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Itching


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19 replies to this topic

#1 wowzer

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Posted 28 January 2007 - 08:02 PM

I have been gluten free since the beginning of the year. I've always tended to have dry skin for as long as I can remember. I keep trying different soap, body wash, shampoo. It just seems like everything makes me itch. I have definitely had some benefits from this diet. At least the female area stopped itching. I was wondering if anyone had any ideas? I'm kind of at a loss. Wendy
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#2 MGP2345

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Posted 11 February 2007 - 05:15 PM

I have been gluten free since the beginning of the year. I've always tended to have dry skin for as long as I can remember. I keep trying different soap, body wash, shampoo. It just seems like everything makes me itch. I have definitely had some benefits from this diet. At least the female area stopped itching. I was wondering if anyone had any ideas? I'm kind of at a loss. Wendy


I've been diagnosed with Celiac & DH since October, 2005. Your description describes where I was with my case some 6 years ago. The itching would go and come--disappearing for months at a time. My doctor(s) initially thought I was have a reaction to something in my environment. I also developed severe acne on my face, which was wild because I never had acne as a teenager. Then I was told I had Rosacea. I eventually started have patches break out in different places: both elbows, both ears, and especially my female area. After about 4 years I started experiencing a fiery, blistery rash in a circular patch on the outside of my thigh. The itching became so horrific at times I thought I'd go mad--scratching until I bled. At other times it was just a constant irritation. The patches would show up for months at a time and then completely disappear. The outbreak areas were not always constant and of course the severity fluctuated. I was treated for 2 years by a dermatologist before I was diagnosed with Celiac. After the Celiac diagnosis the dermatologist finally tested me for DH. Once I started with the gluten-free diet all of the break out area improved. However, after being gluten-free from 6 months, I started having additional area of breakout. the spots are usually now all over my face, my elbows and sprinkled all over my back. I've been on Dapsone for short spurts (less than a month) three times in the past 16 months. I've always had quick respose to Dapsone with my spots usually disappearing within a few days.
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#3 flowergirl

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Posted 11 February 2007 - 05:56 PM

Wowser, I had the DH terrible itching that MGP discribed a few yrs ago. It was horrible but it went away when I changed a few things in my lifestyle. Didn't know anything about Celiac then. A month after going gluten-free I started to get dry skin again. Especially on my legs. I increased my intake of flaxseed, salmon and coconut oil and this week I've tried some coconut oil on the dry skin. It works well and gets absorbed quickly. Itches are gone. I recommed you try it. Let us know, please.

Flowergirl
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Gluten intolerant - self diagnosed 2007 (not willing to do gluten challenge) and anemic
no dairy, soy, legumes, eggs, sugar, chocolate
no baked and processed foods (also gluten-free bakery) and high GI (due to hypoglycemia)
enjoy brown rice, buckwheat, quinoa and polenta instead
neurological symptoms flare up when glutened and in times of stress
following paleo diet, lots of raw fruit and veg, omega 3 oils, nuts

I feel heathy and able to function for the first time in my life. Thank God.
Organic food gives a great advantage.
Kefir rules!

On a mission to get rid of Candida overgrowth after a stressful event dropped my immune system. On a strict anti-candida diet using herbs and natural remedies. No meds or drugs to make it worse thanks.

http://www.gilbertss...com/candida.php
http://www.candidasu...rg/candida.html

#4 wowzer

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Posted 11 February 2007 - 06:32 PM

Thank you both of you for your input. I keep trying to explain to doctors, that I think I have DH, but they don't really agree. My family doctor did give me the celiac blood panel, but it came out negative. When I think about it, I subconsciously had been avoiding gluten for a long time. I was a cookie freak, would buy a package eat one and end up throwing them away. I have had 2 biopsies in the female area. One came back eczema and the other spongiotic dermatitis. I did make an appointment with a dermatologist. I do have a little sister that was diagnosed with celiac at about a year old. I'm to the point, I don't have to have an official diagnosis. I'm so glad to find people that understand. I'm still in the learning process of how to eat. I love salmon. I have to say, that even though I've only been gluten free since the first of the year, I seem more sensitive to it. I was using a lip gloss that got me. Threw it out. I am still learning.
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#5 BRUMI1968

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Posted 12 February 2007 - 10:22 PM

I had terrible itching without a rash down my sides, above my hip bones, on my spine, and on the back of my head. BUT, I also had a horrible rough patch of skin on both ankles that itched me into submission whenever they hit the ground (i.e., sitting "Indian style"). ALL of the itching went away when I quit gluten, along with my canker sores.

Now I'm itchy again, just down my sides and on the back of my head. I feel tiny invisible bumps there. These are the places the hot shower water hits me the most, and since I keep my hands on my sides, kindof hugging myself in the shower (that sounds weird), it holds the hot water on my side, right along my rib cage. So I wonder if it's chlorine in hot water.

Could that be yours too? I'm going to the doc soon about it...I was so excited when the itching had stopped. It was profound. I still have not gotten the rough spots back.

Good luck to you.

I'll let you know if I hear anything.

Sherri
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#6 Guest_starmiller_*

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Posted 13 February 2007 - 07:34 AM

Hi. I have been itching intensely for about 4 months. My troubled spots are my hands, wrists (symmetrical) and my left ear. I have been gluten-free for 2 months and the open sores have healed, although I still have attacks that baffle me. I am so precise with my diet, eating only whole foods with no spices. Two days ago, after eating salted nuts and having a major attack, I decided to remove all salt and dairy as well. Those (I think) are the last irritants to remove that I know of. Today, even though my hands are very dry - the blisters are all dried up. I actually see an end in sight for the first time in months. Does anyone have some insight for me. Am I on the right track?! I need my hands for my job. I am a massage therapist at a major hospital and work with very sick people. I use only grape seed oil to massage with - no lotions for fear of gluten in them. Looking for help.

