Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Help Celiac.com:
    eNewsletter
    Donate

Thyroid Help Anti Tpo Is 757


CatandCanary

Recommended Posts

CatandCanary Rookie

I'm hoping someone can help. I have been feel ill and my doctor did some tests. Can someone tell me about Anti TPO test and what could cause it to be at 757.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



georgie Enthusiast

A high TPO is usually a dx for Hashimotos Thyroid - an autoimmune thyroid. What did you Dr say? Are you on Thyroid meds ? If so , they are not controlling your antibody attacks. A high TPO means you have lots of Antibodies attacking your Thyroid. The TSH is not accurate at this stage. You need to dose to suppress the Antibodies before they totally destroy your Thyroid. Armour does that.

Link to comment
Share on other sites
CatandCanary Rookie
A high TPO is usually a dx for Hashimotos Thyroid - an autoimmune thyroid. What did you Dr say? Are you on Thyroid meds ? If so , they are not controlling your antibody attacks. A high TPO means you have lots of Antibodies attacking your Thyroid. The TSH is not accurate at this stage. You need to dose to suppress the Antibodies before they totally destroy your Thyroid. Armour does that.

Hi georgie,

I went to a new doctor to request Armour for my thyroid and she did some tests and is sending me back to my GP. She said Armour is not a good idea for me because my TSH is on the high side, she said my test result are consistant with Hashimotos and is lowering my thyroid medication.

I am realy confused about what is going on. Why is the Anti TPO so high and what is causeing it. Im realy tired and sick. Last night I couldn't sleep because my feet felt like a cat was puring on them, that is the only way I can discribe it.

Thank you for your help.

Cat

Link to comment
Share on other sites
georgie Enthusiast
I went to a new doctor to request Armour for my thyroid and she did some tests and is sending me back to my GP. She said Armour is not a good idea for me because my TSH is on the high side, she said my test result are consistant with Hashimotos and is lowering my thyroid medication.

I am realy confused about

Its not you that should feel confused - its your Dr. The most successful med to lower a TSH and lower Antibodies is Armour. Your Dr is young ? Most Drs trained in the last 40 years have no working knowledge of Armour, and like ostriches with their heads in the sand - refuse to even research it or update their training. I can only suggest you find another Dr that understands Hashimotos and Armour. I really can't understand at all what your Dr is talking about. Armour lowers TSH ( which is a useless way to test Hashis ) brilliantly. But a Dr that only understands TSH is a Dr that only understands basic Thyroid - and you need to run from this Dr.

Armour is as close to bio identical to what your own body produces ( or would produce if it were healthy). Its perfectly stable, and potency is accurant. In fact - Synthroid has had a few batch recalls in the last few years due to inaccurate potencies. Not Armour. I love taking Armour. It feels so .....good....and so ....right. Read STTM or any yahoo list and you will hear 1000s of similar stories.

Link to comment
Share on other sites
nutralady2001 Newbie

Hello, I have been a member here for a little while but haven't posted up until now.

What georgie said is true

TSH is not a good diagnostic tool...having said that if you have a high TSH your meds should be increasing not decreasing.

The tests you need are FREE T3 and FREE T4. The Free T3 should be at the top of the range and the Free t4 around the 3/4 mark.

If you have Hashimoto's Disease then it is best to aim for a TSH close to zero, because that will reduce the antibodies.

I spent nearly 12 years on synthetic T4

9 months ago I switched to Armour and it's the best decision I have ever made

Link to comment
Share on other sites
CatandCanary Rookie
Hello, I have been a member here for a little while but haven't posted up until now.

What georgie said is true

TSH is not a good diagnostic tool...having said that if you have a high TSH your meds should be increasing not decreasing.

The tests you need are FREE T3 and FREE T4. The Free T3 should be at the top of the range and the Free t4 around the 3/4 mark.

If you have Hashimoto's Disease then it is best to aim for a TSH close to zero, because that will reduce the antibodies.

