority-of-california-adults-have-prediabetes-or-diabetes Enough of my soapbox talk......I've got to get some stuff done!  
    • healthy bread recipe?
      One month into the diet and she's probably very constipated because she HAS celiac disease.  She needs more time to heal.  Maybe six months to a year.  Why so long?  In theory, she should heal within weeks, but it takes a long time to really master the gluten free diet and learn about cross contamination and shared manufacturing lines.  Plus, consuming lots of gluten-free items right off the bat, may be contributing more to her health problems.  We had kids on this forum who did not drop their antibody levels until they eliminated processed foods.  20 parts per million may just be too much for her to handle right now. I would recommend reading our Newbie 101 section under "Coping".  It has some nice tips.  I would strongly recommend feeding her whole foods.  She can get plenty of fiber from fruit and veggies.  I do not even eat any grains at all, but that's my choice because grains spike my blood sugar just the same as cane sugar (I have diabetes too).   After she has healed, you can introduce breads and all kinds of junk food!     By then you will not remember what real bread tastes like.  Ask my non-celiac kid.  She's likes gluten-free pasta now.  She admits that she has forgotten what real pasta tastes like.  She adores all my baked-from-scratch gluten free cakes and cookies (that I can not eat! ) When I was diagnosed, my learning curve was easy.  My hubby had been gluten free for 12 years!  So, I ate like him.  Turns out that I was reacting.  Found out that because I was in the healing stage, I could not tolerate additives like Xanthan Gum (really needed to replace gluten in bread), preservatives, etc.  found in commercial breads and baking flour mixes.  I had lots of food intolerances that eventually resolved and some did not!   Okay. Villi damaged but not gone?  Is your doctor crazy?  Your daughter has celiac disease!  I strongly recommend getting her records and lab results and getting a second opinion.  She should have been diagnosed by now.  You should be looking into keeping her safe at school with a 504 plan (but a 12 she shouldn't be playing with playdough, but colleges will have to accommodate her diet and that's coming up faster than you think!)   Welcome to the forum!  I hope this helps.  
    • Received Results. Looks like not Celiac?
      If I were in your shoes, I would first test out a histamine intolerance diet before going gluten free.  Migraines and  fatigue seems to scream histamine intolerance.  It's most widely known in Europe, but it is gaining some ground here in the US.   But, I am not a doctor and I do not know you.  What I can suggest is that you do some research and continue to advocate for your health.   If you go gluten free, then it's six months.  If you had celiac disease, it would take that long to heal or longer!  It's a hard diet to follow when your results are negative, but nothing's impossible!  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,720
    • Most Online
      1,763

    Newest Member
    Fendell
    Joined