Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

What Happens After You Go Gf?


Guest memoryofaspyn

Recommended Posts

Guest memoryofaspyn

I am just wondering if after I go gluten-free what happens if you accidentally come in contact with gluten? I have heard some people say they get really sick, do you get any sicker than you would have been before going gluten-free?

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator

Yes......your body, before going gluten-free, is so used to the gluten that your reactions aren't as severe......when you go gluten-free, if you get glutened, your body would react more violently, not being used to the gluten, anymore.

Link to comment
Share on other sites
lovegrov Collaborator

Different people have different reactions. Some people react horribly to tiny amounts. Some people react about the same as before the diet. Some people are actually less sensitive. And some people, like me, barely react or don't react at all.

richard

Link to comment
Share on other sites
Mydnyt Newbie

Something to do with the amount of time since you've been gluten-free?

One of the girls I know is intolerant, but once in a while (ie. 8 months or so) she'll have some pizza or pasta or something while out with friends with minimal side effects. But if she does it a couple of times it hits her big time

Link to comment
Share on other sites
tarnalberry Community Regular

I think it pretty much entirely varies by individual, and no one can answer that question for you... I seem to have gotten a bit more sensitive, but was never terribly sensitive to begin with.

Link to comment
Share on other sites
  • 3 weeks later...
kabowman Explorer

I was just pondering this and thought I remember seeing - therefore, I decided to add my 2 cents.

Since discovering all of my intollerances and then accidentally ingesting something I know I cannot eat, I am so sick. However, I can't decide if I am reacting the same way I did before the restricted diet (no gluten, milk/casien, corn, soy bean, and corn) because I was sick all the time and it just felt normal or if my reactions are actually getting worse.

Even minute amounts kill me and I am sick for at least 24 hours, and it seems the larger the quantity, the longer the period of pain so I eat any new what I would consider safe food in very small quatities to wait for a reaction and if I don't have one, then I eat more just to be sure.

Just a little venting...I usually enjoy my food and life and am very thankful that I have figured this out so I can actually enjoy life again.

-Kate

Link to comment
Share on other sites
HAPPY DOG SUZ Enthusiast

:unsure: Katie

What kind of pain were you in?

I was diagnosed w/fibromyalgia now celiac. Just trying to get a connection if there is one to my pain thanks Suzanne

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kabowman Explorer

All digestive pain (along with fever, headaches, joint pain, fatigue) - the docs have checked to see if I have fibromyalgia and so far, I don't pass all 18 points. I am hoping that I don't develop the rest.

-Kate

Link to comment
Share on other sites
Guest memoryofaspyn

I get really bad leg pain (in my muscles). Before I found out I had celiac I had them test my lactic acid. 2 years ago my oldest daughter passed away from a genetic condition called mitochondrial disease, and with it she had a condition called lactic acidosis. Since this condition is genetic, it was at first thought that I to had the condition and passed it on to my daughter. I have had sever muscle aches, especially in my legs and lower back all of my life. When I asked the doctors to run the lactic acid test, that is when they decided to also test me for celiac.

I have been searching high and low to find out if my daughter may have also had celiac, she was 8 months old when she passed away, and she only weighed 11 lbs, but with Mitochondrial disease it is common for children not to gain weight, but I am wondering since I was nursing and didnt know I had celiac, was she getting all the nutrition she needed? Did my celiac add to her already severe condition and make it worse? Sorry about the rambling, but I am searching for answers, I miss her terribly, and want to know all I can. we have another baby now who has a 1 in 4 chance of having the same condition, and I want to make sure we are doing everything we can to make sure she will be fine. if anyone is interested you can visit my daughter Aspyn's website at www.aspynblock.com

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,090
    • Most Online (within 30 mins)
      7,748

    Nicole K
    Newest Member
    Nicole K
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi @trents Just seen this - Boot's is a chain of pharmacies in the UK, originally founded in the 19th Century by a chap with the surname, Boot.  It's a household name here in the UK and if you say you are going to Boot's everyone knows you are off to the pharmacist! Cristiana
    • Denise I
      I am looking to find a Celiac Dietician who is affiliated with the Celiac Disease Foundation who I can set up an appointment with.  Can you possibly give some guidance on this?  Thank you!
    • Posterboy
      Nacina, Knitty Kitty has given you good advice. But I would say/add find a Fat Soluble B-1 like Benfotiamine for best results.  The kind found in most Multivitamins have a very low absorption rate. This article shows how taking a Fat Soluble B-1 can effectively help absorption by 6x to7x times. https://www.naturalmedicinejournal.com/journal/thiamine-deficiency-and-diabetic-polyneuropathy quoting from the article.... "The group ingesting benfotiamine had maximum plasma thiamine levels that were 6.7 times higher than the group ingesting thiamine mononitrate.32" Also, frequency is much more important than amount when it comes to B-Vitamin. These are best taken with meals because they provide the fat for better absorption. You will know your B-Vitamin is working properly when your urine becomes bright yellow all the time. This may take two or three months to achieve this.......maybe even longer depending on how low he/you are. The Yellow color is from excess Riboflavin bypassing the Kidneys....... Don't stop them until when 2x a day with meals they start producing a bright yellow urine with in 2 or 3 hours after the ingesting the B-Complex...... You will be able to see the color of your urine change as the hours go by and bounce back up after you take them in the evening. When this happens quickly......you are now bypassing all the Riboflavin that is in the supplement. The body won't absorb more than it needs! This can be taken as a "proxy" for your other B-Vitamin levels (if taken a B-Complex) ...... at least at a quick and dirty level......this will only be so for the B-1 Thiamine levels if you are taking the Fat Soluble forms with the Magnesium as Knitty Kitty mentioned. Magnesium is a Co-Factor is a Co-factor for both Thiamine and Vitamin D and your sons levels won't improve unless he also takes Magnesium with his Thiamine and B-Complex. You will notice his energy levels really pick up.  His sleeping will improve and his muscle cramps will get better from the Magnesium! Here is nice blog post that can help you Thiamine and it's many benefits. I hope this is helpful but it is not medical advice God speed on your son's continued journey I used to be him. There is hope! 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,  
    • trents
      I'll answer your second question first. The single best antibody test for monitoring celiac blood antibody levels is the tTG-IGA and it is very cost effective. For this reason, it is the most popular and often the only test ordered by physicians when checking for celiac disease. There are some people who actually do have celiac disease who will score negatives on this test anyway because of anomalies in their immune system but your wife is not one of them. So for her, the tTG-IGA should be sufficient. It is highly sensitive and highly specific for celiac disease. If your wife gets serious about eating gluten free and stays on a gluten free diet for the duration, she should experience healing in her villous lining, normalization in her antibody numbers and avoid reaching a celiac health crisis tipping point. I am attaching an article that will provide guidance for getting serious about gluten free living. It really is an advantage if all wheat products are taken out of the house and other household members adopt gluten free eating in order to avoid cross contamination and mistakes.  
    • Anmol
      Thanks this is helpful. Couple of follow -ups- that critical point till it stays silent is age dependent or dependent on continuing to eat gluten. In other words if she is on gluten-free diet can she stay on silent celiac disease forever?    what are the most cost effective yet efficient test to track the inflammation/antibodies and see if gluten-free is working . 
×
×
  • Create New...