I spent nearly 12 years on synthetic T4

9 months ago I switched to Armour and it's the best decision I have ever made

Hi nutralady,

Thanks for your information. I am going to the GP tomorrow morning and this info will help when she shows me the test result. I am hoping that someone made a mistake on reading them to me over the phone. If not I am getting a copy of the results and going to a private practice doctor as a last resort. None of what this new doctor is doing makes good with me. My first question will be why didn't the doctor that took the test explain them to me or tell me what was going on instead of just sending me to the GP. She did seem to be be a good doctor but looks are not going to get me better. I'm getting to the point that I am not feeling I can keep working. I have been with my job or 17 years and never had this much trouble with my health. On the other hand now I know I can not eat gluten. I have been doing OK on the diet but find I have made a lot of mistakes for the last 3 months. Thanks again.

Cat

Link to comment
Share on other sites
CatandCanary Rookie

Hi Everyone,

I went to the GP yesterday, she said my T4 was a little high and my T3 was normal. She said she had no idea why I am having so much pain all over my body. I had brain fog and forgot to ask her about the Anti TPO levels. She gave me a new dose on the thyroid meds and said they don't put people on Armur anymore and gave me a long story of why. I am not giving up on the Armur yet, just at a stand off with doctors. My doctor is going to run a B12 test and a test for Porphyria. She said the Porphyria is a long shot but wants to rule it out.

Thanks to all of you for helping me. If anyone comes up with ideas for the Anti TPO leves please let me know.

Cat

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dionnek Enthusiast

Just curious, why did she say they don't put people on Armour anymore? I just wonder why, other than the fact that the pharmacy companies are controlling drs now :)

Link to comment
Share on other sites
georgie Enthusiast
and said they don't put people on Armur anymore and gave me a long story of why. I am not giving up on the Armur yet, just at a stand off with doctor
And this person has a Drs license :lol: Sounds like another Dr being controlled by Big Pharma.

If anyone comes up with ideas for the Anti TPO leves please let me know

I am not sure what this means. The best way to get those TPO Antibodies to 0 where they should be - is enough Armour.

Link to comment
Share on other sites
CatandCanary Rookie
Just curious, why did she say they don't put people on Armour anymore? I just wonder why, other than the fact that the pharmacy companies are controlling drs now :)

Hi dionnek,

She said it had something to do with the T3 and that if you start taking Armour your 3T will become dependant on it. She also said that most people on Armour are old people who were started on it years ago. It seems that most doctors with HMO plans are not wanting to put people on Armour. When that happens it makes me feel that maybe it is related to contracts and agreements with drug companies. Do you know if Armour is more costly? Do HMO's get cheeper drugs than the smaller practic Co. ? I wonder if it is polatices.

Do you think I should rule out the Thyroid being the problem if my test came out high T4 and normal T3?

I was realy not feeling well when I went to the doctor. I hope this helps.

Cat

Link to comment
Share on other sites
georgie Enthusiast
Do you know if Armour is more costly?

What many are thinking.... Armour is TOO good. It controls HypoThyroid, depression, high cholestrol, osteoporous, obesity, hypoglycemia,muscle pain,type 2 diabetes etc etc etc So you add up what all THOSE meds cost and see how one pill that replaces all of those is going to cost the drug companies big $$$s. Sadly - there is more profit in keeping people sick. If you are well you wouldn't need a Dr ! He would be out of a job ! This is just my own gut feeling and also the popular opinion on the Thyroid Lists. Believe it or not. And most Drs are trained by drug companies - even at med school.

I have read from a Drs page on Mary Shomon's site that back in the 50s that Armour was also used as a cholesterol med. If you had high cholesterol you were put on Armour to lower it.

Cat, You have high Antibodies. They attack your Thyroid and kill it. You can wait another 5, 10 years until its completely non functioning, or you can take a med that works and will stop any further damage. Your Dr is wrong - Armour is used by LOTS and they aren't all old :lol: In fact - its more the younger people that have computer access and can learn about it - and all its benefits - that are using it.

