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Enterolabs
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What is the general concensus about Enterolabs? I've read through all the promo material and it seems like a far better/more reliable method to determine gluten sensitivity/intolerance/celiac disease/whatever than the biopsy methods of the last half century (and blood work of the last 2 decades??? Not sure how long this has been around...) Anyway, what I wonder about though, is the science behind the claims. Anyone know more than what they say? Also, will ALL people have some level of antibodies in their stool?

I would really like to get this done, but $350 is a bit steep, also, I have 3 kids I would like tested since all blood work was "inconclusive so don't worry about it" :huh: but all of us are feeling MUCH healthier on a gluten-free diet. (For example, my 6 yr old will get diarhea and start vomiting about 15-30 minutes from eating even trace amounts, which I think is something to worry about.)

Anyway, I like validation, though it's not absolutely necessary. :rolleyes:

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myself and 2 kids were tested thru enterolab. i think it was around 175 a piece. my 2yr old and i came back with celiac disease and my 5yr old w gluten sensitivity. my brother and mom were also tested. he came back with nothing and my mom has gluten sensitivity. it was extremely easy and convenient. i am all for enterolab testing. good luck in your decision

cdobbs

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My daughter and I were both tested through Enterolab and received positive results. I trust Dr. Fine and his way of testing and would highly recommend it.

Good luck to you and your family.

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Just for a different route, my blood tests were inconclusive, but I did better on the diet, so my doc said "guess you better stick with gluten-free then".

End of story, for me. A positive response to the diet IS a test as well.

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I agree, Tiffany. Even if I got back test after test saying I'm okay with gluten, I wouldn't eat it again. I get migraines from it. I used to get anywhere from 6-12xs a month (with a generalized headache all day, every day.) Not a good way to live. I've also not eaten any red meat in 15 years, why? Because I get sick whenever I do. I was tested negative for a beef allergy, but this hasn't done a thing to convince my stomach to not vomit everything 1/2 hour after even trace amounts of beef are eaten.

Anyway, fyi, I've been reading through as much literature on the Enterolabs testing as I could find. The University of Rome (Something Something) did a test of it and found the results of this kind of testing are a conclusive means for determining gluten intolerance/sensitivity/celiac disease. I read through the entire article and only felt a little boggled at the end. :blink: I wonder if this is how they manage to test everyone by the time they're 6 years old like I'd read somewhere. Also, if it's only $175 for the test, that's not nearly as bad as $350... :rolleyes: Anyway, I'm going to read up some more and, if it still looks like this is as well researched as it is, I'm going to do it.

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Here's the thing... the work Dr. Fine's doing and the work being done in Italy _sound_ like the same test, but as Dr. Fine has not yet published his methods (which I've heard he's working on), we can't know for sure that the lab methods themselves are similar - if they're not, the conclusion that Enterolab's results are accurate based on the Italian research is not logical. (_This_ is the heart of my beef with Enterolab. This sort of issue.) But, a lot of people have found them helpful, and the "urban legend" that "everyone tests positive" is not true, according to all the message boards I've read!

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Very interesting, Tiffany. Which, puts me in the exact same spot as before. Lol! How long has Dr. Fine been doing these tests?

And, since I accidentally got into gluten AGAIN this week (that's twice in one week where I've managed to avoid it for weeks and weeks prior!) I have no desire to return to a gluten consuming lifestyle anyway. Migraines suck :(

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He's been doing them for a while. And I'm really not trying to bad-mouth him in any way - it would not surprise me if, after he publishes his methods and others independently verify it - that his methodology is confirmed. It just has not been independently confirmed yet - that doesn't mean it's wrong. I come from an applied science background, which is why I'm so hung up on it, but they have done a lot of people on this board good, so I can't in good concious discourage anyone from using them. Then again, I'm diagnosed by dietary challenge, so you can see how much "objective" medical tests mean to me at the end of the day. ;-)

