Thank you! My PA said that she still thinks it's celiac....but I don't feel like she's fully explained why. Some people are hard to get a solid answer out of! I think I'm gonna get a second opinion somewhere else.....appreciate the feedback. Makes me feel a little less crazy
Among this online community you are not alone in either your symptoms or how you feel about visiting the doctor. I for one understand the anxiety that you are going through, my own weird nerve stuff and other puzzling symptoms have had me really scared at times.
So much you are going through could very well be gluten related, it really could. But if it isn't, in the end it is worth trying to find out what it is going on so you can get the treatment you deserve. After all, it could have a really simple, treatable explanation, once the doctors know what it is.
I remember reading on another website something that has helped me with my own health anxiety - if one can summon up the courage to go and see the doctor, one should pat oneself on the back and be proud of oneself for doing the right thing. I'm not terribly keen on the idea of being a proud person - but I think it was meant in the best sense, and it is always good to do the right thing, even if one does it afraid! It always makes me feel that bit stronger when I'm in the waiting room at the doctors!
There is lots of great advice above. Do take it and make sure you come back if you need further support. There are some fantastic people here to help.
Hi Elle......do you think you would have better luck obtaining a full Celiac panel from your GP or a gastro doc? You really need to be tested for Celiac because of all your symptoms. Many other people probably thought they were dying of some horrible disease because they had so many symptoms that docs ignored. Very common problem for us. Plus, your Mom has had "IBS" all her life. I should add that IBS is not a diagnosis. No one needs to be told their bowel is irritated......they already know that. This is where the medical establishment, no matter where you live in this world, fail us. They need to find the root cause and there always is one. You also do not need to have any gastro issues to be a Celiac but you do have some, along with all your symptoms mentioned.
Anxiety is a huge problem with Celiac Disease and for many, it goes away just fine on the gluten-free diet, without need of meds...which should always be a last resort measure. I have never had an anxiety problem in my entire life until after I was diagnosed with Celiac. I may have had it but with all the other numerous symptoms I had, the anxiety may have gotten buried somewhere. But guess what? On the extremely rare occasion when I am glutened or cc'd, I get major anxiety for about 4 days and then its gone.
B12 is a water soluble vitamin so whatever you don't use, it exits the body in your urine. It is pretty damn hard to overdose on the stuff. I take a B vitamin everyday, very high quality ones and my B12 is usually in the high 600 range. Optimally, it should be between 650-800 so yours was abysmal pre-supplementation. Absorption can also be affected by PPI's. You did notice improvement with the tingling sensation and fatigue once your levels were way up so take notice of that.
My biggest advice is to get your mother and you tested for celiac, with a FULL PANEL. Then you'll have to wait and see what that shows. You could always trial a gluten-free diet if all testing is complete and the results were either negative or inconclusive. That sometimes happens with people, especially if they have Celiac's other cousin......non-celiac gluten intolerance. This would be the best route to go with regards to your anxiety, unless it becomes disabling and you need meds, short term. Make sure you tell them that anxiety is a HUGE symptom of Celiac and it is not normal for younger people to have extreme anxiety like that, for no reason.
Good luck to you and please call and make the appointment. I understand your fear....I hate doctors and it's pure mistrust. But sometimes you have to address a problem head on.
good to know. I am not going for a biopsy. I do not have health insurance, i know i know please no political comments. My children do. My husband and I don't right now. If we lived in another state, we would have coverage. I just made an appt to do a full blood panel for my daughter this week. I would rather find some confirmation for her through a blood test, i feel a scope is too invasive for a child.