Link to comment
Share on other sites
nutralady2001 Newbie
What many are thinking.... Armour is TOO good. It controls HypoThyroid, depression, high cholestrol, osteoporous, obesity, hypoglycemia,muscle pain,type 2 diabetes etc etc etc So you add up what all THOSE meds cost and see how one pill that replaces all of those is going to cost the drug companies big $$$s. Sadly - there is more profit in keeping people sick. If you are well you wouldn't need a Dr ! He would be out of a job ! This is just my own gut feeling and also the popular opinion on the Thyroid Lists. Believe it or not. And most Drs are trained by drug companies - even at med school.

I have read from a Drs page on Mary Shomon's site that back in the 50s that Armour was also used as a cholesterol med. If you had high cholesterol you were put on Armour to lower it.

Cat, You have high Antibodies. They attack your Thyroid and kill it. You can wait another 5, 10 years until its completely non functioning, or you can take a med that works and will stop any further damage. Your Dr is wrong - Armour is used by LOTS and they aren't all old :lol: In fact - its more the younger people that have computer access and can learn about it - and all its benefits - that are using it.

Hi Cat and Georgie.

Cat I am in a couple of American thyroid groups and I know some of the girls say it is cheaper to just buy their Armour without going through the insurance company, they just put their script in and get it filled.

It is not true that Armour is not being prescribed

Why on earth would she lower your meds if you have a high TSH.It doesn't make sense

My TSH is 0.01 That is the aim with Hashi's to reduce the antibodies you have to lower the TSH

Your T3 will become dependant on it???? No!

For good health you need an FT3 at the top of the range.If your thyroid is not producing hormone then you have to replace it

Although the FT4 converts into FT3 your thyroid gland if it was healthy would produce T1, T2, T3, t4 and calcitonin.

It is not healthy so you must give it those missing hormones

Link to comment
Share on other sites
CatandCanary Rookie
Hi Cat and Georgie.

Cat I am in a couple of American thyroid groups and I know some of the girls say it is cheaper to just buy their Armour without going through the insurance company, they just put their script in and get it filled.

It is not true that Armour is not being prescribed

Why on earth would she lower your meds if you have a high TSH.It doesn't make sense

My TSH is 0.01 That is the aim with Hashi's to reduce the antibodies you have to lower the TSH

Your T3 will become dependant on it???? No!

For good health you need an FT3 at the top of the range.If your thyroid is not producing hormone then you have to replace it

Although the FT4 converts into FT3 your thyroid gland if it was healthy would produce T1, T2, T3, t4 and calcitonin.

It is not healthy so you must give it those missing hormones

Georgie and Nutralady,

Thank you for all this information, I am going to print this up and take it to the doctor with me the next time I go. I did not know about the T1 and T2, I am going to get the test results in the mail any day now and I will most deffanatly take a look into getting info on where I can buy it, if my doctor will not give it to me. If I don't start feeling better soon I'm not going to wait to long before I call her back and go in. My GP only went over the T3 and T4 nothing else. When I get the results back I will be able to see it in black and white. No more over the phone or from the doctor. I have some property in Mexico that I visit 2 time a year, and if I have to, I will get a doctor there. I'm despret to get help, the state of mind I am in now, I am suprised I can even remember my own name.

Your help has been very appriciated.

Thank you so much.

Cat

Link to comment
Share on other sites
CatandCanary Rookie
Georgie and Nutralady,

Thank you for all this information, I am going to print this up and take it to the doctor with me the next time I go. I did not know about the T1 and T2, I am going to get the test results in the mail any day now and I will most deffanatly take a look into getting info on where I can buy it, if my doctor will not give it to me. If I don't start feeling better soon I'm not going to wait to long before I call her back and go in. My GP only went over the T3 and T4 nothing else. When I get the results back I will be able to see it in black and white. No more over the phone or from the doctor. I have some property in Mexico that I visit 2 time a year, and if I have to, I will get a doctor there. I'm despret to get help, the state of mind I am in now, I am suprised I can even remember my own name.

Your help has been very appriciated.

Thank you so much.

Cat

Hi everyone,

I received my test results in the mail.