Starmiller
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#7 SarahCC

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Posted 25 April 2007 - 03:59 PM

I also have super dry skin and DH, I have found that Aveeno as a body wash doesn't dry me out as bad because it doesn't have soap in it. My doctor even said you can use shaving cream as a body wash. All the soap does is take the oil off of your skin, so your body wash does not have to have "soap" in it. I highly reccomend it, especially if you can find fragrance free Aveeno. Now for me it doesn't stop the itching but at least I dont have to lather my body with lotion 4-5 times a day! Good luck.
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#8 zagadka

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Posted 25 April 2007 - 08:00 PM

Now I'm itchy again, just down my sides and on the back of my head. I feel tiny invisible bumps there. These are the places the hot shower water hits me the most, and since I keep my hands on my sides, kindof hugging myself in the shower (that sounds weird), it holds the hot water on my side, right along my rib cage.


AH! me too! and i do the same thing in the shower! are yours tiny flesh colored bumps? mine are sporadic loners. i get them on my tummy and in the crack of my back on my spine and sometimes on my arms- they're SO annoying. no matter how much i scrub with my "michael jackson" glove, they don't leave.

i have a patch on the back side of my hip- they were a large cluster about 5 inches wide and 3 inches tall. several years ago i noticed it and remember thinking "what IS this and where did it come from?!" since i've been trying very hard to be gluten free, it looks like it has gone down.

for a while i thought i was having probs with wool or laundry detergent because my shoulders were SO itchy, they would get big bumps that wouldn't leave, and now they've left these very unattractive dark scars. just in time for vacation...thanks body!
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#9 zagadka

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Posted 25 April 2007 - 08:02 PM

OH!

i recommend trying Trader Joe's Midsummer's Night Cream. It's all natural and gluten free as far as i can tell on the label. I LOVE it. it's cheap, too!!!
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#10 wowzer

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Posted 25 April 2007 - 09:12 PM

Thanks for all the replies. I thought Aveeno had oats in it. Is there something they carry that doesn't? I've used Aveeno bath trying to get rid of itching only to make it worse. My dry patches are on the side of my legs and rear end.
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#11 dally099

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Posted 27 April 2007 - 06:27 AM

hi, i can totally understand, i get rashes on my back, my thighs and i get the symetrical thing going on my hands and wrists and it drives me nuts, i dont think its accuall DH but if i get glutened it acts up, i am discovering some other allergies as well, soy, and possilby dairy. i have to start looking into my soaps now as well. good luck!!
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Nadine
mom of 4 great kids - 2 diagnosed with autism and 2 typical kids (thank goodness)
all this started after my hysterectomy in March of 2006
G.F. since Feb 2007
Soy free since April 2007
Blood work was negatvie (after 2 weeks of being on the gluten-free diet)

entrolab results:
Antigliadin 9 (normal <10)
HLA-DQB1 Allele 1 - 0302
HLA-DQB2 Allele 2 - 0502
HLA-DQ 3,1 (subtype 8,5)
carrying one celiac gene and one gluten intolerant gene
nurse at entrolab figures i caught this early and dont eat gluten anymore


life is like a box of chocolates;sometimes you get stuck with the yukky coconut fillet one

#12 Born2run2

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Posted 29 April 2007 - 07:20 PM

:rolleyes: <_< I can totally relate to you. I got to itching so bad I would practically draw blood. A gluten free dairy free diet has done wonders for me. Aveeno seems to help, but I don't get the stuff with oatmeal, I get the stuff for babies. I have terribly sensitive skin. Judy
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#13 Joan (Maine)

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Posted 06 May 2007 - 05:11 PM

I'm wary of Aveeno....gluten??? Iodized salt will aggravate DH. For me dairy is also and irritant. I am hopeful that someday dairy can be back in my life after my intestines heal although I have gluten free for six months.

Vanacreme at Walmart Pharmacy is wonderfully soothing and is formulated without many irritants...no precription although they may hav to overnight order it for you....it is not expensive. If you have Dermatitis Herpetiformis, you are probably sensitive to many chemicals and cleaning products.....be careful and cautious. I am VERY careful to screen my personal care products. Always pantiliners and other products are known to be irritating to many women.

Joan
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#14 donna w-7

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Posted 26 June 2007 - 04:18 PM

I'm wary of Aveeno....gluten??? Iodized salt will aggravate DH. For me dairy is also and irritant. I am hopeful that someday dairy can be back in my life after my intestines heal although I have gluten free for six months.

Vanacreme at Walmart Pharmacy is wonderfully soothing and is formulated without many irritants...no precription although they may hav to overnight order it for you....it is not expensive. If you have Dermatitis Herpetiformis, you are probably sensitive to many chemicals and cleaning products.....be careful and cautious. I am VERY careful to screen my personal care products. Always pantiliners and other products are known to be irritating to many women.

Joan


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#15 donna w-7

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Posted 26 June 2007 - 04:20 PM

do you itch as though things are crawling under the skin? do you get white heads on your skin that go away 1-2 hours later as though they were never there? do you have severe headaches? my son is waiting on test results, i have lots of questions, do any of the celiacs have heart deformitites thank you
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