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    • Hi everyone, I've been reading this forum sporadically and have some questions of my own. I'm in my 40s and was diagnosed with celiac last December by biopsy and blood work after months of tests by my primary and then a gastro. My husband, around the same age as me, was dx'd with stage 4 cancer a month later, so admittedly it's took me longer than I'd have liked to learn about celiac. Now I feel pretty on top of my diet. I mostly make my own food - proteins and veggies, with some certified gluten-free snacks in the mix - and am pretty strict about what I will/won't eat at friend's houses or in restaurants (I prefer to go to dedicated gluten-free kitchens whenever possible). I'm doing okay on the diet, but still getting glutened every so often, usually when I let me guard down outside the home. I also periodically see my primary and a naturopath (who happens to have celiac!), but still, I have many questions if anyone would care to answer:

      -FATIGUE. I'm still so tired, fatigued so much of the time. My doctors blame this on the stress of my husband's diagnosis and my periodic trouble sleeping. But even during weeks where I'm sleeping enough (8-10 hrs a day), eating right, exercising as I can, trying to keep stress at bay, I'm still so bleeping tired. Maybe not when I wake up, but by late afternoon. Often my legs even feel weak/wooden. Has anyone else experienced greater fatigue early on after being diagnosed? This will pass, yes? I know I could cut out the sweets and that could help, but also, being a caregiver is hard and sometimes it's nice to eat your feelings between therapy sessions.  

      -SYMPTOMS CAUSED BY FATIGUE? Sometimes I'll have other "feels like I've been glutened" symptoms if I haven't gotten enough sleep, though I'm trying so hard to sleep at least 8 hours a night these days. Hasn't happened in a while thankfully, but there was a point this summer where my insomnia was bad and my arms were achy and I had some crazy flank/back pain I'd never experienced before. For weeks. Doctor ordered me to sleep sleep sleep, taking Benedryl if needed. I did, and the symptoms went away, but weird, yes? Has this happened to you? I ask because I want to make sure I'm getting all strange pains tested to the full extent if there's a chance it's something other than celiac. I do sometimes still feel that strange side stitch after a CC incident.

      -SKIN PROBLEMS. I have had a smidge of eczema since I was a teen and it - and the dermatitis herpetiformis I've acquired with my dx - are out of control right now. I recognize the connection with stress, but also, has anyone found any great natural remedies for DH to stop the itching? I've tried so many useless ointments and medicated creams, a number of them given to my by a dermo months ago. I see my naturopath this week, but thought I'd ask here too.

      -MOSTLY gluten-free KITCHEN GOOD ENOUGH? My husband is supportive of my diet and mostly eats gluten free meals with me, but we still keep a gluten-y toaster for him and the gluten-y dog food in a corner of the kitchen and he still makes the occasional meal with gluten for himself on his own cookware (ravioli, pizza, mac n cheese, etc). Or sometimes I make eggs/toast and the like for him when he's too sick to move. Otherwise, we're militant about how we cook, which cookware we use, etc. He even has a kitchen nook off our den where he makes sandwiches. But sometimes I wonder if having two separate sponges in our shared-ish main kitchen is enough and I should just banish all gluten whatsoever from the kitchen. I can't be the only one with a mixed kitchen, right? How do you do it if you have a mixed-eating family?

      Thank you so much!  
    • Hang in there!  Count your blessings.  Do something you like to do and relax. I know that is hard to do as a young mother (as I sit here in the kitchen sipping coffee quietly as my teenager is sleeping in after a late football game last night where she marched in 90 degree plus weather in full uniform).   But seriously, take a few minutes to relax!  
    • Meredith, this is very true. A colonoscopy is for diagnosis of the lower intestine, endoscopy for the upper intestine.  How did your doctor interpret the tests? I suggest you read the link Cycling Lady gave you because it contains a lot of good information. 
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    • Thank you for posting that. I've had a lot of that bloodwork done and everything is normal. At the peak of this belly bug I had blood work done and my white count was fine. I think it's just my health anxiety scaring me into thinking this is something scarier (to me) than celiac. Maybe the anxiety will subside once I go gluten-free. The anxiety is brutal.
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