TSH, 3rd Generation 0.042

T4 Free 1.8

Tissue Transglutaminase IGG <3

Tissue Transglutaminase IGA <3

My Glucose Fasting test is 101 Border Line

The doctor recomends to lower the dose of Levothroid and changing to Armour would not be a good thing because Armour has more T3 in it and would make things worse. I am now taking 0.088mg of Levothroid.

Reading the other post on here, it looks like they don't realy look at the TSH when you have Hashimoto's Thyroiditis, is that correct? My doctor said I have Hashimoto's Thyroiditis now, what is the differance between having hypothyroid and Hashimoto's or are they the same thing?

Thanks for your help

Cathy

Link to comment
Share on other sites
georgie Enthusiast
The doctor recomends to lower the dose of Levothroid and changing to Armour would not be a good thing because Armour has more T3 in it and would make things worse. I am now taking 0.088mg of Levothroid.

Reading the other post on here, it looks like they don't realy look at the TSH when you have Hashimoto's Thyroiditis, is that correct? My doctor said I have Hashimoto's Thyroiditis now, what is the differance between having hypothyroid and Hashimoto's or are they the same thing?

Hashimotos is an autoimmune disease of your Thyroid. Its HypoThyroid but in an autoimmune way. Sometimes it even has symptoms of hyperthyroid - but that is just an acute flareup.

It means the TSH is virtually useless and not useful to dose by. All bets are off when you have Hashis. You have to dose to suppress the TSH as much as possible ( get it to 0) and reduce Antibodies to 0. If you don't do that - the Antibodies will keep attacking your Thyroid and killing it. They will eventually attack so much they cause Thyroid Cancer or just complete Thyroid failure.

Did your Dr test Antibodies again or is this the same test as before ( 757)

More T3 from Armour will not make you worse. It will make you better. Armour will suppress your TSH, get rid of your Antibodies and make you feel well - better than any other med. It is completely natural and as close to bio identical as our own Thyroids as possible. It replaces what your own Thyroid can't do. Some people use a synthetic T4/T3 combo - but most don't seem to get as good results as straight Armour.

Your current med isn't working - as you have Antibodies of 757. What more proof does this Dr need ? Sorry - you need a new Dr.

Link to comment
Share on other sites
CatandCanary Rookie
Hashimotos is an autoimmune disease of your Thyroid. Its HypoThyroid but in an autoimmune way. Sometimes it even has symptoms of hyperthyroid - but that is just an acute flareup.

It means the TSH is virtually useless and not useful to dose by. All bets are off when you have Hashis. You have to dose to suppress the TSH as much as possible ( get it to 0) and reduce Antibodies to 0. If you don't do that - the Antibodies will keep attacking your Thyroid and killing it. They will eventually attack so much they cause Thyroid Cancer or just complete Thyroid failure.

Did your Dr test Antibodies again or is this the same test as before ( 757)

More T3 from Armour will not make you worse. It will make you better. Armour will suppress your TSH, get rid of your Antibodies and make you feel well - better than any other med. It is completely natural and as close to bio identical as our own Thyroids as possible. It replaces what your own Thyroid can't do. Some people use a synthetic T4/T3 combo - but most don't seem to get as good results as straight Armour.

Your current med isn't working - as you have Antibodies of 757. What more proof does this Dr need ? Sorry - you need a new Dr.

Hi Geogie,

Thank you for getting back to this so fast. (757) is the last test the same one as before. I have not been asked to repeat the test yet, she requested I do it in 2 to 4 months. At this point I feel let down by my HMO and they did not make it clear about why my Anibodies are so high they said "Your antibodies are positive consistent with the diagnosis of Hashimoto's thyroiditis." I have been on the Levothroid for many months now and that should be taking care of the Antbodies if it is going to. I am waiting for on-line papers from Kaiser to e-mail my doctor directly. They should be here in a few days. I am wondering how I would get some help dealing with Kaiser to get a second opinion and maybe an explaination of why my numbers are so high and what it will take to get them right. I don't realy care for this doctor because she didn't follow up with me on this and just sent me back to the GP. I don't understand why both of them seem to not care enough about this to talk about it in person. I feel something should be done. I am going to call Kaiser right now and ask them to send a note to the doctor asking her why my anibodies are still high even with medication and should I exspect them to go down after lowering my Levothroid or is she just going to let my thyroid die.

Now I'm a little steamed. Sorry.

Thanks for your help, I realy needed it.

Cat

Link to comment
Share on other sites
Rachel--24 Collaborator

Cat,

I'm sorry you're going through all this. :(

I have experience with autoimmune thyroid disease. It was the opposite of Hashi's....I had Graves Disease...nevertheless my immune system was attacking my thyroid....causing it to produce too much hormone.

You are asking why you're antibodies are so high?? That is an extremely difficult question to answer....noone here can answer that question for you.

After much research on the subject....its my belief that something else going on in the body leads to autoimmune problems...usually a chronic/hidden infection.

If this is the case you may be able to stabilize your thyroid through meds but this wont necessarily stop the autoimmune attack from occurring.

I take Armour. I'm in the U.S. and I have no problem getting Armour prescriptions. I've switched Dr.'s numerous times and everyone I've seen has had no problem prescribing Armour. In fact the first Dr. to prescribe it to me was my Endocrinologist from my previous HMO.

He prescribed it at my request after first giving me some warnings about the T3 in the Armour. The only reason I take Armour is because I'm sensitive to the dyes in synthetics and prefer the natural stuff. I feel no different on Armour...other than that.

Its been several years since my troubles first started with my thyroid going Hyper. I dont find thyroid meds to be a "magic cure" for me....although I do need to be on them.

My autoimmune thyroid problems turned out to be a direct result of undiagnosed Lyme Disease...the thyroid disease was actually the first sign of something not being right.

No amount of Armour was going to "cure" me......nor did any type of thyroid treatment halt the assault my immune system was launching on my thyroid.

I dont believe there is a conspiracy about Dr.'s holding back Armour because they dont want us to become well. Its just not true. Armour isnt a miracle pill.....like any medication....some people respond better to it...while someone else may do better on Synthroid.

You gotta do what works best for you.

I'm not one who believes that the body just starts attacking itself for no good reason. There is something behind it.

This is the definition of Autoimmune Disease...

autoimmune disease
Link to comment
Share on other sites
Rachel--24 Collaborator
I am going to call Kaiser right now and ask them to send a note to the doctor asking her why my anibodies are still high even with medication and should I exspect them to go down after lowering my Levothroid or is she just going to let my thyroid die.

I see that you have Kaiser. <_<

I had Kaiser during my first 3 years of illness. I had no trouble getting Armour from my Endo....however....I only got worse under their care. The main reason....they specialize in disease. They do not care about the cause of disease....nor do they look for the cause.

They treated my thyroid and that was about it. I didnt get better and since no other disease was showing up....there was nothing more for them to do.

They said I might have more autoimmune stuff occurring but would have to wait until it was something that was identifiable in a test. Sometimes it takes awhile to fully develop.

Now...why the heck would I want to wait around to get more disease?? :blink:

They said once my thyroid had been treated and the levels were normal....it wasnt important if there were still antibodies present.

It may not have been important to them but it was certainly important to me. The best thing I ever did was leave Kasier and start getting some real answers.

Link to comment
Share on other sites
loraleena Contributor

I have Hashimotos diagnosed by antibodies of 799. I was on Armour now on Cytomel, but might go back to Armour. All the info from everyone else about Armour is correct. Find a doc to prescribe. I urge you to go to Dr. Lowe.com and read all about this. He is my doctor as well as his wife. Having pain all over is definitley a sign of thyroid issues. Dr. Lowe has cured many fibromyalgia patients through his thyroid treatment.

Link to comment
Share on other sites
CatandCanary Rookie
I see that you have Kaiser. <_<

I had Kaiser during my first 3 years of illness. I had no trouble getting Armour from my Endo....however....I only got worse under their care. The main reason....they specialize in disease. They do not care about the cause of disease....nor do they look for the cause.

They treated my thyroid and that was about it. I didnt get better and since no other disease was showing up....there was nothing more for them to do.

They said I might have more autoimmune stuff occurring but would have to wait until it was something that was identifiable in a test. Sometimes it takes awhile to fully develop.

Now...why the heck would I want to wait around to get more disease?? :blink:

They said once my thyroid had been treated and the levels were normal....it wasnt important if there were still antibodies present.

It may not have been important to them but it was certainly important to me. The best thing I ever did was leave Kasier and start getting some real answers.

Hi Rachel,

Thank you for all this info it is all so hard to understand. It is even harder when you feel so sick. I know you know the feeling. I can't beleive that people out there realy do care. It helps to get as much input as possible somehow it makes feeling like this better.

I know there is an answer and you are one that keeps giving me hope, thank you.

I think you are correct when you say there is something else going when your numbers are so high. I have tried so hard to keep myself healthy from the time I was very young. It is so hard to take when my body just doesn't work for me.

I'm so glad that you are out there.

Thanks again

Cathy

Link to comment
Share on other sites
CatandCanary Rookie
I have Hashimotos diagnosed by antibodies of 799. I was on Armour now on Cytomel, but might go back to Armour. All the info from everyone else about Armour is correct. Find a doc to prescribe. I urge you to go to Dr. Lowe.com and read all about this. He is my doctor as well as his wife. Having pain all over is definitley a sign of thyroid issues. Dr. Lowe has cured many fibromyalgia patients through his thyroid treatment.

Hi loraleena,

Your number is higher than mine. Are they still that high? What did your doctor say about what was the cause of them to be so high? I will look at Dr. Lowe's web page tonight, thank you for letting me know about it. I want to find as much help as possible. The pain is real hard to take. I don't want to take pain medication because I don't like the way it makes me feel.

Thank you for your help

Cathy

Link to comment
Share on other sites
georgie Enthusiast
The pain is real hard to take. I don't want to take pain medication because I don't like the way it makes me feel.

Pain for me was a symptom of adrenal fatigue. I had the saliva tests with a good Dr , and it showed up. Previously to that I had been told it was Fibromyalgia and given pain meds. To help the adrenals last year, I was given HydroCortisone and after 6 months can say that I can feel like I have healed and am starting to wean off. Many on the Thyroid Lists say the same. Adrenals problems go with Thyroid problems a lot.

Link to comment
Share on other sites
loraleena Contributor

Last check they were at 159. I am getting them checked this Friday and let you know. I am also on Isocort for adrenals.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,458
    • Most Online (within 30 mins)
      7,748

    RUTHANN BRANOFF
    Newest Member
    RUTHANN BRANOFF
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      And the fact is, no two celiacs will necessarily respond the same to gluten exposure. Some are "silent" celiacs and don't experience obvious symptoms. But that doesn't mean no harm is being done to their gut. It just means it is subclinical. 
    • AlyO
      Thank you, Trents.  I appreciate your helpful and friendly reply. It seems more likely to be a bug.  It has been a pretty severe bought. I feel that I don’t have enough experience to know what signs my little one shows after exposure to gluten. 
    • trents
      Hannah24, be aware that if you are on a gluten free diet, you will invalidate any further testing for celiac disease (except genetics) and would need to go back to eating significant amounts of gluten for weeks or months to qualify for valid testing.
    • knitty kitty
      Hello, @Hannah24 Have you had a DNA test done?  Celiac Disease is genetic.  You must have at least one gene to develop celiac disease.  You don't have to be consuming gluten for a genetic test.   Anemia, diabetes and thiamine deficiency can cause false negatives.  Some lucky people are seronegative, but still have celiac disease.  Peripheral neuropathy, tingling in hands and feet are symptoms of vitamin deficiencies.  Vitamin C, Thiamine B1, Niacin B3, Pyridoxine B6, and Cobalamine B12 can each cause peripheral neuropathy.  These same vitamins are needed to produce blood cells.  Most undiagnosed Celiacs suffer from nutritional deficiencies. The DNA test would be helpful.
    • trents
      We do hear of cases of remission but they generally eventually revert back. I wouldn't push your luck.
×
×
  • Create New...